ACR Meeting Abstracts

ACR Meeting Abstracts

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Abstracts tagged "Patient reported outcomes"

  • Abstract Number: 0359 • ACR Convergence 2021

    Patient Journey with Axial Spondyloarthritis: Critical Issues from the Patient Perspective. Results from the European Map of Axial Spondyloarthritis (EMAS)

    Marco Garrido-Cumbrera1, Denis Poddubnyy2, Christine Bundy3, Laura Christen4, Raj Mahapatra5, Souzi Makri6, Carlos Jesús Delgado-Domínguez7, Sergio Sanz-Gomez7, Pedro Plazuelo-Ramos8 and Victoria Navarro-Compán9, 1Health & Territory Research (HTR), University of Seville, Sevilla, Spain, 2Department of Rheumatology, Charité – Universitätsmedizin, Berlin, Germany, 3Cardiff University, Cardiff, Wales, United Kingdom, 4Novartis Pharma AG, Basel, Switzerland, 5Axial Spondyloarthritis International Federation (ASIF), London, United Kingdom, 6Cyprus League Against Rheumatism (CYPLAR), Limassol, Cyprus, 7Health & Territory Research (HTR), Universidad de Sevilla, Seville, Spain, 8Spanish Federation of Spondyloarthritis Associations (CEADE), Madrid, Spain, 9Rheumatology service, Hospital Universitario La Paz-IdiPaz, Madrid, Spain

    Background/Purpose: The journey of axial spondyloarthritis (axSpA) for most patients is slow and arduous. The goal of this analysis is to assess the journey to…
  • Abstract Number: 0664 • ACR Convergence 2021

    Which Attributes Are the Most and Least Important to Patients When Considering Gout Flare Burden over Time? A Best-worst Scaling Choice Study

    Jeremy Holyer1, William Taylor2, Angelo Gaffo3, Graham Hosie1, Anne Horne1, Borislav Mihov1, Isabel Su1, Gregory Gamble1, Nicola Dalbeth1 and Sarah Stewart1, 1University of Auckland, Auckland, New Zealand, 2University of Otago Wellington, Auckland, New Zealand, 3University of Alabama at Birmingham Medical Centre, Birmingham, AL

    Background/Purpose: Several factors contribute to the patient experience of gout flares, including pain intensity, duration, frequency, and disability. It is unknown which of these factors…
  • Abstract Number: 0754 • ACR Convergence 2021

    Bridging the Gap Between Patient-Reported Outcomes and Disease-Related Outcomes in Lupus – a Feasibility Study

    Shivani Garg1 and Christie Bartels2, 1UW Madison, Madison, WI, 2University of Wisconsin School of Medicine and Public Health, Madison, WI

    Background/Purpose: Patients with SLE have significantly worse health-related quality of life (QOL) at an earlier age compared to patients with other chronic diseases. This highlights…
  • Abstract Number: 0827 • ACR Convergence 2021

    Discontinuation Rate of Tofacitinib as Monotherapy Is Similar Compared to Combination Therapy with Methotrexate in Rheumatoid Arthritis Patients: Pooled Data from Two Rheumatoid Arthritis Registries in Canada

    Mohammad Movahedi1, Denis Choquette2, Louis Coupal2, Angela Cesta3, Xiuying Li3, Edward Keystone4 and Claire Bombardier5, 1Toronto General Hospital Research Institute, University Health Network, Toronto, ON, Canada, 2Institut de Rhumatologie de Montréal, Montréal, QC, Canada, 3Toronto General Hospital Research Institute, UHN, Toronto, ON, Canada, 4Keystone Consulting Enterprises Inc., Toronto, ON, Canada, 5University of Toronto - Toronto, Toronto, ON, Canada

    Background/Purpose: Tofacitinib (TOFA) is an oral, small molecule drug used for rheumatoid arthritis (RA) treatment and is prescribed alone or with methotrexate (MTX). We previously…
  • Abstract Number: 1167 • ACR Convergence 2021

    Rheumatoid Arthritis Patients’ Treatment Goals Relate to Disease Activity and Rheumatology Experiences

    Kelly O'Neill1, Pamela Sinicrope2, Kathryne Marks3, Elena Myasoedova2, Cynthia Crowson4 and John Davis2, 1Rheumatoid Patient Foundation, Lutz, FL, 2Mayo Clinic, Rochester, MN, 3Rheumatoid Patient Foundation, Boston, MA, 4Mayo Clinic, Eyota, MN

    Background/Purpose: Shared decision making and treat to target are recognized guidelines to treat Rheumatoid Arthritis (RA). We previously reported associations of shared treatment goal discussions…
  • Abstract Number: 1305 • ACR Convergence 2021

    Undiagnosed Depression in Axial Spondyloarthropathy and the Negative Impact on Patient Outcomes: Results of a Screening Study

    Sinead Maguire1, Phil Gallagher2 and Finbar (Barry) O'Shea1, 1St James's Hospital, Dublin, Ireland, 2St Vincent's Hospital, Dublin, Ireland

    Background/Purpose: Previous research in axial spondyloarthropathy(axSpA) has shown this population to have a high prevalence of depression. This co-morbidity has been previously shown to impact…
  • Abstract Number: 1605 • ACR Convergence 2021

    Health Related Quality of Life in Rheumatology Outpatients with COVID-19 from New York City over the Course of the Pandemic

    Lisa Mandl1, Jonah Levine1, Vivian Bykerk2 and Medha Barbhaiya1, 1Hospital for Special Surgery, New York, NY, 2Division of Rheumatology, Hospital for Special Surgery, New York City, NY

    Background/Purpose: The impact of the COVID-19 pandemic on the mental and physical well-being of patients with systemic rheumatic diseases (SRDs) remains to be quantified. We…
  • Abstract Number: 1911 • ACR Convergence 2021

    Patient’s and Rheumatologist’s Perspectives on the Burden of Adverse Drug Reactions Attributed to Biologics: A Qualitative Study

    Henrike Westerink1, Leanne Kosse2, Naomi Jessurun2, Astrid van Tubergen3, Harald Vonkeman4, Mike Nurmohamed5, Bart van den Bemt6 and Marieke de Vries7, 1Netherlands Pharmacovigilance Centre Lareb, Nijmegen, Netherlands, 2Netherlands Pharmacovigilance Centre Lareb, 's-Hertogenbosch, Netherlands, 3Maastricht UMC+, Maastricht, Netherlands, 4Medisch Spectrum Twente; University of Twente, Enschede, Netherlands, 5Reade; Amsterdam Rheumatology & Immunology Center, Amsterdam, Netherlands, 6Sint Maartenskliniek; Radboud University Medical Center, Ubbergen, Netherlands, 7Radboud University Medical Centre, Nijmegen, Netherlands

    Background/Purpose: Previous studies showed a discrepancy between patient’s and HealthCare Professional (HCP) perspective on the burden of Adverse Drug Reactions (ADRs), where HCPs often underestimate…
  • Abstract Number: 0360 • ACR Convergence 2021

    Factors Associated with Pain Intensity in Axial Spondyloarthritis. Results from the EuropeanMap of Axial Spondyloarthritis (EMAS)

    Marco Garrido-Cumbrera1, Victoria Navarro-Compán2, Christine Bundy3, Laura Christen4, Raj Mahapatra5, Souzi Makri6, Carlos Jesús Delgado-Domínguez7, José Correa-Fernández7, Pedro Plazuelo-Ramos8 and Denis Poddubnyy9, 1Health & Territory Research (HTR), University of Seville, Sevilla, Spain, 2Rheumatology service, Hospital Universitario La Paz-IdiPaz, Madrid, Spain, 3Cardiff University, Cardiff, Wales, United Kingdom, 4Novartis Pharma AG, Basel, Switzerland, 5Axial Spondyloarthritis International Federation (ASIF), London, United Kingdom, 6Cyprus League Against Rheumatism (CYPLAR), Limassol, Cyprus, 7Health & Territory Research (HTR), Universidad de Sevilla, Seville, Spain, 8Spanish Federation of Spondyloarthritis Associations (CEADE), Madrid, Spain, 9Department of Rheumatology, Charité – Universitätsmedizin, Berlin, Germany

    Background/Purpose: Pain is a hallmark of axial spondyloarthritis (axSpA) and can significantly deteriorate patients’ health status. This analysis aims to investigate factors associated with pain…
  • Abstract Number: 0690 • ACR Convergence 2021

    Impact of Achieving 2016 ACR/EULAR Response Criteria on Patient Centered Outcome Measures in Myositis

    Didem Saygin1, Siamak Moghadam-Kia2, Chester Oddis2, Dana Ascherman2, Nicole Neiman2, Diane Koontz2 and Rohit Aggarwal2, 1University of Chicago, Chicago, IL, 2University of Pittsburgh, Pittsburgh, PA

    Background/Purpose: The 2016 ACR/EULAR Myositis Response Criteria represent a composite measure that is increasingly being used as a primary end point in myositis clinical trials.…
  • Abstract Number: 0756 • ACR Convergence 2021

    Validation of Two Simple Patient-centered Outcome Measures for Virtual Monitoring of Patients with Idiopathic Inflammatory Myositis

    R Naveen1, Darpan R Thakare2, Vikas Agarwal2, Rohit Aggarwal3 and Latika Gupta1, 1Sanjay Gandhi Post Graduate Institute of Medical Sciences, Lucknow, India, 2Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India, 3University of Pittsburgh, Pittsburgh, PA

    Background/Purpose: Changing landscape of patient care from in-person to virtual telemedicine-based consultation in times of a global pandemic has necessitated a wider use of patient-centered…
  • Abstract Number: 0830 • ACR Convergence 2021

    Smartphone Assisted Patient Initiated Care Safely Reduces Outpatient Clinic Visits in Patients with Rheumatoid Arthritis: Results from a Randomized Controlled Trial

    Bart Seppen1, Jimmy Wiegel1, Marieke ter wee2, DirkJan van Schaardenburg1, Leo Roorda1, Michael Nurmohamed3 and wouter Bos4, 1Reade, Amsterdam, Netherlands, 2Amsterdam UMC, location VUmc, Amsterdam, Netherlands, 3Reade and Amsterdam University Medical Center, location VUmc, Amsterdam, Netherlands, 4Reade Amsterdam, Amsterdam, Netherlands

    Background/Purpose: The demand on outpatient rheumatology clinics is high due to protocolised visits of rheumatoid arthritis (RA) patients, including those in low disease activity or…
  • Abstract Number: 1168 • ACR Convergence 2021

    Barriers to Effectiveness of Non-surgical Treatments for Knee Osteoarthritis in a Diverse Racial/Ethnic Population: A Nominal Group Qualitative Study

    Jasvinder Singh, University of Alabama at Birmingham, Birmingham, AL

    Background/Purpose: Knee osteoarthritis (OA) has worse outcome in racial/ethnic minorities, who also have more severe pain, disability and worse outcomes. However, most qualitative studies include…
  • Abstract Number: 1327 • ACR Convergence 2021

    Impact of BMI on Treatment Response Among PsA Patients Initiating TNF Inhibitors, IL17 Inhibitors and Oral Small Molecules

    Emily Purcell1, Soumya Reddy2, Jessica Walsh3, Jose Scher4, Ethan Craig5, Elaine Husni6 and Alexis Ogdie1, 1University of Pennsylvania, Philadelphia, PA, 2NYU School of Medicine, New York, NY, 3Salt Lake City Veteran Affairs Medical Center (VAMC)/University of Utah Hospital, Salt Lake City, UT, 4New York University School of Medicine, New York, NY, 5University of Pennsylvania, Wallingford, PA, 6Cleveland Clinic, Cleveland, OH

    Background/Purpose: Obesity is associated with poor response to treatment in patients with psoriatic arthritis (PsA), however, available data are mostly focused on tumor necrosis factor…
  • Abstract Number: 1611 • ACR Convergence 2021

    A Population-Based Evaluation of Telemedicine Use and Satisfaction in SLE Patients During the COVID-19 Pandemic in Atlanta, Georgia

    Sarah Simmons1, Cristina Drenkard2, Gaobin Bao2, Charmayne Dunlop-Thomas2, Kim Schofield2 and S Sam Lim3, 1Duke University, Durham, NC, 2Emory University, Atlanta, GA, 3Department of Medicine, Division of Rheumatology, Emory University School of Medicine, Atlanta, GA

    Background/Purpose: The COVID-19 pandemic resulted in the shift from in-person physician appointments to the development and proliferation of the use of telemedicine in an attempt…
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ACR Pediatric Rheumatology Symposium 2020

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