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Abstracts tagged "Measurement Instrument"

  • Abstract Number: 1731 • ACR Convergence 2021

    Construction and Validation of a Reproductive Health Questionnaire for Women with Rheumatic Diseases

    Abraham Yair Lujano-Negrete1, Luz Ferandanda Gutierrez-Leal2, Luis Gerardo Espinosa-Banuelos3, Cassandra Michele Skinner-Taylor1, Lorena Perez-Barbosa4, Ingris Peláez-Ballestas5, Eugenio Salvador Barriga-Maldonado6, Martha Cecilia Rodriguez-Ruiz1, Sofía Jezzini-Martínez1, Selene Maribel Delgado-Ayala1, Jesus Cardenas-de La Garza4 and Dionicio Galarza-Delgado4, 1Hospital Universitario Dr. José Eleuterio González, Monterrey, Mexico, 2Universidad Autónoma de Nuevo León, Monterrey, Mexico, 3Faculty of Medicine and University Hospital Dr. Jose Eleuterio Gonzalez, UANL, Monterrey, Mexico, 4Hospital Universitario "Dr Jose E. Gonzalez", Monterrey, Mexico, 5Hospital General de Mexico "Dr. Eduardo Liceaga", Mexico, Mexico, 6Hopsital Universitario Dr. José Eleuterio González, Monterrey, Mexico

    Background/Purpose: Autoimmune rheumatic diseases (ARDs) commonly affect women of childbearing age. Active maternal disease in the months prior to conception increases the risk of flares…
  • Abstract Number: 1893 • ACR Convergence 2021

    “From Where I Stand”: Using Multiple Anchors Yields Different Benchmarks for Meaningful Improvement and Worsening in the Rheumatoid Arthritis Flare Questionnaire (RA-FQ)

    Susan Bartlett1, Vivian Bykerk2, Orit Schieir3, Marie-France Valois1, Louis Bessette4, Gilles Boire5, Glen Hazlewood6, Carol Hitchon7, Edward Keystone8, Janet Pope9, Diane Tin10, Carter Thorne11, Clifton Bingham12 and CATCH Investigators13, 1McGill University, Montréal, QC, Canada, 2Hospital for Special Surgery, New York, NY, 3Canadian Early Arthritis Cohort Study, Montréal, QC, Canada, 4Centre de l'Ostoporose et de Rhumatologie de Qubec, Québec City, QC, Canada, 5Universite de Sherbrooke, Sherbrooke, QC, Canada, 6University of Calgary, Calgary, AB, Canada, 7University of Manitoba, Winnipeg, MB, Canada, 8Keystone Consulting Enterprises Inc., Toronto, ON, Canada, 9University of Western Ontario, London, ON, Canada, 10The Arthritis Program Research Group, Newmarket, ON, Canada, 11Southlake Regional Health Centre, Newmarket, ON, Canada, 12Johns Hopkins University, Baltimore, MD, 13Canadian Early Arthritis Cohort Investigators, Toronto, ON, Canada

    Background/Purpose: The RA-FQ is a patient-reported measure of current disease activity in RA that can be used to identify disease flares. The RA-FQ queries pain,…
  • Abstract Number: 0176 • ACR Convergence 2021

    Semi-quantitative Chest Computed Tomography (CT) Analysis in Pediatric Rheumatologic (PR) Patients with Diffuse Lung Disease

    Michal Cidon1, Terry Robinson2, Beverley Newman3, Paul Iskander2, Paul Thacker4, Evan Zucker3, Brian Bartholmai4, Dnyanesh Tipre2, Tzielan Lee5, Rajdeep Pooni6 and Rex Moats2, 1Children's Hospital Los Angeles, Los Angeles, CA, 2Children's Hospital of Los Angeles, Los Angeles, CA, 3Stanford Children's Health, Stanford, 4Mayo Clinic, Rochester, MN, 5Stanford University School of Medicine, Palo Alto, CA, 6Stanford Children's Health, Palo Alto, CA

    Background/Purpose: Spiral chest CT (SCT) is commonly used to evaluate subclinical lung disease in pediatric rheumatology. However, there are no validated scoring tools to objectively…
  • Abstract Number: 0251 • ACR Convergence 2021

    A Comparative Study of the Validity of the DAS28-ESR and JADAS-27 Disease Activity Assessment Indexes for Juvenile Idiopathic Arthritis in Transition and Adults

    Takako Miyamae1, Eiichi Tanaka1, Eisuke Inoue2, Katsunori Ikari1 and Masayoshi Harigai3, 1Tokyo Women's Medical University, Tokyo, Japan, 2Showa University, Tokyo, Japan, 3Tokyo Women's Medical University School of Medicine, Tokyo, Japan

    Background/Purpose: The 2020 Rheumatoid Arthritis Clinical Practice Guidelines by the Ministry of Health, Labour, and Welfare Research Group recommends the JADAS27 as a measure of…
  • Abstract Number: 0315 • ACR Convergence 2021

    Sjögren’s Syndrome Symptom Diary (SSSD) and Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-F) as Assessments of Symptoms in Sjögren’s Syndrome: A Qualitative Exploration of Content Validity and Meaningful Change

    Samantha Wratten1, Natasha Griffiths2, Carl Cooper2, Jessica Flynn2, Rebecca Hall3, Linda Abetz-Webb2, Wolfgang Hueber4, Briana Ndife5 and Pushpendra Goswami4, 1Adelphi Values, Macclesfield, United Kingdom, 2Adelphi Values, Bollington, United Kingdom, 3Adelphi Values Ltd, Bollington, United Kingdom, 4Novartis Pharma AG, Basel, Switzerland, 5Novartis, East Hanover, NJ

    Background/Purpose: The aim of this study was to gain qualitative patient feedback on the appropriateness of two Patient Reported Outcome (PRO) measures as assessments of…
  • Abstract Number: 0316 • ACR Convergence 2021

    Exploring Alternative Responder Definitions for EULAR Sjögren’s Syndrome Patient Reported Index (ESSPRI) for Use in Sjögren’s Clinical Trials

    Samantha Wratten1, Linda Abetz-Webb2, Ethan Arenson2, Mike Greenwood2, Rebecca Hall3, Pip Griffiths4, Simon J Bowman5, Wolfgang Hueber6, Briana Ndife7, Daniel Kuessner6 and Pushpendra Goswami6, 1Adelphi Values, Macclesfield, United Kingdom, 2Adelphi Values, Bollington, United Kingdom, 3Adelphi Values Ltd, Bollington, United Kingdom, 4Former Adelphi Values, Bollington, United Kingdom, 5Department of Rheumatology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom, 6Novartis Pharma AG, Basel, Switzerland, 7Novartis, East Hanover, NJ

    Background/Purpose: Sjögren’s is a chronic autoimmune disease symptomatically characterized by dryness, pain and fatigue, which are typically assessed in clinical trials using EULAR Sjögren’s Syndrome…
  • Abstract Number: 0317 • ACR Convergence 2021

    Patient and Physician Perspectives on EULAR Sjögren’s Syndrome Patient Reported Index (ESSPRI) and EULAR Sjögren’s Syndrome Disease Activity Index (ESSDAI): A Qualitative Interview Study

    Samantha Wratten1, Carl Cooper2, Jessica Flynn2, Natasha Griffiths2, Rebecca Hall3, Linda Abetz-Webb2, Simon J Bowman4, Wolfgang Hueber5, Briana Ndife6 and Pushpendra Goswami5, 1Adelphi Values, Macclesfield, United Kingdom, 2Adelphi Values, Bollington, United Kingdom, 3Adelphi Values Ltd, Bollington, United Kingdom, 4Department of Rheumatology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom, 5Novartis Pharma AG, Basel, Switzerland, 6Novartis, East Hanover, NJ

    Background/Purpose: The aim of this research was to gain qualitative patient and physician feedback on the EULAR Sjögren’s syndrome patient reported index (ESSPRI) and the…
  • Abstract Number: 0474 • ACR Convergence 2021

    Correlation of Fibromyalgia Survey Questionnaire and Quantitative Sensory Testing Among Patients with Active Rheumatoid Arthritis

    Meriah Moore1, Beth Wallace2, Jing Song3, Lutfiyya Muhammad4, Andrew Heisler5, Daniel Clauw1, Marcy Bolster6, Wendy Marder1, Tuhina Neogi7, Alyssa Wohlfahrt8, Dorothy Dunlop9 and Yvonne Lee9, 1University of Michigan, Ann Arbor, MI, 2Michigan Medicine, VA Ann Arbor Healthcare System, Ann Arbor, MI, 3Northwestern University, Worthington, IL, 4Northwestern University Feinberg School of Medicine, Chicago, IL, 5Bronson Rheumatology Specialists, Kalamazoo, MI, 6Massachusetts General Hospital, Boston, MA, 7Boston University School of Medicine, Boston, MA, 8Tufts University School of Medicine, Boston, MA, 9Northwestern University, Chicago, IL

    Background/Purpose: Patients with rheumatoid arthritis (RA) commonly demonstrate disordered pain processing, termed central sensitization (CS). CS is typically measured using quantitative sensory testing (QST), which…
  • Abstract Number: 0563 • ACR Convergence 2021

    Validating the FRAX Score in a US Population-Based Study of Patients with Rheumatoid Arthritis

    Madeline Peterson1, Cynthia Crowson2, Elena Myasoedova1, Shreyasee Amin1, John Davis1, Sara Achenbach1, Sundeep Kholsa1 and Elizabeth Atkinson1, 1Mayo Clinic, Rochester, MN, 2Mayo Clinic, Eyota, MN

    Background/Purpose: The FRAX tool, launched by the World Health Organization Collaborating Centre at the University of Sheffield in 2008 (https://www.sheffield.ac.uk/FRAX/), is widely used to quickly…
  • Abstract Number: 0624 • ACR Convergence 2021

    Validation of a Self-reported Measure of Extent and Reasons for Nonadherence in SLE

    Kai Sun1, Amanda Eudy2, D. Ryan Anderson3, Rebecca Sadun2, Lisa Criscione-Schreiber1, Jayanth Doss2, Jennifer Rogers1, Theresa Coles2, Corrine Volis4 and Megan Clowse5, 1Duke University School of Medicine, Durham, NC, 2Duke University, Durham, NC, 3Duke University Medical Center, Durham, NC, 4University of Wisconsin School of Medicine and Public Health, Madison, WI, 5Duke University, Chapel Hill, NC

    Background/Purpose: Medication nonadherence is common in SLE and leads to increased hospitalizations, morbidity, and mortality. To better recognize nonadherence and address adherence barriers, there is…
  • Abstract Number: 0751 • ACR Convergence 2021

    Are Current Patient Reported Outcomes Instruments Optimized to Capture the Entire Patient Experience?

    Philip Mease1, Vibeke Strand2, Dan Furst3, Evan Siegel4, Melissa Mcilraith5, Elaine Husni6 and M. Cameron Hay7, 1Swedish Medical Center/Providence St. Joseph Health and University of Washington, Seattle, WA, 2Stanford University School of Medicine, Portola Valley, CA, 3University of California Los Angeles, Los Angeles, CA, 4Arthritis and Rheumatism Associates, Potomac, MD, 5M.Mc. Consulting, Dallas, TX, 6Cleveland Clinic, Cleveland, OH, 7Miami University (Ohio), Oxford, OH

    Background/Purpose: Psoriatic Arthritis (PsA) affects multiple attributes of patient health; to assess treatment effectiveness a compilation of Patient Reported Outcomes (PRO) have been utilized. While…
  • Abstract Number: 0757 • ACR Convergence 2021

    Different Versions of the Patient Global Question in Rheumatoid Arthritis – Does It Really Matter? – Results of a Multi-center Observational Study

    Paul Studenic1, Aliaksandra Baranskaya2, Stanley Cohen3, Nancy Shadick4, Christine Iannaccone5, Maria Dahl Mjaavatten6, Elisabeth Lie7, Tore Kvien8, Josef Smolen9, Daniel Aletaha10 and Helga Radner9, 1Karolinska Institute; & Medical University of Vienna, Stockholm, Sweden, 2Queen Elizabeth Hospital Birmingham, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom, 3Metroplex Clinical Research Center, Dallas, TX, 4Brigham & Women's Hospital, Boston, MA, 5Brigham and Women’s Hospital, Topsfield, MA, 6Diakonhjemmet Hospital, Haslum, Norway, 7Diakonhjemmet Hospital, Oslo, Nepal, 8Diakonhjemmet Hospital, Oslo, Norway, 9Medical University of Vienna, Vienna, Austria, 10Medical University Vienna, Vienna, Austria

    Background/Purpose: The patient global assessment (PGA), typically assessed as 'Considering all of the ways your arthritis has affected you, how do you feel your arthritis…
  • Abstract Number: 0758 • ACR Convergence 2021

    Outcome Reporting in Self-management Interventions for Inflammatory Arthritis Trials: A Systematic Review of Outcome Measures Covering Self-management Domains

    Charlotte Hansen1, Bente Esbensen1, Robin Christensen2, Annette De Thurah3 and Pernille Cromhout1, 1Rigshospitalet, Glostrup, Denmark, 2Section for Biostatistics and Evidence-Based Research, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Copenhagen & Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Copenhagen, Denmark, 3Aarhus University Hospital, Aarhus, Denmark

    Background/Purpose: A significant heterogeneity exists across outcome domains and outcome instruments measuring the effect of self-management interventions targeting people with inflammatory arthritis (IA). Thus, it…
  • Abstract Number: 0861 • ACR Convergence 2021

    Systemic Lupus Erythematosus, a Pilot Study of a New Disease Activity Score

    Daphna Paran1, Monique Ben-Am2, Liran Mendel2, Ari Polachek3, Victoria Furer2, Ofir Elalouf4, Jonathan Wollman4, Shaye Kivity5 and Nancy Agmon-Levin6, 1Tel Aviv Sourasky Medical Center-Ichilov Hospital, Even Yehuda, Israel, 2Tel Aviv Sourasky Medical Center, Tel Aviv, Israel, 3Sourasky Medical Center, Petah-Tikva, Israel, 4Tel Aviv Medical Center, Herzliya, Israel, 5Meir Medical Center, Kefar Saba, Israel, 6Sheba Medical Center, Ramat Gan, Israel

    Background/Purpose: Systemic lupus erythematosus (SLE) is a heterogeneous, waxing and waning, multisystem autoimmune disease. The complexity and clinical unpredictability of SLE challenge the assessment of…
  • Abstract Number: 1173 • ACR Convergence 2021

    Bringing Reproductive Health Guidelines into Fellowship Training: A National Survey of Adult and Pediatric Rheumatology Fellows and Program Directors to Assess Educational Need and Inform Curriculum Development

    Megan Clowse1, Stacy Ardoin2, Elise Berlan2, Kristine Carandang3, Kate Chiseri4, Arthur Kavanaugh5, Whitney White6, Kelly Wise7, Andrew Wong8 and Michael Battistone9, 1Duke University, Chapel Hill, NC, 2Nationwide Children's Hospital, Columbus, OH, 3Independent, San Diego, CA, 4American College of Rheumatology, Atlanta, GA, 5University of California San Diego, La Jolla, CA, 6Birmingham VA Medical Center, Birmingham, AL, 7Nationwide Children's Hospital, Hilliard, OH, 8Olive View-UCLA Medical Center, Sylmar, CA, 9Salt Lake City VA, Salt Lake City, UT

    Background/Purpose: In 2020, the American College of Rheumatology (ACR) published clinical practice guidelines addressing reproductive health for patients with rheumatic diseases. The guidelines are the…
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