Abstracts tagged "Patient reported outcomes"

Abstract Number: 1469 • ACR Convergence 2020
Characteristics of Adult Patients with Rheumatic Diseases During the COVID-19 Pandemic: Data from an International Patient Survey
Jonathan Hausmann¹, Kevin Kennedy², Salman Surangiwala³, Maggie Larche⁴, Mitchell Levine², Jean Liew⁵, Zachary Wallace⁶ and Emily Sirotich⁴, ¹Boston Children's Hospital / Beth Israel Deaconess Medical Center, Cambridge, MA, ²McMaster University, Hamilton, Canada, ³Queen’s School of Medicine, Kingston, Canada, ⁴McMaster University, Hamilton, ON, Canada, ⁵University of Washington, Seattle, WA, ⁶Massachusetts General Hospital, Newton, MA
Background/Purpose: Patients with rheumatic diseases are at increased risk of infection due to immune dysregulation and the use of immunosuppression. It is unknown whether they…
Abstract Number: 1729 • ACR Convergence 2020
Associations Between Patient Reported Outcomes and Impairments of Work and Activity in Patients with Rheumatoid Arthritis Who Achieved Clinical Remission; Retrospective Analysis Using the IORRA Database
Ryoko Sakai¹, Eiichi Tanaka², Eisuke Inoue³, Minako Sato⁴, Masaru Tanaka⁴, Katsunori Ikari¹, Atsuo Taniguchi¹, Hisashi Yamanaka⁵ and Masayoshi Harigai⁶, ¹Tokyo Women’s Medical University School of Medicine, Tokyo, Japan, ²Department of Rheumatology, Tokyo Women’s Medical University School of Medicine, Tokyo, Japan, ³Department of Rheumatology, Tokyo Women’s Medical University School of Medicine; Showa University Research Administration Center, Showa University, Tokyo, Japan, ⁴Eli Lilly Japan K.K., Tokyo, Japan, ⁵Sanno Medical Center, Tokyo, Japan, Tokyo, Japan, ⁶Department of Rheumatology, Tokyo Women’s Medical University School of Medicine, Shinjuku-ku, Tokyo, Japan
Background/Purpose: Disease burden and subjective symptoms of rheumatoid arthritis (RA) remain even after achieving clinical remission or low disease activity. Impairments to work and societal/daily…
Abstract Number: PP08 • ACR Convergence 2020
Patient Participation in the COVID-19 Global Rheumatology Alliance as a Model for Involving Patients from the Ground Up
Carly Harrison¹, Rashmi Sinha², Emily Sirotich³, Naira Ikram⁴, Kristen Young⁵, Christele Felix¹, Karen Durrant⁶, Richard Beesley⁷, Serena Mingolla⁸, Ana Isabel Martín Mancheño⁹, Dawn Richards¹⁰, Evelyn Olmedo¹¹, Wendy Costello¹², Monique Gore-Massy¹³, Laurie Proulx¹⁴, Maria Marino¹⁵ and Richard Howard¹⁶, ¹LupusChat, New York, NY, ²Systemic JIA Foundation, Cincinnati, OH, ³LA Lupus Lady, Hamilton, ON, Canada, ⁴Duke University, Austin, TX, ⁵Phoenix, AR, ⁶Autoinflammatory Alliance, San Francisco, CA, ⁷Juvenile Arthritis Research, United Kingdom, ⁸Associazione Nazionale Persone con Malattie Reumatolgiche e Rare APMARR APS, Brindisi, Italy, ⁹CEADE, Madrid, Spain, ¹⁰Canadian Arthritis Patient Alliance, Toronto, ON, Canada, ¹¹Buenos Aires, El Salvador, ¹²iCAN, Bansha, Tipperary, Ireland, ¹³Lupus Foundation of America, Brooklyn, NY, ¹⁴Canadian Arthritis Patient Alliance, Ottawa, ON, Canada, ¹⁵Arthritis Foundation; Vectra, Athens, GA, ¹⁶Spondylitis Association of America, Van Nuys, CA
Background/Purpose: The COVID-19 Global Rheumatology Alliance (GRA) is a volunteer-driven organization that originated in response to the global pandemic. It was created to improve patient…
Abstract Number: 0135 • ACR Convergence 2020
Understanding the Rheumatologist-Patient Relationship in Treating Rheumatoid Arthritis
Beth Schneider¹ and Eric Peacock¹, ¹MyHealthTeams, San Francisco, CA
Background/Purpose: Understanding patient satisfaction with their rheumatologist and the drivers of satisfaction is crucial to improving doctor-patient interactions, helping patients get on the right treatment…
Abstract Number: 0159 • ACR Convergence 2020
Patient-Reported Data Show the Impact of Time to Diagnosis in RA
Kelly O'Neill¹, Kathryne Marks², John Davis³ and Cynthia Crowson⁴, ¹Rheumatoid Patient Foundation, Orlando, FL, ²Rosalind Franklin University of Medicine and Science, North Chicago, IL, ³Mayo Clinic, Rochester, MN, ⁴Mayo Clinic, Rochester, Minnesota, USA, Rochester, MN
Background/Purpose: Time from diagnosis to treatment has been well established to correlate with better outcomes in rheumatoid arthritis (RA). Treatment delays are often associated with…
Abstract Number: 0329 • ACR Convergence 2020
Healthcare Utilization and Costs Associated with Functional Status in Patients with Psoriatic Arthritis
Alexis Ogdie¹, Mark Hwang², Phani Veeranki³, Alexandria Portelli³, Steven Sison³, Jason Shafrin³, Sofia Pedro⁴, Peter Hur⁵, Nina Kim⁶ and Kaleb Michaud⁷, ¹Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, ²McGovern Medical School at the University of Texas Health Science Center at Houston, Houston, TX, ³PRECISIONheor, Los Angeles, ⁴FORWARD-The National Data Bank for Rheumatic Diseases, Wichita, ⁵Novartis Pharmaceuticals Corporation, East Hanover, NJ, ⁶The University of Texas at Austin; Baylor Scott and White Health, Austin, TX, ⁷FORWARD-The National Data Bank for Rheumatic Diseases; University of Nebraska Medical Center, Wichita
Background/Purpose: The Health Assessment Questionnaire Disability Index (HAQ-DI) has been validated and widely used in psoriatic arthritis (PsA) clinical trials for the assessment of patient…
Abstract Number: 0715 • ACR Convergence 2020
JIA-ACR50 Response as a Predictor of Minimal Disease Activity in Patients Aged 2–17 Years with Polyarticular-Course JIA Treated with SC Abatacept
Nicolino Ruperto¹, Hermine I Brunner², Alberto Berman³, Francisco Ávila-Zapata⁴, Gerd Horneff⁵, Maria Alessio⁶, Mara Becker⁷, Alexandre Belot⁸, Ruben Burgos-Vargas⁹, Alina Boteanu¹⁰, Claudia Goldenstein-Schainberg¹¹, Iloite Scheibel¹², Maria Teresa Terreri¹³, Lawrence Zemel¹⁴, Robert Wong¹⁵, Margarita Askelson¹⁵, Marleen Nys¹⁶, Alberto Martini¹⁷ and Daniel J Lovell², ¹Istituto Giannina Gaslini, Genova, Italy, ²PRCSG, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, ³Universidad Nacional de Tucumán and Centro Médico Privado de Reumatología, Tucumán, Argentina, ⁴Star Medica Hospital, Merida, Yucatan, Mexico, ⁵Asklepios Clinic Sankt Augustin, Sankt Augustin, Germany, ⁶Università di Napoli Federico II, Naples, Italy, ⁷Duke University School of Medicine, Durham, NC, ⁸Centre Hospitalier Universitaire de Lyon, Lyon, France, ⁹Department of Rheumatology, General Hospital of Mexico, Ciudad de Mexico, Mexico, ¹⁰Hospital Universitario Ramón y Cajal, Madrid, Spain, ¹¹University of São Paulo, São Paulo, Brazil, ¹²Hospital Criança Conceição, Porto Alegre, Brazil, ¹³Federal University of São Paulo, São Paulo, Brazil, ¹⁴Connecticut Children’s Medical Center, Hartford, CT, ¹⁵Bristol-Myers Squibb Company, Princeton, NJ, ¹⁶Bristol-Myers Squibb Company, Braine-L’Alleud, Belgium, ¹⁷PRINTO, Istituto Giannina Gaslini, Genova, Italy
Background/Purpose: Effectiveness of SC abatacept in patients with polyarticular-course JIA (pJIA) was shown in a 2-year, open-label Phase III international study (NCT01844518). Here we assess…
Abstract Number: 1127 • ACR Convergence 2020
Association of Health Literacy and Numeracy with Patient Reported Psychological Outcomes
Mithu Maheswaranathan¹, Jennifer Rogers², Amanda Eudy¹, Kai Sun¹, Stacy Bailey³, S. Nicole Hastings¹ and Megan Clowse⁴, ¹Duke University, Durham, NC, ²Duke, Durham, NC, ³Northwestern University, Chapel Hill, NC, ⁴Duke University, Chapel Hill, NC
Background/Purpose: Over 33 percent of American adults have low health literacy, which limits their ability to understand basic health information and make healthcare decisions. A…
Abstract Number: 1241 • ACR Convergence 2020
Patient-Reported Outcomes in Rheumatoid Arthritis Patients Treated with Tofacitinib or Biological DMARDs in Real Life Conditions in Two Latin America Countries
Hugo Madariaga¹, Juan Reyes², Magda Gutierrez³, Dario Ponce de Leon⁴, Tatjana Lukic⁵ and Luisa Amador², ¹Centro Medico CEEN, Arequipa, Arequipa, Peru, ²Pfizer, Bogota, Cundinamarca, Colombia, ³Pfizer, Santiago, Region Metropolitana, Chile, ⁴PFIZER, LIMA, Peru, ⁵Pfizer Inc, New York, NY
Background/Purpose: The objective of this study was to describe the efficacy, safety and patient reported outcomes in Latin-American patients with Rheumatoid Arthritis (RA) treated with…
Abstract Number: 1488 • ACR Convergence 2020
Application of the Knee Injury and Osteoarthritis Outcome Score Percentile Curves on Preoperative and up to 2 Years Postoperative Data of Patients Undergoing Total Knee Arthroplasty
Marieke Loef¹, Maaike G. Gademan¹, Daisy A. J. Latijnhouwers¹, Herman Kroon¹, Herman Kaptijn², Willem Marijnissen³, Rob G. H. Nelissen¹, Thea Vliet Vlieland⁴ and Margreet Kloppenburg¹, ¹Leiden University Medical Center, Leiden, Netherlands, ²LangeLand Hospital, Zoetermeer, Netherlands, ³Albert Schweitzer Hospital, Dordrecht, Netherlands, ⁴Leiden University Medical Center, 2300 RC Leiden, Netherlands
Background/Purpose: The interpretation of patient-reported outcomes, such as the Knee injury and Osteoarthritis Outcome Score (KOOS) questionnaire, can prove difficult if benchmarks are lacking. Therefore,…
Abstract Number: 1730 • ACR Convergence 2020
Comparison of MBDA Score, Patient Global Assessment and Evaluator Global Assessment for Predicting Risk of Radiographic Progression
Leonard Calabrese¹, Michael Weinblatt², Nancy Shadick², Cecilie Hegaard Brahe³, Mikkel Østergaard⁴, Merete Hetland⁵, Megan Horton⁶, Darl Flake⁶ and Eric Sasso⁷, ¹Cleveland Clinic, Cleveland, OH, ²Brigham and Women's Hospital, Boston, MA, ³Center for Rheumatology and Spine diseases, Glostrup, Denmark, ⁴Rigshospitalet, University of Copenhagen, Copenhagen, Denmark, ⁵The DANBIO Registry, Rigshospitalet, Glostrup, Denmark, ⁶Myriad Genetics, Inc., Salt Lake City, UT, ⁷Myriad Autoimmune, South San Francisco, CA
Background/Purpose: To compare the abilities of MBDA score, patient global assessment (PGA) and evaluator global assessment (EGA) to assess risk for radiographic progression (RP), and…
Abstract Number: 0137 • ACR Convergence 2020
PROMIS-29 Scores Are Significantly Higher in Patients with Rheumatoid Arthritis Who Meet Criteria for Co-morbid Fibromyalgia (FM) Than in Those with Rheumatoid Arthritis and No FM
Kathryn Gibson¹, Geraldine Hassett² and Theodore Pincus³, ¹Liverpool Hospital, Sydney, Australia, ²Liverpool Hospital, Sydney, Liverpool BC, NSW, New South Wales, Australia, ³Rush University Medical Center, Chicago, IL
Background/Purpose: The Patient-Reported Outcomes Measurement Information System short form 29 (PROMIS-29)1 uses computer assisted technology (CAT) to derive patient assessments. High PROMIS-29 scores are seen in…
Abstract Number: 0160 • ACR Convergence 2020
Use of PROMIS29 Across Inflammatory Arthritis: Score Distributions and Impact of Contextual Factors
Alexis Ogdie¹, Kaleb Michaud², Mark Hwang³, Sofia Pedro⁴ and Patricia Katz⁵, ¹University of Pennsylvania, Philadelphia, PA, ²FORWARD-The National Data Bank for Rheumatic Diseases; University of Nebraska Medical Center, Wichita, ³McGovern Medical School at the University of Texas Health Science Center at Houston, Houston, TX, ⁴FORWARD-The National Data Bank for Rheumatic Diseases, Wichita, ⁵University of California, San Francisco, Novato, CA
Background/Purpose: The Patient-Reported Outcome Measure Information System (PROMIS) includes a set of instruments developed to measure physical, mental and social health. PROMIS measures have been…
Abstract Number: 0344 • ACR Convergence 2020
Use of the BASDAI in Psoriatic Arthritis Patients with and Without Axial Disease
Soumya Reddy¹, M. Elaine Husni², Jose Scher³, Ethan Craig⁴, Alexis Ogdie⁴ and Jessica Walsh⁵, ¹NYU School of Medicine, New York, NY, ²Cleveland Clinic, Cleveland, OH, ³NYU School of Medicine, New York City, ⁴University of Pennsylvania, Philadelphia, PA, ⁵University of Utah School of Medicine, George E. Wahlen Veteran Affairs Medical Center, Salt Lake City, UT
Background/Purpose: The Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) is increasingly being used to assess the activity of axial disease in patients with psoriatic arthritis…
Abstract Number: 0724 • ACR Convergence 2020
Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis (JIA) Correlate with Pain and Stress Using Patient-Reported Outcomes Measurement Information System (PROMIS®)
Danielle Fair¹, Judyann Olson², Jan Lemke¹, Stella Protopapas³, Ke Yan² and Jian Zhang², ¹Children's Wisconsin, Milwaukee, WI, ²Medical College of Wisconsin, Milwaukee, WI, ³Riley Children's Hospital at Indiana University, Indianapolis, IN
Background/Purpose: Children with chronic diseases have higher rates of mental health issues and less favorable outcomes than the general pediatric population. Children with JIA experience…

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