Abstracts tagged "quality of care"

Abstract Number: 049 • 2023 Pediatric Rheumatology Symposium
What Happens After Juvenile Myositis Patients Screen Positive for Mental Health Comorbidities? Update from a Multicenter Juvenile Myositis Mental Health Screening Pilot Study
Kaveh Ardalan¹, Rebecca Fillipo¹, Christina ZIgler², Audrey Ward¹, Jeffrey Dvergsten³, Ann Reed¹, Alison Manning¹, Gary Maslow¹, Brian Feldman⁴, Ashley Danguecan⁵, Sarah Mossad⁵, Luana Flores Pereira⁵, Susan Shenoi⁶, Stacey Haynes⁷, Joanna Patten⁷ and Andrea Knight⁵, ¹Duke University School of Medicine, Durham, NC, ²Duke, Durham, NC, ³Duke University Hospital, Durham, NC, ⁴Hospital for Sick Children / University of Toronto, Toronto, ON, Canada, ⁵The Hospital for Sick Children, Toronto, ON, Canada, ⁶Seattle Children's Hospital, Seattle, WA, ⁷Seattle Childrens Hospital and Research Center / University of Washington, Seattle, WA
Background/Purpose: Juvenile myositis (JM) patients report high rates of emotional distress but qualitative studies suggest challenges accessing high quality mental health care. We present survey…
Abstract Number: 084 • 2023 Pediatric Rheumatology Symposium
Rheum to Improve: Patient-reported Transition Readiness in a Large Pediatric Rheumatology Clinic
Kristiana Nasto¹, David McDonald¹, Kyla Fergason¹, Mary Robichaux¹, Bernard Danna¹, Monique Maher¹, Alexander Alexander¹, Danielle Guffey¹, Miriah Gillispie-Taylor² and Tiphanie Vogel¹, ¹Baylor College of Medicine, Houston, TX, ²Baylor College of Medicine, Texas Children's Hospital, Houston, TX
Background/Purpose: Transition of adolescents with chronic healthcare needs to adult care may result in poor outcomes. We have developed a program to improve the transition…
Abstract Number: 0057 • ACR Convergence 2022
Accelerating AxSpA Diagnosis: Exploring At-home Self-sampling, Symptom Checkers, Medical Student-visits and Asynchronous Report-based Assessment
Hannah Labinsky¹, Sophie von Rohr², Maria Gabriella Raimondo³, Ekaterina Vogt⁴, Britta Horstmann², Isabel Gehring⁵, Jessica Rojas-Restrepo⁵, Fabian Proft⁶, Felix Mühlensiepen⁷, Daniela Bohr², Georg Schett⁸, Andreas Ramming³ and Johannes Knitza³, ¹Department of Internal Medicine 3 - Rheumatology and Immunology, Friedrich-Alexander-University Erlangen-Nürnberg and Universitätsklinikum Erlangen, 91054 Erlangen, Germany; Deutsches Zentrum Immuntherapie, Friedrich-Alexander-University Erlangen-Nürnberg and Universitätsklinikum Erlangen, Erlangen, Germany, ²Department of Internal Medicine 3, Rheumatology & Immunology, Friedrich-Alexander-University (FAU) Erlangen-Nurnberg and University Hospital Erlangen, Erlangen, Germany, ³Department of Internal Medicine 3 – Rheumatology and Immunology, Friedrich-Alexander-University Erlangen-Nürnberg and Universitätsklinikum Erlangen, 91054 Erlangen, Germany; Deutsches Zentrum Immuntherapie, Friedrich-Alexander-UniversityErlangen-Nürnberg and Universitätsklinikum Erlangen, Erlangen, Germany, ⁴Thermo Fisher Scientific, Freiburg, Germany, ⁵Thermo Fisher Scientific, Freiburg, ⁶Department of Gastroenterology, Infectious Diseases and Rheumatology, Charité – Universitätsmedizin Berlin, Berlin, Germany, ⁷Center for Health Services Research, Brandenburg Medical School Theodor Fontane, Rüdersdorf, ⁸Universitätsklinikum Erlangen, Erlangen, Germany
Background/Purpose: The growing shortage of rheumatologists threatens adequate rheumatological care. The diagnostic delay for axial spondyloarthritis (axSpA) is particularly long, ranging between 3 to 11…
Abstract Number: 0944 • ACR Convergence 2022
Inconsistent Family Planning Documentation in Women with Interstitial Pneumonia with Autoimmune Features (IPAF)
Elena Joerns¹, Brooke Mills², Una Makris³, Traci Adams¹ and Bonnie Bermas¹, ¹UT Southwestern, Dallas, TX, ²UT Southwestern Medical Center, Fort Worth, TX, ³UT Southwestern Medical Center and Dallas VA, Dallas, TX
Background/Purpose: Family planning discussions improve pregnancy outcomes in women with interstitial lung disease (ILD). Women with interstitial pneumonia with autoimmune features (IPAF), a subset of…
Abstract Number: 1293 • ACR Convergence 2022
Is Virtual Care Here to Stay? : Rheumatology Patients’ Satisfaction in Early vs Late Pandemic
Ummugulsum Gazel¹, Tommy Han², Seyyid Bilal Acikgoz³, Tara Swami¹, Hart goldhar⁴, Urusa Shah³, Rokshana Chowdhury³, Nataliya Milman³, Nancy Maltez¹, Catherine Ivory¹, Susan Humphrey-Murto³ and Sibel Aydin¹, ¹University of Ottawa, Rheumatology, Ottawa, Canada, Ottawa, ON, Canada, ²University of Ottawa, Medical School, Ottawa, Canada, Ottawa, ON, Canada, ³University of Ottawa, Rheumatology, Ottawa, Canada, Ottawa, Canada, ⁴William Osler Health Centre Etobicoke General Site, Rheumatology, Toronto, ON, Canada
Background/Purpose: The COVID-19 pandemic has dramatically changed the delivery of healthcare, with virtual care becoming the new standard. In the early stages of the pandemic,…
Abstract Number: 0088 • ACR Convergence 2022
Challenges in the Management of Psoriatic Arthritis in Latin America: A Systematic Review
Andre Ribeiro¹, Larissa Dullius², Andre Azeredo², Laura Coates³, Odirlei Monticielo², Charles Kohem², Penelope Palominos² and Natalia Sartori¹, ¹Hospital de Clinicas de Porto Alegre, Porto Alegre, Brazil, ²Hospital de Clínicas de Porto Alegre, Porto Alegre, Brazil, ³Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK, Oxford, England, United Kingdom
Background/Purpose: In 2020, the International League of Associations for Rheumatology (ILAR) recommendations for management of psoriatic arthritis (PsA) were published. It aimed to adapt GRAPPA…
Abstract Number: 0957 • ACR Convergence 2022
Timeliness of Fetal Echocardiography for Congenital Heart Block Detection in Anti-Ro/La-Positive Pregnancies
Amanda Ohayon¹, Nikola Wilk¹, Arielle Mendel², Mayssa Moukarzel¹, Jessica Simoneau¹, Wadi Mawad¹, Gabriel Altit¹ and Evelyne Vinet², ¹McGill University Health Center, Montréal, QC, Canada, ²McGill University Health Centre, Montréal, QC, Canada
Background/Purpose: Best practice guidelines recommend screening for congenital heart block (CHB) in anti-Ro/La-positive pregnancies with serial echocardiography starting between 16 to 18 weeks of gestational…
Abstract Number: 1297 • ACR Convergence 2022
A Paediatric-Adult Provider Dyad Care Model Improves Transition from Paediatric to Adult Health Care for Youth with Childhood-Onset Systemic Lupus Erythematosus
Tala El Tal¹, Abdulaziz el Mutairi¹, Amanda Steiman² and Earl Silverman³, ¹The Hospital for Sick Children, Division of Rheumatology, Department of Paediatrics, University of Toronto, Toronto, ON, Canada, ²Sinai Health System, Toronto, ON, Canada, ³The Hospital for Sick Children and University of Toronto, Toronto, ON, Canada
Background/Purpose: Systemic lupus erythematosus (SLE) is a chronic multi-system autoimmune disease affecting 1 in 1000 individuals, of whom 20% develop the disease in childhood. Childhood-onset…
Abstract Number: 0092 • ACR Convergence 2022
Characterizing Levels of Specialist Care Received by Patients with Systemic Lupus Erythematosus: Clinical Characteristics, Emergency Care, Hospitalization, and Costs Among Commercially-insured Adults in the United States
Sandra Sze-jung Wu¹, Allison Perry², Helen Varker³, Christine Dube¹ and Gary Bryant⁴, ¹AstraZeneca, Wilmington, DE, ²IBM Watson Health, Cambridge, MA, ³Merative, Cambridge, MA, ⁴AstraZeneca, New Castle, DE
Background/Purpose: Heterogeneous SLE manifestations can delay referral and diagnosis by a rheumatologist (rheum) in as many as 75% of patients (pts) with SLE.1 After diagnosis,…
Abstract Number: 1104 • ACR Convergence 2022
Teaching Trainees How to Think: A Quality Improvement Project to Increase Recognition of Cognitive Errors in Rheumatology Fellowship
Megan Milne¹, Rebecca Sadun², Lena Eder³, Sonali Bracken⁴, Poorva Apte², Catherine Sims², Nathaniel Harris⁴, Amanda Eudy⁵ and david leverenz⁶, ¹Duke University Medical Center Division of Rheumatology and Immunology, Durham, NC, ²Duke University, Durham, NC, ³Duke University Hospital, Durham, NC, ⁴Duke University Medical Center, Durham, NC, ⁵Duke University, Raleigh, NC, ⁶Duke University School of Medicine, Durham, NC
Background/Purpose: Faulty synthesis of information due to Cognitive Errors (CEs) is the most common cause of incorrect medical decision making. Medical education often focuses on…
Abstract Number: 1302 • ACR Convergence 2022
Assessment of the Transition of Care from Pediatric to Adult Rheumatology in a Tertiary Center
Serdal Ugurlu¹, Ali Yagiz Ayla¹, Helin Idil Besiroglu², Feyza Nur Azman¹, Bugra Egeli³, Hatice Eren¹, Ibrahim Durucan², Arif Alkan², Sila Ozturk¹, Sercan Ergun¹, Amra Adrovic Yildiz⁴, Kenan Barut⁵, Fatih Haslak¹, Sezgin Sahin¹, Mehmet YILDIZ¹, Huri Ozdogan⁶ and Ozgur Kasapcopur⁷, ¹Istanbul University-Cerrahpaşa, Istanbul, Turkey, ²Istanbul University-Cerrahpaşa Medical Faculty, Istanbul, Turkey, ³Children's Hospital of Los Angeles, Los Angeles, CA, ⁴School of Medicine, KOC University, Istanbul, Turkey, ⁵Istanbul University-Cerrahpasa, Istanbul, Turkey, ⁶Istanbul University-Cerrahpaşa Medical Faculty Department of Internal Medicine Division of Rheumatology, Istanbul, Turkey, ⁷Istanbul University-Cerrahpaşa, Cerrahpaşa Medical School, Istanbul, Turkey
Background/Purpose: Taking the responsibility for their own health should be an important goal for the patients in the health care transition process. The Transition Readiness…
Abstract Number: 0094 • ACR Convergence 2022
Black Patients Are Less Satisfied with the Hospital Experience After Primary Hip and Knee Arthroplasty
John Gibbons¹, Orett Burke¹, huong do¹, Emily Ying Lai¹, Bella Mehta², Letitia Bradford³, Michael Parks¹, Linda Russell¹, Anne Bass⁴, Mark Figgie¹ and Susan Goodman¹, ¹Hospital for Special Surgery, New York, NY, ²Hospital for Special Surgery, Weill Cornell Medicine, New York, NY, ³Rehoboth McKinley Christian Health Care Services, Sacramento, CA, ⁴Hospital for Special Surgery/Weill Cornell Medicine, New York, NY
Background/Purpose:Patients' post-operative satisfaction with their hospital experience is important to patient care, hospital reimbursement, and comparison between hospitals. The Press Ganey (PG) inpatient survey is…
Abstract Number: 1271 • ACR Convergence 2022
Uptake of Rheumatology-Specific Quality Measures Submitted to National Pay-for-Performance Programs: An Analysis of Participants in the RISE Registry
Emma Kersey¹, Jing Li², Zara Izadi¹, Julia Adler-Milstein³, Tracy Johansson⁴, Jinoos Yazdany⁵ and Gabriela Schmajuk⁶, ¹University of California San Francisco, San Francisco, CA, ²University of California, San Francisco, San Francisco, CA, ³UCSF, San Francisco, ⁴American College of Rheumatology, Atlanta, GA, ⁵UCSF, San Francisco, CA, ⁶UCSF / SFVA, San Francisco, CA
Background/Purpose: In recent years, the American College of Rheumatology has stewarded a number of rheumatology-specific quality measures for use in national pay-for-performance programs. While the…
Abstract Number: 1303 • ACR Convergence 2022
Planning Transition in Times of Transition: Is There a Virtual Pathway from Pediatric to Adult Care?
Ben Danna, Monique Maher, Miriah Gillispie-Taylor and Tiphanie Vogel, Baylor College of Medicine, Houston, TX
Background/Purpose: The BRIDGE (Baylor Rheumatology Initiative: Developing and Guiding Engagement) program is a quality improvement initiative to develop a safe, comprehensive pathway for our patients…
Abstract Number: 0095 • ACR Convergence 2022
Association of Urban vs. Rural Residence with New DMARD Initiation in US Veterans with Active Rheumatoid Arthritis
Luke Desilet¹, Harlan Sayles¹, Punyasha Roul², Jennifer Barton³, Gail Kerr⁴, Kaleb Michaud¹, Ted Mikuls⁵ and Bryant England¹, ¹University of Nebraska Medical Center, Omaha, NE, ²UNMC, Omaha, NE, ³VA Portland Health Care System/OHSU, Portland, OR, ⁴Washington DC VAMC/Georgetown and Howard Universities, Washington, DC, ⁵Division of Rheumatology, University of Nebraska Medical Center, Omaha, NE
Background/Purpose: While a treat-to-target strategy is endorsed by the ACR RA Treatment Guidelines, many patient, social, and healthcare system factors make implementation of this approach…

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