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Abstracts tagged "Surveys"

  • Abstract Number: 1611 • ACR Convergence 2021

    A Population-Based Evaluation of Telemedicine Use and Satisfaction in SLE Patients During the COVID-19 Pandemic in Atlanta, Georgia

    Sarah Simmons1, Cristina Drenkard2, Gaobin Bao2, Charmayne Dunlop-Thomas2, Kim Schofield2 and S Sam Lim3, 1Duke University, Durham, NC, 2Emory University, Atlanta, GA, 3Department of Medicine, Division of Rheumatology, Emory University School of Medicine, Atlanta, GA

    Background/Purpose: The COVID-19 pandemic resulted in the shift from in-person physician appointments to the development and proliferation of the use of telemedicine in an attempt…
  • Abstract Number: 0784 • ACR Convergence 2021

    Use of EuroLupus Cyclophosphamide Dosing for the Treatment of Lupus Nephritis in Childhood-Onset Systemic Lupus Erythematosus in North America

    Laura Cannon1, Scott Wenderfer2, Laura Lewandowski3, Jennifer Cooper4, Beatrice Goilav5, Andrea Knight6, Aimee Hersh7, Stacy Ardoin8 and Rebecca Sadun1, 1Duke University, Durham, NC, 2Baylor College of Medicine, Houston, TX, 3NIAMS, NIH, Rockville, MD, 4University of Colorado/Children's Hospital Colorado, Denver, CO, 5Children's Hospital at Montefiore, Bronx, NY, 6Hospital for Sick Children, Toronto, ON, Canada, 7University of Utah, Salt Lake City, UT, 8Nationwide Children's Hospital, Columbus, OH

    Background/Purpose: Childhood-onset systemic lupus erythematosus (cSLE) has higher rates of lupus nephritis (LN) than adult-onset SLE, often requiring intensive immunosuppression. This study examined North American…
  • Abstract Number: 1843 • ACR Convergence 2021

    Perceptions and Concerns Regarding COVID-19 Vaccination in Patients with Systemic Sclerosis in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort

    Jessica Gordon1, Kimberly Showalter1, Yin Wu2, Linda Kwakkenbos3, Marie-Eve Carrier4, Richard Henry2, Nora Østbø2, Julia Nordlund2, Angelica Bourgeault2, Mara Canedo Ayala2, Marie-Nicole Discepola2, Andrea Carboni Jiménez2, Christopher Denton5, Luc Mouthon6, Brett Thombs7 and Robert Spiera1, 1Hospital for Special Surgery, New York, NY, 2Lady Davis Institute of the Jewish General Hospital, Montréal, QC, Canada, 3Department of Clinical Psychology, Radboud University Behavioural Science Institute, Nijmegen, Netherlands, 4Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, QC, Canada, 5University College London Division of Medicine, Centre for Rheumatology and Connective Tissue Diseases, London, United Kingdom, 6Hopital Cochin - Paris University, Paris, France, 7Lady Davis Institute for Medical Research, Jewish General Hospital; Department of Psychiatry, McGill University, Montréal, QC, Canada

    Background/Purpose: Hesitancy about COVID-19 vaccination exists among patients with rheumatic and musculoskeletal diseases, but previous studies have not assessed this specifically in patients with systemic…
  • Abstract Number: 0799 • ACR Convergence 2021

    Relationships of Rheumatology Care and Patient Experiences to Rheumatoid Arthritis Remission

    Kelly O'Neill1, Kathryne Marks2, Pamela Sinicrope3, Cynthia Crowson4, Elena Myasoedova3 and John Davis3, 1Rheumatoid Patient Foundation, Lutz, FL, 2Rheumatoid Patient Foundation, Boston, MA, 3Mayo Clinic, Rochester, MN, 4Mayo Clinic, Eyota, MN

    Background/Purpose: Remission is a well-established optimal outcome in rheumatoid arthritis (RA) treatment, yet a minority of patients reach this goal. There is not one recognized…
  • Abstract Number: 0824 • ACR Convergence 2021

    Physicians’ Reasons for Prescribing Janus Kinase Inhibitors (JAKi) in Patients with Rheumatoid Arthritis, and Associated Alignment Between Physicians and Patients in a Real-world Clinical Setting

    Peter C Taylor1, Bruno Fautrel2, Yves Piette3, Susana Romero-Yuste4, Jasper Broen5, Martin Welcker6, Elizabeth Holdsworth7, Monia Zignani8, Katrien Van Beneden8, Roberto Caporali9 and Rieke Alten10, 1University of Oxford, Oxford, United Kingdom, 2Pitié Salpêtrière Hospital, APHP, Sorbonne Université, Paris, France, 3AZ Sint-Jan Brugge-Oostende AV, Bruges, Belgium, 4Complejo Hospitalario Universitario de Pontevedra, Pontevedra, Spain, 5Maxima Medical Centre, Veldhoven, Netherlands, 6MVZ für Rheumatologie, Planegg, Germany, 7Adelphi Real World, Bollington, United Kingdom, 8Galapagos, NV, Mechelen, Belgium, 9Policlinico S. Matteo University, Pavia, Italy, 10Schlosspark-Klinik University, Berlin, Germany

    Background/Purpose: Shared decision making, a cornerstone of rheumatoid arthritis (RA) management1, allows physicians and their patients to make informed decisions about their treatment goals and…
  • Abstract Number: 0882 • ACR Convergence 2021

    COVID-19 Impact Among Patients with Systemic Lupus Erythematosus

    Jose Rubio1, Suzanne krishfield1 and Vasileios Kyttaris2, 1Beth Israel Deaconess Medical Center/Harvard Medical School, Boston, MA, 2BIDMC, Boston, MA

    Background/Purpose: Initial studies of SLE patients with COVID-19 revealed an increased risk for severe disease in people with distinct demographic features such as advanced age…
  • Abstract Number: 1055 • ACR Convergence 2021

    How to Optimize E-Recruitment Strategies: Lessons Learned from over 3000 Participants in an International Arab Online Study

    Ihsane Hmamouchi1, Lina El Kibbi2, Nizar Abdulateef3, Basel Masri4, Hussein Halabi5, Mervat Eissa6, Manal El Rakawi7, Fatemah Abutiban8, Wafa Hamdi9, Mona Metawee2, Antonella Abi Najm10, Asal Adnan3, Renaud Felten11, Laurent Arnaud11 and Nelly Ziade12, 1Rheumatology Unit, Temara Hospital, Laboratory of Biostatistics, Clinical Research and Epidemiology (LBRCE), Faculty of Medicine and Pharmacy, Mohammed V University, Rabat, Morocco, 2Specialized Medical Center, Riyadh, Saudi Arabia, 3Rheumatology Unit, Department of Medicine, College of Medicine, University of Baghdad, Baghdad, Iraq, 4Jordan Hospital, Amman, Jordan, 5King Faisal Specialist Hospital and Research Center, Jeddah, Saudi Arabia, 6Cairo University, Cairo, Egypt, Cairo, Egypt, 7Rheumatology Department, Douera Hospital, Faculty of Medicine, Saad Dahlab, Blida, Algeria, 8Rheumatology Unit, Department of Medicine, Jaber Alahmed Alsabah Hospital, Kuwait City, Kuwait, 9Rheumatology Department, Kassab Institute of Orthopedics, UR17SP04, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, Tunisia, 10Faculty of Medicine, Saint-Joseph University, Beirut, Lebanon, 11Department of Rheumatology, French National Reference Center for Autoimmune Diseases (CRMR RESO), Strasbourg, France, 12Rheumatology Department, Saint-Joseph Medical University and Hotel-Dieu de France Hospital, Beirut, Lebanon

    Background/Purpose: The use of online surveys as a recruitment tool for clinical research has increased during the COVID-19 pandemic and will likely continue to expand.…
  • Abstract Number: 1156 • ACR Convergence 2021

    Impact of Treatment Experience on Patient Preferences and Disease Burden in Psoriatic Arthritis: Results from a Rheumatology Patient Research Registry

    Jessica Walsh1, Kelley Myers2, Carol Mansfield2, William Tillett3, Peter Nash4, Colton Leach2, William Nowell5, Kelly Gavigan5, Patrick Zueger6, Erin McDearmon-Blondell7 and Alexis Ogdie-Beatty8, 1Salt Lake City Veteran Affairs Medical Center (VAMC)/University of Utah Hospital, Salt Lake City, UT, 2RTI Health Solutions, Research Triangle Park, NC, 3Royal National Hospital for Rheumatic Diseases, Bath, United Kingdom, 4Griffith University, Brisbane, Australia, 5Global Healthy Living Foundation, Upper Nyack, NY, 6AbbVie Inc., Mettawa, IL, 7AbbVie Inc., Elmhurst, IL, 8University of Pennsylvania, Philadelphia, PA

    Background/Purpose: To optimize patient-provider shared decision-making, it is important to understand patients’ experience with psoriatic arthritis (PsA) and its treatment, including how treatment experience may…
  • Abstract Number: 1157 • ACR Convergence 2021

    Patient Perspective on the Non Medical Switch of Originator to Its Biosimilar in Inflammatory Arthritis Using a Social Media Survey

    David Vega Morales1, Alejandro Garza-Alpirez2 and Carlos Andrés Díaz-Garza2, 1Hospital Universitario, Garcia, Mexico, 2Tecnologico de Monterrey, Escuela de Medicina y Ciencias de la Salud, San Pedro, Mexico

    Background/Purpose: The use of biosimilars instead of its originator is a controversial subject with many implications. It is considered that a non medical switch should…
  • Abstract Number: 1159 • ACR Convergence 2021

    Improving Healthcare Transition Implementation: Recommendations from Young Patients with Rheumatic Conditions

    Courtney Wells1, Peter Chira2, Dana Guglielmo3, Stacy Ardoin4, Katelyn Melcher5, Meghan Trimble6 and Kristine Carandang7, 1University of Wisconsin-River Falls, White Bear Lake, MN, 2Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA, 3Student, Atlanta, GA, 4Nationwide Children's Hospital, Columbus, OH, 5Patient Partner, Ankeny, IA, 6Patient Partner, Minneapolis, MN, 7Independent, San Diego, CA

    Background/Purpose: Implementation of structured healthcare transition processes remains elusive for most US rheumatology clinics (Johnson et al., 2021). Although research studies have proposed models and…
  • Abstract Number: 1166 • ACR Convergence 2021

    Marijuana Use Amongst Rheumatology Patients: It’s More Common Than Rheumatologists Believe

    Rebecca Fitzpatrick1, Najia Shakoor2, Michael Grant2 and Sonali Khandelwal2, 1Rush University Medical Center, Chicago, IL, 2Rush University, Chicago, IL

    Background/Purpose: With the legalization of marijuana in many states, rheumatologists are having increased inquiries from patients regarding marijuana use in addition to their pain regimen.…
  • Abstract Number: 0009 • ACR Convergence 2020

    Prevalence of Hydroxychloroquine and Chloroquine Side Effects in Rheumatology Patients: A Retrospective Survey of 115 Cases

    Zakaria El Ouali1, Elie Bassa1, Abdoul-Rahamane Halidou Idrissa1, Sarah Tazi1, Samy Housbane2, Mohamed Bennani Othmani2, Kawtar Nassar1 and Saadia Janani1, 1Department of Rheumatology, University Hospital of Ibn Rochd, Casablanca, Morocco, Casablanca, Grand Casablanca, Morocco, 2Medical Informatics Laboratory, Faculty of Medicine and Pharmacy, University Hassan II, Casablanca, Morocco, Casablanca, Grand Casablanca, Morocco

    Background/Purpose: Antimalarial drugs (ADs), including chloroquine (CQ) and hydroxychloroquine (HCQ), have anti-inflammatory, immunomodulatory, antiparasitic, anti-thrombotic, and antiviral properties. Their indications in rheumatology have been known…
  • Abstract Number: 0638 • ACR Convergence 2020

    Serological Evidence of SARS-CoV-2 in Symptomatic Patients Under Biological Treatment in a Rheumatology Service

    Cristobal Pavez Perales1, Samuel Leal Rodriguez2, Marta De la Rubia Navarro1, Roxana Gonzalez Mazario1, Elena Grau Garcia3, Cristina Alcañiz Escandell3, Inmaculada Chalmeta Verdejo1, Jorge Juan Fragio Gil1, Luis Gonzalez Puig4, Jose Ivorra Cortes1, Isabel Martinez Cordellat1, Rosa Negueroles Albuixech1, Jose Eloy Oller Rodriguez1, Francisco Miguel Ortiz Sanjuan5, Elvira Vicens Bernabeu2 and Jose Andres Roman Ivorra1, 1Rheumatology Department. HUP La Fe, Valencia, Spain, 2Rheumatology Department, HUP La Fe, Valencia, Spain, 3Rheumatology Department. HUP La Fe, Valencia, Comunidad Valenciana, Spain, 4Rheumatology Department. HUP La Fe, Torrente ( Valencia), Spain, 5La Fe University Hospital, Valencia

    Background/Purpose: In mid-March 2020, state of alarm was declared in Spain due to the novel coronavirus disease 2019 (COVID-19) pandemic. Patients with rheumatic diseases (RD)…
  • Abstract Number: 1980 • ACR Convergence 2020

    Understanding the Relationship Between Illness Perceptions and Self-Efficacy Among Latin Americans with SLE Through the Hablemos De Lupus Facebook Page

    Erica Crosley1, Claudia Elera-Fitzcarrald2, Leandro Gabriel Ferreyra Garrot3, Yurilis Fuentes-Silva4, Soledad Ibañez5, Bernardo Pons-Estel6, Cristina Reátegui-Sokolova7 and Cristina Drenkard8, 1The Johns Hopkins University School of Medicine, Baltimore, MD, 2Department of Rheumatology. Hospital Nacional Guillermo Almenara Irigoyen. EsSalud; Universidad Científica del Sur, Lima, Peru, 3Hospital Italiano de Buenos Aires, Buenos Aires, Argentina, 4Universidad de Oriente, Ciudad Bolívar, Venezuela, 5Sanatorio Güemes, Buenos Aires, Argentina, 6Centro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR), Rosario, Santa Fe, Argentina, 7Hospital Guillermo Almenara Irigoyen; Universidad San Ignacio de Loyola, Lima, Peru, 8Division of Rheumatology, Department of Medicine, Emory School of Medicine, Atlanta, GA

    Background/Purpose: SLE disproportionately strikes Latinos, who are also at high risk for poor outcomes. Self-efficacy (SE) to manage chronic disease correlates with outcomes through self-management…
  • Abstract Number: 0019 • ACR Convergence 2020

    Lasting COVID-19 Impacts on US Rheumatology Practices

    Lynn Price1, Gianna Melendez1 and Phil Pouliot1, 1spherix global insights, Exton, PA

    Background/Purpose: In late 2019, a novel, highly contagious coronavirus (COVID-19), was discovered in China and quickly spread throughout the world, equating to arguably the largest…
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Embargo Policy

All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM CT on October 25. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

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