Abstracts tagged "quality of life"

Abstract Number: 1028 • 2013 ACR/ARHP Annual Meeting
Development Of Patient-Reported Outcomes Measurement Information System (PROMIS®) Gastrointestinal (GI) Symptoms Item Bank
Dinesh Khanna¹, Lin Chang², Gil Y. Melmed³, Roger Bolus⁴, Puja Khanna¹, Ron Hays⁵ and Brennan Spiegel^6,7, ¹Division of Rheumatology, University of Michigan Medical Center, Ann Arbor, MI, ²Medicine, Division of Digestive Diseases, David Geffen School of Medicine at University of California, Los Angeles, Los Angeles, CA, ³Inflammatory Bowel Disease Center, Cedar-Sinai Medical Center, Los Angeles, CA, ⁴Research Solutions Group, Encinitas, CA, ⁵Medicine, University of California, Los Angeles, Los Angeles, CA, ⁶Gastroenterology; Health Policy and Management, Cedars-Sinai Health System and UCLA School of Medicine and Public Health, Los Angeles, CA, ⁷VA Greater Los Angeles Healthcare System, Los Angeles, CA
Background/Purpose: The National Institutes of Health PROMIS® roadmap initiative is a cooperative research program designed to develop, evaluate, and standardize item banks to measure patient-reported…
Abstract Number: 2424 • 2012 ACR/ARHP Annual Meeting
Sleep Disturbances in Systemic Sclerosis: Evidence for the Role of Gastrointestinal Symptoms, Pain, and Pruritus
Katherine Milette¹, Marie Hudson², Annett Koerner¹, Murray Baron³ and Brett D. Thombs⁴, ¹Educational and Counselling Psychology, McGill University, Montreal, QC, Canada, ²Jewish General Hospital, McGill University, Montreal, QC, Canada, ³Pavillion A, Rm 216, Lady David Institute for Medical Research and Jewish General Hospital, Montreal, QC, Canada, ⁴Psychiatry, McGill University, Montreal, QC, Canada
Background/Purpose: Systemic Sclerosis (SSc) is an autoimmune connective tissue disorder characterized by thickening and fibrosis of the skin and internal organs. There is significant mortality…
Abstract Number: 1831 • 2012 ACR/ARHP Annual Meeting
Evaluation of the Cost-Effectiveness of Rheumatoid Arthritis Treatment with Biologic Agents Using the IORRA Cohort Database
Eiichi Tanaka¹, Eisuke Inoue², Daisuke Hoshi³, Akiko Kobayashi², Naoki Sugimoto², Kumi Shidara², Eri Sato³, Yasushi Inoue³, Yohei Seto², Ayako Nakajima⁴, Shigeki Momohara³, Atsuo Taniguchi² and Hisashi Yamanaka³, ¹Tokyo Women's Medical University, Tokyo, Japan, ²Institute of Rheumatology, Tokyo Women’s Medical University, Tokyo, Japan, ³Institute of Rheumatology, Tokyo Women's Medical University, Tokyo, Japan, ⁴Rheumatology, Institute of Rheumatology, Tokyo Women’s Medical University, Tokyo, Japan
Background/Purpose: Rheumatoid arthritis (RA), a chronic inflammatory disorder, causes a significant decrease in quality of life. Recently developed biologic agents (BAs) have caused a considerable…
Abstract Number: 1740 • 2012 ACR/ARHP Annual Meeting
Impairment of Quality of Life in Patients with Antiphospholipid Syndrome
Stephane Zuily¹, Francis Guillemin², Veronique Regnault³, Pierre Kaminsky⁴, Patrick Mismetti⁵, Jacques Ninet⁶, Nicolas Baillet⁷, Nadine Magy-Bertrand⁸, Bernard Lorcerie⁹, Jean-Louis Pasquali¹⁰, Thomas Lecompte¹¹, Anne-Christine Rat¹² and Denis Wahl¹³, ¹CHU de Nancy, Vascular Medicine Division and Regional Competence Center For Rare Vascular And Systemic Autoimmune Diseases, Nancy, F-54000, France; Inserm, UMR_S 1116, Nancy, F-54000, France; Université de Lorraine, Nancy, F-54000, France, Nancy, France, ²INSERM, Centre d'Investigation Clinique - Epidémiologie Clinique (CIC-EC) CIE6, Nancy, France, ³Inserm, UMR_S 1116, Nancy, F-54000, France; Université de Lorraine, Nancy, F-54000, France; CHU de Nancy, Contrat d’interface, Nancy, F-54000, France, Nancy, France, ⁴Internal Medicine, Orphan disease Unit, Nancy, France, ⁵CHU Saint-Etienne, Unité de Pharmacologie Clinique, Groupe de Recherche sur la Thrombose (EA 3065), Saint Etienne, France, ⁶Department of Nephrology and Internal Medicine, Hôpital Edouard Herriot, Lyon, France, Lyon, France, ⁷Hôpitaux civils de Colmar, Service de Médecine interne, Colmar, France, ⁸CHU Jean-Minjoz, Service de médecine interne et immunologie clinique, Besançon, France, ⁹Hopital Du Bocage, Service de Médecine Interne et Immunologie Clinique, Dijon, France, ¹⁰Strasbourg University, Hospital, CNRS UPR 3572, Strasbourg, France, ¹¹Inserm, UMR_S 1116, Nancy, F-54000, France; Université de Lorraine, Nancy, F-54000, France; CHU de Nancy, Haematology Laboratory, Nancy, F-54000, France; Division of Haematology, HUG, Geneva, Switzerland (current address), Geneva, Switzerland, ¹²Université de Lorraine, INSERM, CIC-EC CIE6, Rheumatology, Epidemiology, Nancy, France, ¹³Nancy University Hospital and INSERM U961, Vascular medicine division and Regional Competence Center For Rare Vascular And Systemic Autoimmune Diseases, Nancy, France
Background/Purpose : Quality of life (QoL) is an important outcome in clinical care especially in patients with chronic disease such as systemic lupus erythematosus (SLE).…
Abstract Number: 1558 • 2012 ACR/ARHP Annual Meeting
“It Gets Me Down Every Single Day”: Are Men with Rheumatoid Arthritis Getting the Support They Need?
Caroline A. Flurey¹, Marianne Morris², Jon Pollock¹, Rodney A. Hughes³, Pamela Richards⁴ and Sarah Hewlett⁵, ¹Faculty of Health and Life Sciences, University of the West of England, Bristol, United Kingdom, ²University of the West of England, Bristol, United Kingdom, ³Rheumatology, St. Peters Hospital, Chertsey Surrey, United Kingdom, ⁴Academic Rheumatology Unit, University of Bristol, Bristol, United Kingdom, ⁵Academic Rheumatology, University of the West of England, Bristol, United Kingdom
Background/Purpose: Daily life with RA has been explained as unpredictable and full of uncertainty. However, most research about daily life with RA was conducted before…
Abstract Number: 1569 • 2012 ACR/ARHP Annual Meeting
Optimizing Care for Patients with Rheumatoid Arthritis Newly Treated with Biologics by Evaluating Health Status with AIMS-2
Mie Fusama¹, Hideko Nakahara², Keisuke Kawamoto³, Satoko Nozato³, Midori Taguchi³, Kohji Nishioka³, Shinji Higa³, Eiji Takeuchi⁴, Kayoko Higashi⁵, Masao Yukioka⁶, Tsuyoshi Igarashi³, Taro Kuritani³, Keiji Maeda³ and Yasushi Miura⁷, ¹Department of Rehabilitation Science, Kobe University Graduate School of Health Sciences, Kobe, Japan, ²Division of Allergy, Rheumatology and Connective Tissue Diseases, Department of Internal Medicine, NTT West Osaka Hospital, Osaka, Japan, ³Allergy, Rheumatology and Connective Tissue Diseases, Department of Internal Medicine, NTT West Osaka Hospital, Osaka, Japan, ⁴Department of Orthopaedic Surgery, NTT West Osaka Hospital, Osaka, Japan, ⁵Division of nursing, NTT West Osaka Hospital, Osaka, Japan, ⁶Department of Orthopaedic Surgery, Yukioka Hospital, Osaka, Japan, ⁷Department of Rehabilitation Science, Graduate School of Health Sciences, Kobe University, Kobe, Japan
Background/Purpose: Biologics significantly improve disease activity of rheumatoid arthritis (RA), however, patient global assessment (PGA) is not always improved in parallel with disease activity scores.…
Abstract Number: 1152 • 2012 ACR/ARHP Annual Meeting
Improvement in Health-Related Quality of Life for Children with Juvenile Ideopathic Arthritis After Start of Treatment with Etanercept
Jens Klotsche¹, Kirsten Minden² and Gerd Horneff³, ¹Programme Area Epidemiology, German Rheumatism Research Center, a Leibniz institute, Berlin, Germany, ²Programme Area Epidemiology, German Rheumatism Research Center, a Leibniz Institute, Berlin, Germany, ³Department of Pediatrics, Centre of Pediatric Rheumatology, Sankt Augustin, Germany
Background/Purpose: The concept of Health-related quality of life (HrQoL) has been widely accepted as a burden of disease measure in recent years. The improvement in…
Abstract Number: 1153 • 2012 ACR/ARHP Annual Meeting
Perceived Health-Related Quality of Life and Its Determining Factors in Children with Recent-Onset JIA
Jens Klotsche¹, Ina Liedmann¹, Martina Niewerth², Gerd Horneff³, Johannes Peter Haas⁴ and Kirsten Minden⁵, ¹Programme Area Epidemiology, German Rheumatism Research Center, a Leibniz institute, Berlin, Germany, ²Epidemiology, German Rheumatism Research Centre, Berlin, Germany, ³Department of Pediatrics, Centre of Pediatric Rheumatology, Sankt Augustin, Germany, ⁴German Center for Pediatric and Adolescent Rheumatology, Garmisch-Partenkirchen, Germany, ⁵Programme Area Epidemiology, German Rheumatism Research Center, a Leibniz Institute, Berlin, Germany
Background/Purpose: Juvenile idiopathic arthritis (JIA) is the most common chronic rheumatic disease and a major cause of chronic disability in children aged below 16 years.…
Abstract Number: 392 • 2012 ACR/ARHP Annual Meeting
Analysis of Factors Impact On Patient Global Assessment in Daily Practice Based On Observational Cohort IORRA (Institute of Rheumatology, Rheumatoid Arthritis)
Yasushi Inoue¹, Eiichi Tanaka², Ayako Nakajima³, Eisuke Inoue⁴, Akiko Kobayashi⁴, Daisuke Hoshi¹, Naoki Sugimoto⁴, Kumi Shidara⁴, Yohei Seto⁴, Atsuo Taniguchi⁴, Shigeki Momohara¹ and Hisashi Yamanaka¹, ¹Institute of Rheumatology, Tokyo Women's Medical University, Tokyo, Japan, ²Tokyo Women's Medical University, Tokyo, Japan, ³Rheumatology, Institute of Rheumatology, Tokyo Women’s Medical University, Tokyo, Japan, ⁴Institute of Rheumatology, Tokyo Women’s Medical University, Tokyo, Japan
Background/Purpose: Patient global assessment (PtGA) is an element of the new ACR/EULAR remission criteria for rheumatoid arthritis (RA). This definition has been reported to better…
Abstract Number: 400 • 2012 ACR/ARHP Annual Meeting
High Patient Global Assessment Scores Associate with the Residual Disease Activity Unidentified by a 28-Joint Examination in Rheumatoid Arthritis Patients Approaching Clinical Remission
Yasushi Inoue¹, Eiichi Tanaka², Ayako Nakajima³, Eisuke Inoue⁴, Akiko Kobayashi⁴, Daisuke Hoshi¹, Naoki Sugimoto⁴, Kumi Shidara⁴, Yohei Seto⁴, Atsuo Taniguchi⁴, Shigeki Momohara¹ and Hisashi Yamanaka¹, ¹Institute of Rheumatology, Tokyo Women's Medical University, Tokyo, Japan, ²Tokyo Women's Medical University, Tokyo, Japan, ³Rheumatology, Institute of Rheumatology, Tokyo Women’s Medical University, Tokyo, Japan, ⁴Institute of Rheumatology, Tokyo Women’s Medical University, Tokyo, Japan
Background/Purpose: Patient global assessment (PtGA) is a component of the new ACR/EULAR remission criteria for rheumatoid arthritis (RA). It has been reported that >50% of…
Abstract Number: 2688 • 2012 ACR/ARHP Annual Meeting
The Health Improvement and Prevention Program in Systemic Lupus Erythematosus Demonstrates Improvement in Mental Health and Framingham Risk Score At One Year
Paul R. Fortin¹, Ellie Aghdassi², Anne Cymet³, Stacey Morrison⁴, Willy Wynant⁵, Janet E. Pope⁶, Sara Hewitt⁷, Christian A. Pineau⁸, Carolyn Neville⁹, Paula Harvey¹⁰, Jean-Claude Tardif¹¹, Michal Abrahamowicz¹² and Deborah DaCosta¹³, ¹Medicine, Centre de Recherche du Chu de Québec et Université Laval, Quebec City, QC, Canada, ²University Health Network Research Institute - Western Division, Toronto, ON, Canada, ³Nursing, University Health Network - Western Division, Toronto, ON, Canada, ⁴Div Rheumatology Rm MP-10-304, The Toronto Western Hospital, Toronto, ON, Canada, ⁵Division of Clinical Epidemiology, McGill University Health Centre and McGill University, Montreal, QC, Canada, ⁶Medicine/Rheumatology, St. Joseph Health Care London, University of Western Ontario, London, ON, Canada, ⁷Rheumatology, St. Joseph's Health Care, University of Western Ontario, London, ON, Canada, ⁸Rheumatology, McGill University Health Centre, Montreal, QC, Canada, ⁹Epidemiology, Royal Victoria Hospital, Montreal, QC, Canada, ¹⁰Cardiology, Women's College Hospital, Toronto, ON, Canada, ¹¹Montreal Heart Institute, Universite de Montreal endowed research chair in atherosclerosis, Quebec, QC, Canada, ¹²Clinical Epidemiology, McGill University, Montreal, QC, Canada, ¹³Montreal General Hospital, Montreal, Canada
Background/Purpose: The Health Improvement and Prevention Program (HIPP) is a behavioral intervention aimed at improving health status and coping of persons with lupus while reducing…
Abstract Number: 2690 • 2012 ACR/ARHP Annual Meeting
Assessment of Sleep Quality in Patients with Rheumatoid Arthritis
Ulku Ucar and Mehmet Tuncay Duruöz, PMR Department, Rheumatology Division, Celal Bayar University Medical School, Manisa, Turkey
Background/Purpose: Rheumatoid arthritis is a chronic inflammatory disease affecting mainly diartrodial synovial joints. Fatigue and sleep disturbances are commonly seen symptoms in RA patients which…
Abstract Number: 2624 • 2012 ACR/ARHP Annual Meeting
Changes in Leisure Participation in Persons with Systemic Sclerosis
Cindy F. Mendelson¹, Jessica Greaves² and Janet L. Poole³, ¹College of Nursing, University of New Mexico, Albuquerque, NM, ²Occupational Therapy, University of New Mexico, Albuquerque, NM, ³Occupational Therapy Program, University of New Mexico, Albuquerque, NM
Background/Purpose: Little attention has been devoted to understanding the difficulties and limitations people with systemic sclerosis (SSc) experience with leisure participation. A qualitative interview study…
Abstract Number: 2416 • 2012 ACR/ARHP Annual Meeting
Arthritis-Attributable Interference in Routine Life Activities
Kristina A. Theis¹, Teresa J. Brady², Charles G. Helmick³, Louise Murphy⁴ and Kamil E. Barbour⁵, ¹Athritis Program, Centers for Disease Control and Prevention, Atlanta, GA, ²Arthritis Program, Centers for Disease Control and Prevention, Atlanta, GA, ³National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA, ⁴Division of Population Health, CDC, Atlanta, GA, ⁵Centers for Disease Control and Prevention, Atlanta, GA
Background/Purpose: Arthritis-attributable interference (AAI) in routine life activities are indicators of quality-of-life (QOL) that have not often been studied in a population-based sample of U.S.…
Abstract Number: 2422 • 2012 ACR/ARHP Annual Meeting
Sexual Activity and Sexual Functioning Among Women with Systemic Sclerosis Compared to Women From a Population Sample
Brooke Levis¹, Andrea Burri², Marie Hudson³, Murray Baron⁴ and Brett D. Thombs⁵, ¹Epidemiology, McGill University, Montreal, QC, Canada, ²Twin Research and Genetic Epidemiology, King's College, London, United Kingdom, ³Jewish General Hospital, McGill University, Montreal, QC, Canada, ⁴Pavillion A, Rm 216, Lady David Institute for Medical Research and Jewish General Hospital, Montreal, QC, Canada, ⁵Psychiatry, McGill University, Montreal, QC, Canada
Background/Purpose: Systemic sclerosis (SSc), or scleroderma, is a chronic, multi-system, connective tissue disorder characterized by thickening and fibrosis of the skin and internal organ involvement.…

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