ACR Meeting Abstracts

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Abstracts tagged "education, patient"

  • Abstract Number: 0138 • ACR Convergence 2020

    Alignment and Discordances in Treatment Perceptions and Shared Decision-Making Among RA Patients and Rheumatology Care Teams

    Robert Levin1, Christopher Parker2, Kostas Botsoglou3, Jigar Shah4, Nimesh Dayal5, Kristina Fajardo6, Laura Simone6, Jeff Carter6 and Tamar Sapir6, 1University of South Florida, Clearwater, FL, 2Austin Diagnostic Clinic, Austin, TX, 3Rheumatology Center WNY, Buffalo, NY, 4Arthritis and Rheumatology Center of South Florida, Margate, FL, 5Arthritis Center of Orlando, Ocoee, FL, 6PRIME Education, LLC, Fort Lauderdale, FL

    Background/Purpose: Evidence-based guidelines for rheumatoid arthritis (RA) call for shared decision-making (SMD) as a method to personalize treatment decisions and achieve treat-to-target goals. We assessed alignment…
  • Abstract Number: 1700 • ACR Convergence 2020

    Curricular Implementation of the Rheumatic Disease Patient Expert Program: The Students’ Perspective

    Eleni Sophocleous1, Andri Phoka2 and Konstantinos Parperis3, 1University of Cyprus Medical school, Nicosia, Cyprus, 2Cyprus League Against Rheumatism, Nicosia, Cyprus, 3University of Cyprus Medical School, Nicosia, Nicosia, Cyprus

    Background/Purpose: Medical education can be enriched by embracing patient involvement so that students can learn about rheumatic diseases (RMD) from patient experts. Patient experts have…
  • Abstract Number: 0248 • ACR Convergence 2020

    Assessment of Lupus Knowledge Through Creation of the Lupus Knowledge Assessment Test (LKAT)

    Mithu Maheswaranathan1, Amanda Eudy1, Jayanth Doss1, Rebecca Sadun1, Lisa Criscione-Schreiber2, Kai Sun1, Stacy Bailey3, S. Nicole Hastings1, Megan Clowse4 and Jennifer Rogers5, 1Duke University, Durham, NC, 2Duke University School of Medicine, Durham, NC, 3Northwestern University, Chapel Hill, NC, 4Duke University, Chapel Hill, NC, 5Duke, Durham, NC

    Background/Purpose: Systemic lupus erythematosus (SLE) is an inherently complex disease to manage with heterogenous clinical manifestations and complicated medication regimens.  The complexity of lupus self-management…
  • Abstract Number: 1707 • ACR Convergence 2020

    Development and Delivery of Continuing Education Interventions Promoting Shared Decision Making in Rheumatoid Arthritis

    Richard Martin1, Marianna Shershneva2 and Lily Zurkovsky3, 1Michigan State University College of Human Medicine, Grand Rapids, MI, 2Senior Administrative Program Specialist, Office of Continuing Professional Development University of Wisconsin School of Medicine and Public Health, Madison, WI, 3Forefront Collaborative, Carmel, IN

    Background/Purpose: A core CMS policy goal is to improve patient experience by encouraging patient-centered care and shared decision making (SDM).  However, SDM techniques are underutilized…
  • Abstract Number: 0578 • ACR Convergence 2020

    Going Digital Due to COVID 19 Crisis: A Rapid Reorganisation of Medication Clinics

    Rian Penford1, Angela Reith1, Elaine Wren1 and Kirsten Mackay1, 1Torbay and South Devon NHS Foundation Trust, Torquay, United Kingdom

    Background/Purpose: Until the COVID 19 crisis we initiated DMARD(s) and Biologic therapies using shared medical clinics. More than 30 patients could seen per week, with…
  • Abstract Number: 1764 • ACR Convergence 2020

    Disease Modifying Anti-rheumatic Drug and Biologic Therapy in Pregnancy: A Single-center Mixed Methods Study

    Lauren Glick1, Justin Shamis2, Taneisha McGhie3 and Dharini Mahendira4, 1University of Toronto, Toronto, ON, Canada, 2North York General Hospital, Toronto, ON, Canada, 3Cornwall University Hospital, Kingston, Saint Andrew, Jamaica, 4University of Toronto - Toronto, Toronto, ON, Canada

    Background/Purpose: Rheumatic diseases including rheumatoid arthritis, seronegative inflammatory arthritis and systemic lupus erythematosus can be associated with significant morbidity in women of child-bearing age. Both…
  • Abstract Number: 0608 • ACR Convergence 2020

    Patient and Parent Perspectives in a Academic Pediatric Rheumatology Transition Clinic

    Rebecca Overbury1, Tracy Frech2, John Bohnsack3, CJ Inman1, Sara Stern1, Karen James1, Erin Treemarcki4 and Aimee Hersh4, 1University of Utah and Primary Children's Hospital, Salt Lake City, UT, 2University of Utah and Salt Lake Veterans Affair Medical Center, Salt Lake City, UT, 3University of Utah and Primary Children's Hospital, Cincinnati, OH, 4University of Utah and Primary Children's Hospital, Salt Lake City

    Background/Purpose: In November 2018 we initiated a transition clinic called ACCORD (Adult Center for Childhood Onset Rheumatic Disease). Our unique structure integrates an adult rheumatologist…
  • Abstract Number: 1978 • ACR Convergence 2020

    Prevalence and Factors Associated with Patient-Physician Discordance Among RA Patients Initiating Advanced Therapy

    Jeffrey Curtis1, Rose Medeiros2, I-Heng Lee3, Rachel Mackey4, Richard Haubrich3, Hao Hu5, Jeffrey Greenberg6 and Alicea Wu3, 1Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, AL, 2Corrona, LLC, Waltham, MA, 3Gilead Sciences, Foster City, CA, 4Corrona, LLC and University of Pittsburgh, Waltham, MA, 5Gilead Sciences, Inc., Foster City, CA, 6Corrona, LLC and NYU School of Medicine, Waltham, MA

    Background/Purpose: Some rheumatoid arthritis (RA) patients rate their disease activity worse than their physician does, but recent prevalence and factors associated with such discordance have…
  • Abstract Number: 0615 • ACR Convergence 2020

    Rheumatology Going Digital: Developing a Rheumatology App for Use by All Patients Attending Our Department to Aid Remote Working and Self-management

    Kirsten Mackay1, Mark Clemence1 and Rian Penford1, 1Torbay and South Devon NHS Foundation Trust, Torquay, United Kingdom

    Background/Purpose: Patients with a rheumatological condition require information regarding the disease itself and treatments regimes. This is particularly important for new patients.Our local patient focus…
  • Abstract Number: PP07 • ACR Convergence 2020

    Improving Communication with My Physician Drastically Improved My Health

    Whitney Carter1, 1Lupus and Allied Diseases Association, Inc., Pleasanton, CA

    Background/Purpose: In 2011, at the age of 14, I was sent to the emergency room with a platelet count of 19. The hematologist diagnosed me…
  • Abstract Number: 1132 • ACR Convergence 2020

    Reliability of Virtual Sources of Education for Patients with Vasculitis

    Patil Injean1, Kathleena D'Anna2, Lorena Salto3 and Mehrnaz Hojjati3, 1Loma Linda University Medical Center, Redlands, CA, 2Loma Linda University Medical Center, Moreno Valley, CA, 3Loma Linda University, Loma Linda

    Background/Purpose: Vasculitides are defined as inflammation of the vessel wall of different organ systems with reactive damage of mural structures. Patient education in understanding the…
  • Abstract Number: 1133 • ACR Convergence 2020

    Patient Perceptions of Diagnosis, Tests, Treatments, Adherence and the Impact on Their Disease Understanding and Participation in Research Studies

    Viviana Marzaioli1, Mary Canavan1, Siobhan Wade2, Alexander Fraser3, Sinead Harney4, Alex Donnelly5, Arthritis Ireland Charity6, Douglas Veale7 and Ursula Fearon1, 1Molecular Rheumatology, Trinity College Dublin, Dublin, Dublin, Ireland, 2Molecular Rheumatology, Trinity College Dublin, Dublin, Ireland, 3University College Limerick, Limerick, Limerick, Ireland, 4University College Cork, Cork, Ireland, 5Patient Advocate Arthritis Ireland, Dublin, Ireland, 6Arthritis Ireland, Dublin, Ireland, 7EULAR Centre for Arthritis and Rheumatic Diseases, St Vincents University Hospital, UCD, Dublin, Dublin, Ireland

    Background/Purpose: The diagnosis and treatment of inflammatory arthritis has been transformed largely by  the development of drugs that target specific molecules of the immune system.…
  • Abstract Number: 1142 • ACR Convergence 2020

    Implementation of an Evidence-based Transition Clinic in a Pediatric Rheumatology Academic Institution

    Rebecca Overbury1, Tracy Frech2, John Bohnsack3, CJ Inman1, Sara Stern1, Karen James1, Erin Treemarcki4 and Aimee Hersh4, 1University of Utah and Primary Children's Hospital, Salt Lake City, UT, 2University of Utah and Salt Lake Veterans Affair Medical Center, Salt Lake City, UT, 3University of Utah and Primary Children's Hospital, Cincinnati, OH, 4University of Utah and Primary Children's Hospital, Salt Lake City

    Background/Purpose: Transition from pediatric to adult rheumatology care is more likely to be successful if a transition program is in place. Previously successful interventions to…
  • Abstract Number: 1143 • ACR Convergence 2020

    The Influence of YouTube on Spreading Awareness and Patient Education Regarding Systemic Lupus Erythematosus

    Priyatha Garlapati1, Jasmeen Uppal1, Sarwat Umer2 and Samina Hayat2, 1LSU Shreveport, Shreveport, 2LSU Shreveport, Shreveport, LA

    Background/Purpose: A large global survey released by the World Lupus Federation showed that the awareness of SLE is low and many individuals have never heard…
  • Abstract Number: 1147 • ACR Convergence 2020

    Development of a Digital Toolkit to Improve Quality of Life of Patients with Systemic Lupus Erythematosus: A Pilot Study

    Jerik Leung1, Ashish Shrestha1, Jennifer Ra2, Laura Brennan3, Alfred Kim4 and Elizabeth Baker1, 1Saint Louis University, College for Public Health and Social Justice, St. Louis, 2Washington University School of Medicine, Lake Forest, CA, 3Transtria, St. Louis, 4Washington University School of Medicine, St. Louis, MO

    Background/Purpose: Individuals living with systemic lupus erythematosus (SLE) face a number of challenges in managing their condition. Initial interviews and community forums with SLE patients…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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