Abstracts tagged "quality of care"

Abstract Number: 1170 • ACR Convergence 2023
Damage Accrual in Idiopathic Inflammatory Myopathies: Data from a Monocentric Cohort and Impact on Patients’ Quality of Life
Chiara Cardelli¹, Simone Barsotti², Elenia Laurino¹, Michele Diomedi¹, Federico Fattorini¹, Alessandra Tripoli¹, Linda Carli¹ and Marta Mosca¹, ¹Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy, ²Internal Medicine, Ospedale di Livorno, Pisa, Italy
Background/Purpose: Although the prognosis of Idiopathic Inflammatory Myopathies (IIMs) has noticeably improved over time, their chronicity may still expose a considerable number of patients to…
Abstract Number: 2009 • ACR Convergence 2023
Screening and Treatment of Low Bone Mineral Density in Allogeneic Hematopoietic Cell Transplant Patients
Perry Fuchs, Christina Ferraro, Chao Zhang, Chad Deal, Betty Hamilton and Sarah Keller, Cleveland Clinic Foundation, Cleveland, OH
Background/Purpose: Bone mineral density (BMD) loss and fracture are important causes of increased morbidity following allogeneic hematopoietic stem cell transplant (allo-HCT).Recent societal recommendations support screeningDual…
Abstract Number: 0191 • ACR Convergence 2023
Reproductive Health Discussions Between Rheumatology Providers and Systemic Lupus Erythematosus Patients: A Survey of English and Spanish-Speaking Patients
Meredith Xepoleas¹, Martha Delgado², Jack Rodman³, Julia Simard⁴, Sandy Lee⁵ and Leanna Wise⁶, ¹Keck School of Medicine of University of Southern California, Los Angeles, CA, ²LAC+USC/Keck School of Medicine, Los Angeles, CA, ³University of Southern California, Los Angeles, CA, ⁴Department of Epidemiology & Population Health, Stanford University School of Medicine, Stanford, CA, ⁵University of Southern California, Walnut, CA, ⁶LAC+USC/Keck Medicine of USC, Pasadena, CA
Background/Purpose: Systemic lupus erythematosus (SLE) primarily affects women of childbearing age, with a higher burden in non-Caucasian populations. Due to the increased risk of adverse…
Abstract Number: 1018 • ACR Convergence 2023
Recognizing Rural Healthcare Disparities in Pain Assessment for Autoimmune Rheumatologic Diseases
Lydia Yang¹, Bharat Kumar² and Melissa Swee¹, ¹University of Iowa Carver College of Medicine, Iowa City, IA, ²University of Iowa Hospitals and Clinics, Iowa City, IA
Background/Purpose: Pain is a common complaint seen in many autoimmune rheumatologic conditions, along with decreased function and decreased sense of well-being. Pain is a highly…
Abstract Number: 1391 • ACR Convergence 2023
Rates of Remission in Patients with Axial Spondyloarthritis Treated in Tertiary Care
Franziska Neinert¹, Imke Redeker², Styliani Tsiami¹, David Kiefer¹, Barbara Guminski¹, Xenofon Baraliakos³, Juergen Braun¹ and Uta Kiltz⁴, ¹Ruhr-Universität Bochum and Rheumazentrum Ruhrgebiet, Herne, Germany, ²Ruhr Universität Bochum, Bochum, Germany, ³Rheumazentrum Ruhrgebiet Herne, Ruhr-University Bochum, Herne, Germany, ⁴Rheumazentrum Ruhrgebiet, Herne, Germany
Background/Purpose: Achieving remission is the treatment target for patients (pts.) with axial spondyloarthritis (axSpA).Remission rates over longer periods in a real-life setting have not been…
Abstract Number: 2029 • ACR Convergence 2023
Health-Related Quality of Life in Idiopathic Inflammatory Myopathies: How to Act for Improving the Disease Burden of Patients?
Chiara Cardelli¹, Simone Barsotti², Elenia Laurino¹, Michele Diomedi¹, Federico Fattorini¹, Dina Zucchi³, Alessandra Tripoli¹, Linda Carli¹ and Marta Mosca¹, ¹Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy, ²Internal Medicine, Ospedale di Livorno, Pisa, Italy, ³Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Italy; Department of Medical Biotechnologies, University of Siena, Pisa, Italy
Background/Purpose: Idiopathic Inflammatory Myopathies (IIM) are rare, multisystemic and complex diseases that strongly impact the Quality of Life (QoL) of those affected. Patient Reported Outcomes…
Abstract Number: 0198 • ACR Convergence 2023
Improving Vaccination Uptake of Herpes Zoster in Young Rheumatic Disease Patients Ages 18-49 Using Specialty Pharmacy Partnership
Stephen Lindsey¹, Brittany Hill², Sheela Sheth³ and Arya Loghmani², ¹LSU Health Science Center, New Orleans, LA, ²Louisiana State University, New Orleans, LA, ³Tulane University, New Orleans, LA
Background/Purpose: Herpes zoster (HZ), also known as shingles, causes an estimated one million cases annually in the United States. Many studies have shown that the…
Abstract Number: 1082 • ACR Convergence 2023
Reducing No-shows and Late Cancellations at an Academic Medical Center Subspecialty Clinic
Nicola Jackson¹, Meg James², Kim Nguyen³, Priyanka Vashisht² and Avis Ware⁴, ¹University of Cincinnati, Rheumatology, Blue Ash, OH, ²University of Cincinnati Medical Center, Cincinnati, OH, ³University of Cincinnati Medical Center, Loveland, OH, ⁴University of Cincinnati College of Medicine, Loveland, OH
Background/Purpose: Patient no-shows and late cancellations, defined as less than 24 hours from the visit, reduce operational efficiency, revenue generation, and lead to negative clinical…
Abstract Number: 1619 • ACR Convergence 2023
Receipt of Antimicrobial Prophylaxis in U.S. Medicare Beneficiaries Initiating Immunosuppressive Medications for ANCA Vasculitis
Carolyn Thorpe, Ryan Hickson, Sherrie Aspinall, Vimal Derebail, Xinhua Zhao, Joshua Thorpe, Binxin Cao, Alexa Ehlert, Ronald Falk and Susan Hogan, University of North Carolina, Chapel Hill, NC
Background/Purpose: Infections are the leading cause of hospitalization and mortality in patients with ANCA vasculitis (AV). Multiple AV treatment guidelines recommend antimicrobial prophylaxis during treatment…
Abstract Number: 2046 • ACR Convergence 2023
Implementation of an Automated Transition Readiness Assessment in a Pediatric Rheumatology Clinic
Elizabeth Murray¹, Melissa Argraves¹, Alysha Taxter², Kelly Wise³, Paul Jensen⁴, Alana Goldstein-Leever¹, Bethanne Thomas¹, Alexa Scott¹, Jonnie Lee Hughes¹, James Gallup¹, Diana Sumano Vicente¹, Stacy Ardoin¹ and Vidya Sivaraman¹, ¹Nationwide Children's Hospital, Columbus, OH, ²Nationwide Children's, Columbus, OH, ³Nationwide Children's Hospital, Hilliard, OH, ⁴Intermountain Southwest Rheumatology Associates, St. George, UT
Background/Purpose: Many pediatric patients are inadequately prepared for the transition from pediatric to adult subspecialty healthcare, and patients who fail to transition successfully are more…
Abstract Number: 006 • 2023 Pediatric Rheumatology Symposium
Implementation of Automated Depression Screening in Patients with Lupus in a Tertiary Pediatric Rheumatology Clinic
Lauren Harper¹, Alana Goldstein-Leever¹, James Gallup¹, Vidya Sivaraman², Stacy Ardoin¹, Kyla Driest¹, Evan Mulvhihill³ and Alysha Taxter⁴, ¹Nationwide Children's Hospital, Columbus, OH, ²Nationwide Children's Hospital/ The Ohio State University, Columbus, OH, ³Nemours Children's Hospital, ⁴Nationwide Children's Hospital, Columbus, OH

Background/Purpose: Patients with chronic rheumatic conditions, particularly lupus, have higher rates of depression, which significantly impacts their lives and can lead to poor medication compliance…
Abstract Number: 049 • 2023 Pediatric Rheumatology Symposium
What Happens After Juvenile Myositis Patients Screen Positive for Mental Health Comorbidities? Update from a Multicenter Juvenile Myositis Mental Health Screening Pilot Study
Kaveh Ardalan¹, Rebecca Fillipo¹, Christina ZIgler², Audrey Ward¹, Jeffrey Dvergsten³, Ann Reed¹, Alison Manning¹, Gary Maslow¹, Brian Feldman⁴, Ashley Danguecan⁵, Sarah Mossad⁵, Luana Flores Pereira⁵, Susan Shenoi⁶, Stacey Haynes⁷, Joanna Patten⁷ and Andrea Knight⁵, ¹Duke University School of Medicine, Durham, NC, ²Duke, Durham, NC, ³Duke University Hospital, Durham, NC, ⁴Hospital for Sick Children / University of Toronto, Toronto, ON, Canada, ⁵The Hospital for Sick Children, Toronto, ON, Canada, ⁶Seattle Children's Hospital, Seattle, WA, ⁷Seattle Childrens Hospital and Research Center / University of Washington, Seattle, WA
Background/Purpose: Juvenile myositis (JM) patients report high rates of emotional distress but qualitative studies suggest challenges accessing high quality mental health care. We present survey…
Abstract Number: 084 • 2023 Pediatric Rheumatology Symposium
Rheum to Improve: Patient-reported Transition Readiness in a Large Pediatric Rheumatology Clinic
Kristiana Nasto¹, David McDonald¹, Kyla Fergason¹, Mary Robichaux¹, Bernard Danna¹, Monique Maher¹, Alexander Alexander¹, Danielle Guffey¹, Miriah Gillispie-Taylor² and Tiphanie Vogel¹, ¹Baylor College of Medicine, Houston, TX, ²Baylor College of Medicine, Texas Children's Hospital, Houston, TX
Background/Purpose: Transition of adolescents with chronic healthcare needs to adult care may result in poor outcomes. We have developed a program to improve the transition…
Abstract Number: 089 • 2023 Pediatric Rheumatology Symposium
The Mosaic of Mental Health: Perceived Impact of a Workshop Empowering Pediatric Rheumatology Clinicians in Routine Screening and Effective Management of Mental Health Problems
Tala El Tal¹, Kaveh Ardalan², Natoshia Cunningham³, Megan Curran⁴, Mariel Dela Paz⁵, Suzanne Edison⁶, Michelle Itczak⁷, Susan Kim⁸, Alana Goldstein-Leever⁹, Sharon Lorber¹ and Andrea Knight¹, ¹The Hospital for Sick Children, Toronto, ON, Canada, ²Duke University School of Medicine, Durham, NC, ³Michigan State University, Grand Rapids, MI, ⁴University of Colorado, Denver, CO, ⁵UCSF, San Francisco, CA, ⁶Cure JM Foundation, ⁷University of Indianapolis, Indianapolis, IN, ⁸UCSF Benioff Children's Hospital, San Francisco, CA, ⁹Nationwide Children's Hospital, Columbus, OH
Background/Purpose: Mental health (MH) problems, particularly anxiety and depression, are common in children and adolescents with pediatric rheumatologic diseases, and impact disease-related outcomes. Pediatric rheumatology…
Abstract Number: 091 • 2023 Pediatric Rheumatology Symposium
Achieving Remission in Childhood-onset Systemic Lupus Erythematosus: Rapid Implementation of an EMR-integrated Dashboard to Measure Disease Activity and Remission Rates
Kaleo Ede¹, Nikita Goswami², Elisa Wershba², Michael Shishov², Samantha Casselman², Pierina Ortiz² and Vinay Vaidya², ¹Phoenix Children's Hosptial; University of Arizona College of Medicine- Phoenix, Phoenix, AZ, ²Phoenix Children's Hospital, Phoenix, AZ
Background/Purpose: Children with childhood-onset systemic lupus erythematosus (cSLE) experience more severe disease than their adult counterparts, in addition to high rates of clinical depressive symptoms…

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