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Abstracts tagged "quality of life"

  • Abstract Number: 071 • 2020 Pediatric Rheumatology Symposium

    Patient Reported Outcomes and Resilience in Pediatric Systemic Lupus Erythematosus

    Lauren Ambler1, Rula Issa 2, Stephanie Pan 2 and Rebecca Trachtman 2, 1Mount Sinai Hospital, New York, 2Icahn School of Medicine at Mount Sinai, New York

    Background/Purpose: It has been established that pediatric Systemic Lupus Erythematous (pSLE) is associated with lower health-related quality of life (HRQOL); however, there are few studies…
  • Abstract Number: 104 • 2020 Pediatric Rheumatology Symposium

    Patients Perspectives on Living with a Systemic Autoinflammatory Disease: Impact on Quality of Life

    Mariana Correia Marques1, Nicole Tennermann 2, Sivia Lapidus 3, Grant Schulert 4, Jennifer Tousseau 2, Rashmi Sinha 5, Karen Durrant 6, Saskya Angevare 7 and Fatma Dedeoglu 8, 1Boston Children's Hospital, Boston, Massachusetts, 2, 3The Joseph M. Sanzari Children's Hospital, Hackensack Meridian Health, Maplewood, 4Cincinnati Children's Hospital Medical Center and University of Cincinnati College of Medicine, Cincinnati, 5Systemic JIA Foundation, Cincinnati, 6Autoinflammatory Alliance, San Francisco, 7Amersfoort, Netherlands, 8Boston Children's Hospital, Boston

    Background/Purpose: Systemic autoinflammatory diseases (SAIDs) encompass multiple clinical entities in which spontaneous inflammation occurs due to dysregulation of the innate immune response.  The variability in…
  • Abstract Number: 117 • 2020 Pediatric Rheumatology Symposium

    Family Impact of Juvenile Localized Scleroderma

    Katia Milovanova1, Vimal Prajapati 2, Merna Adly 2, Rebeka Stevenson 3, Brendan Lethebe 2 and Nadia Luca 2, 1University of Alberta, Edmonton, Alberta, Canada, 2University of Calgary, Calgary, Alberta, Canada, 3Cochrane, Alberta, Canada

    Background/Purpose: Juvenile localized scleroderma (jLS) is a rare autoimmune disease that can lead to significant morbidity. Previous studies have focused on predictors of patient health-related…
  • Abstract Number: 059 • 2020 Pediatric Rheumatology Symposium

    Challenges Faced by Families of Children with an Auto-inflammatory Disease

    Lori Tucker1, Maria Belen 2, Jenny Tekano 2, Iwona Niemietz 3, Martina Sundqvist 3 and Kelly Brown 3, 1BC Children's Hospital, Vancouver, British Columbia, Canada, 2BC CHildren's Hospital, Vancouver, Canada, 3BC Children's Hospital Research Institute, Vancouver, Canada

    Background/Purpose: Auto-inflammatory diseases (AIDs) are rare disorders that usually present in young children. Disease episodes, characterized by recurrent inflammation, are often frequent and unpredictable, and…
  • Abstract Number: 416 • 2019 ACR/ARP Annual Meeting

    Global Management of Patients with Knee Osteoarthritis Begins with Quality of Life Assessment: A Systematic Review

    Josep Verges1, Marianna Vitaloni 1, Rosa Sciortino 2, Maritza Quintero 2, Marco Bibas 1, Jordi Monfort 3, Francisco de Abajo 4, Marco Matucci-Cerinic 5, Patrick du Souich 6, Ingrid Möller 7, Guy Eakin 8 and Angie Botto-van Bemden 8, 1Osteoarthritis International Foundation, Barcelona, Spain, 2De los Andes University, Merida, Venezuela, 3Hospital del Mar, Barcelona, Spain, 4Universidad de Alcalá, Madrid, Spain, 5University of Florence, Department of Medicine, Florence, Italy, Florence, Italy, 6University of Montreal, Montreal, Canada, 7Poal Institute, Barcelona, Spain, 8Arthritis Foundation, Atlanta

    Background/Purpose: Knee OA (KOA) associates with remarkable functional restrictions due to pain that seriously affect social and emotional well-being, reducing the quality of life (QoL).…
  • Abstract Number: 422 • 2019 ACR/ARP Annual Meeting

    The Impact of Adalimumab vs Placebo on Patient-Reported Outcomes and Utility Measures Among Patients with Moderately to Severely Active Psoriatic Arthritis

    Vibeke Strand1, Pankaj Patel 2, Naijun Chen 2 and Elizabeth M Lesser 3, 1Division of Immunology/Rheumatology, Stanford University, Stanford, CA, 2AbbVie Inc., North Chicago, IL, 3AbbVie Inc., North Chicago

    Background/Purpose: Physical function and health-related quality of life (HRQoL) are negatively impacted in patients (pts) with PsA, and treatment with conventional and biological (b) DMARDs…
  • Abstract Number: 428 • 2019 ACR/ARP Annual Meeting

    Assessing Meaningful Changes in Disease Activity as Clinical Trial Efficacy Measures for Cutaneous Lupus Erythematosus

    Srita Chakka1, Rebecca Krain 1, Sarah Ahmed 2, Josef Concha 1, Rui Feng 3 and Victoria Werth 4, 1University of Pennsylvania, Philadelphia, PA, 2Department of Dermatology, University of Pennsylvania, Philadelphia, PA, USA, Philadelphia, PA, 3University of Pennsylvania, Philadelphia, 4Corporal Michael J. Crescenz VAMC, Philadelphia, PA, USA and Department of Dermatology, University of Pennsylvania, Philadelphia, PA, USA, Philadelphia, PA

    Background/Purpose: To date, there are no approved treatments for cutaneous lupus erythematosus (CLE), a disease known to significantly burden a patient’s quality of life (QoL).…
  • Abstract Number: 557 • 2019 ACR/ARP Annual Meeting

    Comparing Symptoms, Treatments Patterns, and Quality of Life of Non-radiographic Axial Spondyloarthritis and Ankylosing Spondylitis Patients: Findings from a US Survey

    Theresa Hunter1, David Sandoval 2, Nicola Booth 3, Elizabeth Holdsworth 4 and Atul Deodhar 5, 1Eli Lilly and Company, Indianapolis, 2Eli Lilly and Company, Indianapolis, IN, 3Adelphi Real World, Bollington, United Kingdom, 4Adelphi Real World, Manchester, England, United Kingdom, 5Oregon Health & Science University, Portland, OR

    Background/Purpose: To better understand the symptoms, clinical characteristics, treatment patterns, and quality of life (QoL), of non-radiographic axial spondyloarthritis (nr-axSpA) patients and how they compare…
  • Abstract Number: 1120 • 2019 ACR/ARP Annual Meeting

    Prevalence of Burnout in Rheumatology Professionals

    Vivekanand Tiwari1, Arthur Kavanaugh 2, George Martin 3 and Martin Bergman 4, 1Temple University, Philadelphia, PA, 2University of California, San Diego School of Medicine, La Jolla, CA, 3Dr. George Martin Dermatology Associates, Kihei, HI, 4Drexel University College of Medicine, Stockholm, Sweden

    Background/Purpose: Burnout among physicians has major implications for health care. We measured prevalence of burnout in a large group of Rheumatology professionals attending a national…
  • Abstract Number: 1258 • 2019 ACR/ARP Annual Meeting

    Effects of Intravenous Golimumab, an Anti-TNFα Monoclonal Antibody, on Health-Related Quality of Life in Patients with Ankylosing Spondylitis: 1-Year Results of a Phase III Trial

    John Reveille1, Atul Deodhar 2, Diane Harrison 3, Elizabeth Hsia 4, Eric K H Chan 3, Shelly Kafka 5, Kim Hung Lo 3, Lilianne Kim 3 and Chenglong Han 3, 1University of Texas McGovern Medical School, Houston, 2Oregon Health & Science University, Portland, OR, 3Janssen Research & Development, LLC, Spring House, PA, 4Janssen Research & Development, LLC/University of Pennsylvania, Spring House/Philadelphia, PA, 5Janssen Scientific Affairs, LLC, Horsham, PA

    Background/Purpose: In patients with ankylosing spondylitis (AS), IV administration of the anti-TNFa antibody golimumab (GLM-IV) resulted in improvements in composite measures of various aspects of…
  • Abstract Number: 1466 • 2019 ACR/ARP Annual Meeting

    Evaluation of Changes in Oral Health-Related Quality of Life over Time in Patients with Sjögren’s Syndrome

    Naoto Azuma1, Yoshinori Katada 2, Aki Nishioka 3, Masahiro Sekiguchi 4, Masayasu Kitano 5, Sachie Kitano 1, Hajime Sano 6 and Kiyoshi Matsui 1, 1Division of Rheumatology, Department of Internal Medicine, Hyogo College of Medicine, Nishinomiya, Japan, 2Department of Rheumatology, Sakai City Medical Center, Sakai, Japan, 3Department of Rheumatology, Nishinomiya Watanabe Hospital, Nishinomiya, Japan, 4Departement of Rheumatology, Hyogo Prefectural Nishinomiya Hospital, Nishinomiya, Japan, 5Department of Rheumatology, Kyoto Okamoto Memorial Hospital, Kumiyama, Japan, 6Kyoto Okamoto Memorial Hospital, Kumiyama, Japan

    Background/Purpose: In addition to xerostomia symptoms, patients with Sjögren’s syndrome (SS) experience pain and discomfort in the oral cavity, and difficulties in speaking and eating,…
  • Abstract Number: 1539 • 2019 ACR/ARP Annual Meeting

    Ustekinumab and TNF Inhibitors Similarly Improve Patient-perceived Impact of Psoriatic Arthritis but Differentially Affect the Scale Subdomains: Results from a European Observational Cohort Study

    Laure Gossec1, Stefan Siebert 2, Paul Bergmans 3, Kurt De Vlam 4, Elisa Gremese 5, Beatriz Joven-Ibáñez 6, Ellie Korendowych 7, Tatiana Korotaeva 8, Wim Noël 9, Michael Nurmohamed 10, Christophe Richez 11, Petros Sfikakis 12, Pavel Smirnov 13, Elke Theander 14 and Josef Smolen 15, 1Sorbonne Université and Hôpital Pitié-Salpêtrière, Paris, France, 2Institute of Infection, Immunity & Inflammation, University of Glasgow, Glasgow, United Kingdom, 3Biostatistics and Medical Affairs, Janssen, Tilburg, Netherlands, 4University Hospitals Leuven, Leuven, Belgium, 5Fondazione Policlinico Gemelli-Università Cattolica del Sacro Cuore, Rome, Italy, 6Hospital Universitario 12 de Octubre, Madrid, Spain, 7Royal National Hospital for Rheumatic Diseases, Bath, Bath, United Kingdom, 8Nasonova Research Institute of Rheumatology, Moscow, Russia, 9Biostatistics and Medical Affairs, Janssen, Brussels, Belgium, 10Reade and VU Rheumatology Research Department, Amsterdam, Netherlands, 11Pellegrin Hospital, University Hospital of Bordeaux, Bordeaux, France, 12Joint Rheumatology Programme, National & Kapodistrian University of Athens Medical School, Athens, Greece, Athens, Greece, 13Biostatistics and Medical Affairs, Janssen, Moscow, Russia, 14Biostatistics and Medical Affairs, Janssen, Solna, Sweden, 15Medical University of Vienna, Vienna, Austria

    Background/Purpose: Psoriatic arthritis strongly impacts patients’ quality of life (QoL). Insights on the effects of biologic treatments on different domains of health-related QoL in a…
  • Abstract Number: 1545 • 2019 ACR/ARP Annual Meeting

    Ixekizumab Significantly Improves Self-reported Overall Health as Measured by Short-Form-36 in Patients with Active Non-radiographic Axial Spondyloarthritis: 16- and 52-Week Results of a Phase 3 Randomized Trial (COAST-X)

    Jessica Walsh1, Marina Magrey 2, Uta Kiltz 3, Xenofon Baraliakos 4, Maggie Weng 5, Theresa Hunter 6, Xiaoqi Li 6, Luis Leon 7, David Sandoval 7 and Kentaro Inui 8, 1Division of Rheumatology, University of Utah, Salt Lake City, UT, 2Division of Rheumatology, The MetroHealth System and School of Medicine, Case Western Reserve University, Cleveland, OH, 3Rheumazentrum Ruhrgebiet/Ruhr University Bochum, Herne, Germany, Herne, Germany, 4Rheumazentrum Ruhrgebiet-Ruhr-University Bochum, Herne, Germany, Herne, Germany, 5National Cheng-Kung University Medical Center, Tainan, Taiwan (Republic of China), 6Eli Lilly and Company, Indianapolis, 7Eli Lilly and Company, Indianapolis, IN, 8Department of Orthopaedic Surgery, Osaka City University Graduate School of Medicine, Osaka, Japan

    Background/Purpose: Previous studies have determined that axial spondyloarthritis (axSpA) significantly impairs patients’ health-related quality of life (HRQoL).1 The patients with nr-axSpA have the same disease…
  • Abstract Number: 1844 • 2019 ACR/ARP Annual Meeting

    The Contribution of Disease Activity, Depression, and Anxiety to Health-Related and Non-Health-Related Quality of Life in US and Filipino Patients with SLE

    Alexandra Watts1, Desiree Azizoddin 2, Shadi Gholizadeh 3, Sarah Mills 4, Geraldine Zamora 5, Daniel Wallace 6, Meenakshi Jolly 7, Michael Weisman 8 and Perry Nicassio 9, 1University of California, Los Angeles, Los Angeles, CA, 2Dana-Farber Cancer Institute, Boston, MA, 3McGill University, Montreal, Canada, 4Lineberger Comprehensive Cancer Center, Chapel Hill, NC, 5Manila Doctors Hospital, Manila, Philippines, 6Cedars-Sinai Medical Center/University California at Los Angeles, Los Angeles, CA, 7Rush University Medical Center, Chicago, IL, 8David Geffen School of Medicine at UCLA, Los Angeles, CA, 9David Geffen School of Medicine, Los Angeles, CA

    Background/Purpose: It is well known that patients with SLE are often afflicted with deficits in quality of life and problems with physical impairment and psychosocial…
  • Abstract Number: 1897 • 2019 ACR/ARP Annual Meeting

    Sexual Function and Health-related Quality of Life in Male Patients with Systemic Lupus Erythematosus, the Untold Story

    Martín Valdez-López1, Jonathan Campos-Guzmán 1, Ana Barrera-Vargas 2, Samuel Govea-Peláez 1, Diana Gómez-Martín 1, Jorge Alcocer-Varela 1, Eduardo Aguirre-Aguilar 1, Diana Padilla-Ortíz 3 and Javier Merayo-Chalico 1, 1Instituto Nacional de Ciencias Médicas y Nutrición "Salvador Zubirán", Mexico City, Distrito Federal, Mexico, 2Instituto Nacional de Ciencias Médicas y Nutrición "Salvador Zubirán", Mexico City, Mexico, 3Universidad De La Sabana, Bogotá, Cundinamarca, Colombia

    Background/Purpose: Although SLE is uncommon in men, the disease is usually more severe and requires more aggressive immunosuppression in male patients. There are multiple studies…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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