Abstracts tagged "Disparities"

Abstract Number: 1018 • ACR Convergence 2023
Recognizing Rural Healthcare Disparities in Pain Assessment for Autoimmune Rheumatologic Diseases
Lydia Yang¹, Bharat Kumar² and Melissa Swee¹, ¹University of Iowa Carver College of Medicine, Iowa City, IA, ²University of Iowa Hospitals and Clinics, Iowa City, IA
Background/Purpose: Pain is a common complaint seen in many autoimmune rheumatologic conditions, along with decreased function and decreased sense of well-being. Pain is a highly…
Abstract Number: 1616 • ACR Convergence 2023
Geographic and Demographic Representation in Industry-sponsored, US-based Clinical Trials of Systemic Lupus Erythematosus Therapies
Joshua Skydel¹, Reshma Ramachandran², Sakinah Suttiratana², Joseph Ross², Joshua Wallach³ and Christopher Burns⁴, ¹Dartmouth-Hitchcock Medical Center, Lebanon, NH, ²Yale University, New Haven, CT, ³Emory University, Atlanta, GA, ⁴Dartmouth Hitchcock Medical Center, Lebanon, NH
Background/Purpose: Clinical trials of systemic lupus erythematosus (SLE) therapies have increased over the last decade, driven by evolving knowledge of targetable pathways. However, these trials…
Abstract Number: 0189 • ACR Convergence 2023
Influence of Social Support on Systemic Lupus Erythematosus (SLE) Outcomes in a Health Disparity Population
Sarah Smith, Chloe Mattila, Lori Ann Ueberroth, L. Quinnette King, Diane L. Kamen, Paula Ramos and bethany wolf, Medical University of South Carolina, Charleston, SC
Background/Purpose: SLE disproportionately impacts African American women. Social support may have a positive impact in SLE and as such could potentially reduce disease burden. However,…
Abstract Number: 1019 • ACR Convergence 2023
Association of Historical Redlining and Present-Day Neighborhood Inequities with Missed Outpatient Appointments Among Individuals with Rheumatic Conditions
Sherry Yang¹, Leah Santacroce² and Candace Feldman², ¹Harvard Medical School, Boston, MA, ²Brigham and Women's Hospital, Boston, MA
Background/Purpose: Structural racism pervades U.S. history with continued effects on health inequities. Residential segregation serves as an example, where redlining maps outlined areas with high…
Abstract Number: 1624 • ACR Convergence 2023
Racial Disparities Impact Achieving LLDAS and Glucocorticoid Use in Pediatric Lupus: A CARRA Registry Study
William Soulsby¹, Rebecca Olveda¹, Jie He², Laura Berbert², Edie Weller², Kamil Barbour³, Kurt Greenlund³, Laura Schanberg⁴, Emily von scheven¹, Aimee Hersh⁵, Mary Beth Son⁶, Joyce Chang² and Andrea Knight⁷, ¹University of California San Francisco, San Francisco, CA, ²Boston Children's Hospital, Boston, MA, ³Centers for Disease Control and Prevention, Atlanta, GA, ⁴Duke University School of Medicine, Durham, NC, ⁵University of Utah, Salt Lake City, UT, ⁶Division of Immunology, Boston Children's Hospital, Boston, MA, ⁷The Hospital for Sick Children, Toronto, ON, Canada
Background/Purpose: Social determinants of health (SDoH) contribute to disparate outcomes in both adult and pediatric systemic lupus erythematosus (pSLE), including length of hospitalization, mortality, and…
Abstract Number: 0190 • ACR Convergence 2023
Racial Disparities in Self-reported Extent and Reasons for Nonadherence in SLE
Kai Sun¹, Londyn Robinson², Amanda Eudy³, Jennifer Rogers¹, Rebecca Sadun¹, Lisa Criscione-Schreiber⁴, Jayanth Doss¹ and Megan Clowse⁵, ¹Duke University, Durham, NC, ²University of Minnesota Medical School, Minneapolis, MN, ³Duke University, Raleigh, NC, ⁴Duke University School of Medicine, Durham, NC, ⁵Duke University, Chapel Hill, NC
Background/Purpose: Medication nonadherence is common in SLE and disproportionately affects Black patients. Nonadherence leads to increased hospitalizations, morbidity, and mortality and is a modifiable factor…
Abstract Number: 1021 • ACR Convergence 2023
Racial Disparities Between Black and White Patients in Joint Replacement Surgery: A Systematic Review
Max Krall¹, Samuel Good¹, Collin Brantner², Diyu Pearce-Fisher², Susan Goodman², Michael Parks², Peter Sculco², Cynthia Kahlenberg², Ajay Premkumar², Michelle Demetres³ and John FitzGerald¹, ¹University of California Los Angeles, Los Angeles, CA, ²Hospital for Special Surgery, New York, NY, ³Weill Cornell Medicine, New York, NY
Background/Purpose: Despite the documented efficacy of joint replacement surgery (JRS) for the management of refractory hip or knee osteoarthritis (OA), multiple studies have documented lower…
Abstract Number: 1684 • ACR Convergence 2023
The Impact of Pregnancy Timing on Outcomes in SLE
Catherine Sims¹, Amanda Eudy², Ceshae Harding¹, Cuoghi Edens³, Mehret Birru Talabi⁴, Rosalind Ramsey-Goldman⁵, Laura Neil¹ and Megan Clowse⁶, ¹Duke University, Durham, NC, ²Duke University, Raleigh, NC, ³University of Chicago, Chicago, IL, ⁴University of Pittsburgh, Pittsburgh, PA, ⁵Northwestern University, Chicago, IL, ⁶Duke University, Chapel Hill, NC
Background/Purpose: To minimize risk of poor pregnancy outcomes, the ACR Reproductive Health Guideline recommends women conceive when SLE is well controlled and treated with pregnancy-compatible…
Abstract Number: 025 • 2023 Pediatric Rheumatology Symposium
Patient- and Center-level Risk Factors for Research Lost to Follow-up Using the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry
Monica Aswani, Livie Huie, Kristine Hearld, Melissa Mannion and Emily Smitherman, University of Alabama at Birmingham, Birmingham, AL
Background/Purpose: Clinical registries are typically envisioned to be representative of a target patient population and reflective of health care delivery practices for said population. Variation…
Abstract Number: 085 • 2023 Pediatric Rheumatology Symposium
Identification of Barriers to Care Experienced by Children with Rheumatic Disease: A Qualitative Study
Olivia Kwan¹, Gloria Garcia², Kiana Johnson³, Melissa Oliver¹, Stacey Tarvin⁴, Alvaro Tori¹, Brandi Stevens¹ and Martha Rodriguez⁴, ¹Indiana University, Indianapolis, IN, ²Indiana University School of Medicine, Indianapolis, IN, ³East Tennessee State University, Johnson City, TN, ⁴Riley Hospital for Children at Indiana University Health, Indianapolis, IN
Background/Purpose: Pediatric rheumatic diseases are known to have disparities in disease outcomes, but many drivers of these inequities are unknown. Social determinants of health are…
Abstract Number: 137 • 2023 Pediatric Rheumatology Symposium
Geographic Mapping of Adolescents with Rheumatic Disease: Racial and Ethnic Diversity by Texas County
Kristina Ciaglia¹, Chan-hee Jo², Yuhan Ma², Tracey Wright³ and Lorien Nassi¹, ¹University of Texas Southwestern, Dallas, TX, ²Scottish Rite Hospital for Children, Dallas, TX, ³University of Texas Southwestern, Scottish Rite Hospital for Children, Dallas, TX
Background/Purpose: Rheumatic disease disproportionately impacts specific racial and ethnic groups frequently, resulting in health care inequities. Health care disparities are prevalent within certain geographic areas…
Abstract Number: 014 • 2023 Pediatric Rheumatology Symposium
Characterizing Lupus in African American Children in Southern United States
Anita Dhanrajani¹, Taylor Long¹, Spencer Hagwood², Leslie Johnson¹ and Cynthia Karlson¹, ¹University of Mississipi Medical Center, Jackson, MS, ²University of Mississipi Medical Center School of Medicine, Jackson, MS
Background/Purpose: African-American (AA) ethnicity is a known predisposing factor for childhood onset systemic lupus erythematosus (cSLE) and a predictor of poor outcomes. In addition to…
Abstract Number: L09 • ACR Convergence 2022
Impact on Access to Methotrexate in the Post-Roe Era
Kristin Wipfler¹, Adam Cornish¹, Rebecca Schumacher², Yomei Shaw³, Patricia Katz⁴ and Kaleb Michaud⁵, ¹FORWARD, The National Databank for Rheumatic Diseases, Omaha, NE, ²FORWARD, The National Databank for Rheumatic Diseases, Wichita, KS, ³FORWARD, The National Databank for Rheumatic Diseases, Santa Fe, NM, ⁴UCSF, San Rafael, CA, ⁵University of Nebraska Medical Center, Omaha, NE
Background/Purpose: Methotrexate is the first line therapy for RA and is used to treat several other rheumatic and non-rheumatic disorders. In high doses, it can…
Abstract Number: 0092 • ACR Convergence 2022
Characterizing Levels of Specialist Care Received by Patients with Systemic Lupus Erythematosus: Clinical Characteristics, Emergency Care, Hospitalization, and Costs Among Commercially-insured Adults in the United States
Sandra Sze-jung Wu¹, Allison Perry², Helen Varker³, Christine Dube¹ and Gary Bryant⁴, ¹AstraZeneca, Wilmington, DE, ²IBM Watson Health, Cambridge, MA, ³Merative, Cambridge, MA, ⁴AstraZeneca, New Castle, DE
Background/Purpose: Heterogeneous SLE manifestations can delay referral and diagnosis by a rheumatologist (rheum) in as many as 75% of patients (pts) with SLE.1 After diagnosis,…
Abstract Number: 0116 • ACR Convergence 2022
Racial Differences in Medication Beliefs and Barriers to Taking Medications Among Patients with SLE
Emilio Guzman Cisneros¹, Shannon Herndon¹, Theresa Coles², Corrine Voils³, Megan Clowse⁴, Rebecca Sadun⁴, Jennifer Rogers⁵, Lisa Criscione-Schreiber², Jayanth Doss⁴, Amanda Eudy⁶ and Kai Sun⁴, ¹Duke University Hospital, Durham, NC, ²Duke University School of Medicine, Durham, NC, ³University of Wisconsin School of Medicine and Public Health, Madison, WI, ⁴Duke University, Durham, NC, ⁵Duke, Durham, NC, ⁶Duke University, Raleigh, NC
Background/Purpose: Medication adherence is critical for SLE management and can be influenced by patients' barriers and beliefs about treatment. Patients of color with SLE have…

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