Abstracts tagged "patient preferences"

Abstract Number: 2249 • 2019 ACR/ARP Annual Meeting
Evaluation of Rheumatoid Arthritis Patients’ Preferences Using Discrete Choice Experiment
Aniket Kawatkar¹, ¹Kaiser Permanente Southern California, Pasadena, CA
Background/Purpose: Rheumatoid arthritis (RA) exerts multifaceted burden through medical expenditures, productivity losses, disability, and intangible costs of pain, fatigue, and loss of functional capacity. Patient…
Abstract Number: 2251 • 2019 ACR/ARP Annual Meeting
Understanding Vulnerabilities in Diagnosis and Care of Childhood and Adult-Onset Lupus: A Qualitative Study
Siobhan Case¹, Corine Sinnette ², Courtnie Phillip ², Claire Grosgogeat ³, Karen Costenbader ², Cianna Leatherwood ⁴, Candace Feldman ² and Mary Beth Son ³, ¹Brigham and Women's Hospital and Boston Children's Hospital, Boston, MA, ²Brigham and Women's Hospital, Boston, MA, ³Boston Children's Hospital, Boston, MA, ⁴Kaiser Permanente, San Francisco, CA
Background/Purpose: Systemic lupus erythematosus (SLE) poses complex diagnostic and management challenges, which may differ depending on whether SLE was diagnosed in childhood (cSLE) or in…
Abstract Number: 2254 • 2019 ACR/ARP Annual Meeting
The Urge for Mobile Apps in Rheumatology – a German Patient Perspective
Johannes Knitza¹, Christina Raab ¹, Antonia Lambrecht ¹, David Simon ², Melanie Hagen ¹, Sara Bayat ¹, Georg Schett ³, Arnd Kleyer ¹ and Axel Hueber ⁴, ¹Department of Internal Medicine 3 – Rheumatology and Immunology, Friedrich-Alexander-University Erlangen-Nürnberg, University Hospital Erlangen, Erlangen, Germany, Erlangen, Germany, ²Department of Internal Medicine 3, Friedrich-Alexander-University Erlangen-Nuremberg (FAU) and Universitätsklinikum Erlangen, Erlangen, Bayern, Germany, ³Department of Internal Medicine 3, Friedrich Alexander University Erlangen-Nuremberg, Erlangen, Germany, ⁴Department of Internal Medicine 3 – Rheumatology and Immunology, Friedrich-Alexander-University Erlangen-Nürnberg, University Hospital Erlangen, Erlangen, Germany; Sektion Rheumatologie, Sozialstiftung Bamberg, Klinikum Bamberg, Bamberg, Germany, Erlangen, Germany
Background/Purpose: Mobile health applications have the potential of saving costs, empowering patients and improving treatment outcomes. Furthermore, the use of medical apps in routine care…
Abstract Number: 1394 • 2018 ACR/ARHP Annual Meeting
Development and Pilot of a Patient Satisfaction Scale in Rheumatology
Antonia Valenzuela¹, Khushboo Sheth², Stanford Shoor², Philip L. Ritter² and Kate Lorig³, ¹Immunology and Rheumatology, Stanford University, Palo Alto, CA, ²Immunology & Rheumatology, Stanford University, Palo Alto, CA, ³Stanford University, Palo Alto, CA
Background/Purpose: Patient satisfaction has been studied as a performance improvement measure in clinical practice among patients with a variety of diseases, but to date there…
Abstract Number: 2343 • 2018 ACR/ARHP Annual Meeting
Exploring Decision Making Needs about Pain Management Among Adolescents with Juvenile Idiopathic Arthritis and Their Families: Preliminary Results from Interviews
Karine Toupin-April¹, Jennifer N. Stinson², Adam Huber^3,4, Ciarán M. Duffy⁵, Isabelle Gaboury⁶, Esi Morgan^7,8, Lucie Brosseau⁹, William Brinkman^7,8, Linda Li¹⁰, Tania El Hindi¹¹, Aditi Sivakumar¹¹, Marg Bisch¹², Janice Cohen¹³, Elizabeth Stringer¹⁴, France Légaré¹⁵, Laurie Proulx¹⁶, Paul R. Fortin¹⁷ and Peter Tugwell¹⁸, ¹Children’s Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada, ²Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada, ³IWK Health Centre, Halifax, NS, Canada, ⁴Dalhousie University, Halifax, NS, Canada, ⁵Children's Hospital of Eastern Ontario and University of Ottawa, Ottawa, ON, Canada, ⁶Universite de Sherbrooke, Sherbrooke, ON, Canada, ⁷Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁸University of Cincinnati, Cincinnati, OH, ⁹University of Ottawa, Ottawa, ON, Canada, ¹⁰Arthritis Research Canada, Richmond, BC, Canada, ¹¹Children's Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada, ¹²Children's Hospital of Eastern Ontario, Ottawa, ON, Canada, ¹³Children's Hospital of Eastern Ontario Research Institute, ottawa, ON, Canada, ¹⁴Department of Rheumatology, IWK Health Centre, Halifax, NS, Canada, ¹⁵Laval University, Montreal, QC, Canada, ¹⁶Canadian Arthritis Patient Alliance, Ottawa, ON, Canada, ¹⁷Medicine, CHU de Québec - University of Laval, Quebec, QC, Canada, ¹⁸Center For Global Health, Institute of Population Hlth, Ottawa, ON, Canada
Background/Purpose: Adolescents with juvenile idiopathic arthritis (JIA), one of the most common causes of chronic musculoskeletal pain among youth, face many difficult decisions. However, we…
Abstract Number: 2344 • 2018 ACR/ARHP Annual Meeting
Treatment Modes in Rheumatoid Arthritis: Moving Toward Shared Decision-Making
Peter C. Taylor¹, Neil Betteridge², T Michelle Brown³, John Woolcott⁴, Alan J. Kivitz⁵, Cristiano A F Zerbini⁶, Diane Whalley⁷, Oyebimpe Olayinka-Amao³, Connie Chen⁸, Palle Dahl⁹, Dario Ponce de Leon¹⁰, David Gruben¹¹ and Lara Fallon¹², ¹University of Oxford, Oxford, United Kingdom, ²Neil Betteridge Associates, London, United Kingdom, ³RTI Health Solutions, Research Triangle Park, NC, ⁴Pfizer Inc, Collegeville, PA, ⁵Altoona Center for Clinical Research, Duncansville, PA, ⁶Centro Paulista de Investigação Clinica, São Paulo, Brazil, ⁷RTI Health Solutions, Manchester, United Kingdom, ⁸Pfizer Inc, New York, NY, ⁹Pfizer Inc, Ballerup, Denmark, ¹⁰Pfizer Inc, Lima, Peru, ¹¹Pfizer Inc, Groton, CT, ¹²Pfizer Canada, Montreal, QC, Canada
Background/Purpose: Treatment recommendations in RA emphasize shared decision-making,1 but little is known about patient (pt) perspectives. Through qualitative research, we aim to understand pt preferences…
Abstract Number: 2351 • 2018 ACR/ARHP Annual Meeting
Attitudes Toward Telehealth Video Conferencing Among Patients with Rheumatic Disease
Dawen Zhang^1,2, Jennifer Lu², Cleopatra Aquino- Beaton², Nancy Harada² and Meika A. Fang^1,2, ¹UCLA Dept of Medicine, Division of Rheumatology, Los Angeles, CA, ²VA Greater Los Angeles Healthcare System, Los Angeles, CA
Background/Purpose: Video Teleconferencing (VTC) telehealth is a synchronous medium in which patients may interact with physicians using their own personal electronic device or at a…
Abstract Number: 2366 • 2018 ACR/ARHP Annual Meeting
Facilitating Shared Decision Making in Psoriatic Arthritis: Factors Influencing Patient Preference for Treatment Mode of Administration
Daniel Aletaha¹, M. Elaine Husni², Joseph F. Merola³, Roberto Ranza⁴, Heidi Bertheussen⁵, Ralph Lippe⁶, Pamela Young⁷, Joseph C Cappelleri⁸, T Michelle Brown⁹, Claire Ervin⁹, Ming-Ann Hsu⁸ and Lara Fallon¹⁰, ¹Medical University of Vienna, Vienna, Austria, ²Cleveland Clinic, Orthopedic and Rheumatologic Institute, Cleveland, OH, ³Brigham and Women's Hospital, Harvard Medical School, Boston, MA, ⁴Servicio de Reumatología, Universidade Federal de Uberlandia, Santa Mônica, Uberlândia, Brazil, ⁵Patient Representative, Oslo, Norway, ⁶Pfizer Pharma GmbH, Berlin, Germany, ⁷Pfizer Inc, Collegeville, PA, ⁸Pfizer Inc, Groton, CT, ⁹RTI Health Solutions, Research Triangle Park, NC, ¹⁰Pfizer Canada, Montreal, QC, Canada
Background/Purpose: Shared decision making is key to optimizing management of patients (pts) with psoriatic arthritis (PsA).1 Few studies have evaluated pt preferences for treatment administration…
Abstract Number: 2368 • 2018 ACR/ARHP Annual Meeting
Patient Preferences for Disease Modifying Anti-Rheumatic Drug Treatment in Rheumatoid Arthritis: A Systematic Review
Caylib Durand¹, Maysoon Eldoma¹, Deborah A. Marshall² and Glen Hazlewood^1,3, ¹Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada, ²Community Health Sciences, University of Calgary, Calgary, AB, Canada, ³Departments of Medicine and Community Health Sciences, University of Calgary, Calgary, AB, Canada
Background/Purpose: Treatment choices in rheumatoid arthritis (RA) involve trade-offs in risks, benefits and other considerations such as dosing. Understanding patient preferences for these trade-offs is…
Abstract Number: 2370 • 2018 ACR/ARHP Annual Meeting
Physician and Patient Preferences for Treating SLE: Insights into the Choice of Intravenous Infusion and Subcutaneous Injection
Matthew Lau¹, Christopher F Bell¹, Christine Poulos² and Ameya Benegal³, ¹GlaxoSmithKline, Research Triangle Park, NC, ²RTI Health Solutions, Research Triangle Park, NC, ³RTI Health Solutions, RTP, NC
Background/Purpose: Systemic lupus erythematosus (SLE) is a chronic, multisystem autoimmune disease characterized by diverse clinical manifestations, chronic inflammation, and significant morbidity that can be fatal1.…
Abstract Number: 2372 • 2018 ACR/ARHP Annual Meeting
Social Media Use for Health-Related Purposes By People with Rheumatic and Musculoskeletal Diseases – Results of a Global Survey
Paul Studenic¹, Alessia Alunno², Simon R Stones³, Valentin Ritschl⁴ and Elena Nikiphorou⁵, ¹Division of Rheumatology, Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna, Vienna, Austria, ²Department of Medicine, Rheumatology Unit, University of Perugia, Perugia, Italy, ³School of Healthcare, University of Leeds, Leeds, United Kingdom, ⁴Center for Medical Statistics, Informatics, and Intelligent Systems, Section for Outcomes Research, Medical University of Vienna, Vienna, Austria, Vienna, Austria, ⁵Academic Rheumatology, Department of Inflammation Biology, King's College London, London, Great Britain
Background/Purpose: Smartphone applications and social media (SM) are increasingly used, transforming the way in which people communicate. Peer interaction, remote information access and community building…
Abstract Number: 358 • 2017 ACR/ARHP Annual Meeting
Patients and Physicians Have Different Perceptions of the Relative Bother of the Symptoms and Impacts on Daily Activities in Psoriasis and Psoriatic Arthritis
M. Elaine Husni^1,2, Anthony Fernandez¹, Rakesh Singh³, Brett Hauber⁴, Jessie Sutphin⁴, Joshua Posner⁴ and Arijit Ganguli³, ¹Cleveland Clinic, Cleveland, OH, ²Rheumatology Dept A50, Cleveland Clinic Foundation, Cleveland, OH, ³AbbVie Inc., North Chicago, IL, ⁴RTI Health Solutions, Research Triangle Park, NC
Background/Purpose: Psoriasis and psoriatic arthritis arise from the same immune system response but result in different symptoms and impacts on daily activities. A patient with…
Abstract Number: 1252 • 2017 ACR/ARHP Annual Meeting
Real-World Oral Methotrexate Adherence Measured Electronically in Patients with Established Rheumatoid Arthritis
Kaleb Michaud^1,2, Rebecca Schumacher², Bernard Vrijens³, Eric Tousset³, Gorana Dasic⁴, Connie Chen⁴, Ekta Agarwal⁴ and Maria Suarez-Almazor⁵, ¹University of Nebraska Medical Center, Omaha, NE, ²National Data Bank for Rheumatic Diseases, Wichita, KS, ³WestRock Healthcare, Visé, Belgium, ⁴Pfizer Inc, New York, NY, ⁵Section of Rheumatology and Clinical Immunology, Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, USA, Houston, TX
Background/Purpose: While weekly methotrexate (MTX) remains the gold standard treatment for patients with RA, studies suggest that MTX adherence may be sub-optimal and could be…
Abstract Number: 1856 • 2017 ACR/ARHP Annual Meeting
Patient and Physician Perspectives on Content Value for Educational Material Regarding Rare Rheumatic Diseases
Chris Hatzis¹, Elizabeth Soto-Cardona², Jessica K. Gordon² and Robert F. Spiera², ¹Medicine, Hospital for Special Surgery, New York, NY, ²Rheumatology, Hospital for Special Surgery, New York, NY
Background/Purpose: Internet-based information is important for patients and their caregivers. For the past 4 years, our academic medical center’s Center for Scleroderma, Vasculitis & Myositis…
Abstract Number: 2782 • 2017 ACR/ARHP Annual Meeting
Patient Beliefs and Preference to Initiate a Proposed Medication in Rheumatoid Arthritis
Richard W Martin¹, Rohit Nallani², Andrew D Head¹, Aaron T Eggebeen¹, James D Birmingham¹ and Eric T Slavin¹, ¹Medicine, Rheumatology, Michigan State University, College of Human Medicine, Grand Rapids, MI, ²Michigan State University, College of Human Medicine, Grand Rapids, MI
Background/Purpose : Normative economic theory assumes that people making decisions have complete information of the options, rationally weigh the opportunity costs, expected outcomes and optimize…

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