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Abstracts tagged "juvenile idiopathic arthritis (JIA)"

  • Abstract Number: 182 • 2020 Pediatric Rheumatology Symposium

    Needs of Youth with Juvenile Idiopathic Arthritis During the Transition to Adulthood

    Sabrina Cavallo1, 1University of Montreal, Montreal, Canada

    Background/Purpose: The transition to adulthood for young people with juvenile idiopathic arthritis (JIA) may be a difficult period with challenges in socio-professional integration and in…
  • Abstract Number: 047 • 2020 Pediatric Rheumatology Symposium

    Patients with Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry: Clinical Characteristics and Inception Cohorts

    Yongdong Zhao1, Timothy Beukelman 2, Yukiko Kimura 3, Mara Becker 4, Sarah Ringold 5, Anne Dennos 6 and Laura Schanberg 7 for the CARRA investigators, 1University of Washington, Seattle, 2University of Alabama at Birmingham, Birmingham, 3Hackensack Meridian School of Medicine, Hackensack, 4Duke University Medical Center/Duke Clinical Research Institute, Chapel Hill, 5Seattle Children's, Seattle, 6Duke University, Durham, 7Duke University Hospital, DURHAM

    Background/Purpose: In July 2015, the CARRA Registry was re-established as a multi-center observational study that collects essential data from patients with childhood-onset rheumatic diseases. The…
  • Abstract Number: 116 • 2020 Pediatric Rheumatology Symposium

    Patterns of Etanercept Use in the Childhood Arthritis and Rheumatology Research Alliance Juvenile Idiopathic Arthritis Registry

    Natalie Shiff1, Aimee Lougee 2, Roland Matsouaka 2, David Collier 3, Yukiko Kimura 4, Dax Rumsey 5, Jennifer Schenfeld 6, Scott Stryker 7, Marinka Twilt 8 and Timothy Beukelman 9, 1Florida, Gainesville, 2Duke University, Durham, 3Amgen, Thousand Oaks, 4Hackensack Meridian School of Medicine, Hackensack, 5University of Alberta, Edmonton, Canada, 6Amgen, Long Beach, 7Amgen, Inc, San Francisco, 8Alberta Children's Hospital, Calgary, Canada, 9University of Alabama at Birmingham, Birmingham

    Background/Purpose: Etanercept (ETN) is an anti-tumor necrosis factor (anti-TNF) therapy that is FDA approved for the treatment of polyarticular juvenile idiopathic arthritis (JIA). This study…
  • Abstract Number: 184 • 2020 Pediatric Rheumatology Symposium

    A Survey of Uveitis Knowledge Among Juvenile Arthritis Patients and Parents

    Ashley Cooper1, Elaine Flanagan 2, Tova Ronis 3, Baruch Goldberg 4, Ashley Sherman 1, Chelsey Smith 5 and Gary Holland 6 for the CARRA investigators, 1Children's Mercy Kansas City, Kansas City, 2Emory University, Atlanta, 3Children's National Hospital, Washington, 4UT Physicians, Houston, 5Children's Mercy Kansas City, Holden, 6

    Background/Purpose: Chronic anterior uveitis is a sight-threatening complication of juvenile idiopathic arthritis (JIA).  Prompt treatment to prevent complications requires regular screening and detection of uveitis…
  • Abstract Number: 048 • 2020 Pediatric Rheumatology Symposium

    Novel Algorithm to Increase Sensitivity of Detecting Active Arthritis in Children Through Infrared Thermal Imaging

    Yongdong Zhao1, Ramesh Iyer 1, Mahesh Thapa 1, Debosmita Biswas 1, Kevin Cain 1, Savannah Partridge 1 and Carol Wallace 1, 1University of Washington, Seattle

    Background/Purpose: Juvenile idiopathic arthritis (JIA) is the most common rheumatic disease in children. The use of infrared thermal imaging for screening JIA has not utilized…
  • Abstract Number: 121 • 2020 Pediatric Rheumatology Symposium

    Evaluating the Relationship Between Juvenile Idiopathic Arthritis Disease Activity and Uveitis Activity: A Retrospective Analysis

    Emily Liebling1, Walter Faig 2, Nicholas Moore 1, Nahomy Ledesma Vicioso 3 and Melissa Lerman 4, 1Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, 2Children's Hospital of Philadelphia, Philadelphia, 3Weill Cornell Medical College, New York, New York, 4Philadelphia, Pennsylvania

    Background/Purpose: JIA – associated uveitis (JIA-U) accounts for 20-40% of childhood noninfectious uveitis and affects 10-20% of patients with JIA. Its chronic course is often…
  • Abstract Number: 186 • 2020 Pediatric Rheumatology Symposium

    Anthropometric Assessment and Food Intake of Parents of Pediatric Patients with Chronic Rheumatic Diseases

    Lucila Pereira1, Agatha Nogueira Previdelli 2, Rosana Gomes de Torres Rossi 2, Wellington Douglas Rodrigues 3, Fernado Luiz Affonso Fonseca 3, Claudio Len 4, Roseli Oselka Saccardo Sarni 3 and Maria Teresa Terreri 4, 1Federal University of Sao Paulo, Sao Paulo, Sao Paulo, Brazil, 2Sao Judas Tadeu University, Sao Paulo, Brazil, 3Federal University of Sao Paulo, Sao Paulo, Brazil, 4Sao Paulo, Brazil

    Background/Purpose: Chronic rheumatic diseases in children and adolescents increase cardiovascular risk. Thus, knowing the eating habits, biomarkers of lipid metabolism and the lifestyle of patients…
  • Abstract Number: 049 • 2020 Pediatric Rheumatology Symposium

    Levels of Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis (JIA) and Their Correlation to Disease Manifestations Using Patient-Reported Outcomes Measurement Information System (PROMIS®) Measures

    Danielle Fair1, Judyann Olson 2, Jan Lemke 3, Stella Protopapas 4, Ke Yan 5 and Jian Zhang 6, 1Medical College of Wisconsin & Affiliated Hospitals: Children's Wisconsin, Wauwatosa, Wisconsin, 2Medical College of Wisconsin: Children's Wisconsin, Wauwatosa, Wisconsin, 3Children's Wisconsin, Milwaukee, Wisconsin, 4Riley Children’s Hospital at Indiana University, Indianapolis, Indiana, 5Medical College of Wisconsin, Milwaukee, Wisconsin, 6Medical College of Wisconsin, 53226, Wisconsin

    Background/Purpose: Children with chronic diseases have higher rates of mental health issues and less favorable outcomes than the general pediatric population.  Children with JIA experience…
  • Abstract Number: 136 • 2020 Pediatric Rheumatology Symposium

    Prevalence of Paradoxical Psoriasis After Exposure to Tumor Necrosis Factor Inhibitors (TNFi) in Children from a Single Tertiary Center

    Sarah Kodama1, Deepti Gupta 2, Erin Sullivan 3 and Yongdong Zhao 4, 1School of Medicine, Virginia Commonwealth University, Richmond, 2Pediatric Dermatology, School of Medicine, University of Washington, Seattle, 3Seattle Children's Research Institute, Seattle, 4University of Washington, Seattle

    Background/Purpose: Paradoxical psoriasis after exposure to tumor necrosis factor inhibitors (TNFi) has been increasingly reported in the adult population. Systematic studies in pediatric population are…
  • Abstract Number: 053 • 2020 Pediatric Rheumatology Symposium

    Acceptability and Usability Testing of a Preliminary Version of the JIA Option Map, an Electronic Decision Aid for Pain Management Options in Juvenile Idiopathic Arthritis

    Karine Toupin April1, Adam Huber 2, Ciaran Duffy 3, Deema Couchman 1, Laurie Proulx 4, Esi Morgan 5, Fjolla Berbatovci 1, Andrea Boyd 1, Hannah Sachs 1, Alexandra Sirois 6, Lucie Brosseau 3, Janice Cohen 7, Margaret Bisch 3, Aditi Sivakumar 1, Marco Ragusa 1, Tania El Hindi 8, Isabelle Gaboury 9, Linda Li 10, Elizabeth Stringer 11, France Legare 12, Sabrina Cavallo 13, Michele Gibbon 14, Paul Fortin 15, William Brinkman 5, Mark Connelly 16, Jennifer Weiss 17, Sabrina Gmuca 18, Peter Tugwell 19 and Jennifer Stinson 20, 1Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada, 2IWK Health Centre & Dalhousie University, Halifax, Nova Scotia, Canada, 3Ottawa, Canada, 4Canadian Arthritis Patient Alliance, Ottawa, Canada, 5Cincinnati Children's Hospital, Cincinnati, 6Outremont, Canada, 7Children's Hospital of Eastern Ontario, Ottawa, Canada, 8Statistics Canada, Ottawa, Canada, 9University of Sherbrooke, Sherbrooke, Canada, 10University of British Columbia, Vancouver, Canada, 11IWK Health Centre, Halifax, Canada, 12Laval University, Quebec City, Canada, 13University of Montreal, Montreal, Canada, 14Children's Hospital of Eastern Ontario RI, Ottawa, Canada, 15CHU de Quebec - Universite Laval, Quebec, Canada, 16Kansas City, 17Hackensack University Medical Center, Hackensack, 18Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, 19University of Ottawa - Ottawa, Ottawa, Canada, 20University of Toronto & The Hospital for Sick Children, Toronto, Ontario, Canada

    Background/Purpose: Although juvenile idiopathic arthritis (JIA) is one of the most common causes of chronic musculoskeletal pain among youth, families’ decision-making for pain management is…
  • Abstract Number: 137 • 2020 Pediatric Rheumatology Symposium

    Measuring Decision Conflict in Parents of Children with Juvenile Idiopathic Arthritis When Making the Decision to Begin Disease Modifying Anti-Rheumatic Drugs or Biologic Agents

    Chelsea DeCoste1, Suzanne Ramsey 2, Adam Huber 3, Bianca Lang 4 and Elizabeth Stringer 2, 1The Hospital for Sick Children, Toronto, Canada, 2IWK Health Centre, Halifax, Canada, 3IWK Health Centre & Dalhousie University, Halifax, Nova Scotia, Canada, 4Dalhousie University - Halifax, Halifax, Canada

    Background/Purpose: Disease-modifying antirheumatic drugs (DMARDs) and biologic agents are routinely used in the treatment of JIA and JIA-associated uveitis (JIA-AU). Parents are often fearful, however,…
  • Abstract Number: 060 • 2020 Pediatric Rheumatology Symposium

    Parsing Apart the Pain Experience: Exploring Treatment-Related Pain in Juvenile Idiopathic Arthritis

    Yvonne Brandelli1, Christine Chambers 2, Perri Tutelman 1, Jennifer Stinson 3, Adam Huber 4 and Jennifer Wilson 5, 1Dalhousie University, Halifax, Nova Scotia, Canada, 2Dalhousie University & IWK Health Centre, Halifax, Nova Scotia, Canada, 3University of Toronto & The Hospital for Sick Children, Toronto, Ontario, Canada, 4IWK Health Centre & Dalhousie University, Halifax, Nova Scotia, Canada, 5Cassie and Friends, Vancouver, British Columbia, Canada

    Background/Purpose: Pain is one of the most frequently reported symptoms among children with Juvenile Idiopathic Arthritis (JIA), and in recent decades our understanding and assessment…
  • Abstract Number: 139 • 2020 Pediatric Rheumatology Symposium

    Ongoing Disease Activity in Juvenile Idiopathic Arthritis (JIA) 18 Years After Disease Onset: A Population-based Nordic Study

    Mia Glerup1, Ellen D Arnstad 2, Veronika Rypdal 3, Suvi Peltoniemi 4, Kristiina Aalto 5, Marite Rygg 6, Susan Nielsen 7, Anders Fasth 8, Lillemor Berntson 9, Ellen Nordal 3 and Troels Herlin 10, 1Department of Pediatrics, Aarhus University Hospital, Aarhus, Denmark, Aarhus, Denmark, 2Department of Clinical and Molecular Medicine, NTNU - Norwegian University of Science and Technology, and Department of Pediatrics, Levanger Hospital, Nord-Trøndelag Hospital Trust, Levanger, Norway., Tromheim, Norway, 3Department of Pediatrics, University Hospital of North Norway, and Department of Clinical Medicine, UiT The Arctic University of Norway, Tromsø, Norway., Tromsø, Norway, 4Department of Pediatrics, New Children's Hospital, Helsinki University Hospital, Pediatric Research Center, University of Helsinki, Helsinki, Finland., Helsinki, Finland, 5Department of Pediatrics, New Children's Hospital, Helsinki University Hospital, Pediatric Research Center, University of Helsinki, Helsinki, Finland., HUS, Finland, 6Department of Clinical and Molecular Medicine, NTNU - Norwegian University of Science and Technology and Department of Pediatrics, St. Olavs Hospital, Trondheim, Norway., Trondheim, Norway, 7Department of Pediatrics, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark., Copenhagen, Denmark, 8Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Gothenburg, Sweden, 9Department of Womens and Childrens Health, Uppsala University, Uppsala, Sweden., Uppsala, Sweden, 10Department of Pediatrics, Aarhus University Hospital, Aarhus, Denmark., Aarhus N, Denmark

    Background/Purpose: Previously, we showed that ILAR JIA categories defined at disease onset change considerably during the first 8 years of disease course. Whether achieved remission…
  • Abstract Number: L22 • 2019 ACR/ARP Annual Meeting

    Tofacitinib for the Treatment of Polyarticular Course Juvenile Idiopathic Arthritis: Results of a Phase 3 Randomized, Double-blind, Placebo-controlled Withdrawal Study

    Hermine Brunner1, Olga Synoverska 2, Tracy Ting 3, Carlos Abud Mendoza 2, Alberto Spindler 2, Yulia Vyzhga 2, Katherine Marzan 3, Vladimir Keltsev 2, Irit Tirosh 2, Lisa Imundo 3, Rita Jerath 3, Daniel Kingsbury 3, Betul Sozeri 2, Sheetal Vora 3, Sampath Prahalad 3, Elena Zholobova 2, Yonatan Butbul Aviel 2, Vyacheslav Chasnyk 2, Melissa Lerman 3, Kabita Nanda 3, Heinrike Schmeling 3, Heather Tory 3, Yosef Uziel 2, Diego Oscar Viola 2, Holly Posner 4, Keith Kanik 5, Ann Wouters 4, Cheng Chang 5, Richard Zhang 4, Irina Lazariciu 6, Ming-Ann Hsu 5, Ricardo Suehiro 7, Alberto Martini 2, Daniel J. Lovell 3 and Nicolino Ruperto 8, 1PRCSG, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, 2PRINTO, Istituto Giannina Gaslini, Genova, Italy, 3PRCSG, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, 4Pfizer Inc, New York, New York, 5Pfizer Inc, Groton, Connecticut, 6IQVIA, Montreal, Quebec, Canada, 7Pfizer Inc, Collegeville, Pennsylvania, 8PRINTO, Istituto Giannina Gaslini, Genoa, Italy

    Background/Purpose: Tofacitinib is an oral JAK inhibitor that is being investigated for JIA. Here we assess the efficacy and safety of tofacitinib in patients (pts)…
  • Abstract Number: 2703 • 2019 ACR/ARP Annual Meeting

    The Childhood Arthritis and Rheumatology Research Alliance Start Time Optimization of Biologic Therapy in Polyarticular JIA Study: Patient Characteristics, Patient Reported Outcomes and Consensus Treatment Plan Choices

    Sarah Ringold 1, George Tomlinson 2, Pamela Weiss 3, Laura Schanberg 4, Mary Ellen Riordan 5, Anne Dennos 6, Vincent Del Gaizo 7, Katherine Murphy 8, Brian Feldman 9 and Yukiko Kimura10, 1Seattle Children's, Seattle, 2University of Toronto, Toronto, ON, Canada, 3Children's Hospital of Philadelphia, Philadelphia, PA, 4Duke University Medical Center, Durham, NC, 5Joseph M Sanzari Children's Hospital at Hackensack University Medical Center, Hackensack, NJ, 6Duke Clinical Research Institute, Durham, NC, 7Childhood Arthritis & Rheumatology Research Alliance, Whitehouse Station, NJ, 8Louisiana Office of Public Health, New Orleans, LA, 9University of Toronto & The Hospital for Sick Children, Toronto, ON, Canada, 10Joseph M Sanzari Children's Hospital, Hackensack University Medical Center, Cincinnati, OH

    Background/Purpose: There continues to be uncertainty regarding when to start biologic medications for polyarticular juvenile idiopathic arthritis (P-JIA). The Childhood Arthritis and Rheumatology Research Alliance…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

ACR Abstract Embargo Policy

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. Academic institutions, private organizations and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part a scientific presentation or presentation of additional new information that will be available at the time of the meeting) is under embargo until Saturday, November 11, 2023.

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying financial and other sponsors about this policy. If you have questions about the abstract embargo policy, please contact the public relations department at [email protected].

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