Abstracts tagged "Pediatric rheumatology"

Abstract Number: 040 • 2020 Pediatric Rheumatology Symposium
Patient-Proxy Agreement on Mental Health and Neuropsychological Symptoms Among Youth with Juvenile Fibromyalgia Syndrome
Sabrina Gmuca¹, Maitry Sonagra ², Rui Xiao ³, Nina Thomas ⁴, Kimberly S. Miller ⁴, Jami F. Young ⁴, Pamela Weiss ⁴, David D. Sherry ⁴ and Jeffrey S. Gerber ⁴, ¹Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, ²Children's Hospital of Philadelphia, Cherry Hill, ³University of Pennsylvania, Philadelphia, ⁴Children's Hospital of Philadelphia, Philadelphia
Background/Purpose: Adolescents with juvenile fibromyalgia syndrome (JFMS) present with a myriad of mental health and neuropsychological symptoms, including dyscognition (“brain fog”); however, patient-proxy agreement on…
Abstract Number: 126 • 2020 Pediatric Rheumatology Symposium
Cyclophosphamide as Rescue Therapy for Kawasaki Disease with Peripheral Vascular Disease: A Single Center Experience
Ugo Awa¹, Monica Bray ² and Marietta De Guzman ³, ¹Baylor College of Medicine, Houston, ²Section of Rheumatology, Department of Pediatrics, Baylor College of Medicine, Houston, ³Section of Rheumatology, Department of Pediatrics, Baylor College of Medicine, Houston, Texas
Background/Purpose: Kawasaki Disease (KD) is the most common systemic vasculitis affecting children 5 years and younger. With coronary vessel involvement, KD is now the most…
Abstract Number: 043 • 2020 Pediatric Rheumatology Symposium
Resolution of Coronary Artery Changes in Patients with Refractory Kawasaki Disease with Prolonged Course of Infliximab: A Case Series
Shelley Shi¹ and Anusha Ramanathan ¹, ¹Kaiser Permanente Los Angeles, Los Angeles, California
Background/Purpose: Treatment for patients with Kawasaki Disease (KD) refractory to standard therapy is controversial. Most experts recommend a second dose of IVIG [1], and for…
Abstract Number: 131 • 2020 Pediatric Rheumatology Symposium
Practice Patterns for Consulting Pediatric Rheumatology in a Large Pediatric Intensive Care Unit
Jennifer Rammel¹, Satid Thammasitboon ², Jorge Coss Bu ² and Eyal Muscal ³, ¹Section of Nephrology and Rheumatology, Department of Pediatrics, University of Florida Health Jacksonville, Jacksonville, Florida, ²Baylor College of Medicine, Houston, Texas, ³Section of Rheumatology, Department of Pediatrics, Baylor College of Medicine, houston
Background/Purpose: Pediatric Rheumatology (PR) is a young and still evolving subspecialty. In addition to traditional rheumatic diseases, there has been an increased prevalence of emerging…
Abstract Number: 045 • 2020 Pediatric Rheumatology Symposium
No-Shows: a Search for Modifiable Risk Factors
Samantha Ong ¹, Xujia Li ¹ and Austin Dalrymple², ¹Saint Louis University School of Medicine, St. Louis, ²Saint Louis University School of Medicine, Saint Louis, Missouri
Background/Purpose: Missed ambulatory visits, or “no-shows,” limit patient access, increase costs, occupy provider time, and lead to worse patient outcomes. Only a few studies have…
Abstract Number: 132 • 2020 Pediatric Rheumatology Symposium
Clinical Characteristics and Outcomes of Critically Ill Children Requiring Rheumatology Consultation in a Large Intensive Care Unit
Jennifer Rammel¹, Kristen Staggers ², Satid Thammasitboon ², Jorge Coss Bu ², Amanda Brown ³ and Eyal Muscal ⁴, ¹Section of Nephrology and Rheumatology, Department of Pediatrics, University of Florida Health Jacksonville, Jacksonville, Florida, ²Baylor College of Medicine, Houston, Texas, ³Baylor College of Medicine, Houston, ⁴Section of Rheumatology, Department of Pediatrics, Baylor College of Medicine, houston
Background/Purpose: Pediatric rheumatology has been an evolving subspecialty over the last few decades with a continued increase in the both the number and severity of…
Abstract Number: 050 • 2020 Pediatric Rheumatology Symposium
Long Term Safety of Biologics and Biosimilars in Pediatric Rheumatic Diseases: An Experience from a Single North Indian Centre
MANJARI AGARWAL ¹, Sujata Sawhney² and Anju Singh ³, ¹Sir Ganga Ram Hospital, NEW DELHI, Delhi, India, ²Sir ganga ram hospital, Sector 37 noida, Uttar Pradesh, India, ³Sir Ganga Ram Hospital, delhi, India
Background/Purpose: The use of biologic response modifiers(BRMs) is associated with an increased risk of infections.We also use biosimilars for two reasons:1. originator not available, like…
Abstract Number: 133 • 2020 Pediatric Rheumatology Symposium
Pediatric Rheumatology Consultation for Both Traditional and Emerging Rheumatic Diseases in the Critical Care Setting
Jennifer Rammel¹, Kristen Staggers ², Satid Thammasitboon ², Jorge Coss Bu ², Amanda Brown ³ and Eyal Muscal ⁴, ¹Section of Nephrology and Rheumatology, Department of Pediatrics, University of Florida Health Jacksonville, Jacksonville, Florida, ²Baylor College of Medicine, Houston, Texas, ³Baylor College of Medicine, Houston, ⁴Section of Rheumatology, Department of Pediatrics, Baylor College of Medicine, houston
Background/Purpose: In addition to traditional rheumatic diseases (TRDs), Pediatric Rheumatologists are often consulted on emerging rheumatic diseases (ERDs) such as autoimmune encephalitis, seronegative vasculitides, and…
Abstract Number: 059 • 2020 Pediatric Rheumatology Symposium
Challenges Faced by Families of Children with an Auto-inflammatory Disease
Lori Tucker¹, Maria Belen ², Jenny Tekano ², Iwona Niemietz ³, Martina Sundqvist ³ and Kelly Brown ³, ¹BC Children's Hospital, Vancouver, British Columbia, Canada, ²BC CHildren's Hospital, Vancouver, Canada, ³BC Children's Hospital Research Institute, Vancouver, Canada
Background/Purpose: Auto-inflammatory diseases (AIDs) are rare disorders that usually present in young children. Disease episodes, characterized by recurrent inflammation, are often frequent and unpredictable, and…
Abstract Number: 169 • 2020 Pediatric Rheumatology Symposium
Addressing the Pediatric Rheumatology Workforce Shortage: Is Early Exposure Enough?
Katherine Schultz¹, Theresa Hennard ², Britne Gregg ³, Melissa Klein ⁴, Francis Real ² and Jennifer Huggins ², ¹Cincinnati Childrens Hospital Medical Center, Newport, ²Cincinnati Children's Hospital Medical Center, Cincinnati, ³, ⁴Cincinnati
Background/Purpose: The current demand for pediatric rheumatologists in the United States exceeds supply by 33%, a figure projected to worsen to 61% by 20301. This…
Abstract Number: 063 • 2020 Pediatric Rheumatology Symposium
Musculoskeletal Ultrasound Assessment in Pediatric Knee Hypermobility
Laura Ballenger¹, Ann Salvator ² and Edward Oberle ¹, ¹Division of Rheumatology, Nationwide Children's Hospital, Columbus, ²Biostatistics Resource at Nationwide Children's Hospital, Columbus
Background/Purpose: While musculoskeletal ultrasound (MSUS) use in pediatric rheumatology is becoming more common, the majority of pediatric MSUS literature continues to focus on ultrasound findings…
Abstract Number: 172 • 2020 Pediatric Rheumatology Symposium
Improved Self-efficacy and Knowledge in Pediatric Rheumatology Among General Pediatric Residents Following the Introduction of a Standardized Teaching Series
Elizaveta Limenis¹, Alhanouf Alsaleem ², Herman Tam ³, Piya Lahiry ¹, Kate Neufeld ⁴ and Shirley Tse ⁵, ¹Hospital for Sick Children, Toronto, Canada, ²KFSH&RC, RiYADH, Saudi Arabia, ³The Hospital for Sick Children, Toronto, Canada, ⁴University of Toronto, The Hospital for Sick Children, Toronto, Canada, ⁵SickKids, Toronto, Canada
Background/Purpose: Self-efficacy and knowledge in core pediatric rheumatology (PR) topics are generally low among pediatric residents before their mandatory rotations in PR. The teaching style…
Abstract Number: 005 • 2020 Pediatric Rheumatology Symposium
Single Cell Sequencing of the Skin to Define Cell Populations of Interest in Localized Scleroderma (LS)
Emily Mirizio ¹, Wei Chen ², Tao Sun ², Tracy Tabib ³, Kaila Schollaert-Fitch ¹, Robert Lafyatis ⁴, Heidi Jacobe ⁵ and Kathryn Torok¹, ¹Pediatric Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, ²Research Computing Core at Children's Hospital of Pittsburgh, Pittsburgh, ³Univ of Pittsburgh Med Ctr, Pittsburgh, ⁴Univ of Pittsburgh Med Ctr, Pittsburgh, Pittsburgh, ⁵University of Texas Southwestern Medical Ctr, Dallas
Background/Purpose: Scleroderma is an autoimmune disorder involving inflammatory driven fibrosis, which encompasses systemic sclerosis (SSc) and localized scleroderma (LS). LS and SSc share histological characteristics,…
Abstract Number: 064 • 2020 Pediatric Rheumatology Symposium
The First 18 Months of a Pediatric Rheumatology Service at a Tertiary Referral Hospital in Kenya
Angela Migowa¹ and James Orwa ², ¹Aga Khan University Hospital, Montreal, Kenya, ²AGA KHAN UNIVERSITY HOSPITAL, Nairobi, Kenya
Background/Purpose: Pediatric rheumatic diseases impart a significant disease burden upon children and their families with the potential to cause diminished quality of life and significant…
Abstract Number: 174 • 2020 Pediatric Rheumatology Symposium
Improving Hospital Discharge Instructions for Pediatric Rheumatology Patients
Laura Ballenger¹, Vidya Sivaraman ², Stephanie Lemle ³ and Kyla Driest ¹, ¹Division of Rheumatology, Nationwide Children's Hospital, Columbus, ²Division of Rheumatology, Nationwide Children's Hospital, Bexley, ³Quality Improvement Services, Nationwide Children's Hospital, Columbus
Background/Purpose: Communication, including clear discharge instructions, is a crucial aspect of the hospital discharge process. Development of standardized discharge templates has been reported to improve…

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