Abstracts tagged "quality of life"

Abstract Number: 2955 • 2017 ACR/ARHP Annual Meeting
Does Guideline-Based Care Improve Outcomes That Matter to Patients? Tighter Control, Less Suffering, and Greater Well-Being over the Past Decade in Canadian RA Patients
Susan J. Bartlett^1,2, Orit Schieir³, Marie-France Valois⁴, Carol A Hitchon⁵, Janet E. Pope⁶, Gilles Boire⁷, Boulos Haraoui⁸, Edward C. Keystone⁹, Diane Tin¹⁰, Carter Thorne¹¹ and Vivian P. Bykerk¹², ¹Department of Medicine, Division of ClinEpi, Rheumatology, Respirology, McGill University, Montreal, QC, Canada, ²Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ³Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada, ⁴McGill University, Montreal, QC, Canada, ⁵University of Manitoba, Winnipeg, MB, Canada, ⁶Department of Medicine, Division of Rheumatology, University of Western Ontario, St Joseph's Health Care, London, ON, Canada, ⁷Rheumatology Division, Centre Hospitalier Universitaire de Sherbrooke and Universite de Sherbrooke, Sherbrooke, QC, Canada, ⁸Institute de Rheumatologie, Montreal, QC, Canada, ⁹University of Toronto, Toronto, ON, Canada, ¹⁰The Arthritis Program, Southlake Regional Health Centre, Newmarket, ON, Canada, ¹¹University of Toronto, Newmarket, ON, Canada, ¹²2-005, Mt Sinai Hospital, Toronto, ON, Canada
Background/Purpose: Best practice recommendations can increase quality of care and improve clinical outcomes, however the impact of recommendations on outcomes that matter most to patients…
Abstract Number: 110 • 2017 Pediatric Rheumatology Symposium
Risk Factors for Poor Health-Related Quality of Life in Children with Inflammatory Brain Diseases
Elina Liu¹, Anastasia Dropol², Marinka Twilt², Pascal Tyrrell³, Shehla Sheikh⁴, Susanne Benseler² and The BrainWorks Investigator Network, ¹Pediatric Rheumatology, Alberta Children's Hospital, Calgary, AB, Canada, ²Pediatric Rheumatology, University of Calgary, Alberta Children's Hospital, Calgary, AB, Canada, ³Medical Imaging, University of Toronto, Toronto, ON, Canada, ⁴Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada
Background/Purpose: Inflammatory Brain diseases (IBrainD) are increasingly recognized causes of devastating neurological deficits in previously healthy children. Although the mortality has dramatically improved, disease and…
Abstract Number: 1433 • 2016 ACR/ARHP Annual Meeting
Self-Perception Reporting to Healthcare Professionals: Do Individuals with Systemic Sclerosis Report Quality of Life Changes Accurately?
Samina Hayat¹, Paula Fenter² and TIMOTHY GILMORE³, ¹Rheumatology/Internal Medicine, Louisiana State University, Shreveport, LA, ²PT School of Allied Health, Louisiana St Univ Hlth Sci Ctr, Shreveport, LA, ³Program in Cardiopulmonary Science, Cardiopulmmonary Assitant Professor, Shreveport, LA
Background/Purpose: Systemic Sclerosis (SS) involves multiple systems that affect the ability to move and function. When ability is lost the individuals living with this autoimmune…
Abstract Number: 1762 • 2016 ACR/ARHP Annual Meeting
Systemic Lupus Erythematosus and the Evaluation of Poor Sleep
Philip Chu¹, Alicia Hinze², Nancy Mathis³, Lacey Feigl⁴, Noor Al-Hammadi⁵, Seth Eisen⁶, Yo-El Ju⁷ and Alfred Kim⁸, ¹Internal Medicine, Washington University School of Medicine, St Louis, MO, ²Johns Hopkins University, Baltimore, MD, ³Rheumatology, Washington University School of Medicine, Saint Louis, MO, ⁴Washington University School of Medicine, St Louis, MO, ⁵Division of Biostatistics, Washington University School of Medicine, St Louis, MO, ⁶Division of Rheumatology, Washington University School of Medicine, St Louis, MO, ⁷Neurology, Washington University School of Medicine, Saint Louis, MO, ⁸IM/Div of Rheumatology, Washington University School of Medicine, St. Louis, MO
Background/Purpose: Poor sleep quality is an underappreciated complaint commonly observed in patients with SLE. We hypothesize that poor sleep quality contributes to worsening lupus disease…
Abstract Number: 1969 • 2016 ACR/ARHP Annual Meeting
Peer Approaches to Lupus Self-Management (PALS): A Novel Lupus Peer Mentorship Intervention
Edith M. Williams¹, Leonard Egede², Jim Oates³, Delia Voronca² and Mulugeta Gebregziabher², ¹Public Health Sciences, Medical University of South Carolina, Charleston, SC, ²Medical University of South Carolina, Charleston, SC, ³Medicine/Rheumatology & Immunology, Medical University of South Carolina, Charleston, SC
Background/Purpose: Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that is associated with increased morbidity, mortality, health care costs and decreased quality of life.…
Abstract Number: 2192 • 2016 ACR/ARHP Annual Meeting
Association Between Quality of Sleep and Quality of Life Among Japanese Systemic Lupus Erythematosus Outpatients
Mitsuyo Inoue¹, Kiyoko Makimoto¹, Kazuko Shiozawa², Ryosuke Yoshihara², Takashi Yamane³, Yoshihito Shima⁴ and Toru Hirano⁵, ¹Graduate School of Medicine, Division of Health Sciences, Osaka University, Suita, Japan, ²Rheumatic Diseases Center, Konan Kakogawa Hospital, Kakogawa, Japan, ³Kakogawa City Hospital, Kakogawa, Japan, ⁴Respinatory Medicine, Allergy and Rhematic Diseases, Osaka University Graduate School of Medicine, Suita, Japan, ⁵Respiratory Medicine, Allergy and Rheumatic Diseases, Osaka University Graduate School of Medicine, Suita, Japan
Background/Purpose: SLE outpatients at in Western Japan were included in this cross-sectional study. The consented participants completed Japanese versions of the following questionnaires: the Pittsburgh…
Abstract Number: 2458 • 2016 ACR/ARHP Annual Meeting
Erectile Dysfunction in Men with Rheumatic Diseases: A Systematic Review
Omid Zahedi Niaki¹, Christian A. Pineau², Sasha Bernatsky^3,4 and Evelyne Vinet³, ¹Université de Montréal, Montreal, QC, Canada, ²McGill University Health Centre, Montreal, QC, Canada, ³Divisions of Rheumatology and Clinical Epidemiology, McGill University Health Centre, Montreal, QC, Canada, ⁴Clinical Epidemiology, Research Institute of the McGill University Health Centre, Montreal, QC, Canada
Background/Purpose: Given the obvious female predominance of rheumatic diseases, significant attention has already been drawn to the impact of these conditions on female sexual function.…
Abstract Number: 2515 • 2016 ACR/ARHP Annual Meeting
Patient-Reported Outcomes in Two Randomized, Controlled Trials (RCTs) in Patients with Rheumatoid Arthritis (RA) Treated with Tocilizumab (TCZ) Monotherapy Compared with Methotrexate (MTX) or Adalimumab (ADA)
Vibeke Strand¹, Kathy Lampl², Christine Birchwood³, Jinglan Pei², Katie Tuckwell⁴, Rebecca Finch⁴, Cem Gabay⁵, Arthur Kavanaugh⁶ and Graeme Jones⁷, ¹Stanford University School of Medicine, Palo Alto, CA, ²Genentech, Inc., South San Francisco, CA, ³1 DNA Way, MS# 304, Genentech, Inc., South San Francisco, CA, ⁴Roche Products Ltd., Welwyn Garden City, United Kingdom, ⁵Rheumatology, Department of Rheumatology, Geneva University Hospital, Geneva, Switzerland, ⁶University of California San Diego, La Jolla, CA, ⁷Menzies Institute for Medical Research, University of Tasmania, Hobart, Australia
Background/Purpose: Patient-reported outcomes (PROs) are important measures when determining response to therapy in patients with RA. Previous RCTs have shown that TCZ monotherapy is superior…
Abstract Number: 2911 • 2016 ACR/ARHP Annual Meeting
A Comparison of Gastrointestinal Disease Severity in African American and Caucasian Scleroderma Patients
Carolyn Fridley¹ and Virginia D. Steen², ¹Rheumatology, Georgetown University, Washington, DC, ²Rheumatology, Georgetown University Medical Center, Washington, DC
A Comparison of Gastrointestinal Disease Severity in African American and Caucasian Scleroderma Patients Background/Purpose: Systemic sclerosis (SSc) is a multisystem autoimmune disease. After skin involvement…
Abstract Number: 81 • 2016 ACR/ARHP Annual Meeting
Understanding the Importance of a Patient’s Role in the Management of RA: Physician- and Patient-Based Survey
Ara Dikranian¹, James Galloway², Joern Kekow³, Cristiano A.F Zerbini⁴, Maria de la Vega⁵, Gavin Lee⁶, Anna Maniccia⁷, Eustratios Bananis⁸, Dario Ponce de Leon⁹ and Allan Gibofsky¹⁰, ¹San Diego Arthritis Medical Clinic, San Diego, CA, ²King's College, and King´s College Hospital, London, United Kingdom, ³University of Magdeburg, Clinic of Rheumatology, Magdeburg, Germany, ⁴Centro Paulista de Investigação Clinica, São Paulo, Brazil, ⁵CEIM Investigaciones Médicas, Buenos Aires, Argentina, ⁶Hong Kong Sanatorium & Hospital, Hong Kong SAR, China, ⁷Pfizer Inc, New York, NY, ⁸Pfizer Inc, Collegeville, PA, ⁹Pfizer Inc, Lima, Peru, ¹⁰Rheumatology, Weill Cornell Medicine, and Hospital for Special Surgery, New York, NY
Background/Purpose: RA is a chronic, debilitating condition for which there is no cure. To identify and better understand the perspectives of both healthcare providers (HCPs)…
Abstract Number: 890 • 2016 ACR/ARHP Annual Meeting
Health-Related Domains of Importance to Patients with Takayasu’s Arteritis
Antoine G. Sreih¹, Fatma Alibaz-Oner², Ebony Easley³, Trocon Davis³, Gonca Mumcu⁴, Nataliya Milman⁵, Joanna C. Robson⁶, Peter F. Cronholm³, Haner Direskeneli⁷ and Peter A. Merkel⁸, ¹Rheumatology, The University of Pennsylvania, Philadelphia, PA, ²Department of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey, ³Department of Family Medicine and Community Health, The University of Pennsylvania, Philadelphia, PA, ⁴Department of Health Management, Marmara University, Faculty of Health Sciences, Istanbul, Turkey, ⁵Department of Medicine, University of Ottawa, Ottawa, ON, Canada, ⁶Faculty of Health and Applied Science, University of the West of England, Bristol, United Kingdom, ⁷Rheumatology, Marmara University, School of Medicine, Istanbul, Turkey, ⁸Division of Rheumatology, Univ of Pennsylvania; Perelman School of Med, Philadelphia, PA
Background/Purpose: The need to include patients’ perspectives as key outcomes in clinical research is now widely recognized. This project was designed to describe the experience…
Abstract Number: 664 • 2015 ACR/ARHP Annual Meeting
Patient Reported Outcomes and Assessment of the Quality of Life in a Cohort of Patients Affected By Enteropathic Spondyloarthritis: Definitive Results of a Monocentric Prospective Observational Study at One Year
Chiara Avellini¹, Laura Bolognini², Alessia Farinelli¹, Monia Ciferri³, Greta Gambacorta³, Devis Benfaremo³, Serena Cedraro³, Matteo Rossini³, William Capeci³, Lucia Manfredi³, Laura Postacchini³, Giammarco Fava², Piergiorgio Mosca², Giovanni Pomponio³, Michele Maria Luchetti³ and Armando Gabrielli³, ¹Scienze Cliniche e Molecolari, Clinica Medica, Università Politecnica delle Marche, Ancona, Italy, ²Gastroenterologia, Azienda "Umberto I-G.M.Lancisi-G.Salesi", Ancona, Italy, ³Clinica Medica, Università Politecnica delle Marche, Ancona, Italy
Background/Purpose: Enteropathic spondyloarthritis (ES) are included in the group of the spondyloarthritis (SpA). Because articular involvement is the most frequent extra-intestinal manifestation in patients with…
Abstract Number: 717 • 2015 ACR/ARHP Annual Meeting
Systemic Lupus Erythematosus and the Evaluation of Poor Sleep: The Sleeps Pilot Study
Alicia Hinze¹, Philip Chu¹, Dany Thekkemuriyil¹, Yo-El Ju², Deepali Sen³, Seth Eisen¹ and Alfred Kim¹, ¹Rheumatology, Washington University School of Medicine, Saint Louis, MO, ²Neurology, Washington University School of Medicine, Saint Louis, MO, ³Division of Rheumatology, Washington University School of Medicine, Saint Louis, MO
Background/Purpose: Sleep disturbances occur in many autoimmune diseases and are ranked highly as an unmet need in patients with SLE. We hypothesized that poor sleep…
Abstract Number: 790 • 2015 ACR/ARHP Annual Meeting
An Intervention to Improve Quality of Life for African-American Lupus Patients
Edith M. Williams¹, Johnese Bostic², Alyssa Adkins³, Larisa Bruner², Jiajia Zhang², Diane L. Kamen⁴ and Jim Oates⁴, ¹Institute for Partnerships to Eliminate Health Disparities, University of South Carolina, Columbia, SC, ²University of South Carolina, Columbia, SC, ³University of South Carolina, Greenville, SC, ⁴Medicine, Medical University of South Carolina, Charleston, SC
Background/Purpose: The Intervention to Improve Quality of life for African-AmericaN lupus patients (IQAN) Project is designed to examine whether a uniquely tailored intervention program can…
Abstract Number: 2277 • 2015 ACR/ARHP Annual Meeting
Working Harder to Stay in Control: Patient Reports of Flare in Early RA Are Associated with Higher Disease Activity and More Intensive Self Management
Susan J. Bartlett^1,2, Clifton O. Bingham III³, Daming Lin⁴, Kathleen Andersen⁵, Gilles Boire⁶, Carol Hitchon⁷, Boulos Haraoui⁸, Edward C. Keystone⁹, Diane Tin¹⁰, J Carter Thorne¹¹, Janet E. Pope¹², VP Bykerk⁴ and CATCH Investigators and OMERACT Flare Group, ¹Clinical Epidemiology, McGill University, Montreal, QC, Canada, ²Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, MD, ³Rheumatology, Johns Hopkins University, Baltimore, MD, ⁴Rheumatology, Mount Sinai Hospital, University of Toronto, Toronto, ON, Canada, ⁵Hospital for Special Surgery, New York, NY, ⁶Department of Medicine/Division of Rheumatology, Université de Sherbrooke, Sherbrooke, QC, Canada, ⁷Department of Rheumatology, University of Manitoba, Winnipeg, MB, Canada, ⁸Institut de Rhumatologie, Montreal, QC, Canada, ⁹Mount Sinai Hospital, University of Toronto, Toronto, ON, Canada, ¹⁰The Arthritis Program, Southlake Regional Health Centre, Newmarket, ON, Canada, ¹¹University of Toronto, Toronto, ON, Canada, ¹²University of Western Ontario, London, ON, Canada
Background/Purpose: Early rheumatoid arthritis (ERA) patients attending office visits often report being in a disease flares. We evaluated patient reports of flare in relation to…

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