ACR Meeting Abstracts

ACR Meeting Abstracts

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Abstracts tagged "education, patient"

  • Abstract Number: 003 • 2023 Pediatric Rheumatology Symposium

    Inflammation or Infection? Understanding Linguistic and Cultural Nuances Impacting the Care of Somali Children with Juvenile Idiopathic Arthritis

    Emily Hause, Abdirazak Ali and Muna Sunni, University of Minnesota, Minneapolis, MN

    Background/Purpose: Data regarding the linguistic and cultural factors impacting the Somali patient experience and understanding with regards to juvenile idiopathic arthritis (JIA) are limited. We…
  • Abstract Number: 0963 • ACR Convergence 2022

    Exploring Reasons for Non-Use of Hydroxychloroquine in SLE Pregnancy

    Antonia Chan1, Alanna Hirz1, Yashaar Chaichian1, Amadeia Rector2, Maurice Druzin3 and Julia Simard2, 1Stanford University, Stanford, CA, 2Stanford University School of Medicine, Palo Alto, CA, 3Stanford University School of Medicine, Palo Alto

    Background/Purpose: Although hydroxychloroquine (HCQ) is strongly recommended in systemic lupus (SLE) pregnancy, the percentage of pregnant patients with SLE taking HCQ appears highly variable across…
  • Abstract Number: PP06 • ACR Convergence 2022

    Search for a New Rheumatologist; What Happened When My Trusted Rheumatologist Retired

    Lawrence Phillips, Noblesville, IN

    Background/Purpose: I was diagnosed with rheumatoid arthritis (RA) in 1999. In 2015 and 2019, two surgeons independently diagnosed me with ankylosing spondylitis (AS) following two…
  • Abstract Number: 0971 • ACR Convergence 2022

    Development of a Theory-based Educational Intervention for Fatigue in Systemic Lupus Erythematosus (SLE) Using Human-centered Design Methodology

    Shanthini Kasturi1, Stephanie Tate2, Thomas Farrar3, Lisa Mandl4, Amy LeClair1, Faye Chiu5, Monique Gore-Massy6, Iris Navarro-Millan7 and Sara Folta8, 1Tufts Medical Center, Boston, MA, 2Tufts University School of Medicine, Boston, MA, 3Tufts University School of Medicine, Portland, 4Hospital for Special Surgery, New York, NY, 5N/A, New York, NY, 6Covid-19 GRA, West Orange, NJ, 7Weill Cornell Medicine, New York, NY, 8Tufts University, Boston, MA

    Background/Purpose: Fatigue is a top concern of individuals with SLE and is a leading cause of work impairment and disability in this population. Although fatigue…
  • Abstract Number: PP12 • ACR Convergence 2022

    We Became Advocates, Educators, and a Support System for Hispanic/Latino Patients with Rheumatoid Arthritis and Their Caregivers Through Involvement in a Virtual Patient Advisory Board

    Zucy Almonacid1, Wigna Cruz2, Francisca Garcia3, Teresa Hernandez4, Velia Martinez5, Patricia Mattos3, Mario Mutis6 and Denise Serrano7, 1Hicsville, NY, 2Juan Diaz, PR, 3Lake Worth, FL, 4Greenacres, FL, 5Guaynabo, PR, 6Fort Pierce, FL, 7Toa Alto, PR

    Background/Purpose: Each of us has been diagnosed with rheumatoid arthritis (RA), from as recently as one year ago to as long as 20 years ago.…
  • Abstract Number: 1287 • ACR Convergence 2022

    Are the American College of Rheumatology’s Web-Based Patient Education Materials Easy for Patients to Read and Comprehend?

    Ugochukwu C Nweke1, Sobia Hassan2, Usama Ahmad3 and Meenakshi Jolly4, 1Rush University,Graduate College, Chicago, IL, 2Rush University Medical Center, Chicago,IL, Chicago, IL, 3Rush Univesity Medical Center, Chicago, IL, 4Rush University Medical Center, Chicago, IL

    Background/Purpose: Patient education materials (PEMs), obtainable from online resources, can be accessed by patients and physicians and used to supplement the medical information provided by…
  • Abstract Number: PP22 • ACR Convergence 2022

    Patients Raising Awareness for Patients – A Collaborative Partnership Between Take a Pain Check Foundation and Canadian Arthritis Patient Alliance

    Natasha Trehan1 and Laurie Proulx2, 1Take a Pain Check Foundation, Markham, ON, Canada, 2Canadian Arthritis Patient Alliance, Ottawa, ON, Canada

    Background/Purpose: Juvenile Idiopathic Arthritis is a chronic disease that affects a child's school life and relationships, creating social isolation for youth and young adults. Take…
  • Abstract Number: 1288 • ACR Convergence 2022

    How Often Do We Provide Relevant and Patient Centric Discharge Instructions in Rheumatology? A Single Academic Center Clinic Experience

    Dijo Joseph1, Asha Asthana2, Sobia Hassan3 and Meenakshi Jolly3, 1Rush University Medical Center, Chicago, IL, 2Rush University Medical Center Department of Internal Medicine, Chicago, IL, 3Rush University, Chicago, IL

    Background/Purpose: Post-visit discharge instructions (DCI) are an important supplement to the patient visit that serves to reinforce a patient's understanding of their diagnosis, medications and…
  • Abstract Number: PP23 • ACR Convergence 2022

    The Journey to Collaborative Care and Patient-Centric Educational Opportunities for a Scleroderma Patient

    Amy Gietzen and Hannah Bowen, The Ann Steffens Scleroderma Foundation, Albany, NY

    Background/Purpose: In 2001 I started to experience forearm, elbow, and wrist pain. My fingers were constantly swollen, and sensitive. After 6 months of living in…
  • Abstract Number: 0100 • ACR Convergence 2022

    COVID Vaccinations in Patients with Rheumatologic Diseases- perspectives and Disparities in a Safety-net Tertiary Care Hospital in Memphis, Tennessee

    Beenish Zulfiqar1, Mohamad Bittar2, Daniel Austin2 and Ashton Hunter2, 1University of Tennessee Health Science Centre, Memphis, TN, 2University of Tennessee Health Science Centre, Memphis, Memphis, TN

    Background/Purpose: Patients with rheumatologic diseases have had hesitation with COVID-19 vaccines despite the recent reports that they are safe and effective. This might impact underserved…
  • Abstract Number: 1294 • ACR Convergence 2022

    Translation and Cross-cultural Adaptation of the CORS into Spanish

    Victoria Navarro-Compán1, Diego Benavent2, Andrea Jochems3, Dora Pascual-Salcedo3, Gijs Jochems4, Sofia Ramiro5, Wim van Lankveld6 and Chamaida Plasencia-Rodriguez7, 1Department of Rheumatology, La Paz University Hospital, IdiPaz, Madrid, Spain, 2La Paz University Hospital, Madrid, Spain, 3Immuno-Rheumatology Group, Hospital Universitario La Paz, Madrid, Spain, 4Promega Biotech Ibérica, Madrid, Spain, 5Leiden University Medical Center, Leiden, Netherlands, 6NA, Amsterdam, Netherlands, 7Rheumatology Department, La Paz University Hospital, Madrid, Spain

    Background/Purpose: Rheumatic diseases substantially affect the lives of patients, with complex associations between disease severity and self-perceived health status. In this regard, the Coping with…
  • Abstract Number: PP24 • ACR Convergence 2022

    Planting Seeds of Self-Advocacy: Increasing Healthcare Engagement in Children and Adolescents Through Arthritis Camp

    Kaye Anderson1, Kristine Carandang2 and Courtney Wells3, 1Young Patients' Autoimmune Research & Empowerment Alliance, River Falls, WI, 2Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, 3University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN

    Background/Purpose: I was diagnosed with Juvenile Idiopathic Arthritis at the age of ten. The constant battle between doctor appointments, pain, and medication side effects left…
  • Abstract Number: 0105 • ACR Convergence 2022

    Supplemental Primary Dose of the COVID-19 Vaccine in Immunosuppressed Patients on DMARDs and Biologic Agents

    Archanaa Murugan1, Ximena Ruiz2 and Leslie Harris Jr.1, 1University of Alabama at Birmingham- Internal Medicine- Montgomery, Montgomery, AL, 2University of Alabama at Birmingham- Division of Clinical Immunology and Rheumatology, Montgomery, AL

    Background/Purpose: Immunosuppressive states can attenuate the immunogenicity of the COVID-19 vaccines. Some studies have shown an improved immune response with a supplemental primary dose. In…
  • Abstract Number: 1335 • ACR Convergence 2022

    Artificial Intelligence–enabled Sentiment Analysis of Public Attitude Toward Pregnancy in Lupus Social Media Group

    Gopisree Peringeth1 and Milena Vukelic2, 1Jacobi Medical Center/Albert Einstein College of Medicine, New York, NY, 2Albert Einstein College of Medicine, New York, NY

    Background/Purpose: Lupus commonly affects women of reproductive age whose pregnancies are associated with higher rates of complications and fetal loss. There is a knowledge gap…
  • Abstract Number: PP26 • ACR Convergence 2022

    Chronically Catherine: A Sex and the City-Inspired Autobiographical Column for Disabled Young Adults on Subjects We Really Care About – Like Disabled Dating and How Hot Cheetos Saved My Life

    Catherine Ames1, Courtney Wells2 and Kristine Carandang1, 1Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, 2University of Wisconsin-River Falls; Young Patients' Autoimmune Research and Empowerment Alliance, St. Paul, MN

    Background/Purpose: What if Carrie Bradshaw, sex advice columnist, fashionsta, and all around icon from Sex and the City were chronically ill? Or disabled? That's the…
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