Abstracts tagged "Social support"

Abstract Number: 1068 • ACR Convergence 2021
Analysis of Tweets Containing Information Related to Rheumatological Diseases on Twitter
Adrian abbasi¹, Miguel Álvarez-Mon², Carolina Donat-Vargas³, ana Perez⁴, julio suarez¹, lorena montano¹, emilio rico¹ and melchor Alvarez de Mon¹, ¹Hospital Universitario Príncipe de Asturias, Madrid, Spain, ²Hospital Universitario Infanta Leonor, Madrid, Spain, ³IMDEA Food, Cardiovascular and Nutritional Epidemiology Group, Madrid, Spain, ⁴Hospital Universitario Príncipe de Asturias. Rheumatology. Medicine Faculty. Alcala University Department., Madrid, Spain
Background/Purpose: Twitter is an indicator of the interests of its users in the real world, and therefore, is an appropriate setting to assess the content…
Abstract Number: 1152 • ACR Convergence 2021
A Follow-Up Evaluation of a Longstanding Telephone Peer Counseling Service for People with Systemic Lupus Erythematosus and Their Loved Ones
Priscilla Toral, Roberta Horton and Jillian Rose, Hospital for Special Surgery, New York, NY
Background/Purpose: With technology rapidly evolving, studies still reinforce the value of telephone peer support for people living with chronic illness. A follow-up evaluation was conducted…
Abstract Number: 1153 • ACR Convergence 2021
The Influence of Companions on a Patient’s Decision to Transition to a Biosimilar: A Randomized Controlled Trial
Chiara Gasteiger¹, Katie Groom¹, Maria Lobo², Urte Scholz³, Keith Petrie¹ and Nicola Dalbeth¹, ¹University of Auckland, Auckland, New Zealand, ²Auckland District Health Board, Auckland, New Zealand, ³University of Zurich, Zurich, Switzerland
Background/Purpose: Involving patients in treatment decisions is commonplace in healthcare, but patients are frequently accompanied by a support person (companion). Companions are often actively involved…
Abstract Number: PP10 • ACR Convergence 2021
Discovering ‘I’ Through Interaction with Support Group Members: A Place of Empathy That Transcends the Limitations of Words
Noriko Okochi¹, Eiji Oishi² and Mika Ishiguro¹, ¹Rheumatic Disease and Vasculitis Support Network Japan, Tokyo, Japan, ²Rheumatic Disease and Vasculitis Support Network Japan, Yamaguchi, Japan
Background/Purpose: Since 5-year-old, I have had unexplained symptoms. At the age of 13, my whole body became inflamed. The pain was so intense that I…
Abstract Number: PP13 • ACR Convergence 2021
CreakyKitchen: How the Online Cooking Show I Started is Building Community and Encouraging Better Food Choices for Me and Others Living with Rheumatic and Chronic Disease
Chantelle Marcial, Boston, MA
Background/Purpose: At 19, I was mis-diagnosed with Lupus as it was a common condition in my family. My treatment at that time was mainly DMARDs,…
Abstract Number: 0079 • ACR Convergence 2020
Analysis of COVID-19 and Rheumatology Twitter Activity During the Pandemic Months
Mosaab Mohameden¹ and Ali H.Ali², ¹University of Cincinnati College of Medicine, Cincinnati, OH, ²University of California San Francisco Fresno, Fresno, CA
Background/Purpose: Twitter is a popular social media platform that is widely used to publish information and exchange ideas. There are over 300 million active monthly…
Abstract Number: 0275 • ACR Convergence 2020
Paradoxical Relationship Between Disease Activity and Satisfaction with Care in Lupus
Sana Afroz¹, Ailda Nika², Winston Sequeira³, Joel Block⁴, Patricia Katz⁵ and Meenakshi Jolly², ¹RUMC, chicago, IL, ²Rush University, Chicago, IL, ³Rush University Medical Center, Oak Brook, IL, ⁴Rush University Medical Center, Chicago, ⁵University of California, San Francisco, Novato, CA
Background/Purpose: Satisfaction with care (SC) is increasingly being used as a surrogate of QOC, with growing emphasis on optimizing SC/patient experience in health care. We…
Abstract Number: 0570 • ACR Convergence 2020
The Patient Perspective on Using Digital Resources to Address Unmet Needs in Systemic Lupus Erythematosus
Jennifer Ra¹, Jerik Leung², Elizabeth Baker² and Alfred Kim¹, ¹Washington University School of Medicine, St. Louis, MO, ²Saint Louis University, College for Public Health and Social Justice, St. Louis
Background/Purpose: The clinical variability of systemic lupus erythematosus (SLE) caused by the unpredictability of flares contributes to patients experiencing a diminished sense of social support.…
Abstract Number: 0617 • ACR Convergence 2020
Support Methodologies for African American Women with Lupus – Comparing Two Study’s Effects on Patient Activation
Ashley White¹, Trevor Faith¹, Aissatou Ba¹, Viswanathan Ramakrishnan², Hetlena Johnson³, Jillian Rose⁴, Clara Dismuke-Greer⁵, Jim Oates⁶, Leonard Egede⁷ and Edith Williams¹, ¹Medical University of South Carolina, Charleston, SC, ²medical university of south carolina, south carolina, ³LupusCSC, Columbia, SC, ⁴Hospital for Special Surgery, New York, ⁵Palo Alto VA, Palo Alto, CA, ⁶Medical University of South Carolina, Charleston, SC, Charleston, SC, ⁷Medical College of Wisconsin, Milwaukee, WI
Background/Purpose: Systemic Lupus Erythematosus (SLE) is a chronic inflammatory disease in which the immune system of affected individuals attacks their own healthy tissues. While pharmaceutical…
Abstract Number: 0052 • ACR Convergence 2020
Loneliness and Social Isolation Are Important Social Determinants Among Patients from Minority Communities with Rheumatic Diseases
Allen Anandarajah¹, Nancy Shelton², Leta Yi³, Meredith Graham⁴, Emily Papa⁵ and Robyn Carter⁵, ¹university of rochester medical center, rochesteruniversity, NY, ²Coordianted Care Services Inc, Rochester, NY, ³University of Rochester Medical Center, rochester, NY, ⁴Collaborative Health Research, Rochester, NY, ⁵St. Joseph's Neighbourhood Center, Rochester, NY
Background/Purpose: Loneliness and social isolation have detrimental effects on health and are associated with risk of an earlier death, depression and poor self-rated health. Few…
Abstract Number: 1756 • 2019 ACR/ARP Annual Meeting
Health-related Social Media Use by Parents of Children with Rheumatic Diseases
Jonathan Hausmann¹, Vincent Del Gaizo ², Kara Magane ³, Alexandra Marin ⁴, Shannon Malloy ⁵, Sanjay Mishra ⁶, Tory Aquino ⁷, Marc Natter ⁸, Laura Schanberg ⁹ and Elissa Weitzman ⁸, ¹Boston Children's Hospital / Beth Israel Deaconess Medical Center, Boston, MA, ²Childhood Arthritis and Rheumatology Research Alliance, Whitehouse Station, NJ, ³Boston Children’s Hospital, Boston, MA, ⁴Boston Children's Hospital, Boston, MA, ⁵Cure JM Foundation, Seattle, WA, ⁶Seattle Public Schools, Seattle, WA, ⁷Hearing Life, Patterson Heights, PA, ⁸Boston Children’s Hospital / Harvard Medical School, Boston, MA, ⁹Duke University Medical Center, Durham, NC
Background/Purpose: Disease and treatment burdens are high for children living with rheumatic diseases. Pediatric patients and their families lack a mature evidence base to guide…
Abstract Number: 2082 • 2015 ACR/ARHP Annual Meeting
Evaluations of Social Support Are Associated with Well-Being Outcomes in Women with Systemic Lupus Erythematosus (SLE)
Stacey E. Morrison¹, Monique A.M. Gignac², Paul R. Fortin³ and Dorcas Beaton⁴, ¹Div Rheumatology Rm MP-10-304, Toronto Western Hospital, Toronto, ON, Canada, ²Instititue for Work and Health, Toronto, ON, Canada, ³Medicine, CHU de Québec - Université Laval, Québec, QC, Canada, ⁴Mobility Program Clinical Research Unit, St Michael's Hospital, Toronto, ON, Canada
Background/Purpose : Research on SLE and social support has often focused on the total amount of support provided. However, studies also report that some individuals…
Abstract Number: 1334 • 2014 ACR/ARHP Annual Meeting
Social Support and Suicidal Ideation in Systemic Lupus Erythematosus: Georgians Organized Against Lupus Cohort
Charmayne M. Dunlop-Thomas¹, Gaobin Bao², S. Sam Lim³ and Cristina M. Drenkard⁴, ¹Medicine Rheumatology, Emory University, Atlanta, GA, ²Medicine, Emory University, Atlanta, GA, ³Emory University School of Medicine, Division of Rheumatology, Atlanta, GA, ⁴Medicine, Div Rheumatology, Emory University, Atlanta, GA
Background/Purpose: Social support (SS) is instrumental in the mental and physical well-being of people with systemic lupus erythematosus (SLE). Moreover, SS contributes to overall…

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