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Abstract Number: 1237

The Art of Choosing Together: Unveiling the Patient’s Perspective in Rheumatology

ADRIANA VANEGAS1, Guillermo Quiceno2, Luis Lira3, Gina Ochoa4, Álvaro Arbeláez-Cortés5, Mauricio Restrepo-Escobar6 and Virginia Pascual Ramos7, 1HOSPITAL SAN VICENTE FUNDACION - UNIVERSIDAD DE ANTIOQUIA - Asociación Colombiana de Reumatología (ASOREUMA), MEDELLIN, Colombia, 2University of Tennessee Graduate School of Medicine, Dallas, TX, 3Sociedad Chilena de Reumatología, Santiago, Chile, 4Fundación LICAR, Barranquilla, Colombia, 5Clínica IMBANACO, Cali, Colombia, 6Universidad de Antioquia, Retiro, Colombia, 7Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran, Mexico City, Federal District, Mexico

Meeting: ACR Convergence 2024

Keywords: Decision analysis, education, patient, ethics, Patient reported outcomes, Surveys

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Session Information

Date: Sunday, November 17, 2024

Title: Patient Outcomes, Preferences, & Attitudes Poster II

Session Type: Poster Session B

Session Time: 10:30AM-12:30PM

Background/Purpose: Scientific evidence supports that shared decision-making (SDM) can improve adherence to treatment, patient satisfaction, quality of life, clinical outcomes, and healthcare costs. However, challenges persist in implementing SDM in clinical practice. This study aims to evaluate and compare the perception of Latin American patients and rheumatologists on SDM.

Methods: In a cross-sectional study, patients over 18 with chronic rheumatic diseases and Spanish-speaking rheumatologists completed the SDM-Q-9 survey. Convenience sampling was used, and the survey was distributed via Colombian Rheumatology Association (AsoReuma), Pan-American League of Associations in Rheumatology (PANLAR), and active Latin American patient associations. Responses were scored from 1 to 6 to gauge agreement with nine statements. Additionally, the perception of SDM in clinical practice was rated from 0 to 3. Descriptive statistics were used to summarize the dataset. The Chi-square test was applied to assess differences between groups, considering a p-value of < 0.05 indicative of statistical significance.

Results: The survey collected responses from 369 patients across 17 Latin American countries, predominantly female (76.4%), with a median age of 40. The majority were diagnosed with systemic lupus erythematosus (51.8%), followed by rheumatoid arthritis (19.5%) (table). Additionally, 144 rheumatologists from 10 Latin American countries participated, predominantly male (67%), with a median age of 44. A statistically significant difference was found between the perceptions of rheumatologists and patients in the clinical setting (Image 1). While nearly all rheumatologists (96.5%) considered that decision-making is shared with patients, more than one-third of patients (37.7%) did not share this view (Image 2).

Conclusion: The study identifies a significant difference between patients and rheumatologists’ perceptions of SDM in healthcare settings. Although physicians provide comprehensive information on the risks and benefits of treatments, a smaller proportion of patients perceive that their understanding and involvement in treatment choices are thoroughly incorporated. This highlights a prevalent opportunity for enhancement across various components constituting SDM, such as treatment choice, participation in the decision-making process, understanding of the benefits and risks of the selected therapies, comprehension of the information provided, individual patient preferences, evaluation of therapeutic alternatives, collaborative selection of treatment, and consensus on the course of action to follow.

Supporting image 1

Table. Diagnosis of the patients. a ANCA: antibodies against neutrophil cytoplasm such as granulomatosis with polyangiitis, microscopic polyangiitis, and eosinophilic granulomatosis with polyangiitis. b Inflammatory myopathies (2), mixed connective tissue disease (2), reactive arthritis (2), and adult-onset Still’s disease (1).

Supporting image 2

Image 1. SDM-9-Q responses of patients compared to rheumatologists

Supporting image 3

Image 2. Comparison of Shared Decision-Making in Rheumatology


Disclosures: A. VANEGAS: None; G. Quiceno: None; L. Lira: None; G. Ochoa: None; Á. Arbeláez-Cortés: None; M. Restrepo-Escobar: None; V. Pascual Ramos: None.

To cite this abstract in AMA style:

VANEGAS A, Quiceno G, Lira L, Ochoa G, Arbeláez-Cortés Á, Restrepo-Escobar M, Pascual Ramos V. The Art of Choosing Together: Unveiling the Patient’s Perspective in Rheumatology [abstract]. Arthritis Rheumatol. 2024; 76 (suppl 9). https://acrabstracts.org/abstract/the-art-of-choosing-together-unveiling-the-patients-perspective-in-rheumatology/. Accessed .
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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