Abstracts tagged "Measurement Instrument"

Abstract Number: 0474 • ACR Convergence 2021
Correlation of Fibromyalgia Survey Questionnaire and Quantitative Sensory Testing Among Patients with Active Rheumatoid Arthritis
Meriah Moore¹, Beth Wallace², Jing Song³, Lutfiyya Muhammad⁴, Andrew Heisler⁵, Daniel Clauw¹, Marcy Bolster⁶, Wendy Marder¹, Tuhina Neogi⁷, Alyssa Wohlfahrt⁸, Dorothy Dunlop⁹ and Yvonne Lee⁹, ¹University of Michigan, Ann Arbor, MI, ²Michigan Medicine, VA Ann Arbor Healthcare System, Ann Arbor, MI, ³Northwestern University, Worthington, IL, ⁴Northwestern University Feinberg School of Medicine, Chicago, IL, ⁵Bronson Rheumatology Specialists, Kalamazoo, MI, ⁶Massachusetts General Hospital, Boston, MA, ⁷Boston University School of Medicine, Boston, MA, ⁸Tufts University School of Medicine, Boston, MA, ⁹Northwestern University, Chicago, IL
Background/Purpose: Patients with rheumatoid arthritis (RA) commonly demonstrate disordered pain processing, termed central sensitization (CS). CS is typically measured using quantitative sensory testing (QST), which…
Abstract Number: 0563 • ACR Convergence 2021
Validating the FRAX Score in a US Population-Based Study of Patients with Rheumatoid Arthritis
Madeline Peterson¹, Cynthia Crowson², Elena Myasoedova¹, Shreyasee Amin¹, John Davis¹, Sara Achenbach¹, Sundeep Kholsa¹ and Elizabeth Atkinson¹, ¹Mayo Clinic, Rochester, MN, ²Mayo Clinic, Eyota, MN
Background/Purpose: The FRAX tool, launched by the World Health Organization Collaborating Centre at the University of Sheffield in 2008 (https://www.sheffield.ac.uk/FRAX/), is widely used to quickly…
Abstract Number: 0624 • ACR Convergence 2021
Validation of a Self-reported Measure of Extent and Reasons for Nonadherence in SLE
Kai Sun¹, Amanda Eudy², D. Ryan Anderson³, Rebecca Sadun², Lisa Criscione-Schreiber¹, Jayanth Doss², Jennifer Rogers¹, Theresa Coles², Corrine Volis⁴ and Megan Clowse⁵, ¹Duke University School of Medicine, Durham, NC, ²Duke University, Durham, NC, ³Duke University Medical Center, Durham, NC, ⁴University of Wisconsin School of Medicine and Public Health, Madison, WI, ⁵Duke University, Chapel Hill, NC
Background/Purpose: Medication nonadherence is common in SLE and leads to increased hospitalizations, morbidity, and mortality. To better recognize nonadherence and address adherence barriers, there is…
Abstract Number: 0751 • ACR Convergence 2021
Are Current Patient Reported Outcomes Instruments Optimized to Capture the Entire Patient Experience?
Philip Mease¹, Vibeke Strand², Dan Furst³, Evan Siegel⁴, Melissa Mcilraith⁵, Elaine Husni⁶ and M. Cameron Hay⁷, ¹Swedish Medical Center/Providence St. Joseph Health and University of Washington, Seattle, WA, ²Stanford University School of Medicine, Portola Valley, CA, ³University of California Los Angeles, Los Angeles, CA, ⁴Arthritis and Rheumatism Associates, Potomac, MD, ⁵M.Mc. Consulting, Dallas, TX, ⁶Cleveland Clinic, Cleveland, OH, ⁷Miami University (Ohio), Oxford, OH
Background/Purpose: Psoriatic Arthritis (PsA) affects multiple attributes of patient health; to assess treatment effectiveness a compilation of Patient Reported Outcomes (PRO) have been utilized. While…
Abstract Number: 0757 • ACR Convergence 2021
Different Versions of the Patient Global Question in Rheumatoid Arthritis – Does It Really Matter? – Results of a Multi-center Observational Study
Paul Studenic¹, Aliaksandra Baranskaya², Stanley Cohen³, Nancy Shadick⁴, Christine Iannaccone⁵, Maria Dahl Mjaavatten⁶, Elisabeth Lie⁷, Tore Kvien⁸, Josef Smolen⁹, Daniel Aletaha¹⁰ and Helga Radner⁹, ¹Karolinska Institute; & Medical University of Vienna, Stockholm, Sweden, ²Queen Elizabeth Hospital Birmingham, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom, ³Metroplex Clinical Research Center, Dallas, TX, ⁴Brigham & Women's Hospital, Boston, MA, ⁵Brigham and Women’s Hospital, Topsfield, MA, ⁶Diakonhjemmet Hospital, Haslum, Norway, ⁷Diakonhjemmet Hospital, Oslo, Nepal, ⁸Diakonhjemmet Hospital, Oslo, Norway, ⁹Medical University of Vienna, Vienna, Austria, ¹⁰Medical University Vienna, Vienna, Austria
Background/Purpose: The patient global assessment (PGA), typically assessed as 'Considering all of the ways your arthritis has affected you, how do you feel your arthritis…
Abstract Number: 1602 • ACR Convergence 2020
Assessing the Psychometric Properties of a Measure of Patient Empowerment with Patients with Arthritis
Erin Knight-Zhang¹, Kathleen Carluzzo¹, Karen Schifferdecker¹, Emily Creek², Rebecca Butcher¹ and Guy Eakin², ¹Dartmouth College, Lebanon, NH, ²Arthritis Foundation, Atlanta, GA
Background/Purpose: The Health Care Empowerment Questionnaire (HCEQ) was developed for use in a general sample of patients to measure individual empowerment in health care and…
Abstract Number: 1614 • ACR Convergence 2020
Use of a Best Practice Alert to Encourage Transition Planning and Readiness
Bernard Danna¹, Monique Maher¹, Marietta DeGuzman², Andrea Ramirez¹, Eyal Muscal², Amanda Brown², Martha Curry², Maria Pereira², M. Brad Nelson², Pooja Patel², Ugo Awa², LeeGee Huang³, Blanca Sanchez-Fournier³, JaLeen Rogers³, Ariel Coleman³, Anne Dykes³, Miriah Gillispie-Taylor² and Tiphanie Vogel⁴, ¹Baylor College of Medicine, Houston, TX, ²Baylor College of Medicine, Houston, ³Texas Children's Hospital, Houston, ⁴Baylor College of Medicine/Texas Children's Hospital, Houston, TX
Background/Purpose: Transitioning children with chronic diseases from pediatric to adult care can be challenging. Patients are faced with the emotional shock of entering a new…
Abstract Number: 1790 • ACR Convergence 2020
Association of Telomere Length and the Systemic Lupus International Collaborating Clinics Frailty Index (SLICC-FI) in Long Standing Systemic Lupus Erythematosus
Kaitlin Lima¹, Alexandra Legge², John Hanly², Jungwha Lee³, Jing Song³, Anh Chung³, Carly Skamra⁴, QiQuan Huang¹, Richard Pope⁵ and Rosalind Ramsey-Goldman⁶, ¹Northwestern University, Chicago, IL, ²Dalhousie University, Halifax, NS, Canada, ³Northwestern University, Chicago, ⁴Northwestern University, Brookfield, IL, ⁵McGaw Medical Center of Northwestern University, Chicago, IL, ⁶Division of Rheumatology, Northwestern University Feinberg School of Medicine, Chicago, IL
Background/Purpose: Frailty, an emerging concept in SLE, represents an individual’s ability to respond to physiologic stress. The first lupus-specific frailty index, the SLICC-FI, was recently…
Abstract Number: 1886 • ACR Convergence 2020
Measuring Physical Activity in AxSpA:Content Validity and Measurement Properties of the New AxSpA-SQUASH
Marllies Carbo¹, Davy Paap², Fiona Maas¹, Mark Siderius³, Hendrika Bootsma¹, Freke Wink³, Suzanne Arends³ and Anneke Spoorenberg³, ¹University Medical Centre Groningen, Groningen, Netherlands, ², Department of Rehabilitation Medicine, University of Medical Centre Groningen, Groningen, Netherlands, ³University Medical Centre Groningen and Medical centre Leeuwarden, Groningen, Netherlands
Background/Purpose: The ASAS-EULAR recommendations for management of axial Spondyloarthritis (axSpA) includes that patients should be encouraged to exercise. There is no validated instrument for measuring…
Abstract Number: 0157 • ACR Convergence 2020
Early Arthritis Global Assesment: What Differences Exist Between Patients and Physicians?
Cristina Valero¹, Noelia Garcia¹, Juan Pablo Baldivieso², Ana Ortiz³, Sebastian Rodriguez² and Isidoro González-Álvaro³, ¹Hospital Universitario de la Princesa, IIS-Princesa, UAM, Madrid, Madrid, Spain, ²Hospital de La Princesa, Madrid, Madrid, Spain, ³Hospital Universitario de la Princesa, IIS-Princesa, Madrid, Madrid, Spain
Background/Purpose: In recent years there is increasing evidence of the relevance of including the assessment of the different aspects of rheumatoid arthritis (RA) from the…
Abstract Number: 1888 • ACR Convergence 2020
Successful Evaluation of Spinal Mobility Measurements with the Epionics SPINE Device in Patients with Axial Spondyloarthritis Compared to Controls
David Kiefer¹, Xenofon Baraliakos², Daniela Adolf³, Varvara Chatzistefanidi⁴, Ilka Schwarze⁵, Uwe Lange⁶, Jan Brandt-Jürgens⁷, Edgar Stemmler⁸, Sabine Sartingen⁸ and Juergen Braun⁹, ¹Rheumazentrum Ruhrgebiet, Ruhr-University Bochum, Herne, Germany, ²Rheumazentrum Ruhrgebiet Herne, Ruhr-University Bochum, Bochum, Germany, ³StatConsult, Magdeburg, Germany, ⁴Rheumazentrum Ruhrgebiet Herne, Herne, ⁵Rheumazentrum Leipzig, Leipzig, ⁶Department of Rheumatology, Immunology, Osteology and Physical Medicine, Justus Liebig University Gießen, Campus Kerckhoff, Bad Nauheim, Germany, Bad Nauheim, Germany, ⁷Rheumatologische Schwerpunktpraxis Berlin, Berlin, Germany, ⁸AbbVie Deutschland GmbH & Co KG, Wiesbaden, Germany, ⁹Rheumazentrum Ruhrgebiet and Ruhr-University, 44649 Herne, Germany
Background/Purpose: Axial spondyloarthritis (axSpA) comprising radiographic (r-) and non-radiographic (nr)-axSpA is often associated with loss of mobility and impaired physical function. Established assessments of spinal…
Abstract Number: 0169 • ACR Convergence 2020
Patient-Reported Outcomes Differentiate Between Remission and Low Disease Activity in Psoriatic Arthritis
Juliette Yedimenko¹, Jessica Walsh², Alexis Ogdie³, Yuxuan Jin¹, Soumya Reddy⁴, Jose Scher⁵ and M. Elaine Husni¹, ¹Cleveland Clinic, Cleveland, OH, ²University of Utah School of Medicine, George E. Wahlen Veteran Affairs Medical Center, Salt Lake City, UT, ³Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, ⁴NYU School of Medicine, New York, NY, ⁵NYU School of Medicine, New York City
Background/Purpose: For psoriatic arthritis (PsA), several different composite instruments are available to define low disease activity (LDA) and remission (REM) targets for treatment. Patient-reported outcomes…
Abstract Number: 2021 • ACR Convergence 2020
The Reliability of Scoring Sonographic Entheseal Abnormalities – the Diagnostic Ultrasound Enthesitis Tool (DUET) Study
Lihi Eder¹, Sibel Aydin² and Gurjit Kaeley³, ¹Women’s College Research Institute, University of Toronto, Toronto, ON, Canada, ²University of Ottawa Faculty of Medicine, Rheumatology, Ottawa, ON, CANADA; The Ottawa Hospital Research Institute, Ottawa, ON, CANADA, Ottawa, ON, Canada, ³University of Florida College of Medicine - Jacksonville, Jacksonville, FL
Background/Purpose: DUET is a study supported by the Group for Assessment for Psoriasis and Psoriatic Arthritis (GRAPPA) that aims to develop a novel sonographic scoring…
Abstract Number: 0248 • ACR Convergence 2020
Assessment of Lupus Knowledge Through Creation of the Lupus Knowledge Assessment Test (LKAT)
Mithu Maheswaranathan¹, Amanda Eudy¹, Jayanth Doss¹, Rebecca Sadun¹, Lisa Criscione-Schreiber², Kai Sun¹, Stacy Bailey³, S. Nicole Hastings¹, Megan Clowse⁴ and Jennifer Rogers⁵, ¹Duke University, Durham, NC, ²Duke University School of Medicine, Durham, NC, ³Northwestern University, Chapel Hill, NC, ⁴Duke University, Chapel Hill, NC, ⁵Duke, Durham, NC
Background/Purpose: Systemic lupus erythematosus (SLE) is an inherently complex disease to manage with heterogenous clinical manifestations and complicated medication regimens. The complexity of lupus self-management…
Abstract Number: 0280 • ACR Convergence 2020
Compliance and Validation of Patient Reported Outcome Information Collected from Lupus Patients Using a Mobile Application
Kristy Bell¹, Claire Dykas¹, Hope Rainey¹, Maggy Comberg¹, Mary Mora¹ and Peter Lipsky¹, ¹AMPEL BioSolutions LLC., Charlottesville, VA
Background/Purpose: Patient Reported Outcomes (PROs) can provide critical data in measuring the impact of a disease on an individual as well as the quality of…

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