ACR Meeting Abstracts

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Abstracts tagged "Patient reported outcomes"

  • Abstract Number: 0223 • ACR Convergence 2024

    A Comparative Study of Difficult-to-Treat vs Non-Difficult-to-Treat Psoriatic Arthritis for Disease Burden and Comorbidities: An Ultrasound Study

    Ricardo Sabido-Sauri1, Seyyid Bilal Acikgoz2, Ozun Bayindir Tsechelidis3, Ummugulsum Gazel1, Sylvia Sangwa4, Elliot Hepworth1 and Sibel Aydin5, 1University of Ottawa, Ottawa, ON, Canada, 2University of Ottawa, Rheumatology, Ottawa, ON, Canada, 3Ottawa University, Ottawa, ON, Canada, 4The Ottawa Hospital Research Institute, Ottawa, Canada, 5University of Ottawa - Ottawa, Ottawa, ON, Canada

    Background/Purpose: In the era of several advanced therapies and an increased number of patients with psoriatic arthritis (PsA) who have been failed by multiple treatment…
  • Abstract Number: 0561 • ACR Convergence 2024

    Axial Spondyloarthritis Patients with Comorbid Fibromyalgia Feel Worse, Work Less and More Often Try Multiple Biological DMARDs − Results from a Population-Based Cohort

    Annie Brink1, Elisabeth Mogard2, Elisabet Lindqvist2, Jonas Sagard2, Johan Karlsson Wallman1 and Tor Olofsson2, 1Lund University, Department of Clinical Sciences Lund, Section of Rheumatology and Skåne University Hospital, Lund, Sweden, Lund, Skane Lan, Sweden, 2Lund University, Department of Clinical Sciences Lund, Section of Rheumatology and Skåne University Hospital, Lund, Sweden, Lund, Sweden

    Background/Purpose: A growing arsenal of biologic/targeted synthetic DMARDs often makes inflammation control an attainable target in axial spondyloarthritis (axSpA). Yet, many patients keep suffering from…
  • Abstract Number: 0720 • ACR Convergence 2024

    Impact of Systemic Vasculitides on Sexual Function: An Overlooked Aspect of Patient Care

    javier Merayo Chalico1, Ana Sarahí Mulia-Soto2, María Espinosa-León3, Victor Pimentel-Quiroz4, Ana Barrera-Vargas3 and Andrea Hinojosa-Azaola3, 1Department of Immunology and Rheumatology, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico City, Mexico, CDMX, Mexico, 2Department of Immunology and Rheumatology, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico City, Mexico, Ciudad de México, Mexico, 3Department of Immunology and Rheumatology, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico City, Mexico, Mexico City, Mexico, 4Universidad Científica del Sur/Hospital Nacional Guillermo Almenara Irigoyen, Magdalena del Mar, Peru

    Background/Purpose: Systemic vasculitides comprise a group of inflammatory diseases involving multiple organ systems, significantly affecting various aspects of a patient's life, including their sexuality. Sexual…
  • Abstract Number: 1242 • ACR Convergence 2024

    Qualitative Patient Interview Study in Patients with Systemic Lupus Erythematosus to Assess Patient Perception of Fatigue and Skin-Related Symptoms

    Joseph F. Merola1, Victoria Werth2, Jiyoon C. Choi3, Brandon Becker3, Teresa Edwards4, Coburn Hobar5, Samantha Pomponi5 and Vibeke Strand6, 1UT Southwestern Medical Center, Dallas, TX, 2Hospital of the University of Pennsylvania, Philadelphia, PA, 3Bristol Myers Squibb, Princeton, 4RTI International, Research Triangle Park, NC, 5Bristol Myers Squibb, Princeton, NJ, 6Division of Immunology/Rheumatology, Stanford University, Palo Alto, CA

    Background/Purpose: Systemic lupus erythematosus (SLE) is a chronic autoimmune disorder that disproportionately impacts women of childbearing age. Although the incidence varies widely based on ethnic…
  • Abstract Number: 1332 • ACR Convergence 2024

    Financial Distress and Its Determinants in Adults with Rheumatoid Arthritis

    Amber Brown Keebler1, Yunju Im2, Sofia Pedro3, Ted Mikuls1, Edward Peters1 and Kaleb Michaud1, 1University of Nebraska Medical Center, Omaha, NE, 2University of Nebraska Medical Center, Omaha, 3Forward, The National Databank for Rheumatic Diseases, Wichita, KS

    Background/Purpose: Often not evaluated in clinical visits, financial distress associated with medical costs, also known as financial toxicity, has emerged as an important factor affecting…
  • Abstract Number: 1576 • ACR Convergence 2024

    New Patient-Reported Outcome Measures for Early Systemic Sclerosis Using the FDA Guidance on Patient Reported Outcome Measures

    Dinesh Khanna1, George greene2, Chelsea Perschon2, Alain Lescoat3, Emilie Jaeger2, Susan murphy1 and David Cella4, 1University of Michigan, Ann Arbor, MI, 2Northwestern University, Chicago, 3CHU Rennes - University Rennes 1, Rennes, France, 4Northwestern University, Chicago, IL

    Background/Purpose: Systemic sclerosis (SSc) is associated with a wide range of symptoms and significant impairments in function and quality of life. The goal of the…
  • Abstract Number: 2155 • ACR Convergence 2024

    Direct Comparison of Sleep Quality and Risk Factors for Poor Sleep Across Rheumatoid Arthritis, Axial Spondyloarthritis and Psoriatic Arthritis

    Dagna Polak1, Mateusz Wilk2, Piotr Kuszmiersz1, Glenn Haugeberg3, Mariusz Korkosz4 and Zofia Guła4, 1University Hospital in Cracow, Kraków, Poland, 2Univesity Hospital in Cracow, Kraków, Poland, 3Sørlandet Hospital, Kristiansand, Kristiansand, Norway, 4Department of Rheumatology and Immunology, Jagiellonian University Medical College, Kraków, Poland

    Background/Purpose: Sleep disorders are common among patients with inflammatory arthritis (IA) and have probably bilateral influence on disease activity and quality of life. Pathomechanism of…
  • Abstract Number: 2365 • ACR Convergence 2024

    Benefits of Achieving Early versus Late Clinical Response After Treatment with Biologic and Targeted Synthetic DMARDs Among Patients with PsA in the CorEvitas PsA/Spondyloarthritis Registry

    Philip Mease1, Xiaolan Ye2, Christopher Saffore3, Thomas Iyile4, Priscila Magalhaes Reis Nakasato5, Taylor Blachley6, Paul R. Lakin6, Nicole Middaugh6 and Alexis Ogdie7, 1Swedish Medical Center/Providence St. Joseph Health; University of Washington School of Medicine, Seattle, WA, 2AbbVie Inc., Mettawa, IL, 3AbbVie Inc., waukegan, IL, 4AbbVie Inc., hyattsville, MD, 5AbbVie Inc., Randolph, NJ, 6CorEvitas, LLC, Waltham, MA, 7Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA

    Background/Purpose: Treatment for psoriatic arthritis (PsA) often involves biologic and targeted synthetic DMARDs (b/tsDMARDs). Existing research suggests that starting treatment with b/tsDMARDs early may lead…
  • Abstract Number: 0264 • ACR Convergence 2024

    Clinical Value of Metagenomic Next-generation Sequencing in Patients with Connective Tissue Disease Co-infections: A Single-center Study from Southern Hospital in China

    Yuan-Yuan Xiao1, Ai-Ling Lu1, Han-You Mo2, Zhen-Dong He2, Jia-Le Wen2 and Xuan Yin1, 1Guilin Medical University, Guilin, China (People's Republic), 2The First Affiliated Hospital of Guangxi Medical University, Nanning, China (People's Republic)

    Background/Purpose: Few studies have been reported on the use of metagenomic next-generation sequencing (mNGS) in patients with connective tissue disease (CTD) co-infections, and more relatively large-scale data…
  • Abstract Number: 0571 • ACR Convergence 2024

    Gender-specific Performance of Disease Activity Assessment Tools in Axial Spondyloarthritis: Ancillary Analysis of the PREDICT-SpA Study

    Sabrina Hamroun1, Laure Gossec2, Serge Perrot3, Maxime Dougados4 and Anna Molto5, 1Cochin University Hospital, Paris, Ile-de-France, France, 2Sorbonne Université, Paris, France, 3Paris Dauphine University, Paris, France, 4Rheumatology Department, Cochin Hospital and Clinical Epidemiology and Biostatistics, University of Paris, INSERM (U1153), Paris, France, 5Groupe Hospitalier Cochin, AP-HP, Paris, France

    Background/Purpose: There are several tools for assessing disease activity in spondyloarthritis (SpA). The literature reveals gender differences, with unfavorable Patient Reported Outcomes in women compared…
  • Abstract Number: 0730 • ACR Convergence 2024

    Assessment of the Quality of Life in a Single-center Cohort of Patients with ANCA-Associated Vasculitis on Targeted Therapy: Characterization of Global, Disease and Organ-specific Parameters Using Patient Reported Outcomes

    Michele Moretti1, Elena Elefante2, Francesco Ferro3, Ludovica Pisapia4, Federica Di Cianni5, Nazzareno Italiano6, ROSARIA TALARICO5, Chiara Baldini7 and Marta Mosca7, 1University of Pisa, Pisa, Pisa, Italy, 2Rheumatology Unit, Department of clinical and experimental medicine, University of Pisa, Pisa, Pisa, Italy, 3Clinical and Experimental Medicine Department, Azienda Ospedaliero-Universitaria Pisana, Pisa, Pisa, Italy, 4Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy, 5University of Pisa, Pisa, Italy, 6University of Pisa, Rovigo, Italy, 7University of Pisa, Department of Clinical and Experimental Medicine - Rheumatology Unit, Pisa, Italy

    Background/Purpose: ANCA-associated vasculitides (AAVs) are characterized by severe and multisystemic manifestations that greatly affect patients' quality of life (QoL). The purpose of the study was…
  • Abstract Number: 1243 • ACR Convergence 2024

    A Patient-Focused Program for Using Steroids Wisely

    John Stone1, Michelle Petri2, Jeffrey Gelfand3, Camille Kotton4, Jane McDowell5, George Papaliodis6, meredith Marinaro7, Matt Wilkinson8, Walter Lentfert9 and Martha Stone10, 1Massachusetts General Hospital , Harvard Medical School, Concord, MA, 2Johns Hopkins University School of Medicine, Timonium, MD, 3University of California, San Francisco, San Francisco, CA, 4Harvard Medical School, Boston, MA, 5Queens University Belfast, Belfast, Ireland, 6Massachusetts General Hospital, Boston, MA, 7Novartis, Hartford, CT, 8UpThereEverywhere, London, United Kingdom, 9UpThereEverywhere, Wilmington, NC, 10Steritas, LLC, CONCORD, MA

    Background/Purpose: Patients have no comprehensive, curated resource on steroid use to facilitate effective collaboration in their own care. Consequently, truly shared decision making around steroid…
  • Abstract Number: 1334 • ACR Convergence 2024

    Assessing the Performance of Validated Frailty Instruments in Veterans with Rheumatoid Arthritis (RA)

    Kylie Riggles1, Hannah Brubeck2, Riley Bass3, Courtney Loecker4, Punyasha Roul5, Bryant England6, Elizabeth Wahl7, James Andrews8, Namrata Singh9, Joshua Baker10, Patti Katz11, Dolores Shoback12, Jose Garcia13, ariela orkaby14 and Katherine Wysham15, 1VA Puget Sound Health Care System, Bellevue, WA, 2VA Puget Sound Health Care System, Seattle, WA, 3VA Puget Sound Health Care System, Gig Harbor, WA, 4University of Nebraska, Lincoln, NE, 5UNMC, Omaha, NE, 6University of Nebraska Medical Center, Omaha, NE, 7VA Puget Sound Healthcare System, Seattle, WA, 8University of Alabama at Birmingham, Birmingham, AL, 9University of Washington, Bellevue, WA, 10University of Pennsylvania, Philadelphia, PA, 11UCSF, San Rafael, CA, 12San Francisco VA/University of California, San Francisco, San Francisco, CA, 13VA Puget Sound Health Care System/University of Washington, Seattle, WA, 14New England VA Geriatric Research Education and Clinical Center/Boston VA/Division of Aging, Brigham and Women’s Hospital, Harvard Medical School, Boston, MA, 15VA PUGET SOUND/UNIVERSITY OF WASHINGTON, Seattle, WA

    Background/Purpose: Frailty is a state of decreased physiological reserve that confers an increased vulnerability to stressors and adverse outcomes1. Compared to the general population, frailty…
  • Abstract Number: 1611 • ACR Convergence 2024

    Impact of Mepolizumab on Patient-reported Outcomes in Eosinophilic Granulomatosis with Polyangiitis by Using the ANCA-associated Vasculitis Patient-reported Outcomes (AAV-PRO) Questionnaire: A European Multicentre Prospective Study

    Paolo Delvino1, Luca Quartuccio2, Joanna Robson3, Federico Alberici4, Diego Bagnasco5, Alvise Berti6, Marco Caminati7, Marta Camoni8, Maria Cid9, Edoardo Conticini10, Giulia Costanzo11, Claire de Moreuil12, Stefano Del Giacco11, Georgina Espigol-Frigole13, Virginia V Ferretti14, Franco Franceschini15, Luca Iorio16, Anna Kernder17, Catherine Klersy14, Alberto Lo Gullo18, Laura Losappio19, Elena Manna20, Matteo Maule21, Carlomaurizio Montecucco22, Negrini Simone23, Roberto Padoan24, Francesca Regola25, Luisa Ricciardi26, Jan Schroeder19, Benjamin Terrier27, Paola Toniati28, Elena Treppo2, Maria-Letizia Urban29, Augusto Vaglio30, Giacomo Emmi31 and Sara Monti32, and European EGPA Study Group, 1University of Milano-Bicocca, Milan, Milan, Italy, 2Division of Rheumatology, Department of Medicine (DMED), University of Udine, Udine, Italy, Udine, Italy, 3UWE Bristol, Bristol, United Kingdom, 4Nephrology Unit, University of Brescia, ASST Spedali Civili, University of Brescia, Brescia, Italy, Brescia, Italy, 5Allergy and Respiratory Diseases, Department of Internal Medicine (DIMI), IRCCS Policlinico San Martino, Genoa, Italy, 6University of Trento, Rochester, Italy, 7Department of Medicine, Asthma, Allergy and Clinical Immunology Section, University of Verona, Verona, Italy, 8Department of Medical and Surgical Specialties, Radiological Sciences and Public Health, University of Brescia, Brescia, Italy, 9Hospital Clinic Barcelona. University of Barcelona, Barcelona, Spain, 10University of Siena, Siena, Siena, Italy, 11Department of Medical Sciences and Public Health, University of Cagliari, Cagliari, Italy, 12Service de médecine interne, CHU de Brest, Brest, France, 13Hospital Clinic de Barcelona, Barcelona, Spain, 14Biostatistcs & Clinical Trial Center, Fondazione IRCCS Policlinico San Matteo, Pavia, Pavia, Italy, 15Scleroderma Unit, Rheumatology and Clinical Immunology Unit, ERN ReCONNET, ASST Spedali Civili, Brescia, Italy, Brescia, Italy, 16Rheumatology Unit, Department of Medicine DIMED, University of Padua, Padova, Italy, Padova, Italy, 17HHU Dusseldorf, Dusseldorf, Germany, 18Rheumatology Unit, Papardo Hospital, Messina, Italy, 19Division of Allergy and Clinical Immunology, ASST GOM Niguarda, Milan, Milan, Italy, 20Division of Rheumatology, Fondazione IRCCS Policlinico San Matteo, Pavia, Pavia, Italy, 21Asthma Center and Allergy Unit, Verona Integrated University Hospital, Verona, Verona, Italy, 22IRCCS policlinico S. Matteo foundation, University of Pavia, Pavia, Italy, 23Department of Internal Medicine (DIMI), University of Genoa, Genoa, Genoa, Italy, 24Department of Medicine DIMED, Division of Rheumatology, University of Padua, Padua, Italy, 25Unit of Rheumatology and Clinical Immunology, ASST Spedali Civili Brescia and University of Brescia, Brescia, Italy, 26Allergy and Immunology Unit, Department of Clinical and Experimental Medicine, G. Martino Teaching Hospital, University of Messina, Messina, Messina, Italy, 27Service de Médecine interne, Hôpital Cochin, AP-HP, Paris, Ile-de-France, France, 28Spedali civili, 25123, Italy, 29Department of Experimental and Clinical Medicine, University of Florence, Florence, Italy, 30Department of Biomedical, Experimental and Clinical Sciences "Mario Serio", University of Firenze, Florence, Italy, 31University of Trieste, Trieste, Italy, 32IRCCS Istituto Auxologico Italiano, Milan, Italy

    Background/Purpose: Mepolizumab (MEPO) proved its efficacy in the treatment of eosinophilic granulomatosis with polyangiitis (EGPA) in the randomized controlled MIRRA trial. The ANCA-associated vasculitis patient-reported…
  • Abstract Number: 2156 • ACR Convergence 2024

    Differential Item Functioning of Inflammatory Back Pain Criteria in US Subpopulations

    Mark Hwang1, Seokhun Kim2, Shervin Assassi3, Alexis Ogdie4, Michael Weisman5, John Reveille6 and Charles Green2, 1Department of Internal Medicine, Division of Rheumatology, John P. and Katherine G. McGovern School of Medicine, UTHealth Houston, Houston, TX, 2UTHealth Houston, Houston, 3UTHealth Houston Division of Rheumatology, Houston, TX, 4Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, 5Stanford University, Los Angeles, CA, 6UTHealth Houston Division of Rheumatology, Houston

    Background/Purpose: IInflammatory back pain (IBP) has clinical features that distinguish it from other back pain etiologies.  While there are established IBP criteria, in different subpopulations…
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