ACR Meeting Abstracts

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Abstracts tagged "Patient reported outcomes"

  • Abstract Number: 0680 • ACR Convergence 2024

    Clinical Correlates of Physical and Mental Health in Early Systemic Sclerosis: Data from the Collaborative National Quality and Efficacy (CONQUER) Registry

    Ashima Makol1, Isha Lamba2, Dinesh Khanna3, John VanBuren4, Angela Child4, Jessica Alvey4, Shervin Assassi5, Elana Bernstein6, Flavia Castelino7, Lorinda Chung8, Luke Evnin9, Tracy Frech10, Faye Hant11, Laura Hummers12, Kimberly Lakin13, Dorota Lebiedz-Odrobina14, Yiming Luo15, Jerry Molitor16, Duncan Moore17, Carrie Richardson18, Nora Sandorfi19, Ami Shah20, Ankoor Shah21, Brian Skaug5, Virginia Steen22, Elizabeth Volkmann23 and Jessica Gordon24, 1Mayo Clinic, Rochester, MN, Rochester, MN, 2New York Presbyterian Hospital/Weill Cornell Medical Centre, New York, NY, 3University of Michigan, Ann Arbor, MI, 4University of Utah, Salt Lake City, UT, 5UTHealth Houston Division of Rheumatology, Houston, TX, 6Division of Rheumatology, Department of Medicine, Vagelos College of Physicians and Surgeons, Columbia University Irving Medical Center, New York, NY, 7Massachusetts General Hospital, Boston, MA, 8Stanford University, Woodside, CA, 9Scleroderma Research Foundation, Brisbane, CA, 10Vanderbilt University Medical Center, Nashville, TN, 11Medical University of South Carolina, Charleston, SC, 12Johns Hopkins University, Division of Rheumatology, Baltimore, MD, Ellicott City, MD, 13Hospital for Special Surgery, New York, NY, 14University of Utah, Cottonwood Heights, UT, 15Columbia University, New York, NY, 16University of Minnesota, Minneapolis, MN, 17Northwestern Memorial Hospital, Chicago, IL, 18Northwestern University, Chicago, IL, 19University of Pennsylvania, Philadelphia, PA, 20Division of Rheumatology, Johns Hopkins University, Ellicott City, MD, 21Duke University, Durham, NC, 22Georgetown University School of Medicine, Washington, DC, 23University of California, Department of Medicine, Los Angeles, CA, USA, Los Angeles, 24Division of Rheumatology, Weill Cornell Medical College, New York, NY

    Background/Purpose: Early years of Systemic sclerosis (SSc) are typically the period of peak disease activity and associated with greater pain, fatigue, sleep disturbance, physical impairment,…
  • Abstract Number: 1229 • ACR Convergence 2024

    Frequency of Fibromyalgia Using Validated Measures in a Sample of Patients with Psoriatic Arthritis and Impact on Disease: A Cross-Sectional Multinational Study

    avin maroof1, Nelly Ziade2, Lina El Kibbi3, Bassel Elzorkany4, Nizar Ani5, ASAL ADNAN RIDHA6, Faiq Gorial7, NABAA IHSAN JAWAD AWADH8, Nada Al Chama9, Chafika Haouichat10, Fatima Alnaimat11, Suad Mohamed Abdulla Hannawi12, Suad Hannawi13, Saed Atawnah14, HUSSEIN HALABI15, Manal Al-Mashaleh16, Ahmed Abogamal17, Rachid Bahiri18, Sahar Saad19, maha sabkar20, Krystel Aouad21, Laure Gossec22, Ihsane Hmamouchi23, nabaa abbas24, Elyes Bouajina25, Laila Aljazye26 and Laila ayoub27, and ArLAR-ARCH group, 1University of Kurdistan Hawler, Erbil, Iraq, 2Saint-Joseph University, Beirut, Lebanon, 3Division of rheumatology / Department of Medicine / Specialized Medical Center, Riyadh, Saudi Arabia, 4Private (BZRC), Cairo, Egypt, 5Baghdad College of Medicine, Baghdad, Iraq, 6Baghdad Teaching Hospital, baghdad, Iraq, 7Rheumatology Unit/Department of Medicine/ College of Medicine/ University of Baghdad, Baghdad, Iraq, 8Baghdad Teaching Hospital / Medical City, Baghdad, Iraq, 9Rheumatology Department / Ebn Al Nafiss Hospital / Damascus, Damascus, Syria, 10Djillali Bounaama university hospital, Algiers, Algeria, 11The University of Jordan, amman, Jordan, 12Rheymatology Department / Emirate Health Services / Dubai, Dubai, United Arab Emirates, 13Ministry of Health and Prevention, Dubai, United Arab Emirates, 14Al-Quds University / Alahli Hospital / Hebron ,Palestine, Hebron, Palestinian Territories, 15King Faisal Specialist Hospital / Jeddah, Jeddah, Saudi Arabia, 16Royal Medical Services, Amman, Jordan, 17Dr. Sliman Al Habib Hospital / Al-Azhar Faculty of Medicine, Dubai, United Arab Emirates, 18El Ayachi Hospital / Medical University Hospital / Rabat, Rabat, Morocco, 19King Hamad University Hospital / Assiut Medical School of Egypt, Al Sayh, Bahrain, 20King Hamad university Hospital, Arad, Bahrain, 21Saint George Hospital University Medical Center, Beirut, Lebanon, 22Sorbonne Université, Paris, France, 23Rheumatology Unit, Lalla Aicha Temara Hospital, Temara, Rabat, Morocco, 24Baghdad teaching hospital, Medical city, Baghdad, Iraq, Baghdad, Iraq, 25Farhat Hached Hospital of Sousse, Tunisia, Sousse, Tunisia, 26Tripoli / Libya, Tripoli, Libya, 27Rheumatology unit, department of internal medicine, Tripoli Central Hospital. Faculty of Medicine, University of Tripoli, Libya, Tripoli, Libya

    Background/Purpose: Fibromyalgia (FM), a chronic pain disorder, is more prevalent in psoriatic arthritis (PsA) patients, impacting quality of life and potentially leading to unnecessary treatment escalation. Cultural factors may…
  • Abstract Number: 1320 • ACR Convergence 2024

    Acceptability and Satisfaction of an Online Resilience-Building Intervention with Peer Health Coaches for Managing Fatigue and Well-Being in Systemic Sclerosis

    Susan Murphy1, Yen Chen2, Alexandra Harper2, Nirali Shah2, Mary Alore2, Sheri Hicks2, Adam Pape3 and Dinesh Khanna2, 1University of Michigan, Plymouth, MI, 2University of Michigan, Ann Arbor, MI, 3University of Michigan, University of Michigan, MI

    Background/Purpose: Non-pharmacological fatigue management interventions in systemic sclerosis (SSc) are limited, despite people with SSc reporting that fatigue is inadequately addressed with clinical care. We…
  • Abstract Number: 1500 • ACR Convergence 2024

    Work-Related Disability and Function in Systemic Lupus Erythematosus (SLE): Outcomes of an Exploratory Study from Different Canadian Centres

    Behdin Nowrouzi-Kia1, J. Antonio Avina-Zubieta2, Mary Fox3, William Shaw4, Maggie Ho5, Qixuan Li5, Catherine Ivory6, Paul Fortin7, Stephanie Keeling8, Jennifer Reynolds9, Derek Haaland10, Janet Pope11, Lily Lim12, Patti Katz13, Murray Urowitz14, Laura Patricia Whittall Garcia5, Dafna Gladman15 and Zahi Touma1, 1University of Toronto, Toronto, ON, Canada, 2Arthritis Research Canada, University of British Columbia, Vancouver, BC, Canada, 3York University, Toronto, ON, Canada, 4University of Connecticut, School of Medicine, Farmington, CT, 5University Health Network, Toronto, ON, Canada, 6The Ottawa Hospital, Ottawa, ON, Canada, 7Centre ARThrite - CHU de Québec - Université Laval, Quebec, QC, Canada, 8University of Alberta, Edmonton, AB, Canada, 9UBC, North Vancouver, BC, Canada, 10The Waterside Clinic, Oro Medonte, ON, Canada, 11University of Western Ontario, London, ON, Canada, 12University of Manitoba, Winnipeg, MB, Canada, 13UCSF, San Rafael, CA, 14Self employed, Toronto, ON, Canada, 15University of Toronto, Toronto Western Hospital, Toronto, ON, Canada

    Background/Purpose: Systemic lupus erythematosus (SLE) has a significant and long-lasting impact on work outcomes, is a source of long-lasting work disability, and presents challenges with…
  • Abstract Number: 2152 • ACR Convergence 2024

    Factors Associated with Health-related Quality of Life in Adults with SAPHO and Chronic Nonbacterial Osteomyelitis – a Cross Sectional Analysis from the SAPHO-CNO Study

    Aleksander Lenert1, Helena Abodeely1, Karmela Kim Chan2, Sandy Hong3, Arundathi Jayatilleke4, Courtney Kremer5, Emma Leisinger1, Petar Lenert6, Melissa Oliver7, T. Shawn Sato8, Melanie Smith2, Thomason Jenna9, Yongdong (Dan) Zhao10, Jonathan Templin1, Robyn Domsic11, Mary Vaughan-Sarrazin1, Daniel Solomon12 and Polly Ferguson13, 1University of Iowa, Iowa City, IA, 2Hospital For Special Surgery, New York, NY, 3University of Iowa Stead Family Children's Hospital, Iowa City, IA, 4Temple University, Philadelphia, PA, 5University of Iowa Stead Family Children's Hospital, Solon, Iowa, IA, 6University of Iowa Hospitals and Clinics, Iowa City, IA, 7Indiana University, Indianapolis, IN, 8University of Iowa, Iowa City, 9University of Washington, Division of Rheumatology, Seattle, WA, 10University of Washington, Redmond, WA, 11Division of Rheumatology and Clinical Immunology, University of Pittsburgh School of Medicine, Pittsburgh, PA, 12Brigham and Women's Hospital, Newton, MA, 13University of Iowa Carver College of Medicine, Iowa City, IA

    Background/Purpose: Health-related quality of life (HRQOL) is decreased in individuals with chronic rheumatic diseases (CRD) yet remains undefined in adults with SAPHO syndrome and chronic…
  • Abstract Number: 2241 • ACR Convergence 2024

    Associations Between Disease Activity, Physical Function and Anti-rheumatic Medications with All-cause Mortality in Rheumatoid Arthritis (RA): Data from a Canadian RA Registry

    Mohammad Movahedi1, Angela Cesta2, Xiuying Li2, Bindee Kuriya3, Sibel Aydin4, Ed Keystone5, Janet Pope6 and Claire Bombardier7, and OBRI investigators, 1Toronto General Hospital Research Institute, University Health Network, Toronto, ON, Canada, 2UHN, Toronto, ON, Canada, 3University of Toronto - Toronto, Toronto, ON, Canada, 4Ottawa Hospital Research Institute, Ottawa, ON, Canada, 5Keystone Consulting Enterprises Inc., Toronto, ON, Canada, 6University of Western Ontario, London, ON, Canada, 7University of Toronto, Toronto, ON, Canada

    Background/Purpose: Patients with rheumatoid arthritis (RA) are at increased risk of hospitalizations and mortality due to RA itself, associated comorbidities, and treatment-related complications. The purpose…
  • Abstract Number: PP13 • ACR Convergence 2024

    Bridging the Gap from Pediatric to Adult Rheumatology Care

    Natasha Trehan, University of Ottawa, Take a Pain Check Foundation, Markham, ON, Canada

    Background/Purpose: When I was 13, life took an unexpected turn with a diagnosis of Juvenile Idiopathic Arthritis (JIA). Overnight, my world transformed into a cycle…
  • Abstract Number: 0548 • ACR Convergence 2024

    Associations and Impact of Kinesiophobia on Patient Reported Outcomes and Performance-based Mobility Measures in Patients with Axial Spondyloarthritis

    David Kiefer1, Juergen Braun2, Uta Kiltz3, Niklas Kolle1, Lucia Schneider1, Ioana Andreica4, Bjoern Buehring5, Philipp Sewerin6, Imke Redeker7, Styliani Tsiami8, Susanne Herbold9 and Xenofon Baraliakos8, 1Ruhr-Universität Bochum; Rheumazentrum Ruhrgebiet, Herne, Germany, 2Rheuma Praxis, Ruhr-University Bochum, Berlin, Germany, 3Rheumazentrum Ruhrgebiet Herne, Ruhr-University, D-44649 Herne, Germany, 4Rheumazentrum Ruhrgebiet Herne, Herne, Germany, 5Bergisches Rheuma-Zentrum Wuppertal; Ruhr-Universität Bochum, Wuppertal, Germany, 6Ruhr-Universität Bochum, Rheumazentrum Ruhrgebiet, Herne, Germany, 7Ruhr Universität Bochum, Bochum, Germany, 8Rheumazentrum Ruhrgebiet Herne, Ruhr-University Bochum, Herne, Germany, 9Rheumazentrum Ruhrgebiet, Herne, Herne, Germany

    Background/Purpose: Kinesiophobia, defined as the fear of movement, poses a significant barrier to effective rehabilitation, functional recovery, and adequate physical activity. To investigate the impact…
  • Abstract Number: 0682 • ACR Convergence 2024

    Results from Outcomes Selection and Development of a Patient-reported Outcome Measure for a Combined Response Index for Limited Cutaneous SSc: The CRISTAL Project

    Alain Lescoat1, Yen Chen2, Susan Murphy3, Nadia Vann2, Neda Kortam2, Rosemary Gedert2, Sue Farrington4, Yannick Allanore5, David Cella6, Lorinda Chung7, Philip Clements8, Christopher Denton9, Francesco Del Galdo10, Oliver Distler11, Monique Hinchcliff12, Michael Hughes13, Laura Hummers14, John Pauling15, Janet Pope16, Virginia Steen17, John Varga2, Peter Merkel18, Maya H. Buch19 and Dinesh Khanna2, and all CRISTAL collaborators, 1CHU Rennes - University Rennes 1, Rennes, France, 2University of Michigan, Ann Arbor, MI, 3University of Michigan, Plymouth, MI, 4Scleroderma & Raynaud UK, London, United Kingdom, 5Université Paris Cité, Paris, France, 6Northwestern University, Chicago, IL, 7Stanford University, Woodside, CA, 8United States, Los Angeles, CA, 9University College London, Northwood, United Kingdom, 10University of Leeds, Leeds, United Kingdom, 11Department of Rheumatology, University Hospital Zurich, University of Zurich, Zurich, Switzerland, Zurich, Switzerland, 12Yale School of Medicine, Westport, CT, 13Tameside and Glossop Integrated NHS Foundation Trust & The University of Manchester, Manchester, United Kingdom, 14Johns Hopkins University, Division of Rheumatology, Baltimore, MD, Ellicott City, MD, 15North Bristol NHS Trust, Bristol, United Kingdom, 16University of Western Ontario, London, ON, Canada, 17Georgetown University School of Medicine, Washington, DC, 18University of Pennsylvania, Philadelphia, PA, 19Division of Musculoskeletal & Dermatological Sciences, University of Manchester, and NIHR Manchester Biomedical Research Centre, Manchester, United Kingdom

    Background/Purpose: Limited cutaneous systemic sclerosis (lcSSc) is the most frequent subset of scleroderma, yet there is a paucity of outcome measures available to assess symptoms…
  • Abstract Number: 1237 • ACR Convergence 2024

    The Art of Choosing Together: Unveiling the Patient’s Perspective in Rheumatology

    ADRIANA VANEGAS1, Guillermo Quiceno2, Luis Lira3, Gina Ochoa4, Álvaro Arbeláez-Cortés5, Mauricio Restrepo-Escobar6 and Virginia Pascual Ramos7, 1HOSPITAL SAN VICENTE FUNDACION - UNIVERSIDAD DE ANTIOQUIA - Asociación Colombiana de Reumatología (ASOREUMA), MEDELLIN, Colombia, 2University of Tennessee Graduate School of Medicine, Dallas, TX, 3Sociedad Chilena de Reumatología, Santiago, Chile, 4Fundación LICAR, Barranquilla, Colombia, 5Clínica IMBANACO, Cali, Colombia, 6Universidad de Antioquia, Retiro, Colombia, 7Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran, Mexico City, Federal District, Mexico

    Background/Purpose: Scientific evidence supports that shared decision-making (SDM) can improve adherence to treatment, patient satisfaction, quality of life, clinical outcomes, and healthcare costs. However, challenges…
  • Abstract Number: 1324 • ACR Convergence 2024

    Rheumatoid Arthritis Associated Interstitial Lung Disease – Patient Perceptions and Recommendations

    Shirish Dubey1, Abhinav Peddasomayajula2, Damodar Makkuni3, Anupama Nandagudi4, Win Win Maw5 and Gouri M Koduri6, 1Oxford University Hospitals NHS FT, Oxford, United Kingdom, 2Mid and South Essex NHS Foundation Trust, Southend, England, United Kingdom, 3James Paget University Hospital NSH FT, Great Yarmouth, United Kingdom, 4MSEFT, Basildon, United Kingdom, 5Mid and South Essex NHS Foundation Trust, Chelmsford, England, United Kingdom, 6Southend Univeristy Hospitals NHS Trust, Essex, United Kingdom

    Background/Purpose: Interstitial lung disease (ILD) is one of the complications of rheumatoid arthritis (RA) and has significant impact on morbidity and mortality. RA significantly reduces…
  • Abstract Number: 1555 • ACR Convergence 2024

    Sustained Functional Assessment of Chronic Illness Therapy–Fatigue Response in Patients with SLE Receiving Anifrolumab Alongside Standard Therapy

    Vibeke Strand1, Kenneth Kalunian2, Ian Bruce3, Caroline Seo4, Kai Wai Lee5, Jacob Knagenhjelm6 and Catharina Lindholm6, 1Division of Immunology/Rheumatology, Stanford University, Palo Alto, CA, 2University of California San Diego, La Jolla, CA, 3Centre for Musculoskeletal Research, The University of Manchester, Manchester, United Kingdom, 4BioPharmaceuticals Medical Evidence, AstraZeneca, Gaithersburg, MD, 5Biopharmaceuticals R&D, AstraZeneca, Cambridge, United Kingdom, 6BioPharmaceuticals Medical, AstraZeneca, Gothenburg, Sweden

    Background/Purpose: Fatigue is highly prevalent and severely affects health-related quality of life (HRQoL) in patients with SLE.1,2  We previously demonstrated that, compared with placebo, a…
  • Abstract Number: 2153 • ACR Convergence 2024

    Construct Validity of the IDEOM Musculoskeletal Questionnaire (IDEOM MSK-Q) Using Data from the Cohort for Psoriasis and Psoriatic Arthritis Registry (COPPAR)

    Lourdes Perez Chada1, Ruogu Li2, vivi feathers2, Kumiko Schnock2, Helen Early2, Grace Carter2, Neda Shahriari2, Arianna Zhang2, Jing Cui3, Michael Weinblatt4, Nancy Shadick2, Alice Gottlieb5 and Joseph Merola6, 1Harvard Medical School, Wayland, MA, 2Brigham and Women's Hospital, Boston, MA, 3Brigham Women's Hospital, Boston, MA, 4Brigham and Women's Hospital/ Harvard Medical School, Waban, MA, 5Icahn School of Medicine at Mount Sinai, Department of Dermatology, Seattle, WA, 6UT Southwestern Medical Center, Newton, MA

    Background/Purpose: Patients with psoriasis often present with musculoskeletal (MSK) symptoms, yet validated instruments to measure MSK symptoms in this population are limited. The IDEOM MSK-Q…
  • Abstract Number: 2265 • ACR Convergence 2024

    Patient’s Global Assessment of Disease Activity Is the Most Relevant Factor for Near-Miss of Boolean 2.0 Remission in Patients with Rheumatoid Arthritis: Post Hoc Analysis from the Observational UPwArds Study

    Torsten Witte1, Uta Kiltz2, Florian Haas3, Elke Riechers4, Ulrich Prothmann5, Daniela Adolf6, Alexander Rössler7, Kirsten Famulla8, Konrad Götz7 and Klaus Krüger9, 1Dept of Immunology and Rheumatology, Hannover, Germany, 2Rheumazentrum Ruhrgebiet Herne, Ruhr-University, D-44649 Herne, Germany, 3Internistisch-Rheumatologische Facharztpraxis, Rheumatology, Tübingen, Germany, 4Hannover Medical School, Department for Rheumatology and Immunology, Herne, Germany, 5Knappschaftsklinikum Saar GmbH, Püttlingen, Germany, 6StatConsult GmbH, Statistics, Magdeburg, Germany, 7AbbVie Deutschland GmbH & Co. KG, Immunology, Wiesbaden, Germany, 8AbbVie Deutschland GmbH & Co. KG, Immunology, North Chicago, 9Rheumatologisches Praxiszentrum, Munich, Germany, München, Germany

    Background/Purpose: Patient’s Global Assessment of disease activity (PtGA) was found to be the most relevant limiting factor for achieving Boolean 1.0 remission in patients with…
  • Abstract Number: 0171 • ACR Convergence 2024

    Associations Between Discrimination Experiences and Patient-Reported Outcomes Among Asian Individuals with Systemic Lupus Erythematosus (SLE)

    Patti Katz1, JoonSuk Park2, Kamil Barbour3, Kurt Greenlund3, Maria Dall'Era4 and Jinoos Yazdany2, 1UCSF, San Rafael, CA, 2University of California San Francisco, San Francisco, CA, 3CDC, Alpharetta, GA, 4UCSF, Corte Madera, CA

    Background/Purpose: Discrimination experiences have been linked to poor outcomes among Black individuals with SLE.1  Among Asian adults in the general US population, discrimination has been…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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