Abstracts tagged "quality of care"

Abstract Number: 188 • 2020 Pediatric Rheumatology Symposium
A New Multidisciplinary Pediatric SLE Clinic in a Large Urban Care Center: Feasibility, Patient Satisfaction, and Quality After One Year
Laura Santangelo ¹, Grace Cameron ², Christopher Clardy ², Cuoghi Edens ², Shireen Hashmat ², Taha Moussa ³, Rotem Semo Oz ², Linda Wagner-Weiner ⁴, Suzanne Wychocki ², Carolyn Zic ⁵ and Melissa Tesher², ¹Prtizker School of Medicine, Chicago, ²university of Chicago, Chicago, ³University of Chicago Medicine, Chicago, ⁴University of Chicago, Chicago, Illinois, ⁵Chicago
Background/Purpose: Clinical care for pediatric systemic lupus erythematosus (pSLE) is complex, requiring close attention to medical, developmental and psychosocial issues. Moreover, pSLE patients tend to…
Abstract Number: 1201 • 2019 ACR/ARP Annual Meeting
Are We Meeting Benchmarks for Wait Times to Pediatric Rheumatology Care for Juvenile Idiopathic Arthritis (JIA)?
Claire Barber¹, Natalie Shiff ², Cheryl Barnabe ³, Susanne Benseler ³, Ricky Chin ³, Nicole Johnson ³, Nadia Luca ³, Paivi Miettunen ⁴, Marinka Twilt ³, Dwaraka Veeramreddy ³ and Heinrike Schmeling ⁵, ¹University of Calgary, Calgary, Canada, ²University of Florida, Gainesville, FL, ³University of Calgary, Calgary, AB, Canada, ⁴Alberta Children's Hospital, Calgary, ON, Canada, ⁵Pediatric Rheumatology Collaborative Study Group (PRCSG), Cincinnati Children’s Hospital Medical Center, Cincinnati, OH
Background/Purpose: Wait time to pediatric rheumatology care for patients with Juvenile Idiopathic Arthritis (JIA) is a nationally endorsed quality measure in Canada. Target wait times…
Abstract Number: 1641 • 2018 ACR/ARHP Annual Meeting
Spa-Net: A Disease-Specific Integrated Ehealth System and Quality Registry for Spondyloarthritis in Daily Practice in the Netherlands
Casper Webers^1,2, Esther Beckers^1,2, Yvonne van Eijk-Hustings^1,2, Harald Vonkeman³, Mart van de Laar³, Piet van Riel⁴, Monique Efde⁵, Annelies Boonen^1,2 and Astrid van Tubergen^1,2, ¹Department of Medicine, Division of Rheumatology, Maastricht University Medical Center, Maastricht, Netherlands, ²Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, Netherlands, ³Department of Rheumatology, Medisch Spectrum Twente, Enschede, Netherlands, ⁴Department of Rheumatology, Bernhoven, Uden, Netherlands, ⁵Department of Rheumatology, VieCuri Medical Center, Venlo, Netherlands
Background/Purpose: Regular and personalised monitoring of disease activity, functioning, medication use and side effects is essential to improve and maintain patients’ health-related quality of life…
Abstract Number: 301 • 2018 ACR/ARHP Annual Meeting
Rheumatology Clinic Staff Needs for Partnering to Improve Blood Pressure and Tobacco Risk Management
Michelle Tong¹, Laura Block², Andrea Gilmore-Bykovskyi², Edmond Ramly³ and Christie M. Bartels⁴, ¹Biomedical Engineering, University of Wisconsin - Madison, Madison, WI, ²University of Wisconsin School of Nursing, Madison, WI, ³Department of Family Medicine, University of Wisconsin School of Medicine and Public Health, Madison, WI, ⁴Rheumatology/Medicine, University of Wisconsin - Madison, Madison, WI
Background/Purpose: Patients with rheumatologic conditions are at a higher risk of cardiovascular disease (CVD) than peers. High blood pressure (BP) and tobacco use exacerbate CVD…
Abstract Number: 847 • 2017 ACR/ARHP Annual Meeting
The Mediational Role of Helplessness in Psychological Outcomes in Systemic Lupus Erythematosus
Desiree R Azizoddin¹, Sarah D. Mills², Perry M. Nicassio³, Geraldine Zamora Racaza⁴ and Michael Weisman⁵, ¹1611 W Harrison, 1611 W Harrison, Chicago, IL, ²SDSU/UC San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, ³Cousins Center for PNI, UCLA, LA, CA, ⁴Division of Rheumatology, Cedars-Sinai Medical Center, Los Angeles, CA, ⁵Cedars-Sinai Medical Center Division of Rheumatology, Los Angeles, CA
Background/Purpose: Systemic lupus erythematosus (SLE) is a chronic, autoimmune disease affecting multiple organs, leading to a significant impact on health-related quality of life. Theoretical models…
Abstract Number: 54 • 2016 ACR/ARHP Annual Meeting
Patients with Fibromyalgia in General Have Higher Self-Report Questionnaire Scores Than Patients with Rheumatoid Arthritis: Implications for Clinical Trials and Clinical Research
Theodore Pincus¹, Isabel Castrejón¹, Joel Block² and Nathaniel Cook¹, ¹Rheumatology, Rush University Medical Center, Chicago, IL, ²Division of Rheumatology, Rush University Medical Center, Chicago, IL
Background/Purpose: Patients with rheumatoid arthritis (RA) who are included in clinical trials generally are selected for measures indicating high disease activity, such as more than…
Abstract Number: 420 • 2016 ACR/ARHP Annual Meeting
Feasibility of a Rheumatology Staff Protocol for Tobacco Cessation Counselling and Quit Line Electronic Referral
Christie M. Bartels¹, Daniel Panyard², Diane Lauver³, Emmanuel Sampene⁴, Zhanhai Li⁵, Robert Adsit⁶, Patrick McBride⁷, Heather Johnson⁷, Kristin Steffen Lewicki⁸ and Edmond Ramly⁹, ¹Rheumatology/Medicine, University of Wisconsin School of Medicine and Public Health, Madison, WI, ²Population Health, University of Wisconsin School of Medicine and Public Health, Madison, WI, ³University of Wisconsin-Madison School of Nursing, Madison, WI, ⁴Biostatistics, University of Wisconsin School of Medicine and Public Health, Madison, WI, ⁵University of Wisconsin School of Medicine and Public Health, Madison, WI, ⁶University of Wisconsin Center for Tobacco Research and Intervention, Madison, WI, ⁷Cardiology/Medicine, University of Wisconsin School of Medicine and Public Health, Madison, WI, ⁸Department of Medicine, University of Wisconsin School of Medicine and Public Health, Madison, WI, ⁹Industrial and Systems Engineering, University of Wisconsin-Madison College of Engineering, Madison, WI
Background/Purpose: Smoking is a both a risk factor for developing rheumatoid arthritis (RA) and a predictor of severe, treatment-refractory disease in RA and other rheumatic…
Abstract Number: 1411 • 2016 ACR/ARHP Annual Meeting
An Electronic MDHAQ (multidimensional health assessment questionnaire) Beyond an Electronic RAPID (routine assessment of patient index data): 21.3% of Rheumatoid Arthritis Patients Identified As Having Secondary Fibromyalgia Versus 3.5% By Clinicians
Theodore Pincus and Nathaniel Cook, Rheumatology, Rush University Medical Center, Chicago, IL
Background/Purpose: A major impediment to use of patient questionnaires in routine clinical care has been the absence of electronic entry for patients and for doctors…
Abstract Number: 2228 • 2015 ACR/ARHP Annual Meeting
Brief Educational Intervention Improves Gout Patients’ Understanding of Their Disease
Slavica Bobic¹, Mark Tratenberg¹, Julia Ash¹, Amy Wasserman² and Kirk Sperber¹, ¹Rheumatology, New York Medical College, Valhalla, NY, ²New York Medical College, Valhalla, NY
Background/Purpose: To assess gout patients’ baseline knowledge of their disease and to measure knowledge improvement after brief educational session. Methods: In this study, 13 patients…
Abstract Number: 2699 • 2014 ACR/ARHP Annual Meeting
Optimizing Scleroderma Centers of Excellence: Perspectives from Patients and Scleroderma (SSc) Experts
Veronika K. Jaeger¹, Andrew Aubin², Nancy Baldwin³, Kim Fligelstone⁴, Robyn Sims⁵, Joep Welling⁶, Ryan Burrill⁷, Kerri Connolly⁷, Tracy Frech⁸, Jessica K. Gordon⁹, Tanaka Ngcozana¹⁰, Monika Kowalczyk¹¹, Matthew R. Lammi¹², Ulrich A. Walker¹ and Lesley Ann Saketkoo¹³, ¹Department of Rheumatology, University Hospital Basel, Basel, Switzerland, Basel, Switzerland, ²Louisiana State University School of Medicine, New Orleans, LA, ³Scleroderma Foundation - Chicago Support Group, Chicago, IL, ⁴Royal Free Hospital, Scleroderma Unit and Scleroderma Society, London, United Kingdom, ⁵Scleroderma Australia, Victoria, Australia, ⁶The Dutch Patient Organization for Systemic Autoimmune Diseases, Utrecht, Netherlands, ⁷Scleroderma Foundation, Boston, MA, ⁸Div of Rheumatology, University of Utah, Salt Lake City, UT, ⁹Rheumatology, Hospital for Special Surgery, New York, NY, ¹⁰Rheumatology Department, Lower, Royal Free hospital, London, United Kingdom, ¹¹DIvision of Gastroenterology, Tulane University School of Medicine, New Orleans, LA, ¹²Louisiana State University Health Sciences Center, Pulmonary and Critical Medicine, New Orleans, LA, ¹³Scleroderma and Sarcoidosis Patient Care and Research Center, Rheumatology and Pulmonary Medicine, Louisiana State University Health Sciences Center, New Orleans, LA
Background/Purpose: SSc is a complex, diffuse, devastating health condition of vascular injury, inflammation and fibrosis resulting in multiple organ-system derangements with high impact on…
Abstract Number: 1156 • 2014 ACR/ARHP Annual Meeting
Satisfaction with Rural Rheumatology Telehealth Service
Katherine Poulsen¹, Lynden Roberts², Catherine Millen³, Umayal Lakshman³ and Petra Buttner⁴, ¹Rheumatology and General Medicine, Queensland Health, Brisbane, Australia, ²James Cook University, Melbourne, Australia, ³Queensland Health, Mount Isa, Australia, ⁴James Cook University, Townsville, Australia
Background/Purpose: To assess patient satisfaction with the rheumatology telemedicine service provided to a rural town in northern Australia. Methods: A prospective, questionnaire-based exploratory study of…
Abstract Number: 2212 • 2013 ACR/ARHP Annual Meeting
Development Of Tools To Facilitate Shared Decision Making About Medications For Juvenile Idiopathic Arthritis – A Project Of The Pediatric Rheumatology Care and Outcomes Improvement Network
Esi Morgan DeWitt¹, Ellen A. Lipstein², Katie Staun³, Linda Scherer⁴, Janalee Taylor⁵, Carole M. Lannon⁴ and William B. Brinkman⁶, ¹Department of Pediatrics, Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Division of Adolescent Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³University of Cincinnati, Cincinnati, OH, ⁴James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵William S. Rowe Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁶Division of General and Community Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Medication options for juvenile idiopathic arthritis (JIA) are increasing. Medications differ on a variety of attributes, including mechanisms of action, dosing intervals, modes of…
Abstract Number: 1924 • 2013 ACR/ARHP Annual Meeting
Cleveland Clinic Dual Energy X-Ray Absorptiometry Registry, A Web-Based Tool Designed For Efficient Collection Of Bone Density and Osteoporosis Related Clinical Risk Factor Data
Chad L. Deal¹, Gregory J. Strnad², Robert A. Overman^3,4 and Boris Bershadsky^2,5, ¹Dept of Rheum & Imm Dis /A 50, Cleveland Clinic, Cleveland, OH, ²Orthopaedic and Rheumatologic Institute, Cleveland Clinic, Cleveland, OH, ³Eshelman School of Pharmacy - Division of Pharmaceutical Policy and Outcomes, University of North Carolina, Chapel Hill, NC, ⁴Rheumatology, Cleveland Clinic, Cleveland, OH, ⁵School of Public Health, University of Minnesota, Minneapolis, MN
Background/Purpose: A patient registry is an organized system that collects uniform data to allow evaluation of specific outcomes for a population with a particular disease.…
Abstract Number: 382 • 2012 ACR/ARHP Annual Meeting
Does Biased Risk Perception Explain the Underuse of Disease Modifying Anti-Rheumatic Drugs?
Richard W. Martin¹, Andrew J. Head², James D. Birmingham³ and Aaron T. Eggebeen¹, ¹Medicine, Rheumatology, Michigan State University College of Human Medicine, Grand Rapids, MI, ²Medicine, Rheumatology, College of Human Medicine, Michigan State University, Grand Rapids, MI, ³Medicine & Pediatrics, Rheumatology, Michigan State University College of Human Medicine, Grand Rapids, MI
Background/Purpose: The prescription of a Disease Modifying Anti-rheumatic Drugs (DMARD) for patients with rheumatoid arthritis (RA) is considered a standard of effective care. However a…
Abstract Number: 655 • 2012 ACR/ARHP Annual Meeting
Non-White Race, Younger Age, and Use of Primary and Gynecologic Care Are Associated with Higher Rates of Cervical Cancer Screening in Systemic Lupus Erythematosus Patients At a Public Hospital
Jennifer Stichman¹, Angela Keniston², Joann Zell³, Jinoos Yazdany⁴, Itziar Quinzanos¹ and Joel M. Hirsh⁵, ¹Dept Medicine, Denver Health Med Ctr, Denver, CO, ²Department of Medicine, Denver Health and Hospital Authority, Denver, CO, ³Medicine, National Jewish Health, Denver, CO, ⁴Medicine, University of California, San Francisco, San Francisco, CA, ⁵Medicine, Division of Rheumatology, Denver Health and Hospital Authority, Denver, CO
Background/Purpose: Patients with Systemic Lupus Erythematosus (SLE) are at increased risk of cervical dysplasia and persistent Human Papilloma Virus (HPV) infection. There are few prior…