Abstracts tagged "education, patient"

Abstract Number: PP05 • ACR Convergence 2021
Fighting Health-Related Misinformation Using Social Media / How Creating an Online Group for Patients with Relapsing Polychondritis — and Moderating It with Health Professionals — Helps Spread Reliable and Empowering Information
Michael Linn¹, Spenser Mestel² and Susie Ratledge³, ¹Relapsing Polychondritis Foundation, New York, NY, ²New York, NY, ³Relapsing Polychondritis: Secular Science and Support group, Chattanooga, TN
Background/Purpose: Before I became ill in 2017, I was a registered nurse with a degree in health science who'd often educate patients about how they…
Abstract Number: 0977 • ACR Convergence 2021
Enhancement of Patient and Clinician Partnerships in Juvenile Idiopathic Arthritis Management Using a Point-of-Care Dashboard: Development and Pilot Testing
Erica Lawson¹, Lisa Johnson², Jabeen Ahmad², Vincent Del Gaizo³, Brittany Donaldson⁴, Julie Eller⁵, Yukiko Kimura⁶, Cathy Knucken⁷, Tzielan Lee⁸, Corinne Pinter⁹, Doreen Tabussi¹⁰, Alysha Taxter¹¹ and Aricca Van Citters², ¹University of California San Francisco, San Francisco, CA, ²Dartmouth College, Lebanon, NH, ³Childhood Arthritis & Rheumatology Research Alliance (CARRA), Whitehouse Station, NJ, ⁴Wake Forest University School of Medicine Brenner Children's, Winston Salem, NC, ⁵Arthritis Foundation, Washington, DC, ⁶Hackensack University Medical Center, New York, NY, ⁷Patient Partner, Byram, NJ, ⁸Stanford University School of Medicine, Palo Alto, CA, ⁹Patient Partner, Sugar Land, TX, ¹⁰Hackensack University Medical Center, Upper Saddle River, NJ, ¹¹Wake Forest Baptist Medical Center, Winston-Salem, NC
Background/Purpose: Health outcomes improve when people living with chronic conditions partner with their clinicians to coproduce care based on their values, preferences, goals, and the…
Abstract Number: PP06 • ACR Convergence 2021
Collaborative Advocacy Helps Me and Other Patients With Relapsing Polychondritis (“RP”’) / My life improved by helping the RP Foundation and Race for RP facilitate awareness, education, and research to improve the quality of life for patients with RP and advance a cure for this disease.
Michael Linn¹ and Dan Smith², ¹Relapsing Polychondritis Foundation, New York, NY, ²Relapsing Polychondritis Foundation, Canton, MI
Background/Purpose: In March 2020, I was diagnosed as having relapsing polychondritis ("RP"), an understudied, underdiagnosed, and undertreated debilitating autoimmune disease that can be fatal if…
Abstract Number: 1065 • ACR Convergence 2021
Optimizing Joint Pain EConsult Referrals in an Underserved Region of Southern California
Neha Chiruvolu¹ and Vaneet Sandhu², ¹UC Riverside School of Medicine, Riverside, CA, ²Loma Linda University Health, Loma Linda, CA
Background/Purpose: Electronic consultations (eConsults) are increasingly utilized to supplement or replace face to face (FTF) visits in different medical specialties. They are especially valuable in…
Abstract Number: PP07 • ACR Convergence 2021
How Online Spanish-Language Resources Got Me and My RA Through the COVID-19 Pandemic
Wigna Cruz, Puerto Rico
Background/Purpose: I was experiencing joint pain especially in my wrists, which led me to see my physician for testing. Initially I was misdiagnosed with lupus.…
Abstract Number: 1068 • ACR Convergence 2021
Analysis of Tweets Containing Information Related to Rheumatological Diseases on Twitter
Adrian abbasi¹, Miguel Álvarez-Mon², Carolina Donat-Vargas³, ana Perez⁴, julio suarez¹, lorena montano¹, emilio rico¹ and melchor Alvarez de Mon¹, ¹Hospital Universitario Príncipe de Asturias, Madrid, Spain, ²Hospital Universitario Infanta Leonor, Madrid, Spain, ³IMDEA Food, Cardiovascular and Nutritional Epidemiology Group, Madrid, Spain, ⁴Hospital Universitario Príncipe de Asturias. Rheumatology. Medicine Faculty. Alcala University Department., Madrid, Spain
Background/Purpose: Twitter is an indicator of the interests of its users in the real world, and therefore, is an appropriate setting to assess the content…
Abstract Number: PP13 • ACR Convergence 2021
CreakyKitchen: How the Online Cooking Show I Started is Building Community and Encouraging Better Food Choices for Me and Others Living with Rheumatic and Chronic Disease
Chantelle Marcial, Boston, MA
Background/Purpose: At 19, I was mis-diagnosed with Lupus as it was a common condition in my family. My treatment at that time was mainly DMARDs,…
Abstract Number: 1069 • ACR Convergence 2021
Supporting Patient-Centered Care in the Pediatric Rheumatology Setting: Patient, Family and Provider Experiences with OurNotes
Uptej Khalsa¹, Rajdeep Pooni², Christy Sandborg¹, Imelda Balboni¹, Karen Wayman³ and Tzielan Lee⁴, ¹Stanford University, Palo Alto, CA, ²Stanford Children's Health, Palo Alto, CA, ³Stanford Children’s Health, Palo Alto, CA, ⁴Stanford University School of Medicine, Palo Alto, CA
Background/Purpose: Health information transparency enabled by the widespread adoption of patient portals and open notes has truly transformed the way healthcare is delivered. However, broader…
Abstract Number: 1151 • ACR Convergence 2021
Experiences and Finding Meaning Among Latin Americans Living with Lupus: Learning from Social Media Narratives by Patients and Their Social Network
Tirsa Colmenares-Roa¹, Alfonso Gastelum-Strozzi², Erica Crosley³, Yurilis Fuentes-Silva⁴, Cristina Reategui-Sokolova⁵, Claudia Elera-Fitzcarrald⁶, Soledad Ibañez⁷, Ernesto Cairoli⁸, Bernardo A. Pons-Estel⁹, Ingris Peláez-Ballestas¹ and Cristina Drenkard¹⁰, ¹Hospital General de Mexico "Dr. Eduardo Liceaga", Mexico, Mexico, ²Instituto de Ciencias Aplicadas y Tecnología, Universidad Nacional Autónoma de México, Mexico, Mexico, ³John Hopkins University, Baltimore, MD, ⁴Division of Rheumatology, Complejo Hospitalario Universitario Ruiz y Páez, Universidad de Oriente, Ciudad Bolívar, Centro Nacional de Enfermedades Reumáticas, Ciudad Bolívar, Venezuela, ⁵Hospital Guillermo Almenara Irigoyen, Lima, Peru, ⁶Universidad Cientifica del Sur/Hospital Guillermo Almenara Irigoyen. EsSalud, Lima, Peru, ⁷Sanatorio Güemes, Buenos Aires, Argentina, ⁸Autoimmune Diseases Unit, Centro Asistencial del Sindicato Médico del Uruguay (CASMU) and Hospital Evangélico, Montevideo, Uruguay, ⁹Grupo Oroo - Centro Regional de Enfermedades Autoinmunes y Reumticas (GO-CREAR), Rosario, Argentina, ¹⁰Emory University, Atlanta, GA
Background/Purpose: SLE disproportionately affects Latin Americans, and outcomes are worse amongst them compared to non-minority populations. Understanding patients' views of living with SLE is critical…
Abstract Number: 1152 • ACR Convergence 2021
A Follow-Up Evaluation of a Longstanding Telephone Peer Counseling Service for People with Systemic Lupus Erythematosus and Their Loved Ones
Priscilla Toral, Roberta Horton and Jillian Rose, Hospital for Special Surgery, New York, NY
Background/Purpose: With technology rapidly evolving, studies still reinforce the value of telephone peer support for people living with chronic illness. A follow-up evaluation was conducted…
Abstract Number: 1153 • ACR Convergence 2021
The Influence of Companions on a Patient’s Decision to Transition to a Biosimilar: A Randomized Controlled Trial
Chiara Gasteiger¹, Katie Groom¹, Maria Lobo², Urte Scholz³, Keith Petrie¹ and Nicola Dalbeth¹, ¹University of Auckland, Auckland, New Zealand, ²Auckland District Health Board, Auckland, New Zealand, ³University of Zurich, Zurich, Switzerland
Background/Purpose: Involving patients in treatment decisions is commonplace in healthcare, but patients are frequently accompanied by a support person (companion). Companions are often actively involved…
Abstract Number: 1154 • ACR Convergence 2021
What Do Patients Know About Biosimilars and How Satisfied Are They with the Educational Process? – A Systematic Comparison Between Rheumatologists and Nurse Specialists, Including Effects of Multiswitching
Sabina Gall, Uta Kiltz, Tanja Kobylinski, Ioana Andreica, Kristina Vaupel, Xenofon Baraliakos and Jürgen Braun, Rheumazentrum Ruhrgebiet Herne, Ruhr-Universität Bochum, Herne, Germany
Background/Purpose: The market share of biosimilars (bsDMARDs) is steadily growing, not only in rheumatologic care. Although data on efficacy, efficiency and safety have been generated…
Abstract Number: 1157 • ACR Convergence 2021
Patient Perspective on the Non Medical Switch of Originator to Its Biosimilar in Inflammatory Arthritis Using a Social Media Survey
David Vega Morales¹, Alejandro Garza-Alpirez² and Carlos Andrés Díaz-Garza², ¹Hospital Universitario, Garcia, Mexico, ²Tecnologico de Monterrey, Escuela de Medicina y Ciencias de la Salud, San Pedro, Mexico
Background/Purpose: The use of biosimilars instead of its originator is a controversial subject with many implications. It is considered that a non medical switch should…
Abstract Number: 0107 • ACR Convergence 2021
Acceptability of the COVID-19 Vaccine in Patients with Rheumatic Diseases and Healthcare Professionals in 19 Arab Countries
Lina El Kibbi¹, Mona Metawee¹, Ihsane Hmamouchi², Nizar Abdulateef³, Hussein Halabi⁴, Mervat Eissa⁵, Manal El Rakawi⁶, Basel Masri⁷, Fatemah Abutiban⁸, Wafa Hamdi⁹, Asal Adnan³, Antonella Abi Najm¹⁰, Renaud Felten¹¹, Laurent Arnaud¹¹ and Nelly Ziade¹², ¹Specialized Medical Center, Riyadh, Saudi Arabia, ²Rheumatology Unit, Temara Hospital, Laboratory of Biostatistics, Clinical Research and Epidemiology (LBRCE), Faculty of Medicine and Pharmacy, Mohammed V University, Rabat, Morocco, ³Rheumatology Unit, Department of Medicine, College of Medicine, University of Baghdad, Baghdad, Iraq, ⁴King Faisal Specialist Hospital and Research Center, Jeddah, Saudi Arabia, ⁵Cairo University, Cairo, Egypt, Cairo, Egypt, ⁶Rheumatology Department, Douera Hospital, Faculty of Medicine, Saad Dahlab, Blida, Algeria, ⁷Jordan Hospital, Amman, Jordan, ⁸Rheumatology Unit, Department of Medicine, Jaber Alahmed Alsabah Hospital, Kuwait City, Kuwait, ⁹Rheumatology Department, Kassab Institute of Orthopedics, UR17SP04, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, Tunisia, ¹⁰Faculty of Medicine, Saint-Joseph University, Beirut, Lebanon, ¹¹Department of Rheumatology, French National Reference Center for Autoimmune Diseases (CRMR RESO), Strasbourg, France, ¹²Rheumatology Department, Saint-Joseph Medical University and Hotel-Dieu de France Hospital, Beirut, Lebanon
Background/Purpose: The first COVID-19 vaccines were authorized in December 2020. However, their acceptability remains debated and has never been evaluated in patients with chronic rheumatic…
Abstract Number: 1159 • ACR Convergence 2021
Improving Healthcare Transition Implementation: Recommendations from Young Patients with Rheumatic Conditions
Courtney Wells¹, Peter Chira², Dana Guglielmo³, Stacy Ardoin⁴, Katelyn Melcher⁵, Meghan Trimble⁶ and Kristine Carandang⁷, ¹University of Wisconsin-River Falls, White Bear Lake, MN, ²Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA, ³Student, Atlanta, GA, ⁴Nationwide Children's Hospital, Columbus, OH, ⁵Patient Partner, Ankeny, IA, ⁶Patient Partner, Minneapolis, MN, ⁷Independent, San Diego, CA
Background/Purpose: Implementation of structured healthcare transition processes remains elusive for most US rheumatology clinics (Johnson et al., 2021). Although research studies have proposed models and…

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