ACR Meeting Abstracts

ACR Meeting Abstracts

  • Home
  • Meetings Archive
    • ACR Convergence 2021
    • ACR Convergence 2020
    • 2020 ACR/ARP PRSYM
    • 2019 ACR/ARP Annual Meeting
    • 2018 ACR/ARHP Annual Meeting
    • 2017 ACR/ARHP Annual Meeting
    • 2017 ACR/ARHP PRSYM
    • 2016-2009 Meetings
    • Download Abstracts
  • Keyword Index
  • Advanced Search
  • Your Favorites
    • Favorites
    • Login
    • View and print all favorites
    • Clear all your favorites
  • Meeting Resource Center

Abstract Number: 039

Assessing Patient Self-Reported Transition Readiness in a Large Pediatric Rheumatology Center

Priyanka Moolchandani 1, Alexander Alexander 1, Cristina Saez 1, JaLeen Rogers 2, Ariel Coleman 2, Anne Dykes 2, Miriah Gillispie-Taylor 3 and Tiphanie Vogel1, 1Baylor College of Medicine, Houston, 2Texas Children's Hospital, Houston, 3Levine Children's Hospital, Charlotte

Meeting: 2020 Pediatric Rheumatology Symposium

Keywords: quality improvement, survey, Transition

  • Tweet
  • Email
  • Print
Session Information

The 2020 Pediatric Rheumatology Symposium, originally scheduled for April 29 – May 2, was postponed due to COVID-19; therefore, abstracts were not presented as scheduled.

Date: Friday, May 1, 2020

Session Title: Poster Breakout 6 – Patient Experience & Care Optimization

Session Type: Poster Breakout Session

Session Time: 4:30PM-5:00PM

Background/Purpose: Patients with childhood-onset rheumatologic diseases live well into adulthood and need effective transition from pediatric to adult medical providers. Fortunately, predictors of successful transition have been identified; using these to modify behaviors may increase transition success. Providers in the Texas Children’s Hospital (TCH) rheumatology clinic have developed a transition pathway, the BRIDGE (Baylor Rheumatology Initiative: Developing and Guiding Engagement), which includes use of an electronic medical record-based transition planning tool (TPT) to help with transition preparation. We assessed our ability to gauge patient self-reported transition readiness.

Methods: The validated, self-administered Adolescent Assessment of Preparation for Transition (ADAPT) survey generates 3 composite scores (out of 100) for counseling on transition self-management and prescription medications, and on transfer planning. Return adolescent patients aged 14-19 years were identified on the schedule at all 6 clinic locations regardless of diagnosis. An ADAPT survey was sent by email (English or Spanish) via a REDCap database on the morning of appointments between August-December 2018 and November-December 2019. Coordinators were generally present to assist patients with surveys. Surveys were scored and analyzed against demographic data.

Results: 749 patients received ADAPT surveys, 271 patients completed at least 1. Most respondents were 15-18 years old (84%), female (69%), and white (68%); 42% were Hispanic. English was used for 79% of surveys and 19% were in Spanish. Most patients were privately insured (56%) or covered by Medicaid/Children’s Health Insurance Program (39%). Survey respondents predominantly had juvenile arthritis (33%) and lupus (21%). Average initial ADAPT scores for all respondents were highest in counseling on prescription medication (64/100) and lower in counseling on transition self-management (34/100) and transfer planning (16/100). ADAPT scores increased with age, with the oldest patients (19 years) achieving the highest average scores on self-management (75/100), medications (82/100), and transfer planning (50/100). Average scores did not vary by age at diagnosis. 26 respondents replied to at least 2 surveys. Most of these respondents achieved the same or better scores on subsequent surveys. Average scores for each component were higher on subsequent surveys than on initial surveys: self-management (34/100 to 63/100), prescription medications (64/100 to 75/100), and transfer planning (16/100 to 41/100).

Conclusion: Patients with childhood-onset rheumatologic diseases need effective healthcare transitions to adult care. TCH rheumatology clinic has developed a transition pathway and is using a TPT to prepare patients for transition. We have developed a method to assess patient self-reported transition readiness. Participating patients have shown improvement over time in all domains measured by the ADAPT survey. Future directions include correlating outcomes to survey scores as patients transition care. Our ultimate goal is to create a sustainable and successful BRIDGE between pediatric and adult rheumatology care.


Disclosure: P. Moolchandani, None; A. Alexander, None; C. Saez, None; J. Rogers, None; A. Coleman, None; A. Dykes, None; M. Gillispie-Taylor, None; T. Vogel, None.

To cite this abstract in AMA style:

Moolchandani P, Alexander A, Saez C, Rogers J, Coleman A, Dykes A, Gillispie-Taylor M, Vogel T. Assessing Patient Self-Reported Transition Readiness in a Large Pediatric Rheumatology Center [abstract]. Arthritis Rheumatol. 2020; 72 (suppl 4). https://acrabstracts.org/abstract/assessing-patient-self-reported-transition-readiness-in-a-large-pediatric-rheumatology-center/. Accessed July 4, 2022.
  • Tweet
  • Email
  • Print

« Back to 2020 Pediatric Rheumatology Symposium

ACR Meeting Abstracts - https://acrabstracts.org/abstract/assessing-patient-self-reported-transition-readiness-in-a-large-pediatric-rheumatology-center/

Advanced Search

Your Favorites

You can save and print a list of your favorite abstracts during your browser session by clicking the “Favorite” button at the bottom of any abstract. View your favorites »

ACR Pediatric Rheumatology Symposium 2020

© COPYRIGHT 2022 AMERICAN COLLEGE OF RHEUMATOLOGY

Wiley

  • Home
  • Meetings Archive
  • Advanced Search
  • Meeting Resource Center
  • Online Journal
  • Privacy Policy
  • Permissions Policies