Abstracts tagged "Social support"

Abstract Number: PP04 • ACR Convergence 2024
Involving Pediatric Patients in Their Own Care
Whitney LaBar, Lupus and Allied Diseases Association, Pleasanton, CA
Background/Purpose: When I was 14, I was diagnosed with thrombocytopenia, which led to more testing and a diagnosis of systemic lupus erythematosus (SLE). As a…
Abstract Number: PP12 • ACR Convergence 2024
Healing Together: The Role of Black, Indigenous and People of Color (BIPOC) -Only Chronic Illness Spaces in Comprehensive Care
Sarah Shaw and JP Summers, Global Healthy Living Foundation, Upper Nyack, NY
Background/Purpose: As someone from the Black, Indigenous, and People of Color (BIPOC) community living with rheumatic conditions, I have experienced firsthand many challenges that people…
Abstract Number: PP14 • ACR Convergence 2024
Support Groups and Chronic Illness: Finding Social Support Among Peers
Alexandra Blumhorst¹ and Estela Mata-Carcamo², ¹Looms for Lupus, Silver Spring, MD, ²Looms for Lupus, Irwindale, CA
Background/Purpose: Like many lupus patients, my journey has been long, complex, and difficult. I began experiencing symptoms in 2019. Over the next five years, I…
Abstract Number: 0181 • ACR Convergence 2024
Integrated Multidisciplinary Lupus Social Work Program to Manage Social Determinants of Health in SLE and Lupus Nephritis – Preliminary Results
Kimberly DeQuattro¹, Stephanie DeVaughn², Andrew Kanoff³ and Abdallah Geara¹, ¹University of Pennsylvania, Philadelphia, PA, ²Uniersity of Pennsylvania, Pennsylvania, ³University of Pennsylvania, Philadelphia, PA, Philadelphia, PA
Background/Purpose: Minoritized individuals with systemic lupus erythematosus (SLE) experience social determinants of health (SDOH) challenges that affect access to care and increase the risk for…
Abstract Number: 0182 • ACR Convergence 2024
Pilot Volunteer Lupus Navigator Program – Leveraging Community Health Workers to Address Social Determinants of Health in SLE
Patricia Nogueira De Sa¹, Stephanie Wirtshafter¹, Abdallah Geara² and Kimberly DeQuattro², ¹University of Pennsylvania, Pennsylvania, ²University of Pennsylvania, Philadelphia, PA
Background/Purpose: Systemic Lupus Erythematosus (SLE) is a chronic, multisystem autoimmune condition that disproportionally affects individuals from racial and ethnic minority groups with more than 95%…
Abstract Number: 0188 • ACR Convergence 2024
Social Support in African American Women with and Without Systemic Lupus Erythematosus (SLE)
Sarah Smith¹, Chloe Mattila¹, Charmayne M. Dunlop-Thomas², Lusawasra King³, Lori Ann Ueberroth³, Edith Williams⁴, S. Sam Lim⁵, Diane Kamen³, Bethany Wolf³ and Paula Ramos³, ¹Medical University of South Carolina, Charleston, ²Emory University School of Medicine, Department of Medicine, Division of Rheumatology, Atlanta, GA, ³Medical University of South Carolina, Charleston, SC, ⁴University of Rochester School of Medicine and Dentistry, Rochester, ⁵Emory University, Atlanta, GA
Background/Purpose: Systemic lupus erythematosus (SLE) disproportionately impacts African American women. However, this health disparity population continues to be underrepresented in research. Research suggests that social…
Abstract Number: 0351 • ACR Convergence 2024
Empowering Lupus Communities: Evaluating a National Peer Support Program for Lupus Teen, Young Adult Patients and Their Families
Giselle Rodriguez, LCSW¹, Priscilla Calvache¹, Lillian Mendez², Kimberly Cabrera¹, Roberta Horton¹, Lisa Imundo³ and Jillian Rose-Smith¹, ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Carteret, NJ, ³New York Presbyterian Hospital - Columbia Campus, New York, NY
Background/Purpose: Research shows that peer support groups effectively provide emotional support, enhance knowledge, & improve coping for chronic illnesses. An evaluation of a bilingual hospital…
Abstract Number: 1503 • ACR Convergence 2024
Social Connections Among Middle-Aged and Older Adults with Systemic Lupus Erythematosus: A Single Center Cross-Sectional Study
Sarah Lieber¹, Yvonne Shea¹, Sarah Gottesman¹, Amaya Smole², Dongmei Sun³, Iris Navarro Millan⁴, M. Carrington Reid⁵ and Lisa Mandl¹, ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Brooklyn, NY, ³Hospital for Special Surgery, Birmingham, AL, ⁴Weill Cornell Medicine, Hospital for Special Surgery, New York, NY, ⁵Weill Cornell Medicine, New York, NY
Background/Purpose: Loneliness and social isolation have been associated with multiple adverse health outcomes in the general population of older adults. The goal of this study…
Abstract Number: 1911 • ACR Convergence 2024
Improving Healthcare Access in Underserved Brooklyn Communities: A Comprehensive Multispecialty Patient Navigator Program
Meenakshi Kurup¹, Grace Shadid², Jasmine Pak², Alejandra Moncayo³, Naureen Kabani⁴, Soodeh Kabir⁵, Sharon Glick⁵ and Ellen Ginzler⁶, ¹SUNY Downstate Health Sciences University, Department of Medicine, Brooklyn, NY, ²SUNY Downstate College of Medicine, Brooklyn, NY, ³SUNY Downstate Health Sciences University, College of Medicine, Brooklyn, NY, ⁴SUNY Downstate Medical Center, Brooklyn, NY, ⁵SUNY Downstate Health Sciences University, Department of Dermatology, Brooklyn, NY, ⁶SUNY Downstate Health Sciences University, New York, NY
Background/Purpose: Underserved communities in the USA face significant healthcare disparities, leading to poorer clinical outcomes and higher rates of chronic diseases. Socioeconomic barriers such as…
Abstract Number: 1919 • ACR Convergence 2024
Patient-reported Social Risk Factor Screening Among Rheumatology Outpatients
Alissa Chandler¹, Mohammed Hamid², Aurora Jiao³, Kelsey Hulcher⁴, Isha Sharma⁵, Patrice Odom⁴, Andrew Robinson⁶, Sara Kellahan², Maura Kepper⁷, Colleen Dostal⁸, Senada Fenelon⁹, Seth Eisen¹⁰, Daphne Lew¹¹ and Alfred Kim¹², ¹Washington University, St. Louis, MO, ²Washington University School of Medicine, St. Louis, MO, ³Washington University, Saint Louis, ⁴Washington University, Saint Louis, MO, ⁵Washington University in St. Louis School of Medicine, San Jose, CA, ⁶Washington University, Fenton, MO, ⁷Washington University, Brown School of Social Work, Saint Louis, ⁸Southern Illinois University Edwardsville, St. Louis, MO, ⁹Washington University St Louis, Ballwin, MO, ¹⁰Washington University School of Medicine, St Louis, MO, ¹¹Center for Biostatistics and Data Science, Institute for Informatics, Data Science, and Biostatistics, Washington University School of Medicine and Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO, ¹²Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO
Background/Purpose: The purpose of this study was to pilot test a patient-reported social risk factor (SRF) screening tool among rheumatology outpatients and to examine the…
Abstract Number: 1951 • ACR Convergence 2024
Patient-Reported Barriers to Care Across Pediatric Rheumatology Patients at a Tertiary Academic Medical Center
Bethany Walker¹, Carolyn Smith², John Bridges³, Linda McAllister¹, Ashley McCamy⁴, Annelle Reed⁵, Erica Reynolds⁴, Isabella Robles², Livie Timmerman⁶, Tana Webb², Melissa Mannion⁷ and Emily Smitherman⁷, ¹Children's of Alabama, Trussville, AL, ²Children's of Alabama, Birmingham, AL, ³University of Alabama at Birmingham/Children's of Alabama, Birmingham, AL, ⁴Children's of Alabama, Birmingham, ⁵Children's of Alabama, Tuscaloosa, AL, ⁶University of Alabama at Birmingham, Gardendale, AL, ⁷University of Alabama at Birmingham, Birmingham, AL
Background/Purpose: Pediatric rheumatic diseases require frequent medical interactions, including follow-up visits with various providers, lab testing, imaging procedures, and infusion treatments. The impact of these…
Abstract Number: 2151 • ACR Convergence 2024
Rheumatology on Reddit: A Descriptive Analysis
Alfredo Madrid García¹, Beatriz Merino Barbancho², Inés Pérez - Sancristóbal³, Dalifer Freites Nuñez⁴, Luis Rodriguez Rodriguez⁵, lydia Abasolo Alcazar⁶, Leticia Leon⁷ and Benjamin fernandez-Gutierrez⁷, ¹Fundación para la Investigación Biomédica del Hospital Clínico San Carlos (IDISCC), Madrid, Madrid, Spain, ²Life supporting technologies. Escuela Técnica Superior de Ingenieros de Telecomunicación. Universidad Politécnica de Madrid., Madrid, Spain, ³Department of Rheumatology, Hospital Clinico San Carlos,, Madrid, Madrid, Spain, ⁴Hospital Clínico San Carlos. Madrid. Spain., Madrid, Spain, ⁵Hospital Clinico San Carlos, Madrid, Madrid, Spain, ⁶IdISSC. HCSC, Madrid, Spain, ⁷Hospital Clinico San Carlos, Madrid, Spain
Background/Purpose: Over the past decade, social media data have gained special interest across various sectors, specially in medicine where these data are being utilized for…
Abstract Number: 2551 • ACR Convergence 2024
Modified Delphi Process to Propose an Equity Measurement Roadmap in Rheumatology
Sancia Ferguson¹, Allen Anandarajah², Melissa Wells³, Delamo Bekele⁴, Ashira Blazer⁵, Cynthia Crowson⁴, Deborah Desir⁶, Elizabeth Ferucci⁷, Wambui Machua⁸, Esi Morgan⁹, Wendy Rogers¹⁰, Lauren Smith¹¹, JoAnn Zell¹², Lisa Suter¹³, Shraddha Jatwani¹⁴ and Christie Bartels¹⁵, ¹University of Wisconsin, Madison, Madison, WI, ²University of Rochester Medical Center, Rochester, NY, ³McFarland Clinic, Ames, IA, ⁴Mayo Clinic, Rochester, MN, ⁵University of Maryland Baltimore, Baltimore, MD, ⁶Yale School of Medicine, WOODBRIDGE, CT, ⁷Alaska Native Tribal Health Consortium, Anchorage, AK, ⁸Piedmont Healthcare, Atlanta, GA, ⁹Seattle Children's Hospital, Seattle, WA, ¹⁰Lupus Foundation of America, Inc, Washington, DC, ¹¹Medstar Georgetown University Hospital, District Heights, MD, ¹²University of Colorado Anschutz Medical Campus, Denver, CO, ¹³Yale School of Medicine, New Haven, CT, ¹⁴Dignity Health-MMG Rheumatology, Citrus Heights, CA, ¹⁵University of Wisconsin School of Medicine and Public Health, Madison, WI
Background/Purpose: Achieving health equity has been a long-standing goal, as Academy of Medicine leaders stated, ‘There is no equity without quality, and there is no…
Abstract Number: 1924 • ACR Convergence 2023
Impact of the COVID-19 Pandemic on Clinical and Psychosocial Features of Patients with UCTD
Caroline Siegel¹, Lucy Masto¹, Amaya Smole¹, Bessie Stamm¹, JoAnn Vega¹, Dongmei Sun¹, Deanna Jannat-Khah¹, Michael Lockshin², Lisa Sammaritano² and Medha Barbhaiya², ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Weill Cornell Medicine, New York, NY
Background/Purpose: The early COVID-19 pandemic led to physical and psychological burdens for patients with systemic rheumatic diseases, whether or not they had had COVID-19. To…
Abstract Number: 2089 • ACR Convergence 2023
Social Listening Analysis of IgG4-Related Disease Social Media Discussions
Esteban Rivera¹, Kelly Gavigan², Daniel Hernandez³, Maria Picone⁴, Angeni Cordova⁴, Lauren Dougherty⁴, Kristina Davidson⁵, Brian LaMoreaux⁶, Anthony Amatucci⁷ and W. Benjamin Nowell⁸, ¹Global Healthy Living Foundation, Long Island City, NY, ²Global Healthy Living Foundation, Upper Nyack, NY, ³Global Healthy Living Foundation, St. Johns, FL, ⁴TREND Community, Philadelphia, PA, ⁵Horizon Therapeutics, Dublin, Ireland, ⁶Horizon Therapeutics, Deerfield, IL, ⁷Horizon Therapeutics, Cambridge, MA, ⁸Global Healthy Living Foundation, Nyack, NY
Background/Purpose: Immunogobulin G4-Related Disease (IgG4-RD) is a rare chronic immune-mediated fibroinflammatory disorder that often manifests with tumor-like masses and/or enlargement of multiple organs. In order…

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