Abstracts tagged "quality of care"

Abstract Number: 135 • 2023 Pediatric Rheumatology Symposium
Assessing Medication Adherence in JIA: Pilot Phase Results from a Single-Center Quality Improvement Initiative
Dori Abel¹, Joyce Chang², Jon Burnham³, Chen Kenyon⁴ and Sabrina Gmuca⁵, ¹Department of Pediatrics, Division of Rheumatology, Children’s Hospital of Philadelphia; PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA, ²Boston Children's Hospital, Boston, MA, ³Department of Pediatrics, Division of Rheumatology, Children’s Hospital of Philadelphia; Department of Pediatrics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, ⁴Department of Pediatrics, University of Pennsylvania Perelman School of Medicine; PolicyLab, Children’s Hospital of Philadelphia, Philadelphia, PA; Leonard Davis Institute of Health Economics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, ⁵Department of Pediatrics, Division of Rheumatology, Children’s Hospital of Philadelphia; Center for Pediatric Clinical Effectiveness, Children’s Hospital of Philadelphia; PolicyLab, Children's Hospital of Philadelphia; Department of Pediatrics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
Background/Purpose: Suboptimal medication adherence is a widespread problem in JIA. There are several unique features to medication adherence in JIA, including that the medications used…
Abstract Number: 137 • 2023 Pediatric Rheumatology Symposium
Geographic Mapping of Adolescents with Rheumatic Disease: Racial and Ethnic Diversity by Texas County
Kristina Ciaglia¹, Chan-hee Jo², Yuhan Ma², Tracey Wright³ and Lorien Nassi¹, ¹University of Texas Southwestern, Dallas, TX, ²Scottish Rite Hospital for Children, Dallas, TX, ³University of Texas Southwestern, Scottish Rite Hospital for Children, Dallas, TX
Background/Purpose: Rheumatic disease disproportionately impacts specific racial and ethnic groups frequently, resulting in health care inequities. Health care disparities are prevalent within certain geographic areas…
Abstract Number: 0095 • ACR Convergence 2022
Association of Urban vs. Rural Residence with New DMARD Initiation in US Veterans with Active Rheumatoid Arthritis
Luke Desilet¹, Harlan Sayles¹, Punyasha Roul², Jennifer Barton³, Gail Kerr⁴, Kaleb Michaud¹, Ted Mikuls⁵ and Bryant England¹, ¹University of Nebraska Medical Center, Omaha, NE, ²UNMC, Omaha, NE, ³VA Portland Health Care System/OHSU, Portland, OR, ⁴Washington DC VAMC/Georgetown and Howard Universities, Washington, DC, ⁵Division of Rheumatology, University of Nebraska Medical Center, Omaha, NE
Background/Purpose: While a treat-to-target strategy is endorsed by the ACR RA Treatment Guidelines, many patient, social, and healthcare system factors make implementation of this approach…
Abstract Number: 1272 • ACR Convergence 2022
Application of the Consolidated Framework for Implementation Research (CFIR) to Study Top-Performing Practices in the RISE Registry
Lindsay Jacobsohn¹, Catherine Nasrallah², Cammie Young³, Gabriela Schmajuk⁴ and Jinoos Yazdany⁵, ¹University of California, San Francisco, San Francisco, CA, ²UCSF, San Francisco, ³University of California San Francisco, San Francisco, CA, ⁴UCSF / SFVA, San Francisco, CA, ⁵UCSF, San Francisco, CA
Background/Purpose: Collection and use of rheumatoid arthritis (RA) disease activity and functional status outcome measures facilitates treating-to-target and shared decision-making. Although guidelines recommend regular use…
Abstract Number: 1342 • ACR Convergence 2022
Quality Improvement: Communicating Risk Regarding JAK Inhibitor Use in Rheumatology Patients
Reid Weisberg¹, Brett Capel¹, Annabelle Guo¹, Komal Patel¹, Rashmi Arora², Swathi Reddy³ and Una Makris⁴, ¹University of Texas Southwestern Medical Center, Dallas, TX, ²Dallas VA Medical Center / University of Texas Southwestern Medical Center, Dallas, TX, ³Dallas VA Medical Center / University of Texas Southwestern Medical Center, Colleyville, TX, ⁴UT Southwestern Medical Center and Dallas VA, Dallas, TX
Background/Purpose: In September 2021, the FDA updated its boxed warnings for Janus Kinase (JAK) inhibitors to include increased risk of major adverse cardiac events (MACE)…
Abstract Number: 0103 • ACR Convergence 2022
Retention in Rheumatology Care and Receipt of Lupus-Specific Serologic Testing Among Young Adults with Systemic Lupus Erythematosus: A Medicare Cohort Study
Maria Schletzbaum¹, W. Ryan Powell², Shivani Garg³, Joseph A. Kramer⁴, Brad C. Astor⁵, Andrea Gilmore-Bykovskyi⁶, Amy J. Kind⁷ and Christie Bartels⁸, ¹University of Wisconsin School of Medicine and Public Health, Department of Population Health Sciences, Middleton, WI, ²University of Wisconsin School of Medicine and Public Health, Center for Health Disparities Research, Thousand Oaks, CA, ³University of Madison, School of Medicine and Public Health, Madison, WI, ⁴University of Wisconsin School of Medicine and Public Health, Department of Medicine & Center for Health Disparities Research,, Madison, WI, ⁵University of Wisconsin School of Medicine and Public Health, Department of Medicine, Nephrology Division and Department of Population Sciences, Madison, WI, ⁶University of Wisconsin School of Medicine and Public Health, Department of Emergency Medicine; and the Center for Health Disparities Research, Madison, WI, ⁷University of Wisconsin School of Medicine and Public Health, Department of Medicine, Geriatrics Division & Center for Health Disparities Research, Madison, WI, ⁸University of Wisconsin School of Medicine and Public Health, Madison, WI
Background/Purpose: SLE is a leading cause of mortality in young adults, particularly in those identifying as Black or Hispanic or who are socioeconomically disadvantaged. These…
Abstract Number: 1273 • ACR Convergence 2022
Development of ACR Longitudinal Digital Quality Measures for Systemic Lupus Erythematosus: Data Availability and Preliminary Measure Performance in the RISE Registry
April Jorge¹, Alfredo Aguirre², April Barnado³, Bonnie Bermas⁴, Candace Feldman⁵, Shraddha Jatwani⁶, Alex Limanni⁷, JoAnn Zell⁸, Claire Barber⁹, Ali Duarte-Garcia¹⁰, Shivani Garg¹¹, Jing Li², Gabriela Schmajuk¹², Jinoos Yazdany¹³ and Christie Bartels¹⁴, ¹Massachusetts General Hospital, Boston, MA, ²University of California, San Francisco, San Francisco, CA, ³Vanderbilt University Medical Center, Nashville, TN, ⁴UT Southwestern, Dallas, TX, ⁵Brigham and Women's Hospital, Boston, MA, ⁶Albert Einstein Medical Center, Ambler, PA, ⁷Self, Dallas, TX, ⁸University of Colorado Anschutz Medical Campus, Denver, CO, ⁹University of Calgary, Calgary, AB, Canada, ¹⁰Mayo Clinic, Rochester, MN, ¹¹University of Madison, School of Medicine and Public Health, Madison, WI, ¹²UCSF / SFVA, San Francisco, CA, ¹³UCSF, San Francisco, CA, ¹⁴University of Wisconsin School of Medicine and Public Health, Madison, WI
Background/Purpose: Digital quality measures can facilitate monitoring and improvement of health care quality on a population level. As part of a CDC-funded ACR initiative to…
Abstract Number: 1344 • ACR Convergence 2022
Patient-reported Outcomes in Lupus Low Disease Activity State: Impact of Fatigue
Rodrigo De Moura Rodrigues, Alexandre Moura dos Santos, Daniel Sampaio Cardoso, Emily Figueiredo Neves Yuki, Danieli Castro Oliveira de Andrade, Sandra Gofinet Pasoto, Eduardo Ferreira Borba Neto, Eloisa Silva Dutra de Oliveira Bonfa and Luciana Seguro, Hospital das Clinicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo, São Paulo, Brazil
Background/Purpose: Patient Reported Outcomes (PROs) can be assessed by self-administered questionnaires and can lead to better decision-making by physicians. The aim of this study was…
Abstract Number: 0184 • ACR Convergence 2022
Exploring Patient Journeys and Education Needs of Hispanic Individuals with Rheumatoid Arthritis
Daniel Hernandez¹, Julio Bravo², Juan Maya Villamizar³, William Benjamin Nowell¹, Oscar Soto-Raices⁴, Angel Tapia⁵, Guillermo Valenzuela⁶ and Shilpa Venkatachalam⁷, ¹Global Healthy Living Foundation, Nyack, NY, ²Novant, Winston-Salem, NC, ³Rheumatology Center of Palm Beach, PLLC, Boca Raton, FL, ⁴Fundación FER, San Juan, PR, ⁵Global Healthy Living Foundation, Upper Nyack, NY, ⁶Guillermo Valenzuela MD PA/ IRIS Rheumatology, Plantation, FL, ⁷Global Healthy Living Foundation, New York, NY
Background/Purpose: There is little research on rheumatoid arthritis (RA) in the US Hispanic population (< 0.2% of publications on RA indexed in PubMed.gov), but it…
Abstract Number: 1274 • ACR Convergence 2022
Improving Pneumococcal Vaccination Rates Among Immunosuppressed Adults in an Academic Rheumatology Clinic Utilizing a Nurse Driven Protocol
Elena Joerns¹, Nagendra Pokala², Dan Wang³, Joan Reisch³, Reuben Arasaratnam³, Bonnie Bermas¹ and Puneet Bajaj³, ¹UT Southwestern, Dallas, TX, ²University of Texas Southwestern Medical Center, Dallas, TX, ³UT Southwestern Medical Center, Dallas, TX
Background/Purpose: Rheumatology patients are at risk for severe pneumococcal infections due to their underlying disease and immunosuppressive therapy. Current Advisory Committee on Immunization Practices guidelines…
Abstract Number: 1352 • ACR Convergence 2022
Improving Completion Rates of Routine Mental Health Screening for Depression and Anxiety in Paediatric Lupus Outpatient Clinic to Enhance Patient Mental Health Care
Tala El Tal¹, Avery Longmore², Abdulaziz el Mutairi¹, Amani Al Bijadi¹, Audrea Chen¹, Holly Convery¹, Dinah Finkelstein³, Linda Hiraki⁴, Chetana Kulkarni⁵, Justine Ledochowski⁶, Neely Lerman¹, Karen Leslie⁷, Deborah Levy⁸, Sharon Lorber⁹, Jayne MacMahon¹⁰, Jeanine McColl¹¹, Sarah Mossad¹², Oscar Mwizerwa¹⁰, Lawrence Ng¹², Luana Flores Pereira¹², Vandana Rawal⁷, Alaa Shehab¹, Evelyn Smith¹³, Alene Toulany¹⁴ and Andrea Knight¹, ¹The Hospital for Sick Children, Division of Rheumatology, Department of Paediatrics, University of Toronto, Toronto, ON, Canada, ²The Hospital for Sick Children, Department of Paediatrics, University of Toronto, Toronto, ON, Canada, ³The Hospital for Sick Children, Department of Paediatrics, University of Toronto, ON, Canada, Toronto, ON, Canada, ⁴The Hospital for Sick Children, Division of Rheumatology, Department of Paediatrics, University of Toronto, Genetics and Genome Biology, SickKids Research Institute, Toronto, ON, Canada, ⁵The Hospital for Sick Children, Division of Child & Youth Mental Health, Department of Psychiatry, University of Toronto, Toronto, ON, Canada, ⁶The Hospital for Sick Children, Department of Psychology, University of Toronto, Toronto, ON, Canada, ⁷The Hospital for Sick Children, Division of Adolescent Medicine, Department of Paediatrics, University of Toronto, Toronto, ON, Canada, ⁸Division of Rheumatology, The Hospital for Sick Children; Child Health Evaluative Services, SickKids Research Institute; Department of Paediatrics, University of Toronto, Toronto, ON, Canada, ⁹The Hospital for Sick Children, Factor Inwentash Faculty of Social Work, University of Toronto, Toronto, ON, Canada, ¹⁰The Hospital for Sick Children, Division of Rheumatology, Department of Paediatrics, Toronto, ON, Canada, ¹¹University of Toronto, Toronto, ON, Canada, ¹²The Hospital for Sick Children, Toronto, ON, Canada, ¹³The Hospital for Sick Children, Division of Psychiatry, Department of Paediatrics, University of Toronto,, Toronto, ON, Canada, ¹⁴The Hospital for Sick Children, Division of Adolescent Medicine, Department of Paediatrics, University of Toronto,, Toronto, ON, Canada
Background/Purpose: Mental health (MH) problems are prevalent in adolescents with childhood-onset lupus (cSLE), with cross-sectional studies estimating prevalences of 20-60% for depression symptoms and 20-40%…
Abstract Number: 0201 • ACR Convergence 2022
Real-World Evidence from Social Media Provides Insights into Patient Mental Health Outcomes in the Management of Gout
Maurice Flurie¹, Joseph Coe², Monica Converse¹, Kristina Davidson³, Colton Flowers¹, Kelly Gavigan⁴, Daniel Hernandez⁵, Helen Hernandez¹, Gary Ho⁶, Brian LaMoreaux³, Christopher Parker⁶, E. Robert Wassman¹, Christopher DeFelice¹ and Maria Picone¹, ¹TREND Community, Philadelphia, ²Global Healthy Living Foundation, Upper Nyack, ³Horizon Therapeutics, Chicago, IL, ⁴Global Healthy Living Foundation, Upper Nyack, NY, ⁵Global Healthy Living Foundation, Nyack, NY, ⁶Gout Support Group of America, Austin, TX
Background/Purpose: The ability to actively listen to and interpret the patient experience is vital to effectively address the needs of individuals within a particular community.…
Abstract Number: 1275 • ACR Convergence 2022
Pneumococcal Vaccination Compliance Rate Among Lupus and Rheumatoid Arthritis Patients in Rheumatology Fellow’s Cllinic
Sana Kang¹, George Gennaoui² and J. Patricia Dhar³, ¹Ascension St John Hospital, Chesterfield, MO, ²Ascension St. John Hospital, St. Clair Shores, MI, ³Ascension St. John Hospital and Wayne State University School of Medicine, Bloomfield Hills, MI
Background/Purpose: The US Center for Disease Control and Prevention recommends that adults ages 19 years and older, with immunocompromising conditions should receive a dose of…
Abstract Number: 1926 • ACR Convergence 2022
Analysis of New Patient Referrals to a Large Pediatric Rheumatology Clinic
Daniel Reiff, Melissa Mannion, Emily Smitherman, Matthew Stoll, Peter Weiser and Randy Cron, University of Alabama at Birmingham, Birmingham, AL
Background/Purpose: Large pediatric rheumatology centers receive hundreds of yearly referrals with a wide variety of complaints and diagnoses. The amount of referrals received can lead…
Abstract Number: 0205 • ACR Convergence 2022
Virtually Training Peer Coaches to Use Motivational Interviewing Skills: Processes from a Rheumatoid Arthritis Intervention Training Program
Mackenzie Brown¹, Yuliana Domínguez Páez², Assem Jabri³, Geyanne Lui⁴, Joan Weiner³, Aberdeen Allen⁵, Tien Sydnor-Campbell⁶, Shelley fritz³, Megan Creasman⁷, Shanthini Kasturi⁸, Monika Safford³ and Iris Navarro-Millan³, ¹Weill Cornell Medicine, Brooklyn, NY, ²Weill Cornell Medicine, Bronx, NY, ³Weill Cornell Medicine, New York, NY, ⁴Albert Einstein College of Medicine, New York, NY, ⁵Weill Cornell Medicine, Parlin, ⁶Weill Cornell Medicine, Philedelphia, ⁷NYP-Weill Cornell, New York, NY, ⁸Tufts Medical Center, Boston, MA
Background/Purpose: Peer coaching interventions are effective in helping individuals with chronic conditions understand and manage their disease. Most peer coach training programs occur in person,…

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