ACR Meeting Abstracts

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Abstracts tagged "Patient reported outcomes"

  • Abstract Number: 2090 • ACR Convergence 2022

    Evaluation of Systemic Lupus Erythematosus Disease Activity Index 2000 (SLEDAI-2K) vs. SLEDAI-2K Glucocorticoids (SLEDAI-2KG) on Patient Health-Related Quality of Life (HRQoL) in Systemic Lupus Erythematosus (SLE)

    Alan Cheng1, Vibeke Strand2, Jiandong Su3, Nicole Anderson3, Lee S Simon4 and Zahi Touma3, 1Michael G. DeGroote School of Medicine, McMaster University, Schroeder Arthritis Institute, Krembil Research Institute, University Health Network, University of Toronto, Toronto, ON, Canada, 2Stanford University School of Medicine, Stanford, CA, 3Schroeder Arthritis Institute, Krembil Research Institute, University Health Network and University of Toronto, Toronto, ON, Canada, 4SDG LLC, West Newton, MA

    Background/Purpose: Systemic Lupus Erythematosus Disease Activity Index-2000 (SLEDAI-2K) Glucocorticoid Index (SLEDAI-2KG) is a novel valid index able to measure disease activity while accounting for prednisone…
  • Abstract Number: 0209 • ACR Convergence 2022

    Sensitivity of Three Skin-Specific Efficacy Outcomes to Detect Patient- and Physician-Reported Improvement in Overall Skin Disease in Dermatomyositis

    Josh Dan1, Grant Sprow2, Josef Concha3, Nilesh Kodali4, DeAnna Diaz5, Thomas Vazquez6, Felix Chin7, Barbara White8 and Victoria Werth3, 1Philadelphia VAMC, Philadelphia, PA, USA and Department of Dermatology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, 2Albert Einstein College of Medicine, Philadelphia, PA, 3University of Pennsylvania, Philadelphia, PA, 4New Jersey Medical School, Coppell, TX, 5Philadelphia College of Medicine, Philadelphia, PA, 6FIU Wertheim College of Medicine, Virginia Beach, VA, 7University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, 8SFJ Pharmaceuticals, Towson, MD

    Background/Purpose: Variations of the Investigator Global Assessment (IGA) of overall skin disease have been successfully used as a primary efficacy endpoint in registrational clinical trials…
  • Abstract Number: 0402 • ACR Convergence 2022

    Opioid Use and Healthcare Utilization in Adults with PsA and AS

    Alexis Ogdie1, Sofia Pedro2, Jean Liew3 and Kaleb Michaud4, 1Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, 2Forward, The National Databank for Rheumatic Diseases, Wichita, KS, 3Boston University, Boston, MA, 4University of Nebraska Medical Center, Omaha, NE

    Background/Purpose: Opioid use among individuals with spondyloarthritis is common, reported to be ~20-30% in some cohorts. Data on whether this subset of patients have higher…
  • Abstract Number: 0733 • ACR Convergence 2022

    Median Patient Global Assessment Varies Far More According to FAST4 (fibromyalgia Assessment Screening Tool) and MDS2 (MDHAQ Depression Screen) on a Single MDHAQ (multidimensional Health Assessment Questionnaire) Than According to Primary Diagnosis

    Theodore Pincus1, Kathryn Gibson2, Juan Schmukler1, Tengfei Li3 and Joel Block1, 1Rush University Medical Center, Chicago, IL, 2Liverpool Hospital, Sydney, Australia, 3Georgetown University, Washington, DC

    Background/Purpose: Patient global assessment (PATGL) is a component of DAS28 (disease activity score 28) and CDAI (clinical disease activity index) to assess patients with rheumatoid…
  • Abstract Number: 1137 • ACR Convergence 2022

    MHC Class I Polypeptide-Related Sequence a Variant Predicts Real-World Response to Anti-TNF Therapy

    Kristin Wipfler1, Joshua Baker2 and Kaleb Michaud3, 1FORWARD, The National Databank for Rheumatic Diseases, Omaha, NE, 2University of Pennsylvania, Philadelphia, PA, 3University of Nebraska Medical Center, Omaha, NE

    Background/Purpose: MHC class I polypeptide-related sequence A (MICA) is a protein involved in the activation of NK and T cells. Variants within the MICA gene…
  • Abstract Number: 1355 • ACR Convergence 2022

    Relationships Between Work Productivity, Activity Impairment, and Select Patient-Reported Outcomes in Patients with Ankylosing Spondylitis: A Post Hoc Analysis of Two Placebo-Controlled Trials

    Marina Magrey1, James Cheng-Chung WEI2, Arne Yndestad3, Andrew Bushmakin4, Joseph Cappelleri4, Oluwaseyi Dina5 and Atul Deodhar6, 1Case Western Reserve University, University Hospitals, Richfield, OH, 2Chung Shan Medical University Hospital, Taichung, Taiwan, 3Pfizer Inc, Oslo, Norway, 4Pfizer Inc, Groton, CT, 5Pfizer Inc, New York, NY, 6Oregon Health & Science University, Portland, OR, USA, Portland, OR

    Background/Purpose: Patients (pts) with AS often experience impaired work productivity.1 In pts with AS receiving tofacitinib (oral Janus kinase inhibitor), improvements were observed in work…
  • Abstract Number: 1785 • ACR Convergence 2022

    PROs and Sociodemographic Factors in Year Prior to COVID Predict Trajectories of Depressive Symptoms in Adults with RA in First 2 Years of Pandemic: Data from the Canadian Early Arthritis Cohort

    Susan Bartlett1, orit schieir2, Marie-France Valois2, Janet Pope3, Louis Bessette4, Gilles Boire5, Carol Hitchon6, Edward Keystone7, Carter Thorne8, Diane Tin9, Glen Hazlewood10 and Vivian Bykerk11, 1McGill University, Montreal, QC, Canada, 2McGill University, Montréal, QC, Canada, 3University of Western Ontario, London, ON, Canada, 4Centre de l'Ostoporose et de Rhumatologie de Québec, Québec, QC, Canada, 5Universite de Sherbrooke, Sherbrooke, QC, Canada, 6University of Manitoba, Winnipeg, MB, Canada, 7Keystone Consulting Enterprises Inc., Toronto, ON, Canada, 8Southlake Regional Health Centre, Newmarket, ON, Canada, 9The Arthritis Program Research Group, Newmarket, ON, Canada, 10University of Calgary, Calgary, AB, Canada, 11Hospital for Special Surgery, New York, NY

    Background/Purpose: Growing evidence points to considerable mental health impacts of the prolonged COVID-19 pandemic, though data from longitudinal studies in rheumatic diseases are sparse. We…
  • Abstract Number: 2094 • ACR Convergence 2022

    Predictors of Health-Related Quality of Life (HRQoL) in Adults with Juvenile- and Adult-onset Systemic Lupus Erythematosus: Results from a Multiethnic US Cohort (LUMINA)

    R. Ezequiel Borgia1, Manuel Ugarte-Gil2, Luis Vilá3, John Reveille4, Gerald McGwin5 and Graciela Alarcón6, 1UH Rainbow Babies & Children's Hospital, Cleveland, OH, 2Universidad Cientifica del Sur/Hospital Guillermo Almenara Irigoyen. EsSalud, Lima, Peru, 3University of Puerto Rico Medical Sciences Campus, San Juan, PR, 4University of Texas McGovern Medical School, Houston, TX, 5Department of Epidemiology, School of Public Health, The University of Alabama at Birmingham, Birmingham, AL, 6The University of Alabama at Birmingham, Oakland

    Background/Purpose: To examine and compare baseline predictors of improvement in HRQoL in adults with systemic lupus erythematosus (SLE) with disease onset occurring before age 24…
  • Abstract Number: 0359 • ACR Convergence 2021

    Patient Journey with Axial Spondyloarthritis: Critical Issues from the Patient Perspective. Results from the European Map of Axial Spondyloarthritis (EMAS)

    Marco Garrido-Cumbrera1, Denis Poddubnyy2, Christine Bundy3, Laura Christen4, Raj Mahapatra5, Souzi Makri6, Carlos Jesús Delgado-Domínguez7, Sergio Sanz-Gomez7, Pedro Plazuelo-Ramos8 and Victoria Navarro-Compán9, 1Health & Territory Research (HTR), University of Seville, Sevilla, Spain, 2Department of Rheumatology, Charité – Universitätsmedizin, Berlin, Germany, 3Cardiff University, Cardiff, Wales, United Kingdom, 4Novartis Pharma AG, Basel, Switzerland, 5Axial Spondyloarthritis International Federation (ASIF), London, United Kingdom, 6Cyprus League Against Rheumatism (CYPLAR), Limassol, Cyprus, 7Health & Territory Research (HTR), Universidad de Sevilla, Seville, Spain, 8Spanish Federation of Spondyloarthritis Associations (CEADE), Madrid, Spain, 9Rheumatology service, Hospital Universitario La Paz-IdiPaz, Madrid, Spain

    Background/Purpose: The journey of axial spondyloarthritis (axSpA) for most patients is slow and arduous. The goal of this analysis is to assess the journey to…
  • Abstract Number: 0664 • ACR Convergence 2021

    Which Attributes Are the Most and Least Important to Patients When Considering Gout Flare Burden over Time? A Best-worst Scaling Choice Study

    Jeremy Holyer1, William Taylor2, Angelo Gaffo3, Graham Hosie1, Anne Horne1, Borislav Mihov1, Isabel Su1, Gregory Gamble1, Nicola Dalbeth1 and Sarah Stewart1, 1University of Auckland, Auckland, New Zealand, 2University of Otago Wellington, Auckland, New Zealand, 3University of Alabama at Birmingham Medical Centre, Birmingham, AL

    Background/Purpose: Several factors contribute to the patient experience of gout flares, including pain intensity, duration, frequency, and disability. It is unknown which of these factors…
  • Abstract Number: 0754 • ACR Convergence 2021

    Bridging the Gap Between Patient-Reported Outcomes and Disease-Related Outcomes in Lupus – a Feasibility Study

    Shivani Garg1 and Christie Bartels2, 1UW Madison, Madison, WI, 2University of Wisconsin School of Medicine and Public Health, Madison, WI

    Background/Purpose: Patients with SLE have significantly worse health-related quality of life (QOL) at an earlier age compared to patients with other chronic diseases. This highlights…
  • Abstract Number: 0827 • ACR Convergence 2021

    Discontinuation Rate of Tofacitinib as Monotherapy Is Similar Compared to Combination Therapy with Methotrexate in Rheumatoid Arthritis Patients: Pooled Data from Two Rheumatoid Arthritis Registries in Canada

    Mohammad Movahedi1, Denis Choquette2, Louis Coupal2, Angela Cesta3, Xiuying Li3, Edward Keystone4 and Claire Bombardier5, 1Toronto General Hospital Research Institute, University Health Network, Toronto, ON, Canada, 2Institut de Rhumatologie de Montréal, Montréal, QC, Canada, 3Toronto General Hospital Research Institute, UHN, Toronto, ON, Canada, 4Keystone Consulting Enterprises Inc., Toronto, ON, Canada, 5University of Toronto - Toronto, Toronto, ON, Canada

    Background/Purpose: Tofacitinib (TOFA) is an oral, small molecule drug used for rheumatoid arthritis (RA) treatment and is prescribed alone or with methotrexate (MTX). We previously…
  • Abstract Number: 1167 • ACR Convergence 2021

    Rheumatoid Arthritis Patients’ Treatment Goals Relate to Disease Activity and Rheumatology Experiences

    Kelly O'Neill1, Pamela Sinicrope2, Kathryne Marks3, Elena Myasoedova2, Cynthia Crowson4 and John Davis2, 1Rheumatoid Patient Foundation, Lutz, FL, 2Mayo Clinic, Rochester, MN, 3Rheumatoid Patient Foundation, Boston, MA, 4Mayo Clinic, Eyota, MN

    Background/Purpose: Shared decision making and treat to target are recognized guidelines to treat Rheumatoid Arthritis (RA). We previously reported associations of shared treatment goal discussions…
  • Abstract Number: 1305 • ACR Convergence 2021

    Undiagnosed Depression in Axial Spondyloarthropathy and the Negative Impact on Patient Outcomes: Results of a Screening Study

    Sinead Maguire1, Phil Gallagher2 and Finbar (Barry) O'Shea1, 1St James's Hospital, Dublin, Ireland, 2St Vincent's Hospital, Dublin, Ireland

    Background/Purpose: Previous research in axial spondyloarthropathy(axSpA) has shown this population to have a high prevalence of depression. This co-morbidity has been previously shown to impact…
  • Abstract Number: 1605 • ACR Convergence 2021

    Health Related Quality of Life in Rheumatology Outpatients with COVID-19 from New York City over the Course of the Pandemic

    Lisa Mandl1, Jonah Levine1, Vivian Bykerk2 and Medha Barbhaiya1, 1Hospital for Special Surgery, New York, NY, 2Division of Rheumatology, Hospital for Special Surgery, New York City, NY

    Background/Purpose: The impact of the COVID-19 pandemic on the mental and physical well-being of patients with systemic rheumatic diseases (SRDs) remains to be quantified. We…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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