ACR Meeting Abstracts

ACR Meeting Abstracts

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Abstracts tagged "education, patient"

  • Abstract Number: 1978 • ACR Convergence 2020

    Prevalence and Factors Associated with Patient-Physician Discordance Among RA Patients Initiating Advanced Therapy

    Jeffrey Curtis1, Rose Medeiros2, I-Heng Lee3, Rachel Mackey4, Richard Haubrich3, Hao Hu5, Jeffrey Greenberg6 and Alicea Wu3, 1Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, AL, 2Corrona, LLC, Waltham, MA, 3Gilead Sciences, Foster City, CA, 4Corrona, LLC and University of Pittsburgh, Waltham, MA, 5Gilead Sciences, Inc., Foster City, CA, 6Corrona, LLC and NYU School of Medicine, Waltham, MA

    Background/Purpose: Some rheumatoid arthritis (RA) patients rate their disease activity worse than their physician does, but recent prevalence and factors associated with such discordance have…
  • Abstract Number: 0615 • ACR Convergence 2020

    Rheumatology Going Digital: Developing a Rheumatology App for Use by All Patients Attending Our Department to Aid Remote Working and Self-management

    Kirsten Mackay1, Mark Clemence1 and Rian Penford1, 1Torbay and South Devon NHS Foundation Trust, Torquay, United Kingdom

    Background/Purpose: Patients with a rheumatological condition require information regarding the disease itself and treatments regimes. This is particularly important for new patients.Our local patient focus…
  • Abstract Number: PP07 • ACR Convergence 2020

    Improving Communication with My Physician Drastically Improved My Health

    Whitney Carter1, 1Lupus and Allied Diseases Association, Inc., Pleasanton, CA

    Background/Purpose: In 2011, at the age of 14, I was sent to the emergency room with a platelet count of 19. The hematologist diagnosed me…
  • Abstract Number: 1132 • ACR Convergence 2020

    Reliability of Virtual Sources of Education for Patients with Vasculitis

    Patil Injean1, Kathleena D'Anna2, Lorena Salto3 and Mehrnaz Hojjati3, 1Loma Linda University Medical Center, Redlands, CA, 2Loma Linda University Medical Center, Moreno Valley, CA, 3Loma Linda University, Loma Linda

    Background/Purpose: Vasculitides are defined as inflammation of the vessel wall of different organ systems with reactive damage of mural structures. Patient education in understanding the…
  • Abstract Number: 1133 • ACR Convergence 2020

    Patient Perceptions of Diagnosis, Tests, Treatments, Adherence and the Impact on Their Disease Understanding and Participation in Research Studies

    Viviana Marzaioli1, Mary Canavan1, Siobhan Wade2, Alexander Fraser3, Sinead Harney4, Alex Donnelly5, Arthritis Ireland Charity6, Douglas Veale7 and Ursula Fearon1, 1Molecular Rheumatology, Trinity College Dublin, Dublin, Dublin, Ireland, 2Molecular Rheumatology, Trinity College Dublin, Dublin, Ireland, 3University College Limerick, Limerick, Limerick, Ireland, 4University College Cork, Cork, Ireland, 5Patient Advocate Arthritis Ireland, Dublin, Ireland, 6Arthritis Ireland, Dublin, Ireland, 7EULAR Centre for Arthritis and Rheumatic Diseases, St Vincents University Hospital, UCD, Dublin, Dublin, Ireland

    Background/Purpose: The diagnosis and treatment of inflammatory arthritis has been transformed largely by  the development of drugs that target specific molecules of the immune system.…
  • Abstract Number: 1142 • ACR Convergence 2020

    Implementation of an Evidence-based Transition Clinic in a Pediatric Rheumatology Academic Institution

    Rebecca Overbury1, Tracy Frech2, John Bohnsack3, CJ Inman1, Sara Stern1, Karen James1, Erin Treemarcki4 and Aimee Hersh4, 1University of Utah and Primary Children's Hospital, Salt Lake City, UT, 2University of Utah and Salt Lake Veterans Affair Medical Center, Salt Lake City, UT, 3University of Utah and Primary Children's Hospital, Cincinnati, OH, 4University of Utah and Primary Children's Hospital, Salt Lake City

    Background/Purpose: Transition from pediatric to adult rheumatology care is more likely to be successful if a transition program is in place. Previously successful interventions to…
  • Abstract Number: 1143 • ACR Convergence 2020

    The Influence of YouTube on Spreading Awareness and Patient Education Regarding Systemic Lupus Erythematosus

    Priyatha Garlapati1, Jasmeen Uppal1, Sarwat Umer2 and Samina Hayat2, 1LSU Shreveport, Shreveport, 2LSU Shreveport, Shreveport, LA

    Background/Purpose: A large global survey released by the World Lupus Federation showed that the awareness of SLE is low and many individuals have never heard…
  • Abstract Number: 1147 • ACR Convergence 2020

    Development of a Digital Toolkit to Improve Quality of Life of Patients with Systemic Lupus Erythematosus: A Pilot Study

    Jerik Leung1, Ashish Shrestha1, Jennifer Ra2, Laura Brennan3, Alfred Kim4 and Elizabeth Baker1, 1Saint Louis University, College for Public Health and Social Justice, St. Louis, 2Washington University School of Medicine, Lake Forest, CA, 3Transtria, St. Louis, 4Washington University School of Medicine, St. Louis, MO

    Background/Purpose: Individuals living with systemic lupus erythematosus (SLE) face a number of challenges in managing their condition. Initial interviews and community forums with SLE patients…
  • Abstract Number: 1181 • ACR Convergence 2020

    Gains in Cardiovascular Risk Knowledge Through Web Based Educational Intervention for Rheumatoid Arthritis Patients

    Meenakshi Jolly1, Courtney O'Brien1, Aman Kugasia2, Anna Gorfin3, Lauren Klebek3, Joshlean Fair3 and Joel Block1, 1Rush University, Chicago, IL, 2Arthritis Clinic of Cypress and Katy, PA, Katy, TX, 3Rush University, Chicago

    Background/Purpose: Cardiovascular disease (CVD) is a leading cause of mortality in rheumatoid arthritis (RA). Ischemic heart disease in RA is often silent and precedes myocardial…
  • Abstract Number: 184 • 2020 Pediatric Rheumatology Symposium

    A Survey of Uveitis Knowledge Among Juvenile Arthritis Patients and Parents

    Ashley Cooper1, Elaine Flanagan 2, Tova Ronis 3, Baruch Goldberg 4, Ashley Sherman 1, Chelsey Smith 5 and Gary Holland 6 for the CARRA investigators, 1Children's Mercy Kansas City, Kansas City, 2Emory University, Atlanta, 3Children's National Hospital, Washington, 4UT Physicians, Houston, 5Children's Mercy Kansas City, Holden, 6

    Background/Purpose: Chronic anterior uveitis is a sight-threatening complication of juvenile idiopathic arthritis (JIA).  Prompt treatment to prevent complications requires regular screening and detection of uveitis…
  • Abstract Number: 187 • 2020 Pediatric Rheumatology Symposium

    Perspectives of Adolescents and Young Adults Around Implementing Rheumatology Healthcare Transition: Preliminary Qualitative Findings

    Kristine Carandang1, Courtney Wells 2 and Peter Chiraseveenuprapund 3, 1University of California, San Diego, San Diego, 2St Paul, 3University of California - San Diego, San Diego

    Background/Purpose: Nationwide initiatives call for improved healthcare services that empower adolescents to become independent in their health management and remain engaged in healthcare through young…
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ACR Convergence: Where Rheumatology Meets. All Virtual. November 5-9.

ACR Pediatric Rheumatology Symposium 2020

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