ACR Meeting Abstracts

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Abstracts tagged "Patient reported outcomes"

  • Abstract Number: 042 • 2023 Pediatric Rheumatology Symposium

    Prevalence of Chronic Pain in Childhood-onset Systemic Lupus Erythematosus and Juvenile Dermatomyositis

    Sara Patrizi1, Susmita Kashikar-Zuck2, CARRA Registry Investigators3, Mekibib Altaye4 and Jennifer Weiss5, 1Stanford Medicine, Children's Health, Palo Alto, CA, 2University of Cincinnati College of Medicine; Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 3CARRA, Washington, DC, 4Cincinnati Children's Hospital, Cincinnati, OH, 5Pediatric Rheumatology, Hackensack Meridian School of Medicine, Hackensack University Medical Center, Hackensack, New Jersey, Hackensack, NJ

    Background/Purpose: The prevalence, severity and impact of chronic pain in pediatric patients with autoimmune diseases such as childhood onset SLE (cSLE) and juvenile dermatomyositis (JDM)…
  • Abstract Number: 026 • 2023 Pediatric Rheumatology Symposium

    Performance of the UCLA Scleroderma Clinical Trials Consortium Gastrointestinal Tract 2.0 Instrument in a Juvenile Systemic Sclerosis Cohort

    Sophie Stefancic, Amanda Robinson, Haley Havrilla, Samantha Branton, Vibha Sood and Kathryn Torok, University of Pittsburgh, Pittsburgh, PA

    Background/Purpose: Gastrointestinal (GI) manifestations in juvenile onset systemic sclerosis (jSSc) reflect adult disease with a range of involvement along the GI tract, including oropharyngeal dysphagia…
  • Abstract Number: 045 • 2023 Pediatric Rheumatology Symposium

    Patient Reported Outcomes in Pediatric Vasculitis

    Clare Peckenpaugh1, Aimee Hersh2, CJ Inman1, Sara Stern1, Erin Treemarcki2, Peter Merkel3 and Karen James1, 1University of Utah Department of Pediatrics, Salt Lake City, UT, 2University of Utah, Salt Lake City, UT, 3University of Pennsylvania, Philidelphia, PA

    Background/Purpose: Vasculitis is a group of multisystem, often relapsing diseases that can affect patients through disease activity, damage, and treatment toxicity. Vasculitis in adults often…
  • Abstract Number: 058 • 2023 Pediatric Rheumatology Symposium

    High Levels of Psychological Distress, Depression, and Anxiety Symptoms in Children with Pediatric Rheumatologic Diseases

    Natalie Rosenwasser1, Tamar Rubinstein2, Andrea Knight3, Natoshia Cunningham4, Aimee Hersh5, Vincent Del Gaizo6 and Erin Treemarcki5, 1Seattle Children's Hospital, seattle, WA, 2Children's Hospital at Montefiore, New York, NY, 3The Hospital for Sick Children, Toronto, ON, Canada, 4Michigan State University, Grand Rapids, MI, 5University of Utah, Salt Lake City, UT, 6Childhood Arthritis & Rheumatology Research Alliance (CARRA), Whitehouse Station, NJ

    Background/Purpose: Mental health problems are common in children with pediatric rheumatologic diseases (PRDs) and are associated with worsened quality of life and poorer disease-related outcomes.…
  • Abstract Number: 064 • 2023 Pediatric Rheumatology Symposium

    Towards the Development of Composite Parent-Centered Disease Activity Scores for Juvenile Dermatomyositis

    Silvia Rosina1, Ana Isabel Rebollo-Giménez2, Letizia Tarantola3, Roberta Naddei4, Alessandro Consolaro2, Angela Pistorio5 and Angelo Ravelli6, 1IRCCS Istituto Giannina Gaslini, Genova, Italy, 2IRCCS Istituto Giannina Gaslini, UOC Reumatologia e Malattie Infiammatorie, Genova, Italy, 3Università degli Studi di Genova, Dipartimento di Neuroscienze, Riabilitazione, Oftalmologia, Genetica e Scienze Materno-Infantili (DiNOGMI), Genova, Italy, 4Università degli Studi di Napoli Federico II, Dipartimento di Scienze Mediche Traslazionali, Napoli, Italy, 5IRCCS Istituto Giannina Gaslini, Direzione Scientifica, Genova, Italy, 6IRRCS Istituto Giannina Gaslini and Università degli Studi di Genova, Genova, Italy

    Background/Purpose: Increasing attention has been recently paid to the development of parent- and child-centered composite DAS for the assessment of health status of children with…
  • Abstract Number: 073 • 2023 Pediatric Rheumatology Symposium

    Golimumab Therapy in Children with Chronic Recurrent Multifocal Osteomyelitis: A Case Series Reviewing Safety and Efficacy

    Claire Yang1, Natalie Rosenwasser2, Xing Wang2, Zheng Xu2, Joshua Scheck2, Ramesh Iyer3 and Yongdong (Dan) Zhao3, 1University of Washington School of Medicine, Seattle, WA, 2Seattle Children's Hospital, seattle, WA, 3University of Washington, Seattle, WA

    Background/Purpose: Chronic Recurrent Multifocal Osteomyelitis (CRMO) is an autoinflammatory bone disease requiring immunosuppressive therapy in half of patients. Monoclonal Tumor Necrosis Factor inhibitors (TNFi) are…
  • Abstract Number: 101 • 2023 Pediatric Rheumatology Symposium

    Differences in Clinical and Patient-reported Outcomes in Juvenile Dermatomyositis by Race and Ethnicity

    Susan Kim1, Rebecca Olveda2 and Jessica Neely2, 1UCSF Benioff Children's Hospital, San Francisco, CA, 2UCSF, San Francisco, CA

    Background/Purpose: Previous studies in juvenile dermatomyositis (JDM) have shown that patients from minoritized ethnicities and those with lower family income are more likely to have…
  • Abstract Number: 0210 • ACR Convergence 2022

    Themes in Patients’ Discordance with Provider’s Rheumatoid Arthritis Treatment Goals Relate to Patient Age, Gender, and Ethnicity

    Kelly O'Neill1, Pamela Sinicrope2, Cynthia Crowson3, Kathryne Marks4, Rachel Giblon5, Elena Myasoedova2 and John Davis2, 1Rheumatoid Patient Foundation, Winter Springs, FL, 2Mayo Clinic, Rochester, MN, 3Mayo Clinic, Eyota, MN, 4Brigham and Women's Hospital, Boston, MA, 5Mayo Clinic, Rochester, MN, Rochester, MN

    Background/Purpose: We previously reported on themes in patients' treatment goals and their association with rheumatoid arthritis (RA) disease activity (DA) and aspects of rheumatology care,…
  • Abstract Number: 0406 • ACR Convergence 2022

    Are the BASDAI & BASFI Capturing the Full Impact of Disease Activity on Quality of Life in Women with Axial Spondyloarthritis?

    Sinead Maguire1, Fiona Wilson2, Phil Gallagher3 and Finbar (Barry) O'Shea1, 1St James' Hospital, Dublin, Ireland, 2Trinity College Dublin, Dublin, Ireland, 3St Vincent's University Hospital, Dublin, Ireland

    Background/Purpose: The tools to assess disease activity and quality of life in axial spondyloarthritis (axSpA) were developed in ankylosing spondylitis cohorts biased towards inclusion of…
  • Abstract Number: 0735 • ACR Convergence 2022

    Facilitators and Barriers to Weekly Monitoring of Disease Activity with Electronic Patient Reported Outcomes: A Focus Group Study of Patients with Inflammatory Arthritis

    Jim Wiegel1, Bart Seppen2, Michael Nurmohamed3, Marieke ter Wee4 and Wouter Bos1, 1Reade Rheumatology Center, Amsterdam, Netherlands, 2Vrije Universiteit | Reade, Amsterdam, Netherlands, 3Amsterdam University Medical Center, Kortenhoef, Netherlands, 4Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, Netherlands

    Background/Purpose: Telemonitoring disease activity with electronic patient reported outcomes (ePRO's) may reduce the workload of rheumatic care by decreasing outpatient clinic visits. However, low adherence…
  • Abstract Number: 1201 • ACR Convergence 2022

    Autoimmune Serologies, Cell-Bound Complement Activation Products, and Autoimmune Rheumatic Disease Symptoms After COVID-19 Infection

    Emily G Oakes1, Jack Ellrodt1, Roberta Alexander2, John Conklin2, May Choi3, Hongshu Guan1, Sara Tedeschi1, Jeffrey Sparks4, Siobhan Case5, Tiffany Hsu1, Daniel Solomon1, Anna Jonsson1 and Karen Costenbader1, 1Brigham and Women's Hospital, Boston, MA, 2Exagen, Inc., Vista, CA, 3Brigham and Women's Hospital | University of Calgary, Calgary, AB, Canada, 4Brigham and Women's Hospital and Harvard Medical School, Boston, MA, 5Brigham and Women's Hospital, Boston Children's Hospital, Boston, MA

    Background/Purpose: Onset of autoimmune connective tissue disease (CTD) after COVID-19 infection has been reported and complement activation has been implicated. We examined common autoimmune rheumatic…
  • Abstract Number: 1355 • ACR Convergence 2022

    Relationships Between Work Productivity, Activity Impairment, and Select Patient-Reported Outcomes in Patients with Ankylosing Spondylitis: A Post Hoc Analysis of Two Placebo-Controlled Trials

    Marina Magrey1, James Cheng-Chung WEI2, Arne Yndestad3, Andrew Bushmakin4, Joseph Cappelleri4, Oluwaseyi Dina5 and Atul Deodhar6, 1Case Western Reserve University, University Hospitals, Richfield, OH, 2Chung Shan Medical University Hospital, Taichung, Taiwan, 3Pfizer Inc, Oslo, Norway, 4Pfizer Inc, Groton, CT, 5Pfizer Inc, New York, NY, 6Oregon Health & Science University, Portland, OR, USA, Portland, OR

    Background/Purpose: Patients (pts) with AS often experience impaired work productivity.1 In pts with AS receiving tofacitinib (oral Janus kinase inhibitor), improvements were observed in work…
  • Abstract Number: 1785 • ACR Convergence 2022

    PROs and Sociodemographic Factors in Year Prior to COVID Predict Trajectories of Depressive Symptoms in Adults with RA in First 2 Years of Pandemic: Data from the Canadian Early Arthritis Cohort

    Susan Bartlett1, orit schieir2, Marie-France Valois2, Janet Pope3, Louis Bessette4, Gilles Boire5, Carol Hitchon6, Edward Keystone7, Carter Thorne8, Diane Tin9, Glen Hazlewood10 and Vivian Bykerk11, 1McGill University, Montreal, QC, Canada, 2McGill University, Montréal, QC, Canada, 3University of Western Ontario, London, ON, Canada, 4Centre de l'Ostoporose et de Rhumatologie de Québec, Québec, QC, Canada, 5Universite de Sherbrooke, Sherbrooke, QC, Canada, 6University of Manitoba, Winnipeg, MB, Canada, 7Keystone Consulting Enterprises Inc., Toronto, ON, Canada, 8Southlake Regional Health Centre, Newmarket, ON, Canada, 9The Arthritis Program Research Group, Newmarket, ON, Canada, 10University of Calgary, Calgary, AB, Canada, 11Hospital for Special Surgery, New York, NY

    Background/Purpose: Growing evidence points to considerable mental health impacts of the prolonged COVID-19 pandemic, though data from longitudinal studies in rheumatic diseases are sparse. We…
  • Abstract Number: 2094 • ACR Convergence 2022

    Predictors of Health-Related Quality of Life (HRQoL) in Adults with Juvenile- and Adult-onset Systemic Lupus Erythematosus: Results from a Multiethnic US Cohort (LUMINA)

    R. Ezequiel Borgia1, Manuel Ugarte-Gil2, Luis Vilá3, John Reveille4, Gerald McGwin5 and Graciela Alarcón6, 1UH Rainbow Babies & Children's Hospital, Cleveland, OH, 2Universidad Cientifica del Sur/Hospital Guillermo Almenara Irigoyen. EsSalud, Lima, Peru, 3University of Puerto Rico Medical Sciences Campus, San Juan, PR, 4University of Texas McGovern Medical School, Houston, TX, 5Department of Epidemiology, School of Public Health, The University of Alabama at Birmingham, Birmingham, AL, 6The University of Alabama at Birmingham, Oakland

    Background/Purpose: To examine and compare baseline predictors of improvement in HRQoL in adults with systemic lupus erythematosus (SLE) with disease onset occurring before age 24…
  • Abstract Number: 0241 • ACR Convergence 2022

    Inequity in Disease Impact Between Male and Female Rheumatoid Arthritis Patients

    Gonul Hazal Koc1 and Pascal de Jong2, 1Department of Rheumatology, Erasmus University Medical Centre, Rotterdam, the Netherlands, Rotterdam, Netherlands, 2ErasmusMC, Hendrik Ido Ambacht, Netherlands

    Background/Purpose: Rheumatoid arthritis (RA) is more common in females than males. Moreover, males and females may have different disease courses and burdens, but data on…
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