Abstracts tagged "Social support"

Abstract Number: 1232 • ACR Convergence 2025
Does Social Support Reduce Bodily Pain among African American Women with SLE?: Findings from a Randomized Controlled Trial
Jerik Leung¹, Tomika Caldwell², Paul Nietert³, Clara Dismuke⁴, Hetlena Johnson⁵, Edith Williams⁶ and Everette Keller³, ¹Emory University, Rollins School of Public Health, Atlanta, GA, ²Medical University of Souty Carolina, Charleston, ³Medical University of South Carolina, Charleston, SC, ⁴VA Palo Alto Health Care System, Menlo Park, ⁵Lupus Community Advocate/Researcher, Columbia, SC, ⁶University of Rochester Medical Center, Rochester, NY
Background/Purpose: Peer mentoring has been shown to be an effective intervention for chronic conditions with evidence to suggest that it might improve health related bodily…
Abstract Number: 1218 • ACR Convergence 2025
Social Determinants Shape Health Outcomes in Idiopathic Inflammatory Myopathies: Insights from Lived Experience of 1,252 Patients
Tsvetelina Velikova¹, Kostadin Kostadinov², Emilia Naseva³, Tamar Rubinstein⁴, Manali Sarkar⁵, Lavanya Mangla⁶, Joanna Makowska⁷, Raphael Micheroli⁸, Leandro ferreryra⁹, Linda Kobert¹⁰, Ioannis Parodis¹¹, Elena Nikiphorou¹², Samuel Shinjo¹³, Carlo Vinicio Caballero Uribe¹⁴, Vincenzo Venerito¹⁵, Vikas Agarwal¹⁶ and Latika Gupta¹⁷, ¹Medical Faculty, Sofia University St. Kliment Ohridski, Sofia, Bulgaria, ²Department of Social Medicine and Public Health, Faculty of Public Health, Medical University, Plovdiv; Health and Quality of Life in a Green and Sustainable Environment Research Group, Strategic Research and Innovation Program for the Development of MU- Plovdiv, Medical University of Plovdiv, Environmental Health Division, Research Institute at Medical University of Plovdiv, Medical University of Plovdiv,, Plovdiv, Bulgaria, ³Faculty of Public Health, Medical University of Sofia, ¹⁵ Acad. Ivan Evstratiev Geshov, ¹⁶⁰⁶ Sofia; Medical Faculty, Sofia University St. Kliment Ohridski, Sofia, Bulgaria, ⁴Albert Einstein College of Medicine, White Plains, NY, ⁵Sir H. N. Reliance Foundation Hospital and Research Centre, Mumbai, Maharashtra, India., Mumbai, Maharashtra, India, ⁶Maulana Azad Medical College, ²-Bahadurshah Zafar Marg, New Delhi, New Delhi, India, ⁷Department of Rheumatology, Medical University of Lodz, Lodz, Poland, ⁸University Hospital Zurich, Zurich, Switzerland, ⁹HIBA, CABA, Ciudad Autonoma de Buenos Aires, Argentina, ¹⁰The Myositis Association, Columbia, MD, ¹¹Karolinska Institutet and Karolinska University Hospital, Department of Medicine Solna, Division of Rheumatology, Stockholm, Sweden, ¹²King's College London, London, United Kingdom, ¹³Division of Rheumatology, Faculdade de Medicina FMUSP, Universidade de Sao Paulo, Sao Paulo, SP, Brazil, Sao Paulo, Brazil, ¹⁴Department of Medicine, Hospital Universidad del Norte, Barranquilla, Atlantico, Colombi, Barranquilla, Colombia, ¹⁵Univeristy of Bari "Aldo Moro", Italy, Bari, Bari, Italy, ¹⁶Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, Uttar Pradesh, India, ¹⁷School of Infection, Inflammation and Immunology, College of Medicine and Health, University of Birmingham; Royal Wolverhampton NHS Trust; Centre for Musculoskeletal Research, School of Biological Sciences, The University of Manchester, Manchester; Francis Crick Institute, London, Birmingham, UK, United Kingdom
Background/Purpose: The impact of social determinants of health (SDoH)—including socioeconomic status, social support, and geographic context—on disease outcomes in idiopathic inflammatory myopathies (IIM) remains underexplored.…
Abstract Number: 2565 • ACR Convergence 2025
Assessing Participation in the Lupus Sister Circle Support Group
Khadija Dantata, Wendy Rodgers and Lety Ocana, The Lupus Foundation of America, Washington, DC
Background/Purpose: Relative to White people with lupus (PWL), Black/African American (B/AA) PWL are three times as likely to develop lupus and suffer a severe form…
Abstract Number: 2547 • ACR Convergence 2025
Assessing the Reach of a Virtual Education Program: Lupus & You: Answers. Advocacy. Action.
Ashley Holden, Wendy Rodgers, Khadija Dantata, Lety Ocana and Guadalupe Patino, The Lupus Foundation of America, Washington, DC
Background/Purpose: Comprehensive lupus education is essential for increasing awareness, early diagnosis and management of lupus due to the disease’s heterogenous nature. The Lupus Foundation of…
Abstract Number: 1708 • ACR Convergence 2025
Assessing Social Determinants of Health Using PRAPARE in a Rheumatology Patient Navigator Program for Underserved Brooklyn Communities
Meenakshi Kurup¹, Jasmine Pak², Alyssa Carlson², Beylul Negassi², Callie Sacks², Ettiman Kaur², Fanyu Hercules-Tawe², Gabriel Cruz², Julia Fisher², Grace Shadid², Hadar Shimshon², Maria Botero Pinzon², Naureen Kabani², Sharon Glick² and Ellen Ginzler³, ¹SUNY Downstate Health Sciences University, Brooklyn, NY, ²SUNY Downstate Health Sciences University, Brooklyn, ³SUNY Downstate Health Sciences University, New York, NY
Background/Purpose: Social determinants of health (SDoH) contribute significantly to disparities in care but are rarely addressed in subspecialty settings. The PRAPARE (Protocol for Responding to…
Abstract Number: 1638 • ACR Convergence 2025
Comparison and Assessment of the All of Us Dataset for Epidemiologic Studies of Systemic Lupus Erythematosus (SLE) Among African American Women
Katherine Singleton¹, Sarah Smith², Charmayne Dunlop-Thomas³, L. Quinnette King², Lori Ann Ueberroth⁴, Edith Williams⁵, S. Sam Lim⁶, Bethany Wolf², Diane Kamen⁷ and Paula Ramos⁶, ¹Emory University School of Medicine, Atlants, GA, ²Medical University of South Carolina, Charleston, SC, ³Emory University, Atlanta, GA, ⁴Medical University of South Carolina, Charleston, ⁵University of Rochester Medical Center, Rochester, NY, ⁶Emory University School of Medicine, Atlanta, GA, ⁷Medical University of South Carolina, Johns Island, SC
Background/Purpose: Health disparities in SLE are well established, with African American women being disproportionately impacted. Despite the known associations between sociodemographic and genetic factors with…
Abstract Number: 1470 • ACR Convergence 2025
Why Do Some Lupus Patients Skip Their Mycophenolate Mofetil? A Multi-Factorial Assessment of Patient Compliance
Nidaa Bukhari¹, Ali Rizvi¹, Jian sun¹, Zerai Manna², Paul Schaughency³, Suraj Rajasimhan⁴ and Sarfaraz Hasni¹, ¹National Institutes of Health, BETHESDA, MD, ²NIH, Bethesda, MD, ³NIAID, NIH, Bethesda, MD, ⁴National Institutes of Health, Columbia, MD
Background/Purpose: Nonadherence to medication is a significant confounder in assessing treatment efficacy for systemic lupus erythematosus (SLE), with rates reported up to 75% depending on…
Abstract Number: 0188 • ACR Convergence 2024
Social Support in African American Women with and Without Systemic Lupus Erythematosus (SLE)
Sarah Smith¹, Chloe Mattila¹, Charmayne M. Dunlop-Thomas², Lusawasra King³, Lori Ann Ueberroth³, Edith Williams⁴, S. Sam Lim⁵, Diane Kamen³, Bethany Wolf³ and Paula Ramos³, ¹Medical University of South Carolina, Charleston, ²Emory University School of Medicine, Department of Medicine, Division of Rheumatology, Atlanta, GA, ³Medical University of South Carolina, Charleston, SC, ⁴University of Rochester School of Medicine and Dentistry, Rochester, ⁵Emory University, Atlanta, GA
Background/Purpose: Systemic lupus erythematosus (SLE) disproportionately impacts African American women. However, this health disparity population continues to be underrepresented in research. Research suggests that social…
Abstract Number: 0351 • ACR Convergence 2024
Empowering Lupus Communities: Evaluating a National Peer Support Program for Lupus Teen, Young Adult Patients and Their Families
Giselle Rodriguez, LCSW¹, Priscilla Calvache¹, Lillian Mendez², Kimberly Cabrera¹, Roberta Horton¹, Lisa Imundo³ and Jillian Rose-Smith¹, ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Carteret, NJ, ³New York Presbyterian Hospital - Columbia Campus, New York, NY
Background/Purpose: Research shows that peer support groups effectively provide emotional support, enhance knowledge, & improve coping for chronic illnesses. An evaluation of a bilingual hospital…
Abstract Number: 1503 • ACR Convergence 2024
Social Connections Among Middle-Aged and Older Adults with Systemic Lupus Erythematosus: A Single Center Cross-Sectional Study
Sarah Lieber¹, Yvonne Shea¹, Sarah Gottesman¹, Amaya Smole², Dongmei Sun³, Iris Navarro Millan⁴, M. Carrington Reid⁵ and Lisa Mandl¹, ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Brooklyn, NY, ³Hospital for Special Surgery, Birmingham, AL, ⁴Weill Cornell Medicine, Hospital for Special Surgery, New York, NY, ⁵Weill Cornell Medicine, New York, NY
Background/Purpose: Loneliness and social isolation have been associated with multiple adverse health outcomes in the general population of older adults. The goal of this study…
Abstract Number: 1911 • ACR Convergence 2024
Improving Healthcare Access in Underserved Brooklyn Communities: A Comprehensive Multispecialty Patient Navigator Program
Meenakshi Kurup¹, Grace Shadid², Jasmine Pak², Alejandra Moncayo³, Naureen Kabani⁴, Soodeh Kabir⁵, Sharon Glick⁵ and Ellen Ginzler⁶, ¹SUNY Downstate Health Sciences University, Department of Medicine, Brooklyn, NY, ²SUNY Downstate College of Medicine, Brooklyn, NY, ³SUNY Downstate Health Sciences University, College of Medicine, Brooklyn, NY, ⁴SUNY Downstate Medical Center, Brooklyn, NY, ⁵SUNY Downstate Health Sciences University, Department of Dermatology, Brooklyn, NY, ⁶SUNY Downstate Health Sciences University, New York, NY
Background/Purpose: Underserved communities in the USA face significant healthcare disparities, leading to poorer clinical outcomes and higher rates of chronic diseases. Socioeconomic barriers such as…
Abstract Number: 1919 • ACR Convergence 2024
Patient-reported Social Risk Factor Screening Among Rheumatology Outpatients
Alissa Chandler¹, Mohammed Hamid², Aurora Jiao³, Kelsey Hulcher⁴, Isha Sharma⁵, Patrice Odom⁴, Andrew Robinson⁶, Sara Kellahan², Maura Kepper⁷, Colleen Dostal⁸, Senada Fenelon⁹, Seth Eisen¹⁰, Daphne Lew¹¹ and Alfred Kim¹², ¹Washington University, St. Louis, MO, ²Washington University School of Medicine, St. Louis, MO, ³Washington University, Saint Louis, ⁴Washington University, Saint Louis, MO, ⁵Washington University in St. Louis School of Medicine, San Jose, CA, ⁶Washington University, Fenton, MO, ⁷Washington University, Brown School of Social Work, Saint Louis, ⁸Southern Illinois University Edwardsville, St. Louis, MO, ⁹Washington University St Louis, Ballwin, MO, ¹⁰Washington University School of Medicine, St Louis, MO, ¹¹Center for Biostatistics and Data Science, Institute for Informatics, Data Science, and Biostatistics, Washington University School of Medicine and Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO, ¹²Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO
Background/Purpose: The purpose of this study was to pilot test a patient-reported social risk factor (SRF) screening tool among rheumatology outpatients and to examine the…
Abstract Number: 1951 • ACR Convergence 2024
Patient-Reported Barriers to Care Across Pediatric Rheumatology Patients at a Tertiary Academic Medical Center
Bethany Walker¹, Carolyn Smith², John Bridges³, Linda McAllister¹, Ashley McCamy⁴, Annelle Reed⁵, Erica Reynolds⁴, Isabella Robles², Livie Timmerman⁶, Tana Webb², Melissa Mannion⁷ and Emily Smitherman⁷, ¹Children's of Alabama, Trussville, AL, ²Children's of Alabama, Birmingham, AL, ³University of Alabama at Birmingham/Children's of Alabama, Birmingham, AL, ⁴Children's of Alabama, Birmingham, ⁵Children's of Alabama, Tuscaloosa, AL, ⁶University of Alabama at Birmingham, Gardendale, AL, ⁷University of Alabama at Birmingham, Birmingham, AL
Background/Purpose: Pediatric rheumatic diseases require frequent medical interactions, including follow-up visits with various providers, lab testing, imaging procedures, and infusion treatments. The impact of these…
Abstract Number: 2151 • ACR Convergence 2024
Rheumatology on Reddit: A Descriptive Analysis
Alfredo Madrid García¹, Beatriz Merino Barbancho², Inés Pérez - Sancristóbal³, Dalifer Freites Nuñez⁴, Luis Rodriguez Rodriguez⁵, lydia Abasolo Alcazar⁶, Leticia Leon⁷ and Benjamin fernandez-Gutierrez⁷, ¹Fundación para la Investigación Biomédica del Hospital Clínico San Carlos (IDISCC), Madrid, Madrid, Spain, ²Life supporting technologies. Escuela Técnica Superior de Ingenieros de Telecomunicación. Universidad Politécnica de Madrid., Madrid, Spain, ³Department of Rheumatology, Hospital Clinico San Carlos,, Madrid, Madrid, Spain, ⁴Hospital Clínico San Carlos. Madrid. Spain., Madrid, Spain, ⁵Hospital Clinico San Carlos, Madrid, Madrid, Spain, ⁶IdISSC. HCSC, Madrid, Spain, ⁷Hospital Clinico San Carlos, Madrid, Spain
Background/Purpose: Over the past decade, social media data have gained special interest across various sectors, specially in medicine where these data are being utilized for…
Abstract Number: 2551 • ACR Convergence 2024
Modified Delphi Process to Propose an Equity Measurement Roadmap in Rheumatology
Sancia Ferguson¹, Allen Anandarajah², Melissa Wells³, Delamo Bekele⁴, Ashira Blazer⁵, Cynthia Crowson⁴, Deborah Desir⁶, Elizabeth Ferucci⁷, Wambui Machua⁸, Esi Morgan⁹, Wendy Rogers¹⁰, Lauren Smith¹¹, JoAnn Zell¹², Lisa Suter¹³, Shraddha Jatwani¹⁴ and Christie Bartels¹⁵, ¹University of Wisconsin, Madison, Madison, WI, ²University of Rochester Medical Center, Rochester, NY, ³McFarland Clinic, Ames, IA, ⁴Mayo Clinic, Rochester, MN, ⁵University of Maryland Baltimore, Baltimore, MD, ⁶Yale School of Medicine, WOODBRIDGE, CT, ⁷Alaska Native Tribal Health Consortium, Anchorage, AK, ⁸Piedmont Healthcare, Atlanta, GA, ⁹Seattle Children's Hospital, Seattle, WA, ¹⁰Lupus Foundation of America, Inc, Washington, DC, ¹¹Medstar Georgetown University Hospital, District Heights, MD, ¹²University of Colorado Anschutz Medical Campus, Denver, CO, ¹³Yale School of Medicine, New Haven, CT, ¹⁴Dignity Health-MMG Rheumatology, Citrus Heights, CA, ¹⁵University of Wisconsin School of Medicine and Public Health, Madison, WI
Background/Purpose: Achieving health equity has been a long-standing goal, as Academy of Medicine leaders stated, ‘There is no equity without quality, and there is no…

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