Abstracts tagged "juvenile idiopathic arthritis (JIA)"

Abstract Number: 036 • 2020 Pediatric Rheumatology Symposium
Medication Related Decision-Making in Parents of Children with Juvenile Idiopathic Arthritis
Alexandra Munroe¹, Adam Huber ², Bianca Lang ³, Suzanne Ramsey ⁴ and Elizabeth Stringer ⁴, ¹Dalhousie University, Halifax, Nova Scotia, Canada, ²IWK Health Centre & Dalhousie University, Halifax, Nova Scotia, Canada, ³Dalhousie University - Halifax, Halifax, Canada, ⁴IWK Health Centre, Halifax, Canada
Background/Purpose: Outcomes for juvenile idiopathic arthritis (JIA) have improved with use of disease-modifying anti-rheumatic drugs (DMARDs) and biologics. Despite this, the decision by a parent…
Abstract Number: 110 • 2020 Pediatric Rheumatology Symposium
Consequences and Predictors of Persisting Pain in Children with Juvenile Idiopathic Arthritis: A Case Control Study Nested in the ReACCh-Out Cohort
Tara McGrath¹, Jaime Guzman ², Lori Tucker ³, Natalie Shiff ⁴, Maryna Yaskina ⁵, Susan Tupper ⁶ and Dax Rumsey ⁷, ¹University of British Columbia, Vancouver, Canada, ²University of British Columbia and BC Children's Hospital, Vancouver, Canada, ³BC Children's Hospital, Vancouver, British Columbia, Canada, ⁴Florida, Gainesville, ⁵Women and Children's Research Institute, Edmonton, Canada, ⁶Saskatoon, Canada, ⁷University of Alberta, Edmonton, Canada
Background/Purpose: Juvenile Idiopathic Arthritis (JIA) is the most common rheumatic disease of childhood. Pain is a distressing and prevalent feature of JIA and can decrease…
Abstract Number: 181 • 2020 Pediatric Rheumatology Symposium
Health Care Professionals and Transition to Adulthood for Youth with Juvenile Idiopathic Arthritis
Sabrina Cavallo¹, ¹University of Montreal, Montreal, Canada
Background/Purpose: The transition to adulthood for young people with juvenile idiopathic arthritis (JIA) can be difficult and lead to undesirable outcomes in terms of socio-professional…
Abstract Number: 038 • 2020 Pediatric Rheumatology Symposium
Change in Treatments and Outcomes After Implementation of a National Diagnosis and Treatment Guarantee Program for Juvenile Idiopathic Arthritis in Chile
Sara Concha¹, Pamela Morales ², Eduardo Talesnik ¹ and Arturo Borzutzky ¹, ¹Department of Infectious Diseases and Pediatric Immunology, School of Medicine, Pontificia Universidad Católica de Chile., Santiago, Chile, ²Department of Pediatric, Clinica Las Condes, Santiago, Chile
Background/Purpose: Juvenile idiopathic arthritis (JIA) is currently the most common childhood chronic rheumatic disease with high burden and socioeconomic costs for the patient’s family and…
Abstract Number: 115 • 2020 Pediatric Rheumatology Symposium
Carbohydrate and Sugar Intake Predict Pain in Teens with Active JIA Disease but Not in Teens in Remission or Controls: A Cross-Sectional, Case-Control Metabolomics Pilot Study
Kimberly Lewis¹, Nico Osier ², Patricia Carter ³, Christina Nguyen ⁴, Ruy Carrasco ⁵, Shelby Brooks ², Alexandra Garcia ⁶ and Stefano Tiziani ⁵, ¹The University of Texas at Austin, Austin, Texas, ²The University of Texas at Austin, Austin, ³University of Alabama, Tuscalossa, ⁴Ascension Seton Nursing Research, Austin, ⁵The University of Texas at Austin, Dell Medical School, Austin, ⁶The University of Texas at Austin, Dell Medical School, School of Nursing, Austin
Background/Purpose: The purpose of this study is to define the relationships between pain and carbohydrate metabolism in teens with active juvenile idiopathic arthritis (JIA), teens…
Abstract Number: 182 • 2020 Pediatric Rheumatology Symposium
Needs of Youth with Juvenile Idiopathic Arthritis During the Transition to Adulthood
Sabrina Cavallo¹, ¹University of Montreal, Montreal, Canada
Background/Purpose: The transition to adulthood for young people with juvenile idiopathic arthritis (JIA) may be a difficult period with challenges in socio-professional integration and in…
Abstract Number: 047 • 2020 Pediatric Rheumatology Symposium
Patients with Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry: Clinical Characteristics and Inception Cohorts
Yongdong Zhao¹, Timothy Beukelman ², Yukiko Kimura ³, Mara Becker ⁴, Sarah Ringold ⁵, Anne Dennos ⁶ and Laura Schanberg ⁷ for the CARRA investigators, ¹University of Washington, Seattle, ²University of Alabama at Birmingham, Birmingham, ³Hackensack Meridian School of Medicine, Hackensack, ⁴Duke University Medical Center/Duke Clinical Research Institute, Chapel Hill, ⁵Seattle Children's, Seattle, ⁶Duke University, Durham, ⁷Duke University Hospital, DURHAM
Background/Purpose: In July 2015, the CARRA Registry was re-established as a multi-center observational study that collects essential data from patients with childhood-onset rheumatic diseases. The…
Abstract Number: 116 • 2020 Pediatric Rheumatology Symposium
Patterns of Etanercept Use in the Childhood Arthritis and Rheumatology Research Alliance Juvenile Idiopathic Arthritis Registry
Natalie Shiff¹, Aimee Lougee ², Roland Matsouaka ², David Collier ³, Yukiko Kimura ⁴, Dax Rumsey ⁵, Jennifer Schenfeld ⁶, Scott Stryker ⁷, Marinka Twilt ⁸ and Timothy Beukelman ⁹, ¹Florida, Gainesville, ²Duke University, Durham, ³Amgen, Thousand Oaks, ⁴Hackensack Meridian School of Medicine, Hackensack, ⁵University of Alberta, Edmonton, Canada, ⁶Amgen, Long Beach, ⁷Amgen, Inc, San Francisco, ⁸Alberta Children's Hospital, Calgary, Canada, ⁹University of Alabama at Birmingham, Birmingham
Background/Purpose: Etanercept (ETN) is an anti-tumor necrosis factor (anti-TNF) therapy that is FDA approved for the treatment of polyarticular juvenile idiopathic arthritis (JIA). This study…
Abstract Number: 184 • 2020 Pediatric Rheumatology Symposium
A Survey of Uveitis Knowledge Among Juvenile Arthritis Patients and Parents
Ashley Cooper¹, Elaine Flanagan ², Tova Ronis ³, Baruch Goldberg ⁴, Ashley Sherman ¹, Chelsey Smith ⁵ and Gary Holland ⁶ for the CARRA investigators, ¹Children's Mercy Kansas City, Kansas City, ²Emory University, Atlanta, ³Children's National Hospital, Washington, ⁴UT Physicians, Houston, ⁵Children's Mercy Kansas City, Holden, ⁶
Background/Purpose: Chronic anterior uveitis is a sight-threatening complication of juvenile idiopathic arthritis (JIA). Prompt treatment to prevent complications requires regular screening and detection of uveitis…
Abstract Number: 048 • 2020 Pediatric Rheumatology Symposium
Novel Algorithm to Increase Sensitivity of Detecting Active Arthritis in Children Through Infrared Thermal Imaging
Yongdong Zhao¹, Ramesh Iyer ¹, Mahesh Thapa ¹, Debosmita Biswas ¹, Kevin Cain ¹, Savannah Partridge ¹ and Carol Wallace ¹, ¹University of Washington, Seattle
Background/Purpose: Juvenile idiopathic arthritis (JIA) is the most common rheumatic disease in children. The use of infrared thermal imaging for screening JIA has not utilized…
Abstract Number: 121 • 2020 Pediatric Rheumatology Symposium
Evaluating the Relationship Between Juvenile Idiopathic Arthritis Disease Activity and Uveitis Activity: A Retrospective Analysis
Emily Liebling¹, Walter Faig ², Nicholas Moore ¹, Nahomy Ledesma Vicioso ³ and Melissa Lerman ⁴, ¹Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, ²Children's Hospital of Philadelphia, Philadelphia, ³Weill Cornell Medical College, New York, New York, ⁴Philadelphia, Pennsylvania
Background/Purpose: JIA – associated uveitis (JIA-U) accounts for 20-40% of childhood noninfectious uveitis and affects 10-20% of patients with JIA. Its chronic course is often…
Abstract Number: 186 • 2020 Pediatric Rheumatology Symposium
Anthropometric Assessment and Food Intake of Parents of Pediatric Patients with Chronic Rheumatic Diseases
Lucila Pereira¹, Agatha Nogueira Previdelli ², Rosana Gomes de Torres Rossi ², Wellington Douglas Rodrigues ³, Fernado Luiz Affonso Fonseca ³, Claudio Len ⁴, Roseli Oselka Saccardo Sarni ³ and Maria Teresa Terreri ⁴, ¹Federal University of Sao Paulo, Sao Paulo, Sao Paulo, Brazil, ²Sao Judas Tadeu University, Sao Paulo, Brazil, ³Federal University of Sao Paulo, Sao Paulo, Brazil, ⁴Sao Paulo, Brazil
Background/Purpose: Chronic rheumatic diseases in children and adolescents increase cardiovascular risk. Thus, knowing the eating habits, biomarkers of lipid metabolism and the lifestyle of patients…
Abstract Number: 049 • 2020 Pediatric Rheumatology Symposium
Levels of Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis (JIA) and Their Correlation to Disease Manifestations Using Patient-Reported Outcomes Measurement Information System (PROMIS®) Measures
Danielle Fair¹, Judyann Olson ², Jan Lemke ³, Stella Protopapas ⁴, Ke Yan ⁵ and Jian Zhang ⁶, ¹Medical College of Wisconsin & Affiliated Hospitals: Children's Wisconsin, Wauwatosa, Wisconsin, ²Medical College of Wisconsin: Children's Wisconsin, Wauwatosa, Wisconsin, ³Children's Wisconsin, Milwaukee, Wisconsin, ⁴Riley Children’s Hospital at Indiana University, Indianapolis, Indiana, ⁵Medical College of Wisconsin, Milwaukee, Wisconsin, ⁶Medical College of Wisconsin, 53226, Wisconsin
Background/Purpose: Children with chronic diseases have higher rates of mental health issues and less favorable outcomes than the general pediatric population. Children with JIA experience…
Abstract Number: 136 • 2020 Pediatric Rheumatology Symposium
Prevalence of Paradoxical Psoriasis After Exposure to Tumor Necrosis Factor Inhibitors (TNFi) in Children from a Single Tertiary Center
Sarah Kodama¹, Deepti Gupta ², Erin Sullivan ³ and Yongdong Zhao ⁴, ¹School of Medicine, Virginia Commonwealth University, Richmond, ²Pediatric Dermatology, School of Medicine, University of Washington, Seattle, ³Seattle Children's Research Institute, Seattle, ⁴University of Washington, Seattle
Background/Purpose: Paradoxical psoriasis after exposure to tumor necrosis factor inhibitors (TNFi) has been increasingly reported in the adult population. Systematic studies in pediatric population are…
Abstract Number: 053 • 2020 Pediatric Rheumatology Symposium
Acceptability and Usability Testing of a Preliminary Version of the JIA Option Map, an Electronic Decision Aid for Pain Management Options in Juvenile Idiopathic Arthritis
Karine Toupin April¹, Adam Huber ², Ciaran Duffy ³, Deema Couchman ¹, Laurie Proulx ⁴, Esi Morgan ⁵, Fjolla Berbatovci ¹, Andrea Boyd ¹, Hannah Sachs ¹, Alexandra Sirois ⁶, Lucie Brosseau ³, Janice Cohen ⁷, Margaret Bisch ³, Aditi Sivakumar ¹, Marco Ragusa ¹, Tania El Hindi ⁸, Isabelle Gaboury ⁹, Linda Li ¹⁰, Elizabeth Stringer ¹¹, France Legare ¹², Sabrina Cavallo ¹³, Michele Gibbon ¹⁴, Paul Fortin ¹⁵, William Brinkman ⁵, Mark Connelly ¹⁶, Jennifer Weiss ¹⁷, Sabrina Gmuca ¹⁸, Peter Tugwell ¹⁹ and Jennifer Stinson ²⁰, ¹Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada, ²IWK Health Centre & Dalhousie University, Halifax, Nova Scotia, Canada, ³Ottawa, Canada, ⁴Canadian Arthritis Patient Alliance, Ottawa, Canada, ⁵Cincinnati Children's Hospital, Cincinnati, ⁶Outremont, Canada, ⁷Children's Hospital of Eastern Ontario, Ottawa, Canada, ⁸Statistics Canada, Ottawa, Canada, ⁹University of Sherbrooke, Sherbrooke, Canada, ¹⁰University of British Columbia, Vancouver, Canada, ¹¹IWK Health Centre, Halifax, Canada, ¹²Laval University, Quebec City, Canada, ¹³University of Montreal, Montreal, Canada, ¹⁴Children's Hospital of Eastern Ontario RI, Ottawa, Canada, ¹⁵CHU de Quebec - Universite Laval, Quebec, Canada, ¹⁶Kansas City, ¹⁷Hackensack University Medical Center, Hackensack, ¹⁸Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, ¹⁹University of Ottawa - Ottawa, Ottawa, Canada, ²⁰University of Toronto & The Hospital for Sick Children, Toronto, Ontario, Canada
Background/Purpose: Although juvenile idiopathic arthritis (JIA) is one of the most common causes of chronic musculoskeletal pain among youth, families’ decision-making for pain management is…