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Abstracts tagged "Quality of life and systemic lupus erythematosus (SLE)"

  • Abstract Number: 388 • 2015 ACR/ARHP Annual Meeting

    Pain, Fatigue and the Psychological Impact on Health-Related Quality of Life in Childhood-Onset Lupus

    Jordan T. Jones1, Natoshia Cunningham2, Catherine Donnelly3, Susmita Kashikar-Zuck4 and Hermine I. Brunner5, 1Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 2Behavioral Medicine & Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 3Internal Medicine, University of Cincinnati, Cincinnati, OH, 4Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 5Pediatric Rheumatology Collaborative Study Group, Cincinnati Children's Hospital Medical Center, Cincinnati, OH

    Background/Purpose: Childhood-onset lupus (cSLE) is a chronic autoimmune disease that has negative impact on health-related quality of life (HRQoL), especially when increased disease activity and…
  • Abstract Number: 1783 • 2015 ACR/ARHP Annual Meeting

    Dietary Fish Oil Supplementation Raises Serum Essential Fatty Acid Concentrations in Patients with Systemic Lupus Erythematosus and Correlates with Improvements in Inflammation and Pain

    Cristina Arriens1, Carlos Rodriguez-Navas2, David R. Karp1, Jeffrey McDonald2 and Chandra Mohan3, 1Internal Medicine - Rheumatic Diseases, University of Texas Southwestern Medical Center, Dallas, TX, 2Molecular Genetics, University of Texas Southwestern Medical Center, Dallas, TX, 3Biomedical Engineering, University of Houston, Houston, TX

    Background/Purpose: A comprehensive metabolomic screen comparing sera from patients with systemic lupus erythematosus (SLE) to healthy controls (HC) indicated a relative deficiency in omega-3 fatty…
  • Abstract Number: 2897 • 2015 ACR/ARHP Annual Meeting

    Predictors of Organ Damage Progression and Impact on Health-Related Quality of Life in Systemic Lupus Erythematosus

    Alexandra Legge1, Steve Doucette2 and John G. Hanly3, 1Department of Medicine, Dalhousie University, Halifax, NS, Canada, 2Dalhousie University and Capital Health, Halifax, NS, Canada, 3Rheumatology, Division of Rheumatology, Capital Health and Dalhousie University, Halifax, NS, Canada

    Background/Purpose: To describe cumulative organ damage in a longitudinal cohort of SLE patients and to evaluate the impact of key disease-related factors, medical therapies, demographic…
  • Abstract Number: 3151 • 2015 ACR/ARHP Annual Meeting

    Validation of Patient-Reported Outcomes Measurement Information System (PROMIS®) Modules for Use in Childhood-Onset Lupus

    Jordan T. Jones1, Janet Wootton2, Jun Ying3, Brianna Liberio4, Jiha Lee5, Adam Carle6, Laura Schanberg2 and Hermine I. Brunner6, 1Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 2Pediatrics, Duke Medical Center, Durham, NC, 3University of Cincinnati, Cincinnati, OH, 4University of Cincinnati College of Medicine, Cincinnati, OH, 5Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 6Cincinnati Children's Hospital Medical Center, Cincinnati, OH

    Background/Purpose: Childhood-onset lupus (cSLE) has a substantial negative impact on health-related quality of life (HRQoL). Patient-reported outcomes (PROs) that accurately assess HRQoL and are responsive…
  • Abstract Number: 1302 • 2014 ACR/ARHP Annual Meeting

    The Psychological Impact on Health-Related Quality of Life in Childhood-Onset Lupus

    Jordan T. Jones1, Natoshia Cunningham2, Jennifer L. Huggins1, Susmita Kashikar-Zuck3 and Hermine I. Brunner1, 1Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 2Behavioral Medicine & Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 3Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH

    Background/Purpose: Childhood-onset lupus (cSLE) is a chronic autoimmune disease and its effect on health-related quality of life (HRQoL) has not been fully established, but, disease…
  • Abstract Number: 701 • 2014 ACR/ARHP Annual Meeting

    How Important Is Physical Activity for Patients with Systemic Lupus Erythematodes? -Results of Lula-Study

    Isabelle Kloubert1, Gamal Chehab1, Jutta Richter2, Rebecca Fischer-Betz3, Ralph Brinks2 and Matthias Schneider1, 1Department of Rheumatology, Heinrich-Heine-University Duesseldorf, Duesseldorf, Germany, 2Rheumatology, Heinrich-Heine-University, Düsseldorf, Germany, 3Department of Rheumatology, University of Düsseldorf, Düsseldorf, Germany

    Background/Purpose Physical activity (PA) plays a decisive role in primary and secondary prevention in various domains of medicine. Our examination aimed to determine association PA…
  • Abstract Number: 712 • 2014 ACR/ARHP Annual Meeting

    Mapping the Disease-Specific Lupusqol to the SF-6D

    Rachel Meacock1, Mark Harrison2, Kathleen McElhone3, Janice Abbott4, Sahena Haque5, Ian N. Bruce6 and Lee- Suan Teh7, 1Centre for Health Economics, The University of Manchester, Manchester, United Kingdom, 2University of British Columbia, Vancouver, BC, Canada, 3Royal Blackburn Hospital, Blackburn, United Kingdom, 4University of Central Lancashire, Preston, United Kingdom, 5University Hospital of South Manchester, Manchester, United Kingdom, 6NIHR Manchester Musculoskeletal Biomedical Research Unit, Manchester Academy of Health Sciences, Manchester, United Kingdom, 7Department of Rheumatology, Royal Blackburn Hospital, Blackburn, United Kingdom

    Background/Purpose: The LupusQoL is a measure of health-related quality of life (HRQoL) developed specifically to assess the impact of systemic lupus erythematosus (SLE) and its…
  • Abstract Number: 711 • 2014 ACR/ARHP Annual Meeting

    Is the Disease-Specific Lupusqol Sensitive to Changes of Disease Activity in SLE Patients after Treatment of a Flare?

    Kathleen McElhone1, Jane Burnell2, Chris Sutton2, Janice Abbott3, Peter Lanyon4, Anisur Rahman5, Chee-Seng Yee6, Mohammed Akil7, Yasmeen Ahmad8, Ian Bruce9, Caroline Gordon10 and Lee-Suan Teh11, 1Rheumatology, Royal Blackburn Hospital, Blackburn, United Kingdom, 2School of Health, University of Central Lancashire, Preston, United Kingdom, 3University of Central Lancashire, Preston, United Kingdom, 4Nottingham University Hospitals NHS Trust, Nottingham, United Kingdom, 5Centre for Rheumatology Research, University College London, London, United Kingdom, 6Department of Rheumatology, Doncaster and Bassetlaw Hospitals NHS Foundation Trust, Doncaster, United Kingdom, 7Sheffield Center Rheumatic Dis, Sheffield South Yorkshire, United Kingdom, 8Department of Rheumatology, Peter Maddison Research Centre, Bangor, United Kingdom, 9Kellgren Centre for Rheum, Arthritis Research UK Epidemiology Unit, Institution of Inflammation and Repair, University of Manchester, NIHR Manchester Musculoskeletal Biomedical Research Unit, Central Manchester University Hospitals, Manchester Academic Health Sciences Centre, Manchester, United Kingdom, 10Rheumatology Research Group, School of Immunity and Infection, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom, 11Department of Rheumatology, Royal Blackburn Hospital, Blackburn, United Kingdom

    Background/Purpose With improving survival in SLE patients, patient-reported health-related quality of life (HRQoL) has become an important outcome.  The LupusQoL is a disease-specific patient-derived HRQoL measure…
  • Abstract Number: 682 • 2014 ACR/ARHP Annual Meeting

    Impact of Patient’s Priorities on the Management of Systemic Lupus Erythematosus

    Valérie Leclair1, Holly O. Witteman2, Carolyn Neville3, Isabelle Fortin4 and Paul R. Fortin5, 1Internal Medicine, Laval University, Department of Internal Medicine, Quebec City, QC, Canada, 2Medicine, Laval University, Family and Emergency Medicine, Quebec City, QC, Canada, 3Epidemiology, Division of Clinical Epidemiology, Department of Medicine, McGill University Health Centre, Canada, Montreal, QC, Canada, 4Centre de Rhumatologie de l'Est du Québec, Rimouski, QC, Canada, 5Rheumatology, Laval University, Division of Rheumatology, Centre de Recherche du CHU de Québec and Department of Medicine, Quebec City, QC, Canada

    Background/Purpose: Systemic Lupus Erythematosus (SLE) greatly reduces the quality of life (QoL) and satisfaction with life of affected patients. SLE patients can have numerous unmet…
  • Abstract Number: 666 • 2014 ACR/ARHP Annual Meeting

    Approach to Discriminate Treatment Impact in Both Moderate and Severe SLE: The Atacicept Phase IIb Trial Design

    Joan T. Merrill1, Yong Li2, Stephen D. Wax3 and Christopher Tehlirian4, 1Clinical Pharmacology, Oklahoma Medical Research Foundation, Oklahoma City, OK, 2R&D Global BioStatistics, EMD Serono, Billerica, MA, 3Global Clinical Development Center - Immunology, EMD Serono Inc, Rockland, MA, 4EMD Serono, Rockland, MA

    Background/Purpose Increases in background treatment in SLE trials lead to high placebo group responses in patients with moderate but not those with high disease activity…
  • Abstract Number: 2632 • 2014 ACR/ARHP Annual Meeting

    The Cornerstone to Reasonable Allocation of Health Resource: Valuation of Health Utility in Systemic Lupus Erythematosus

    Suli Wang and Liangjing Lu, Department of Rheumatology, Ren Ji Hospital, School of Medicine, Shanghai Jiao Tong University, Shanghai, China

    Background/Purpose:  In a time of increasing economic constraints, it is crucial that health systems optimize their resource use to ensure that they generate the maximum…
  • Abstract Number: 2621 • 2014 ACR/ARHP Annual Meeting

    Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus

    Jin-Shei Lai1, Karen Kaiser1, Jennifer Beaumont1, Sally Jensen1, Amy H Kao2, David Van Brunt3 and Shih-Yin Chen2, 1Northwestern University, Chicago, IL, 2Biogen Idec, Cambridge, MA, 3Formerly of Biogen Idec, Cambridge, MA

    Background/Purpose: Systemic lupus erythematosus (SLE) is a multi-organ chronic autoimmune disease that can negatively affect patients' health-related quality of life (HRQOL). This cross-sectional study collected…
  • Abstract Number: 2532 • 2013 ACR/ARHP Annual Meeting

    Changes In Quality Of Life In The First 5 Years Of Disease In The Systemic Lupus Erythematosus International Collaborating Clinics (SLICC) Cohort

    Murray B. Urowitz1, Dominique Ibanez1, Nicole Anderson1, Dafna D. Gladman1 and Systemic Lupus SLICC2, 1Division of Rheumatology, University of Toronto, Toronto Western Hospital, Toronto, ON, Canada, 2(coordinating centre), Toronto Western Hospital, Toronto, ON, Canada

    Background/Purpose: The Medical Outcome Survey Short Form 36 (SF-36) is one of the most widely used tools for measuring patient reported outcomes. In cross-sectional studies,…
  • Abstract Number: 2536 • 2013 ACR/ARHP Annual Meeting

    Lupus Impact Tracker Is Responsive To Changes In Physician Assessed Disease Status By Systemic Lupus Erythematosus Responder Index

    Hervé Devilliers1,2, Mark Kosinski3, Cindy Garris4 and Meenakshi Jolly5, 1Clinical investigation and clinical epidemiology center (INSERM CIE01), Dijon, France, 2Internal medicine and systemic disease unit, Dijon University Hospital, Dijon, France, 3QualityMetric Inc, Lincoln, RI, 4US Health Outcomes, GlaxoSmithKline R&D, Research Triangle Park, NC, 5Rheumatology, Rush University Medical Center, Chicago, IL

    Background/Purpose: Lupus Impact Tracker (LIT) is a 10-item patient reported outcome tool to measure the impact of Systemic Lupus Erythematosus (SLE) or its treatment on…
  • Abstract Number: 2538 • 2013 ACR/ARHP Annual Meeting

    Impact Of Omega-3 Fatty Acids On Quality Of Life In Systemic Lupus Erythematosus

    Cristina Arriens1, Chandra Mohan2 and David R. Karp3, 1Internal Medicine - Rheumatic Diseases, University of Texas Southwestern Medical Center, Dallas, TX, 2University of Houston, Houston, TX, 3Rheumatic Diseases Division, UT Southwestern Medical Center, Dallas, TX

    Background/Purpose: A comprehensive metabolomic screen of sera from patients with Systemic Lupus Erythematosus (SLE) has shown that the concentrations of many substrates for energy generation,…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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