ACR Meeting Abstracts

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Abstracts tagged "education, patient"

  • Abstract Number: 1461 • ACR Convergence 2020

    Implementation, Feasibility and Acceptability of Take Charge, an Email Series to Increase Knowledge of Lupus Self-Management Skills

    Karin Tse1, Mary Crimmings2, Mike Donnelly2, Reid Dossinger2, Lauren Metelski2 and Latifa Boyce2, 1Lupus Foundation of America, DC, WA, 2Lupus Foundation of America, WASHINGTON, DC

    Background/Purpose: The Lupus Foundation of America developed and launched an educational email series, Take Charge, to provide people with lupus educational information, tools and resources…
  • Abstract Number: 1613 • ACR Convergence 2020

    Improving Transition Policy Dissemination and Care Team Communication in Pediatric Rheumatology Clinic Through Standardization of Workflow and Electronic Health Record Documentation

    Rosemary Peterson1, Emily Liebling1, Beth Rutstein2, Julie Chase1, Atiye Bilgic Dagci3, Melissa Argraves3, Jon Burnham1, Lisa Wiater3, Deborah Bieniakowski3, Danielle Dodson3, Jane Kennedy3, Cora Sears3 and Joyce Chang1, 1Children's Hospital of Philadelphia, Philadelphia, PA, 2The Children's Hospital of Philadelphia, Philadelphia, PA, 3Children's Hospital of Philadelphia, Philadelphia

    Background/Purpose: Morbidity and mortality increase when young adults with chronic disease transfer from pediatric to adult care.  Structured healthcare transition processes improve outcomes, yet are…
  • Abstract Number: 0053 • ACR Convergence 2020

    ¿Comprende? Assessing the Readability of Freely Available Spanish-Language Online Patient Education Materials for Rheumatologic Diseases

    Carleigh Zahn1, Bharat Kumar1 and Cindy Puga2, 1University of Iowa Hospitals and Clinics, Iowa City, IA, 2Carver College of Medicine, Iowa City

    Background/Purpose: Spanish is the second most popular language in the United States and third most commonly spoken language internationally.  Despite the high prevalence of Spanish…
  • Abstract Number: 1614 • ACR Convergence 2020

    Use of a Best Practice Alert to Encourage Transition Planning and Readiness

    Bernard Danna1, Monique Maher1, Marietta DeGuzman2, Andrea Ramirez1, Eyal Muscal2, Amanda Brown2, Martha Curry2, Maria Pereira2, M. Brad Nelson2, Pooja Patel2, Ugo Awa2, LeeGee Huang3, Blanca Sanchez-Fournier3, JaLeen Rogers3, Ariel Coleman3, Anne Dykes3, Miriah Gillispie-Taylor2 and Tiphanie Vogel4, 1Baylor College of Medicine, Houston, TX, 2Baylor College of Medicine, Houston, 3Texas Children's Hospital, Houston, 4Baylor College of Medicine/Texas Children's Hospital, Houston, TX

    Background/Purpose: Transitioning children with chronic diseases from pediatric to adult care can be challenging. Patients are faced with the emotional shock of entering a new…
  • Abstract Number: 0079 • ACR Convergence 2020

    Analysis of COVID-19 and Rheumatology Twitter Activity During the Pandemic Months

    Mosaab Mohameden1 and Ali H.Ali2, 1University of Cincinnati College of Medicine, Cincinnati, OH, 2University of California San Francisco Fresno, Fresno, CA

    Background/Purpose: Twitter is a popular social media platform that is widely used to publish information and exchange ideas. There are over 300 million active monthly…
  • Abstract Number: 1615 • ACR Convergence 2020

    Assessing Preparation for Care Transition Among Adolescents with Rheumatologic Disease: A Quality Assessment with Patient Survey

    Jordan Roberts1, Olha Halyabar2, Carter Petty3 and Mary Beth Son1, 1Boston Children's Hospital, Boston, MA, 2Children's Hospital/Boston Medical Center, Boston, MA, 3Boston Childrens Hospital, Institutional Centers for Clinical and Translational Research, Boston, MA

    Background/Purpose: Despite the risk for poor outcomes and gaps in care in the transition from pediatric to adult care, most pediatric rheumatology centers lack formal…
  • Abstract Number: 0080 • ACR Convergence 2020

    Understanding Ankylosing Spondylitis –

    Arnd Kleyer1, Milena Pachowsky2, Louis Schuster1, Larissa Valor-Mendez3, Georg Schett4, Axel Hueber5 and David Simon1, 1Department of Internal Medicine 3, Friedrich-Alexander University (FAU) Erlangen-Nuremberg and Universitätsklinikum Erlangen, Erlangen, Bayern, Germany, 2Department of Orthopedic and Trauma Surgery, FAU Erlangen-Nuremberg and Universitätsklinikum Erlangen, Erlangen, Germany, 3Department of Internal Medicine 3, Rheumatology and Immunology, University Hospital Erlangen, Erlangen, Bayern, Germany, 4Friedrich-Alexander-Universität Erlangen- Nuremberg, Erlangen, Germany, 5Sozialstiftung Bamberg, Sektion Rheumatologie, Bamberg, Germany

    Background/Purpose: Rheumatology is underrepresented in the medical training of students in Germany. [1] Tools and methods are needed to inspire young students for specialist training…
  • Abstract Number: 1682 • ACR Convergence 2020

    Goal-Setting Improves Transition Readiness in Adolescents with Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus

    Teresa Semalulu1, Karen Beattie1, Jeanine McColl1, Arzoo Alam2, Steffy Thomas2, Julie Herrington3, Jan Willem Gorter2, Tania Cellucci2, Stephanie Garner1, Liane Heale2, Mark Matsos1 and Michelle Batthish4, 1McMaster University, Hamilton, ON, Canada, 2McMaster University, Hamilton, Canada, 3ACPAC - University of Toronto, Hamilton, ON, Canada, 4McMaster Children's Hospital, Hamilton, ON, Canada

    Background/Purpose: The transition from pediatric to adult rheumatology care is associated with increased morbidity, mortality and loss to follow-up. This is largely due to a…
  • Abstract Number: 0138 • ACR Convergence 2020

    Alignment and Discordances in Treatment Perceptions and Shared Decision-Making Among RA Patients and Rheumatology Care Teams

    Robert Levin1, Christopher Parker2, Kostas Botsoglou3, Jigar Shah4, Nimesh Dayal5, Kristina Fajardo6, Laura Simone6, Jeff Carter6 and Tamar Sapir6, 1University of South Florida, Clearwater, FL, 2Austin Diagnostic Clinic, Austin, TX, 3Rheumatology Center WNY, Buffalo, NY, 4Arthritis and Rheumatology Center of South Florida, Margate, FL, 5Arthritis Center of Orlando, Ocoee, FL, 6PRIME Education, LLC, Fort Lauderdale, FL

    Background/Purpose: Evidence-based guidelines for rheumatoid arthritis (RA) call for shared decision-making (SMD) as a method to personalize treatment decisions and achieve treat-to-target goals. We assessed alignment…
  • Abstract Number: 1700 • ACR Convergence 2020

    Curricular Implementation of the Rheumatic Disease Patient Expert Program: The Students’ Perspective

    Eleni Sophocleous1, Andri Phoka2 and Konstantinos Parperis3, 1University of Cyprus Medical school, Nicosia, Cyprus, 2Cyprus League Against Rheumatism, Nicosia, Cyprus, 3University of Cyprus Medical School, Nicosia, Nicosia, Cyprus

    Background/Purpose: Medical education can be enriched by embracing patient involvement so that students can learn about rheumatic diseases (RMD) from patient experts. Patient experts have…
  • Abstract Number: 0248 • ACR Convergence 2020

    Assessment of Lupus Knowledge Through Creation of the Lupus Knowledge Assessment Test (LKAT)

    Mithu Maheswaranathan1, Amanda Eudy1, Jayanth Doss1, Rebecca Sadun1, Lisa Criscione-Schreiber2, Kai Sun1, Stacy Bailey3, S. Nicole Hastings1, Megan Clowse4 and Jennifer Rogers5, 1Duke University, Durham, NC, 2Duke University School of Medicine, Durham, NC, 3Northwestern University, Chapel Hill, NC, 4Duke University, Chapel Hill, NC, 5Duke, Durham, NC

    Background/Purpose: Systemic lupus erythematosus (SLE) is an inherently complex disease to manage with heterogenous clinical manifestations and complicated medication regimens.  The complexity of lupus self-management…
  • Abstract Number: 1707 • ACR Convergence 2020

    Development and Delivery of Continuing Education Interventions Promoting Shared Decision Making in Rheumatoid Arthritis

    Richard Martin1, Marianna Shershneva2 and Lily Zurkovsky3, 1Michigan State University College of Human Medicine, Grand Rapids, MI, 2Senior Administrative Program Specialist, Office of Continuing Professional Development University of Wisconsin School of Medicine and Public Health, Madison, WI, 3Forefront Collaborative, Carmel, IN

    Background/Purpose: A core CMS policy goal is to improve patient experience by encouraging patient-centered care and shared decision making (SDM).  However, SDM techniques are underutilized…
  • Abstract Number: 0578 • ACR Convergence 2020

    Going Digital Due to COVID 19 Crisis: A Rapid Reorganisation of Medication Clinics

    Rian Penford1, Angela Reith1, Elaine Wren1 and Kirsten Mackay1, 1Torbay and South Devon NHS Foundation Trust, Torquay, United Kingdom

    Background/Purpose: Until the COVID 19 crisis we initiated DMARD(s) and Biologic therapies using shared medical clinics. More than 30 patients could seen per week, with…
  • Abstract Number: 1764 • ACR Convergence 2020

    Disease Modifying Anti-rheumatic Drug and Biologic Therapy in Pregnancy: A Single-center Mixed Methods Study

    Lauren Glick1, Justin Shamis2, Taneisha McGhie3 and Dharini Mahendira4, 1University of Toronto, Toronto, ON, Canada, 2North York General Hospital, Toronto, ON, Canada, 3Cornwall University Hospital, Kingston, Saint Andrew, Jamaica, 4University of Toronto - Toronto, Toronto, ON, Canada

    Background/Purpose: Rheumatic diseases including rheumatoid arthritis, seronegative inflammatory arthritis and systemic lupus erythematosus can be associated with significant morbidity in women of child-bearing age. Both…
  • Abstract Number: 0608 • ACR Convergence 2020

    Patient and Parent Perspectives in a Academic Pediatric Rheumatology Transition Clinic

    Rebecca Overbury1, Tracy Frech2, John Bohnsack3, CJ Inman1, Sara Stern1, Karen James1, Erin Treemarcki4 and Aimee Hersh4, 1University of Utah and Primary Children's Hospital, Salt Lake City, UT, 2University of Utah and Salt Lake Veterans Affair Medical Center, Salt Lake City, UT, 3University of Utah and Primary Children's Hospital, Cincinnati, OH, 4University of Utah and Primary Children's Hospital, Salt Lake City

    Background/Purpose: In November 2018 we initiated a transition clinic called ACCORD (Adult Center for Childhood Onset Rheumatic Disease). Our unique structure integrates an adult rheumatologist…
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ACR Convergence: Where Rheumatology Meets. All Virtual. November 5-9.

ACR Pediatric Rheumatology Symposium 2020

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