Abstracts tagged "Pediatric rheumatology"

Abstract Number: 2792 • 2013 ACR/ARHP Annual Meeting
Pediatric Rheumatology Care and Outcomes Improvement Network Demonstrates Performance Improvement On Juvenile Idiopathic Arthritis Quality Measures
Julia G. Harris^1,2, Esi Morgan DeWitt³, Ronald M. Laxer^4,5, Stacy P. Ardoin⁶, Beth S. Gottlieb⁷, Judyann C. Olson^1,2, Murray H. Passo⁸, Jennifer E. Weiss⁹, Daniel J. Lovell¹⁰, Tzielan C. Lee¹¹, Sheetal S. Vora^12,13, Nancy Griffin¹⁴, Jason A. Stock¹⁵, Lynn M. Darbie¹⁴ and Catherine A. Bingham¹⁶, ¹Medical College of Wisconsin, Milwaukee, WI, ²Children's Hospital of Wisconsin, Milwaukee, WI, ³Department of Pediatrics, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁴Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ⁵Rheumatology, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada, ⁶Pediatric & Adult Rheumatology, Ohio State University College of Medicine, Columbus, OH, ⁷Pediatric Rheumatology, Cohen Children's Medical Center of New York, New Hyde Park, NY, ⁸Pediatrics, Medical University of South Carolina, Charleston, SC, ⁹Pediatric Rheumatology, Hackensack University Medical Center, Hackensack, NJ, ¹⁰Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹¹Pediatric Rheumatology, Stanford University School of Medicine, Stanford, CA, ¹²University of North Carolina Chapel Hill, Chapel Hill, NC, ¹³Levine Children's Hospital and Carolinas Medical Center, Charlotte, NC, ¹⁴James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹⁵Biostatistics & Epidemiology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹⁶Pediatric Rheumatology, Penn State Hershey Children's Hospital, Hershey, PA
Background/Purpose: Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) is a multi-site learning network designed to improve outcomes of juvenile idiopathic arthritis (JIA) care. Teams…
Abstract Number: 2176 • 2013 ACR/ARHP Annual Meeting
Relationships Between Physician and Patient Scored Clinical Outcome Measures In Pediatric Localized Scleroderma
Kaveh Ardalan, Christina Kelsey and Kathryn S. Torok, Pediatric Rheumatology, Scleroderma Center of Pittsburgh, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA
Background/Purpose: Pediatric localized scleroderma (LS) is an autoimmune disease of the skin and underlying tissue leading to sclerosis and complications such as joint contractures. The…
Abstract Number: 2177 • 2013 ACR/ARHP Annual Meeting
A Pilot Study Of Juvenile Localized Scleroderma (jLS) Consensus Treatment Plans
Suzanne C. Li¹, Kathryn S. Torok², Mara L Becker³, Fatma Dedeoglu⁴, Robert C. Fuhlbrigge⁵, Gloria C. Higgins⁶, Sandy D. Hong⁷, Maria F. Ibarra⁸, Ronald M. Laxer⁹, Thomas G. Mason II¹⁰, Elena Pope¹¹, Marilynn G. Punaro^12,13, C. Egla Rabinovich¹⁴, Katie G. Stewart¹², Christina Kelsey¹⁵, Brian Feldman¹⁶, Themba Nyrienda¹⁷ and Knut M. Wittkowski¹⁸, ¹Pediatrics, Joseph M Sanzari Children’s Hospital, Hackensack University Medical Center, Hackensack, NJ, ²Pediatric Rheumatology, Scleroderma Center of Pittsburgh, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, ³Clinical Pharmacology and Rheumatology, Children's Mercy Hospital, Kansas City, MO, ⁴Division of Immunology, Boston Children's Hospital, Boston, MA, ⁵Pediatric Rheumatology, Childrens Hospital, Boston, MA, ⁶Pediatric Rheumatology Ohio State University, Nationwide Childrens Hosp, Columbus, OH, ⁷Pediatrics-Rheumatology, U of Iowa Children's Hosp, Iowa City, IA, ⁸Pediatric Rheumatolgy, Children's Mercy Hospital, Kansas City, MO, ⁹Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ¹⁰Rheumatology, Mayo Clinic Rochester, Rochester, MN, ¹¹Dermatology, The Hospital for Sick Children, Toronto, ON, Canada, ¹²Pediatric Rheumatology, Texas Scottish Rite Hospital, Dallas, TX, ¹³Pediatrics, University of Texas Southwestern Medical Center, Dallas, TX, ¹⁴Duke University Medical Center, Durham, NC, ¹⁵Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, ¹⁶Rheumatology, Hospital for Sick Kids, Toronto, ON, Canada, ¹⁷Research, Hackensack University Medical Center, Hackensack, NJ, ¹⁸Center for Clinical and Translational Science, Rockefeller University, New York, NY
Background/Purpose: Purpose: To evaluate clinical assessment tools and standardized treatment regimens (consensus treatment plans, CTPs) developed for juvenile localized scleroderma (jLS) jLS is a chronic, inflammatory…
Abstract Number: 2179 • 2013 ACR/ARHP Annual Meeting
Consensus: What Agent To Use When First-Line Vasodilatadors Fail In Raynaud´s Phenomenon Or Digital Ulcers Secondary To Juvenile Systemic Sclerosis?
Marìa M. Katsicas¹, Mariana Gonzalez² and Ricardo A. G. Russo³, ¹Immunology & Rheumatology., Hospital de Pediatrìa Garrahan, Buenos Aires, Argentina, ²Immunology & Rheumatology, Hospital de Pediatría Garrahan, Buenos Aires, Argentina, ³Immunology & Rheumatology, Hospital de Pediatria Garrahan, Buenos Aires, Argentina
Background/Purpose: Juvenile Systemic Sclerosis (JSS) is characterized by Raynaud`s phenomenon (RP) and digital ulcers (DU).Conventional therapy includes calcium channel blockers (CCB). A growing number of…
Abstract Number: 2186 • 2013 ACR/ARHP Annual Meeting
Lower Extremity Strength Is Related To Diminished Quality Of Life In Obese Children
Sharon M. Bout-Tabaku^1,2, Matt Briggs³, Tom Best², Colleen Spees², Ajit Chaudhari² and Laura Schmitt⁴, ¹Rheumatology, Nationwide Children's Hospital, Columbus, OH, ²The Ohio State University, Columbus, OH, ³School of Health and Rehabilitation Sciences, Division of Physical Therapy, The Ohio State University, Columbus, OH, ⁴Health and Rehabilitation Science, The Ohio State Universtiy, Columbus, OH
Background/Purpose: Obese children have a higher prevalence of lower extremity (LE) pain, with associated diminished quality of life, greater knee malalignment, generate less knee extensor…
Abstract Number: 2167 • 2013 ACR/ARHP Annual Meeting
23-Valent Polysaccharide Pneumococcal Vaccine in Juvenile Idiopathic Arthritis Patients: Anti-Tumor Necrosis Factor Therapy Role in Short and Long-Term Immunogenicity
Nadia E. Aikawa¹, Ivan L.A. França², Ana C. M. Ribeiro³, Adriana M. Sallum⁴, Eloisa Bonfa⁵ and Clovis A. Silva⁴, ¹Reumatologia, Faculdade de Medicina, Universidade de São Paulo, São Paulo, Brazil, ²Division of Infectious Diseases, University of São Paulo, São Paulo, Brazil, ³Rheumatology Division, Faculdade de Medicina da Universidade de São Paulo, São Paulo, Brazil, ⁴Pediatric Rheumatology Unit, University of São Paulo, São Paulo, Brazil, ⁵Rheumatology Division, University of São Paulo, Sao Paulo, Brazil
Background/Purpose: There is no study regarding short and long-term assessments of 23-valent polysaccharide pneumococcal vaccine (PPV23) in juvenile idiopathic arthritis (JIA) under biologic therapy. The objectives…
Abstract Number: 1698 • 2013 ACR/ARHP Annual Meeting
Sex-Related Differences and Trends In Mortality Of Juvenile-Onset Systemic Lupus Erythematosus (SLE) In The United States Over The Last Forty Years, 1971-2010
Eric Y. Yen¹, Jennifer M.P. Woo² and Deborah K. McCurdy³, ¹Pediatrics/Rheumatology, UCLA Division of Pediatric Rheumatology, Los Angeles, CA, ²Pediatric Rheumatology, Mattel Children's Hospital, University of California, Los Angeles, Los Angeles, CA, ³Pediatric Rheumatology, UCLA Division of Pediatric Rheumatology, Los Angeles, CA
Background/Purpose: To date, SLE-specific mortality studies in children and adolescents are few. Estimations of mortality in adult cohorts of SLE patients have shown that male…
Abstract Number: 1273 • 2013 ACR/ARHP Annual Meeting
Granulomatosis With Polyangiitis In Children Is More Severe Than In Adults. A Long-Term, Single Center, Follow Up Study
Francesco Zulian¹, Grazia Minardo², Valeria Carraro³, Franco Schiavon³ and Giorgia Martini⁴, ¹PRINTO, Genoa, Italy, ²Department of Pediatrics, University of Padua, Padua, Italy, ³Rheumatology Clinic, University of Padova, Padova, Italy, ⁴Department of Pediatrics,, University of Padua, Padua, Italy
Background/Purpose: Granulomatosis with polyangiitis (GPA) is a rare disease in childhood. Treatment strategies and clinical approach are still mostly derived from adult GPA studies. The…
Abstract Number: 844 • 2013 ACR/ARHP Annual Meeting
Level and Determinants Of Health Related Quality Of Life In Childhood-Onset Systemic Lupus Erythematosus
Jordan T. Jones¹, Shannen L. Nelson², Janet Wootton³, Brianna Liberio⁴, Alexandria J. Greenler⁵, Jennifer L. Huggins¹, Laura E. Schanberg⁶ and Hermine Brunner¹, ¹Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, ³Pediatric Rheumatology, Duke University Medical Center, Durham, NC, ⁴University of Cincinnati College of Medicine, Cincinnati, OH, ⁵Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Pediatrics, Duke University Medical Center, Durham, NC
Background/Purpose: Childhood-onset lupus (cSLE) is a chronic autoimmune disease and its effect on health-related quality of life (HRQoL) has not been systematically established, nor does…
Abstract Number: 754 • 2013 ACR/ARHP Annual Meeting
Outcome Of Kidney Transplantation In Paediatric Patients With ANCA Associated Glomerulonephritis: A Single-Center Experience
Marinka Twilt¹, Damien Noone², Wesley Hayes², Paul Thorner³, Susanne M. Benseler⁴, Ronald M. Laxer⁴, Rulan Parekh² and Diane Hebert², ¹Division of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ²Nephrology, The Hospital for Sick Children, Toronto, ON, Canada, ³Pathology, The Hospital for Sick Children, Toronto, ON, Canada, ⁴Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada
Background/Purpose: Kidney transplant outcomes for paediatric patients with end stage kidney disease (ESKD) secondary to ANCA GN, particularly granulomatosis with polyangiitis (GPA) and microscopic polyangiitis…
Abstract Number: 2603 • 2012 ACR/ARHP Annual Meeting
Moving Into the Electronic Age: Validation of Rheumatology Self-Assessment Questionnaires On Tablet Computers
Jessica M. Sage¹, Arshia Ali², Jennifer Farrell³, Jennifer L. Huggins⁴, Kara Covert³, Diane Eskra⁵, Rina Mina³, Shweta Srivastava³, Janalee Taylor⁶, Tracy V. Ting⁴, Esi M. Morgan DeWitt³ and Hermine Brunner⁴, ¹Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Internal Medicine, University of Cincinnati, Cincinnati, OH, ³Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁴Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶William S. Rowe Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: The medical field is increasingly relying on electronic health records (EHR). Many children’s hospitals are converting from paper-pencil questionnaires to electronic versions. The purpose…
Abstract Number: 2421 • 2012 ACR/ARHP Annual Meeting
The Pediatric Rheumatology Nursing Network: An International Email MANAGED COMMUNICATION System
Norma L. Liburd, Rheumatology, All Children's Hospital, St. Petersburg, FL
Background/Purpose: The Pediatric Rheumatology Nursing (PRN) Network is an electronic listserv linking 190 pediatric rheumatology nurses in 8 countries. Pediatric rheumatology nurses often have a sense…
Abstract Number: 2265 • 2012 ACR/ARHP Annual Meeting
Clinical Manifestations of Systemic Lupus Erythematosus Vary Based On Age of Disease Onset
Flora Simmons¹, Natasha M. Ruth², Gary S. Gilkeson³ and Diane L. Kamen⁴, ¹Rheumatology, Medical University of South Carolina, Charleston, SC, ²Pediatric Rheumatology, Medical University of South Carolina, Charleston, SC, ³Department of Medicine, Division of Rheumatology, Medical University of South Carolina, Charleston, SC, ⁴Department of Medicine, Arthritis & Clinical Immunology Program, Oklahoma Medical Research Foundation, Charleston, SC
Background/Purpose: Systemic lupus erythematosus (SLE) is an autoimmune disease which disproportionately affects women of child-bearing age. However, onset during childhood and late adult onset can…
Abstract Number: 1160 • 2012 ACR/ARHP Annual Meeting
Assessment of Subclinical Synovitis by Power Doppler Ultrasonography in Patients with Juvenile Idiopathic Arthritis
Maria Teresa Terreri¹, Vanessa M. Bugni², Claudio A. Len², Sônia de A.V. Mitraud³, Rita NV. Furtado⁴ and Jamil Natour⁵, ¹Pediatrics, Universidade Federal de São Paulo / UNIFESP, Sao Paulo, Brazil, ²Pediatrics, Universidade Federal de São Paulo / UNIFESP, São Paulo, Brazil, ³Radiology and Diagnostic Imaging, Escola Paulista de Medicina/ Universidade Federal de São Paulo (EPM/UNIFESP), São Paulo, Brazil, ⁴Rheumatology, Universidade Federal de Sao Paulo, Sao Paulo, Brazil, ⁵Rheumatology Division, Universidade Federal de São Paulo, São Paulo, Brazil
Background/Purpose: Juvenile idiopathic arthritis (JIA) is the most common chronic rheumatic disease in childhood, leading to physical disability and poor quality of life. Advances in…
Abstract Number: 307 • 2012 ACR/ARHP Annual Meeting
Risk Factors for Poor Outcomes in Hospitalized Patients with Pediatric Systemic Lupus Erythematosus
Mary Beth F. Son¹, Victor M. Johnson², Mindy S. Lo³ and Karen H. Costenbader⁴, ¹Division of Rheumatology and Immunology, University Children's Medical Institute, Singapore, Singapore, ²Department of Anesthesiology, Perioperative and Pain Medicine, Children's Hospital Boston, Boston, MA, ³Division of Immunology, Boston Children's Hospital, Boston, MA, ⁴Rheumatology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA
Background/Purpose: Disparities in care among adults with SLE are well documented. We investigated associations of demographic factors and volume of annual inpatient hospital admissions with…

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