Abstracts tagged "Transition"

Abstract Number: 0657 • ACR Convergence 2021
Assessing Patient Transition Outcomes from a Large Pediatric Rheumatology Center to Adult Healthcare
Mary Robichaux¹, Bernard Danna², Monique Maher², David McDonald¹, Kristiana Nasto¹, Alexander Alexander¹, Ariel Coleman³, Danielle Guffey¹ and Tiphanie Vogel¹, ¹Baylor College of Medicine, Houston, TX, ²Baylor College of Medicine, Texas Children's Hospital, Houston, TX, ³Texas Children's Hospital, Houston, TX
Background/Purpose: Transitioning children with chronic diseases from pediatric to adult healthcare can be a challenging task, with high morbidity and mortality. In response, we have…
Abstract Number: 1798 • ACR Convergence 2021
The Transition to Psoriatic Arthritis: What Factors Predict a Shorter Transition from Psoriasis to Psoriatic Arthritis?
Shashank Cheemalavagu¹, Yuxuan Jin² and Elaine Husni², ¹Cleveland Clinic Foundation, Cleveland, OH, ²Cleveland Clinic, Cleveland, OH
Background/Purpose: Psoriatic arthritis (PsA) occurs in up to 30% of patients with psoriasis (PsO), and usually follows the development of PsO by an average of…
Abstract Number: 193 • 2020 Pediatric Rheumatology Symposium
Examining Social Loafing and the Free-Rider Effect in Transition Readiness Among Youth with jSLE
Kiana Johnson¹, Anna Richmond ² and Kathleen O'Neil ³, ¹East Tennessee State University, Johnson City, ²Nashville, ³University of Indiana School of Medicine, Indianapolis, Indiana
Background/Purpose: Especially important in the transition process is the role of the providers and parents and providers shifting from that of a manager of health…
Abstract Number: 039 • 2020 Pediatric Rheumatology Symposium
Assessing Patient Self-Reported Transition Readiness in a Large Pediatric Rheumatology Center
Priyanka Moolchandani ¹, Alexander Alexander ¹, Cristina Saez ¹, JaLeen Rogers ², Ariel Coleman ², Anne Dykes ², Miriah Gillispie-Taylor ³ and Tiphanie Vogel¹, ¹Baylor College of Medicine, Houston, ²Texas Children's Hospital, Houston, ³Levine Children's Hospital, Charlotte
Background/Purpose: Patients with childhood-onset rheumatologic diseases live well into adulthood and need effective transition from pediatric to adult medical providers. Fortunately, predictors of successful transition…
Abstract Number: 057 • 2020 Pediatric Rheumatology Symposium
Transition from Pediatric to Adult Rheumatology: The Clinician as a Fundamental Ally
Teresa Semalulu ¹, Karen Beattie ¹, Jeanine McColl ¹, Arzoo Alam ², Steffy Thomas ¹, Julie Herrington ³, Jan Willem Gorter ¹, Tania Cellucci ¹, Stephanie Garner ¹, Liane Heale ⁴, Mark Matsos ¹ and Michelle Batthish¹, ¹McMaster University, Hamilton, Canada, ²McMaster University, Mississauga, Canada, ³Hamilton, Canada, ⁴McMaster University, Toronto, Canada
Background/Purpose: The transition from pediatric to adult rheumatology is linked to poor outcomes in the absence of comprehensive transition programs. Several tools are available to…
Abstract Number: 083 • 2020 Pediatric Rheumatology Symposium
Worsening Disease Activity and Inability to Taper Corticosteroids in an Ethnically Diverse Cohort of Pediatric-Onset Lupus Patients After Transition to Adult Care
Marla Guzman¹, Anne Eberhard ¹ and Joyce Hui-Yuen ², ¹Cohen Children's Medical Center, Lake Success, ²Cohen Children's Medical Center, New Hyde Park
Background/Purpose: Transition of pediatric lupus (pSLE) patients from pediatric to adult rheumatology care is historically difficult and challenging. We aim to investigate disease activity and…
Abstract Number: 159 • 2020 Pediatric Rheumatology Symposium
Interleukin-18 as a Key Cytokine to Understand Pathology and to Decide Appropriate Therapeutic Strategy in Chronic Arthritic Systemic Juvenile Idiopathic Arthritis
Takako Miyamae¹, Yumi Tani ¹, Manabu Kawamoto ², Takayuki Kishi ³ and Masayoshi Harigai ², ¹Pediatric Rheumatology, Institute of Rheumatology, Tokyo Women's Medical University, Tokyo, Japan, ²Institute of Rheumatology, Tokyo Women's Medical University, TOKYO, Japan, ³Department of Pediatrics, Tokyo Women's Medical University, Tokyo, Japan
Background/Purpose: Long-term outcomes of systemic JIA are highly variable. approximately half of the patients have chronic persistent arthritis requiring extended anti-inflammatory therapy, sometimes into adulthood.…
Abstract Number: 170 • 2020 Pediatric Rheumatology Symposium
Clinical Team Perspectives on the Transition from Pediatric to Adult Care for Patients with Childhood-Onset SLE
Nicole Bitencourt¹, Justin Kramer ², Bonnie Bermas ³, Elizabeth Solow ², Tracey Wright ² and Una Makris ², ¹UT Southwestern Medical Center, Dallas, Texas, ²UT Southwestern Medical Center, Dallas, ³UTSouthwestern Medical Center, Dallas
Background/Purpose: The transition from pediatric to adult care for youth with chronic disease is known to be a vulnerable period, with adverse outcomes described for…
Abstract Number: 181 • 2020 Pediatric Rheumatology Symposium
Health Care Professionals and Transition to Adulthood for Youth with Juvenile Idiopathic Arthritis
Sabrina Cavallo¹, ¹University of Montreal, Montreal, Canada
Background/Purpose: The transition to adulthood for young people with juvenile idiopathic arthritis (JIA) can be difficult and lead to undesirable outcomes in terms of socio-professional…
Abstract Number: 182 • 2020 Pediatric Rheumatology Symposium
Needs of Youth with Juvenile Idiopathic Arthritis During the Transition to Adulthood
Sabrina Cavallo¹, ¹University of Montreal, Montreal, Canada
Background/Purpose: The transition to adulthood for young people with juvenile idiopathic arthritis (JIA) may be a difficult period with challenges in socio-professional integration and in…
Abstract Number: 187 • 2020 Pediatric Rheumatology Symposium
Perspectives of Adolescents and Young Adults Around Implementing Rheumatology Healthcare Transition: Preliminary Qualitative Findings
Kristine Carandang¹, Courtney Wells ² and Peter Chiraseveenuprapund ³, ¹University of California, San Diego, San Diego, ²St Paul, ³University of California - San Diego, San Diego
Background/Purpose: Nationwide initiatives call for improved healthcare services that empower adolescents to become independent in their health management and remain engaged in healthcare through young…
Abstract Number: 1127 • 2019 ACR/ARP Annual Meeting
Interventions to Improve Time to Appointment and Outcome Variables in the Pediatric to Adult Transition of Care in Rheumatology
Nicole Bitencourt¹, Una Makris ², Bonnie Bermas ³, Tracey Wright ⁴ and Elizabeth Solow ⁵, ¹UT Southwestern Medical Center, Dallas, ²UT Southwestern Medical Center and Dallas VA Medical Center, Dallas, ³UT Southwestern, Dallas, ⁴University of Texas Southwestern, Texas Scottish Rite Hospital for Children, Children's Health, Dallas, TX, ⁵UT Southwestern Medical Center, Dallas, TX
Background/Purpose: The transition from pediatric to adult care is a vulnerable period, in which poor health outcomes are reported amongst youth transferring to adult care.…
Abstract Number: 1189 • 2019 ACR/ARP Annual Meeting
Baylor Rheumatology Initiative: Developing and Guiding Engagement (BRIDGE) Transition Pathway Creation and Implementation
Priyanka Moolchandani¹, Cristina Saez ¹, Marietta DeGuzman ¹, Eyal Muscal ¹, Andrea Ramirez ¹, Anna Carmela Sagcal-Gironella ¹, Saimun Singla ¹, Amanda Brown ¹, Monica Marcus ¹, Martha Curry ¹, Maria Pereira ¹, M. Brad Nelson ¹, Pooja Patel ¹, W. Blaine Lapin ¹, Jennifer Rammel ¹, LeeGee Huang ², Blanca Sanchez-Fournier ², JaLeen Rogers ², Ariel Washington ², Anne Dykes ², Miriah Gillispie-Taylor ¹ and Tiphanie Vogel ¹, ¹Baylor College of Medicine, Houston, TX, ²Texas Children's Hospital, Houston, TX
Background/Purpose: Patients with pediatric rheumatologic diseases live well into adulthood, necessitating transition from pediatric to adult medical providers. GotTransition.org details 6 core elements clinicians can…
Abstract Number: 1726 • 2019 ACR/ARP Annual Meeting
Disease Activity and Health Care Utilization Among Young Adults with Childhood-onset Lupus Transitioning to Adult Care: Follow-Up Data from the Pediatric Lupus Outcomes Study
Sara Haro¹, Erica Lawson ² and Aimee Hersh ³, ¹University of California San Francisco, San Francisco, CA, ²University of California San Francisco Benioff Children’s Hospital, San Francisco, CA, ³University of Utah, Salt Lake City, UT
Background/Purpose: Individuals with childhood-onset systemic lupus erythematosus (cSLE) must transfer from pediatric to adult health care as they enter adulthood. Previous analyses of the Pediatric…
Abstract Number: 1727 • 2019 ACR/ARP Annual Meeting
Worsening Disease Activity and Inability to Taper Corticosteroids in an Ethnically Diverse Cohort of Pediatric-Onset Lupus Patients After Transition to Adult Care
Marla Guzman¹, B.Anne Eberhard ¹ and Joyce Hui-Yuen ¹, ¹Cohen Children's Medical Center, New Hyde Park, NY
Background/Purpose: Transition of pediatric lupus (pSLE) patients from pediatric to adult rheumatology care is historically difficult and challenging. Although our division routinely assesses for transition…

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