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Abstracts tagged "quality of life"

  • Abstract Number: 1020 • ACR Convergence 2020

    Relationship Between Skin-related Quality of Life, Psychosocial Stress, and Race in Cutaneous Lupus Erythematosus

    Cristina Drenkard1, Laura Aspey1, Gaobin Bao1, Caroline Gordon2, Kristina Theis3, Charles Helmick3 and S. Sam Lim1, 1Emory University, Atlanta, GA, 2University of Birmingham, Birmingham, England, United Kingdom, 3Centers for Disease Control and Prevention, Atlanta, GA

    Background/Purpose: Chronic stress may trigger or exacerbate physiologic pathways that worsen individual health and wellbeing. Stress is associated with the development and progression of skin…
  • Abstract Number: 1397 • ACR Convergence 2020

    Clinical and Demographic Features of Morphea Patients with Mucocutaneous Involvement: A Cross Sectional Study from the Morphea of Adults and Children Cohort

    Smriti Prasad1, Samantha Black2, Shivani Sharma3 and Heidi Jacobe1, 1University of Texas Southwestern Medical Center, Dallas, TX, 2The University of Texas Southwestern Medical Center, Dallas, TX, 3University of Texas Southwestern, Dallas, TX

    Background/Purpose: Morphea is an autoimmune skin condition that produces skin and soft tissue sclerosis. While clinical manifestations of morphea have been well-described, mucocutaneous findings such…
  • Abstract Number: 0260 • ACR Convergence 2020

    Does Higher Quality of Care in SLE Improve Quality of Life?

    Shilpa Arora1, Patricia Katz2, Jinoos Yazdany3, Joel Block1, Edward Yelin4 and Meenakshi Jolly5, 1Rush University Medical Center, Chicago, IL, 2University of California, San Francisco, Novato, CA, 3University of California, San Francisco, San Francisco, CA, 4UCSF, San Francisco, CA, 5Rush University, Chicago, IL

    Background/Purpose: Disease activity, damage and quality of life (QOL) are core outcomes in Systemic lupus erythematosus (SLE). ER visits and hospital admissions (non-routine health care…
  • Abstract Number: 1072 • ACR Convergence 2020

    Sexual Health Impairment in 62 Female Patients with Idiopathic Inflammatory Myopathies

    Barbora Hermankova1, Maja Spiritovic2, Sabina Oreska3, Hana Storkanova4, Hana Smucrova5, Martin Komarc6, Martin Klein4, Karel Pavelka7, Ladislav Šenolt7, Jiří Vencovský7, Heřman Mann4 and Michal Tomcik4, 1Faculty of Physical Education and Sport, Charles University, Prague, Czech Republic, Prague, Hlavni mesto Praha, Czech Republic, 2Faculty of Physical Education and Sport, Charles University, Prague, Czech Republic, Prague, Czech Republic, 3Institute of Rheumatology, Prague, Czech Republic. Department of Rheumatology, 1st Faculty of Medicine, Charles University, Prague, Czech Republic, Praha 2, Czech Republic, 4Institute of Rheumatology, Prague, Czech Republic. Department of Rheumatology, 1st Faculty of Medicine, Charles University, Prague, Czech Republic, Prague, Czech Republic, 5Institute of Rheumatology, Prague, Czech Republic, Prague, Czech Republic, 6Department of Methodology, Faculty of Physical Education and Sport, Charles University, Prague, Czech Republic, Prague, Czech Republic, 7Institute of Rheumatology and Department of Rheumatology, First Faculty of Medicine, Charles University, Prague, Czech Republic

    Background/Purpose: Idiopathic inflammatory myopathies (IIM) are a heterogeneous group of rare diseases characterized by chronic muscle inflammation and multiple organ involvement. These serious clinical manifestations…
  • Abstract Number: 1479 • ACR Convergence 2020

    Long-Term Effectiveness of Canakinumab in Autoinflammatory Diseases – Interim Analysis of the CAPS Subgroup from the RELIANCE Registry

    Jasmin Kuemmerle-Deschner1, Birgit Kortus-Goetze2, Michael Borte3, Ivan Foeldvari4, Gerd Horneff5, Ales Janda6, Tilmann Kallinich7, Prasad T. Oommen8, Catharina Schuetz9, Frank Weller-Heinemann10, Julia Weber-Arden11 and Norbert Blank12, 1University Hospital Tuebingen, Tuebingen, Germany, 2Division of Nephrology, University of Marburg, Germany, Marburg, Germany, 3ImmunoDeficiencyCenter Leipzig (IDCL), Hospital St. Georg gGmbH Leipzig, Germany, Leipzig, Germany, 4Head of the Hamburg Centre for Pediatric and Adolescence Rheumatology, Budapest, Hungary, 5Asklepios Clinic Sankt Augustin, Sankt Augustin, Germany, 6Department of Pediatrics, University Hospital Ulm, Germany, Ulm, Germany, 7Charite, Berlin, Germany, 8Clinic of Pediatric Hematology, Oncology and Clinical Immunology, Heinrich-Heine-University Duesseldorf, Duesseldorf, Germany, 9Department of Pediatric Immunology, University Hospital Dresden, Dresden, Germany, Dresden, Germany, 10Klinikum Bremen-Mitte, Prof. Hess Kinderklinik, Bremen, Germany, Bremen, Germany, 11Novartis Pharma GmbH, Nuremberg, Germany, 12Department of Hematology, Oncology and Rheumatology, Internal Medicine V, University Hospital of Heidelberg, Eppelheim, Germany

    Background/Purpose: In the treatment of monogenic autoinflammatory diseases (AID), a heterogeneous group of diseases with excessive interleukin (IL)-1β release and severe systemic and organ inflammation,…
  • Abstract Number: 0326 • ACR Convergence 2020

    Flares Among Patients with Psoriatic Arthritis (PsA) – Frequency and Impact on Patient Outcomes: Real-world Survey in the US and Europe

    Ana-Maria Orbai1, William Tillett2, Suzann Grieb3, James Piercy4, Steven Peterson5, Elizabeth Holdsworth4, Sophie Meakin4, Soumya Chakravarty6, Nicola Booth4 and Laure Gossec7, 1Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, 2Royal National Hospital for Rheumatic Diseases, Bath, UK; Department of Pharmacy and Pharmacology, University of Bath, Bath, UK, Bath, United Kingdom, 3John Hopkins University School of Medicine, Baltimore, 4Adelphi Real World, Bollington, United Kingdom, 5Janssen Immunology Global Commercial Strategy Organization, Horsham, PA, 6Janssen Scientific Affairs, LLC, Horsham, PA, USA and Drexel University College of Medicine, Horsham, PA, 7Sorbonne University, INSERM; Pitié-Salpêtrière Hospital, Paris, Ile-de-France, France

    Background/Purpose: Flares in PsA, presenting as periods of acute disease activity, are thought to negatively impact patients’ lives. This has not been extensively studied in…
  • Abstract Number: 1081 • ACR Convergence 2020

    Patient-reported Outcomes in Early Autoimmune Inflammatory Myopathies

    Valérie Leclair1, Brett Thombs2, Mianbo Wang3, Evelyne Vinet4, Alexandra Albert5 and Marie Hudson6, 1Division of Rheumatology, Jewish General Hospital, Montreal, QC, Canada, 2Department of Psychology, McGill University, Montreal, QC, Canada, 3Lady Davis institute for Medical Research, Montreal, QC, Canada, 4McGill University Health Center, Montreal, QC, Canada, 5Division of Rheumatology, Centre Hospitalier de l’Université Laval, Québec, QC, Canada; Department of Medicine, Université Laval, Québec, QC, Canada., Neuville, Canada, 6Division of Rheumatology, Jewish General Hospital, Montréal, QC, Canada

    Background/Purpose: Patient-reported outcomes (PROs) are increasingly used in rheumatology. Such outcomes are under-reported in autoimmune inflammatory myopathies (AIM) especially in incident cohorts. The objective of…
  • Abstract Number: 1494 • ACR Convergence 2020

    Patient-Reported Adverse Events, Quality of Life and Treatment Adherence in Juvenile Idiopathic Arthritis: Analysis of Two Large International Cohorts

    Alessandra Alongi1, Maria Trachana2, Valda Stanevicha3, Laura Marinela Ailioaie4, Elena Tsitsami5, Angelo Ravelli6, Alessandro Consolaro6 and Nicolino Ruperto7, 1IRCCS Istituto Giannina Gaslini, Genoa, Italy, 2Aristotle University of Thessaloniki, Thessaloníki, Greece, 3Riga Stradins University, Riga, Latvia, 4Alexandru Ioan Cuza University of Iasi, Iasi, Romania, 5Aghia Sophia Childrens Hospital, Athens, Greece, 6Università degli Studi di Genova, Genoa, Italy, 7Istituto Giannina Gaslini, Genova, Italy

    Background/Purpose: Juvenile idiopathic arthritis (JIA) patients may experience significant medication-related adverse effects (AEs), which may adversely affect health-related quality of life (HRQOL), daily activities and…
  • Abstract Number: 0336 • ACR Convergence 2020

    Anxiety and Depression in Psoriatic Arthritis (PsA) – Prevalence and Impact on Patient Reported Outcomes: Real-World Survey in the US and Europe

    Laure Gossec1, Jessica Walsh2, Kaleb Michaud3, Elizabeth Holdsworth4, Steven Peterson5, Sophie Meakin4, Nicola Booth4, Soumya Chakravarty6, James Piercy4 and Alexis Ogdie7, 1Sorbonne Université and Hôpital Universitaire Pitié Salpêtrière, Paris, France, 2University of Utah School of Medicine, George E. Wahlen Veteran Affairs Medical Center, Salt Lake City, UT, 3University of Nebraska Medical Center, Omaha, NE, 4Adelphi Real World, Bollington, United Kingdom, 5Janssen Immunology Global Commercial Strategy Organization, Horsham, PA, 6Janssen Scientific Affairs, LLC, Horsham, PA, USA and Drexel University College of Medicine, Horsham, PA, 7Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA

    Background/Purpose: Anxiety and depression are comorbidities among PsA patients. The impact of anxiety and depression on outcomes in PsA patients has not been characterized in…
  • Abstract Number: 1102 • ACR Convergence 2020

    Neuropathic Pain in Inflammatory Hand Osteoarthritis(OA) Lowers Quality of Life and May Require Another Approach Than Anti-inflammatory Treatment

    Coen van der Meulen1, Lotte van de Stadt1, Féline Kroon2, Marion Kortekaas1, Annelies Boonen3, Stefan Böhringer4, Monique Reijnierse2, Frits Rosendaal2, Naghmeh Riyazi5, Mirian Starmans6, Franktien Turkstra7, Jende Van Zeben8, CF Allaart2 and Margreet Kloppenburg2, 1LUMC, Leiden, Netherlands, 2Leiden University Medical Center, Leiden, Netherlands, 3Maastricht University Medical Center, Maastricht, Netherlands, 4LUMC, Leiden, 5HAGA ziekenhuis, the hague, Netherlands, 6Zuyderland MC, Heerlen, Netherlands, 7Reade, Amsterdam, Netherlands, 8Franciscus Gasthuis & Vlietland, Rotterdam, Netherlands

    Background/Purpose: To investigate whether neuropathic pain is present in patients with inflammatory hand OA, to investigate characteristics of those patients and the impact of neuropathic…
  • Abstract Number: 1577 • ACR Convergence 2020

    Immune Checkpoint Inhibitor-Induced Inflammatory Arthritis Impact on Function and Patient-Reported Quality of Life Measures Varies Depending on Pattern of Arthritis

    Jeffrey Sarazin1, Ann Impens2, Nada Abdulaziz1, Stacey Anderson3, Leslie Fecher1, Christopher Lao1 and Elena Schiopu1, 1Michigan Medicine, Ann Arbor, MI, 2Midwestern University, Ann Arbor, IL, 3University of Michigan, Ann Arbor, MI

    Background/Purpose: Immune checkpoint inhibitors (ICIs) have emerged as a paradigm shift in the treatment of malignancies, but can have significant side effects, termed immune related…
  • Abstract Number: 0353 • ACR Convergence 2020

    Achievement of Sustained Remission and Low Disease Activity with Secukinumab Improves Quality of Life and Physical Function in Patients with Psoriatic Arthritis: Results from a Randomized Phase 3 Study

    Laura Coates1, Philip Mease2, Dafna Gladman3, Sandra Navarra4, Weibin Bao5 and Corine Gaillez6, 1University of Oxford, Oxford, United Kingdom, 2Seattle Rheumatology Associates, P.L.L.C., Seattle, WA, 3Krembil Research Institute, Toronto Western Hospital, Toronto, ON, Canada, 4University of Santo Tomas, Manila, Philippines, 5Novartis Pharmaceuticals Corporation, East Hannover, 6Novartis Pharma AG, Basel, Switzerland

    Background/Purpose: A treat-to-target approach in psoriatic arthritis (PsA) was recommended by EULAR and GRAPPA to achieve remission (REM) or low disease activity (LDA), by regular…
  • Abstract Number: 1131 • ACR Convergence 2020

    Patient Perspective of Helpfulness of Lupus Medications: A Qualitative Study of Medication Use Within the Type 1 and 2 SLE Model

    Mithu Maheswaranathan1, Kevin McKenna2, Amy Corneli2, David Pisetsky3, Megan Clowse4 and Amanda Eudy1, 1Duke University, Durham, NC, 2Duke University, Durham, 3Duke University Medical Center, Durham, NC, 4Duke University, Chapel Hill, NC

    Background/Purpose: Medication management in systemic lupus erythematosus (SLE) is particularly complex given the clinical heterogeneity of symptoms and a wide range of medications used.  We…
  • Abstract Number: 1728 • ACR Convergence 2020

    Patient-Reported Outcomes of Upadacitinib versus Abatacept in Patients with Rheumatoid Arthritis and an Inadequate Response to Biologic Disease-Modifying Antirheumatic Drugs: 12-Week Results of a Phase 3 Study

    Martin Bergman1, Jeffrey Enejosa2, Naomi Martin2, Jessica Suboticki2, Debbie Goldschmidt3, Yan Song3 and Namita Tundia2, 1Drexel University College of Medicine, Philadelphia, PA, 2AbbVie Inc., North Chicago, IL, 3Analysis Group, Inc., Boston, MA

    Background/Purpose: In patients with active rheumatoid arthritis (RA), treatment with upadacitinib (UPA) has resulted in clinically meaningful improvements in patient-reported outcomes (PROs). This post hoc…
  • Abstract Number: 0378 • ACR Convergence 2020

    Itch as the Major Mediator of the Effect of Tofacitinib on Health-Related Quality of Life in Psoriatic Arthritis: A Mediation Analysis

    Joseph Merola1, Peter Taylor2, Andrew Bushmakin3, Joseph Cappelleri3, Pamela Young4, Rebecca Germino5 and Gil Yosipovitch6, 1Brigham and Women’s Hospital, Harvard Medical School, Boston, MA, 2Botnar Research Centre, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, United Kingdom, 3Pfizer Inc, Groton, CT, 4Pfizer Inc, Collegeville, PA, 5Pfizer Inc, New York, NY, 6University of Miami, Miami, FL

    Background/Purpose: Psoriatic arthritis (PsA) is a chronic, systemic inflammatory disease with signs and symptoms across multiple domains, including cutaneous manifestations, which can impact health-related quality…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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