Abstracts tagged "quality of care"

Abstract Number: 0377 • ACR Convergence 2024
Improving Self-Management Support in Patients with Juvenile Idiopathic Arthritis
Julia Harris¹, Leslie Favier², Emily Fox³, Michael Holland³, Cara Hoffart⁴, Maria Ibarra³, Jordan Jones⁴, Susan Parish², Kara Remick-Erickson² and Ashley Cooper⁴, ¹Children's Mercy Kansas City, Overland Park, KS, ²Children's Mercy Kansas City, Kansas City, ³Children's Mercy Hospital, Kansas City, MO, ⁴Children's Mercy Kansas City, Kansas City, MO
Background/Purpose: Self-management support (SMS) is one of the key elements of the Chronic Care Model as it is an important aspect of the care for…
Abstract Number: 1042 • ACR Convergence 2024
Identifying Patient Priorities for Patient-Reported Outcome Measures in Rheumatoid Arthritis: A Modified Delphi Consensus Study
Racheal Githumbi¹, Steven Katz², Ania Kania-Richmond¹, Kim Giroux³, Yvonne Wallace³, Cheryl Barnabe¹, Glen Hazlewood¹, C. Allyson Jones², Amanda Steiman⁴, Anshula Ambasta¹, Diane Lacaille⁵, Elaine Yacyshyn², Jessica Widdifield⁶, Natasha Gakhal⁷, Tyler Williamson¹ and Claire Barber¹, ¹University of Calgary, Calgary, AB, Canada, ²University of Alberta, Edmonton, AB, Canada, ³Patient Partner, Calgary, AB, Canada, ⁴Sinai Health System, Toronto, ON, Canada, ⁵Arthritis Research Canada, University of British Columbia, Vancouver, BC, Canada, ⁶Sunnybrook Research Institute / ICES / UofT Institute of Health Policy, Management & Evaluation, Toronto, ON, Canada, ⁷Women's College Hospital, Toronto, ON, Canada
Background/Purpose: Patient-reported outcome measures (PROMs) are essential tools for prioritizing patient-centric care and enhancing health system-performance measurement in rheumatology. Effective use of PROMs collected in…
Abstract Number: 1258 • ACR Convergence 2024
Investigating Factors Associated with Gaps in Care in Adolescents and Young Adults with Systemic Lupus
Tamar Rubinstein¹, Avni Dave², Terrence Calistro³, Kimberly Rapoza³, Joyce Hui-Yuen⁴, Emily Masi⁵, Shari Salzhauer Berkowitz³, Zanab Mian⁶ and Kathleen Kenney-Riley⁷, ¹Albert Einstein College of Medicine, White Plains, NY, ²Albert Einstein College of Medicine, Bronx, NY, ³Mercy University, Dobbs Ferry, NY, ⁴North Shore LIJ Health System, Great Neck, NY, ⁵Cohen Children's Medical Center, Floral Park, NY, ⁶Cohen Children's Medical Center, Lake Success, NY, ⁷Albert Einstein College of Medicine, Port Chester, NY
Background/Purpose: Adolescents and young adults (AYA) with systemic lupus (SLE) are at an especially high risk for disengagement in care, a possible cause of the…
Abstract Number: 2409 • ACR Convergence 2024
Adherence to EULAR Recommendations and Sub Optimal Management of Systemic Lupus Erythematosus in a Network of Community-Based Rheumatology Practices in the United States
Jeffrey Curtis¹, Emily Holladay², Amy Mudano³, Emily Smitherman⁴, Fenglong xie⁵, Shanette G. Daigle⁶, Yujie Su³, Mawuena Binka⁷, Gelareh Atefi⁸, Rana Muhammad Qasim Khan⁹ and Tope Olufade¹⁰, ¹Illumination Health, Birmingham, AL, ²University of Alabama at Birmingham, Edmond, OK, ³Illumination Health, Hoover, AL, ⁴University of Alabama at Birmingham, Birmingham, AL, ⁵University of Alabama at Birmingham; Illumination Health, Birmingham, AL, ⁶Foundation for Advancing Science, Technology, Education, and Research, Birmingham, ⁷BioPharmaceuticals Medical, AstraZeneca, Wilmington, DE, ⁸AstraZeneca, Media, PA, ⁹BioPharmaceuticals Medical, AstraZeneca, Wilmington, ¹⁰AstraZeneca, Wilmington, DE
Background/Purpose: Despite new developments in systemic lupus erythematosus (SLE) treatment and treatment guidelines, the clinical management of SLE is often sub-optimal. We aimed to describe…
Abstract Number: 0406 • ACR Convergence 2024
Delayed Diagnosis and Accrual of Joint Damage in Incident Cases of Juvenile Idiopathic Arthritis
Anna Costello¹, Cassandra Muir¹, Rui Xiao², Pamela Weiss³ and Irit Rasooly¹, ¹Children's Hospital of Philadelphia, Philadelphia, PA, ²University of Pennsylvania, Philadelphia, PA, ³Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose: Timely diagnosis of Juvenile Idiopathic Arthritis (JIA) enables early initiation of therapy, prevents accrual of joint damage, and improves outcomes. Data regarding the diagnostic…
Abstract Number: 1059 • ACR Convergence 2024
The Negative Impact of Physicians’ Neuroticism and Conscientiousness on Shared Decision Making in Patients with Systemic Lupus Erythematosus: The TRUMP2-SLE Project
Shigemi Morishita¹, Kenei Sada², Masataka Kudo³, Naofumi Dobashi⁴, Ryusuke Yoshimi⁵, Natsuki Sakurai⁶, Chiharu Hidekawa⁶, Yasuhiro Shimojima⁷, Dai Kishida⁷, Takanori Ichikawa⁷, Yoshi Miyawaki⁸, Keigo Hayashi⁹, Kenta Shidahara¹⁰, Yuichi Ishikawa¹¹, Nao Oguro¹², Nobuyuki Yajima¹³ and Noriaki Kurita¹⁴, ¹Department of Surgery, Oida Hospital, Sukumo, Japan, ²Department of Clinical Epidemiology, Kochi Medical School, Kochi University, Nankoku, Kochi, Japan, ³Department of General Internal Medicine, Iizuka Hospital, Fukuoka, Japan, ⁴Department of Internal Medicine, Kochi Prefectural Hata-Kenmin Hospital, Sukumo, Japan, ⁵Department of Medicine (Neurology and Rheumatology), Shinshu University School of Medicine, Yokohama, Kanagawa, Japan, ⁶Department of Stem Cell and Immune Regulation,Yokohama City University Graduate School of Medicine, Yokohama, Kanagawa, Japan, ⁷Department of Medicine (Neurology and Rheumatology), Shinshu University School of Medicine, Matsumoto, Nagano, Japan, ⁸Department of Nephrology, Rheumatology, Endocrinology and Metabolism, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Japan, ⁹Brigham and Women’s Hospital, Brookline, MA, ¹⁰"Department of Nephrology, Rheumatology, Endocrinology and Metabolism, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Okayama, Japan, ¹¹The First Department of Internal Medicine, University of Occupational and Environmental Health, Kitakyushu, Fukuoka, Japan, ¹²Division of Rheumatology, Department of Medicine, Showa University School of Medicine, Tokyo, Japan, ¹³Division of Rheumatology, Department of Medicine, Showa University School of Medicine, Tokyo, Japan., Tokyo, Japan, ¹⁴Department of Clinical Epidemiology, Graduate School of Medicine, Fukushima Medical University, Fukushima, Japan
Background/Purpose: The treatment of systemic lupus erythematosus (SLE) remains challenging due to its complexity, despite the introduction of various promising treatments. Recent EULAR recommendations emphasize…
Abstract Number: 1591 • ACR Convergence 2024
Domains and Outcome Measures for the Assessment of Digital Vasculopathy and Raynaud Phenomenon in Juvenile Systemic Sclerosis: A Systematic Review
Valerio maniscalco¹, Simone Appenzeller², Jennifer lemon³, Lucy stead⁴, Natalia Vasquez Canizares⁵, Gabriele Simonini⁶, Suzanne Li⁷ and Clare Pain⁸, and IJOG study, ¹Santo Stefano Hospital; Meyer Children Hospital IRCCS, Firenze, Toscana, Italy, ²Unicamp, Campinas, SP, Brazil, ³Alder Hey Children's NHS Foundation Trust, Liverpool, ⁴Liverpool University, Liverpool, ⁵Children's Hospital at Montefiore; Albert Einstein College of Medicine;, New York, NY, ⁶Meyer Children Hospital IRCCS; NEUROFARBA Department, University of Florence, Florence, Italy, ⁷Hackensack University Medical Center, Hackensack, ⁸Alderhey Children's NHS Foundation Trust, Liverpool, United Kingdom
Background/Purpose: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease that primary affect the vascular system determining multiple organ damage and reducing quality of life…
Abstract Number: 2526 • ACR Convergence 2024
Development of the Hospital Emergency Advocacy & Treatment Kit (HEAT Kit) for Patients with Vasculitis
Sarah Jones¹, Pamela Squires² and Donna McArthur³, ¹Eosinophilic & Rare Disease Cooperative, Tucson, AZ, ²Eosinophilic & Rare Disease Cooperative, Tucson, ³Adjunct professor of nursing, Vanderbilt School of Nursing; Adjunct clinical professor, University of Arizona College of Nursing & Dept. of Neurology, Tucson, AZ
Background/Purpose: All forms of vasculitis are rare with patients frequently experiencing poor or extended care in the hospital and ED settings. The ERDC founder experienced…
Abstract Number: 0426 • ACR Convergence 2024
Quality Improvement Initiative to Increase Contraception Screening and Documentation for Reproductive-Aged Women Prescribed Teratogenic Medications in an Academic Rheumatology Center
Caroline Siegel¹, Avi Mikhaylov¹, Emily Wu², Deanna Jannat-Khah¹, Erika Abramson³, Lisa Sammaritano⁴ and Nancy Pan⁵, ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Rochester, NY, ³Weill Cornell Medicine, New York, NY, ⁴Hospital for Special Surgery, Scarsdale, NY, ⁵Hospital for Special Surgery, Weill Cornell Medicine, New York, NY
Background/Purpose: Rheumatology patients prescribed teratogenic medications often are not prescribed effective contraception. Efforts to improve this important quality indicator are limited by inadequate and poorly…
Abstract Number: 1061 • ACR Convergence 2024
Utilization of Electronic Health Record System to Improve Glucocorticoid Induced Osteoporosis Screening and Treatment
Anupama Shahane¹, Marissa Blum², Andrew Kanoff³, Kristel Frey⁴, Sean Looby⁵ and Nora Sandorfi¹, ¹University of Pennsylvania, Philadelphia, PA, ²Temple University Health System, Philadelphia PA, Philadelphia, ³University of Pennsylvania, Philadelphia, PA, Philadelphia, PA, ⁴University of Pennsylvania, Philadelphia PA, Philadelphia, PA, ⁵University of Pennsylvania, Philadelphia PA, Philadelphia
Background/Purpose: Osteoporosis is the most common bone disease leading to fragility fractures associated with significant morbidity and increased mortality (1). Glucocorticoids (GC) are widely used…
Abstract Number: 1644 • ACR Convergence 2024
RISE Registry Associated with Significant Gains in Quality Measure Performance: An InterruptedTimes Series Analysis Before and After Participation
Gabriela Schmajuk¹, Jessica Fitzpatrick², Emma Kersey³, Jing Li⁴, Thomas Tack⁵, Tracy Johansson⁶, Amy Bennett⁷ and Jinoos Yazdany⁸, ¹UCSF / SFVA, San Francisco, CA, ²University California, San Francisco, San Francisco, CA, ³University of California San Francisco, San Francisco, CA, ⁴University of California, San Francisco, San Francisco, CA, ⁵American College of Rheumatology, Wilmington, DE, ⁶American College of Rheumatology, Atlanta, GA, ⁷ACR, Atlanta, GA, ⁸UCSF, San Francisco, CA
Background/Purpose: The American College of Rheumatology’s Rheumatology Informatics System for Effectiveness (RISE) is an EHR-enabled registry that facilitates quality measure reporting to national pay-for-performance programs.…
Abstract Number: 2529 • ACR Convergence 2024
Improving Outcomes and Narrowing Disparities in Juvenile Idiopathic Arthritis (JIA): A Division-Wide, Equity-Focused Quality Improvement Project
Dori Abel¹, Kirsten Spichiger², Megan Roman², William Baar², Claire O'Malley², Jay Mehta¹, Terri Al'Hadi², Kerry Ferraro³, Denique Butler², Asia Wilson-Sanders², Catherine Lewis², Danielle Dodson⁴ and Jon Burnham¹, ¹Children's Hospital of Philadelphia, Philadelphia, PA, ²Children's Hospital of Philadelphia, Philadelphia, ³JIA parent and CHOP volunteer, Lower Gwynedd, PA, ⁴The Children's Hospital of Philadelphia, Philadelphia
Background/Purpose: Although new therapeutics and treat-to-target interventions have improved JIA care, pronounced racial and ethnic outcome disparities persist. At our center, the mean population-level clinical Juvenile…
Abstract Number: 0341 • ACR Convergence 2023
Patient Perspectives on the Usability of a Rheumatoid Arthritis Patient-reported Outcomes Electronic Health Record-based Dashboard: A Mixed-Methods Study
Cherish Wilson¹, Catherine Nasrallah², Alicia Hamblin², Lindsay Jacobsohn², Cammie Young³, Cammie Young³, Mary Nakamura⁴, Andrew Gross², Judith Ashouri², Brett Dietz², Mehrdad Matloubian², Jinoos Yazdany⁵ and Gabriela Schmajuk¹, ¹UCSF / SFVA, San Francisco, CA, ²University of California San Francisco, San Francisco, CA, ³University of California San Francisco, Oakland, CA, ⁴UCSF/SFVAHCS, San Francisco, CA, ⁵University of California, General Department of Medicine, Division of Rheumatology, San Francisco, CA
Background/Purpose: Shared decision making, health literacy, and effective communication around patient-reported outcomes (PROs) are vital components to a treat-to-target approach in rheumatoid arthritis (RA) patients.…
Abstract Number: 1083 • ACR Convergence 2023
A Patient-Centered Approach to Increase Herpes Zoster Vaccination in Patients on Janus Kinase Inhibitors: A Fellowship Quality Improvement Initiative
Rachel Dayno¹, Sarah Capponi², Stephanie Song³, Sarah Bayefsky⁴, Thomas Riley⁵, Marta Bean¹, John Oghene³, Jonathan Kotzin¹, Ellen Romich⁶, Paula Breslin-Perry¹, Nora Sandorfi¹, Preethi Thomas⁷ and Michael George¹, ¹University of Pennsylvania, Philadelphia, PA, ²Hospital of the University of Pennsylvania, New Hope, PA, ³Hospital of the University of Pennsylvania, Philadelphia, PA, ⁴University of Pennsylvania/Children's Hospital of Philadelphia, Philadelphia, PA, ⁵Hopsital of the University of Pennsylvania, Springfield, PA, ⁶Hospital of the University of Pennsylvania, Media, PA, ⁷University of Pennsylvania, Conshohocken, PA
Background/Purpose: People with systemic rheumatologic diseases are more susceptible to herpes zoster (HZ) infection and its complications due to their underlying diseases and the medications…
Abstract Number: 1842 • ACR Convergence 2023
Reduction in the Concomitant Ordering of Erythrocyte Sedimentation Rate and C-Reactive Protein Within the Rheumatology Clinics at an Academic Medical Center
Ruchi Desai¹, Nainesh Shah¹, Ray Zhang¹, Maria Bacalao², Haidy Galous³, David Karp¹ and Puneet Bajaj¹, ¹UT Southwestern Medical Center, Dallas, TX, ²UT Southwestern, Dallas, TX, ³UT Southwestern, Southlake, TX
Background/Purpose: ESR and CRP are two laboratory values usedto assess inflammation. There is data to support that CRPis superior to ESR to detect/monitor inflammation or…

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