Abstracts tagged "Qualitative Research"

Abstract Number: 1098 • ACR Convergence 2022
Perceived Barriers and Opportunities to Accessing Rheumatoid Arthritis Care on Navajo Nation: The Primary Care Providers’ Perspectives
Jennifer Mandal¹, Catherine Nasrallah², Tabitha Carroway³, Mary Margaretten³, Gwendolyn Grant⁴ and Jinoos Yazdany³, ¹University of California San Francisco, San Francisco, CA, ²UCSF, San Francisco, ³UCSF, San Francisco, CA, ⁴Centura Health, Durango, CO
Background/Purpose: Navajo Nation is the largest American Indian reservation, home to 250,000 tribal members living on 27,000 square miles. The prevalence of RA among the…
Abstract Number: 0115 • ACR Convergence 2022
Facilitators of Immunosuppressive Medication Adherence in Systemic Lupus Erythematosus: A Qualitative Study of Racial Minority Patients, Lupus Providers and Clinic Staff
Shannon Herndon¹, Amy Corneli², Carrie Dombeck³, Teresa Swezey³, Megan Clowse³, Jennifer Rogers⁴, Lisa Criscione-Schreiber², Rebecca Sadun³, Jayanth Doss³, Amanda Eudy⁵, Hayden Bosworth² and Kai Sun³, ¹Duke University Hospital, Durham, NC, ²Duke University School of Medicine, Durham, NC, ³Duke University, Durham, NC, ⁴Duke, Durham, NC, ⁵Duke University, Raleigh, NC
Background/Purpose: SLE disproportionately affects patients of color. Medication nonadherence is more common among patients of color with SLE and is associated with worse health outcomes.…
Abstract Number: 1099 • ACR Convergence 2022
Empowering Patients with Lupus Through Their Photographs: Application of the Photovoice Method to Understand Social Determinants of Health
Sciaska Ulysse¹, Kreager Taber², Jessica Williams³, Laura Lorenz⁴ and Candace Feldman¹, ¹Brigham and Women's Hospital, Boston, MA, ²Duke University, Durham, NC, ³Emory University School of Medicine, Atlanta, GA, ⁴Brandeis University, Waltham, MA
Background/Purpose: Photovoice is a participatory visual research method that provides individuals with cameras and empowers them to share aspects of their daily lives and environments…
Abstract Number: 0181 • ACR Convergence 2022
Patient Perspective of Unique Support and Education Needs of Latinx/Latino(a)/Hispanic Rheumatoid Arthritis Patients: Implications for a Culturally Tailored and Disease Specific Intervention
Anna Balakrishnan¹, Adena Batterman¹, Daniel Hernandez², Angel Tapia³, Joan Westreich¹, Roberta Horton¹ and Theodore Fields¹, ¹Hospital for Special Surgery, New York, NY, ²Global Healthy Living Foundation, Nyack, NY, ³Global Healthy Living Foundation, Upper Nyack, NY
Background/Purpose: Health disparities for Latinx RA patients, including higher pain, fatigue, disability, and risk for depression are well documented.1, 2, 3, 4 Support and education…
Abstract Number: 1267 • ACR Convergence 2022
Accuracy of Financial Disclosures in American-Based Rheumatology Journals
Mary Guan¹, Michael Pillinger² and Aryeh Abeles³, ¹New York University Grossman School of Medicine, Brooklyn, NY, ²NYU Grossman School of Medicine, New York, NY, ³New York University Grossman School of Medicine, Wallingford, CT
Background/Purpose: Prior studies demonstrated that authors of publications may not accurately disclose their financial relationships with industry. One recent study reported that among authors of…
Abstract Number: 0193 • ACR Convergence 2022
Factors Influencing Visit Preference in Patients with Rheumatic Diseases: A Qualitative Study
Kiara Aaron¹, Catherine Nasrallah², Lesley Jackson¹, Sarah Goglin³, Diana Paez⁴, David Chae⁵, Faith Mugeta¹, Norma Techarukpong¹, Ellen McNeeley¹, Gary Cutter¹, kenneth saag¹, Mary Margaretten⁴ and Maria Danila¹, ¹University of Alabama at Birmingham, Birmingham, AL, ²UCSF, San Francisco, ³University of California San Francisco, San Francisco, CA, ⁴University of California San Francisco, San Francisco, ⁵Tulane University School of Public Health and Tropical Medicine, New Orleans, LA
Background/Purpose: The COVID-19 pandemic has increased the use of telemedicine visits for patients living with rheumatic and musculoskeletal diseases (RMD). The factors that influence preferences…
Abstract Number: 1334 • ACR Convergence 2022
Exploring Canadian Patient Experiences of Living with Lupus Nephritis (LN)
Francesca S Cardwell¹, Sydney George², Adrian Boucher², Megan R W Barber³, Kim Cheema⁴, Susan J Elliott⁵ and Ann E Clarke³, ¹University of Waterloo, Department of Geography & Environmental Management, Burlington, ON, Canada, ²GlaxoSmithKline, Health Outcomes and Economics, Mississauga, ON, Canada, ³University of Calgary, Division of Rheumatology, Cumming School of Medicine, Calgary, AB, Canada, ⁴University of Calgary, Division of Nephrology, Cumming School of Medicine, Calgary, AB, Canada, ⁵University of Waterloo, Department of Geography & Environmental Management, Waterloo, ON, Canada
Background/Purpose: LN is one of the most severe manifestations of SLE; however, the patient experience remains understudied. This research investigates patient experiences and perspectives of…
Abstract Number: 0200 • ACR Convergence 2022
Should Independence Play a Role in Assessing Remission in Rheumatoid Arthritis?
Thomas Khoo¹, Bethan Jones², Athena Chin¹, Alice Terrett³, Marieke Voshaar⁴, Wijnanda Hoogland⁵, Lyn March⁶, Dorcas Beaton⁷, Ummugulsum Gazel⁸, Beverley Shea⁹, Peter Tugwell¹⁰, Caroline Flurey¹¹ and Susanna Proudman¹², ¹Rheumatology Unit, Flinders Medical Centre, Adelaide, Australia, ²School of Healthcare and Social Wellbeing, University of the West of England, Bristol, United Kingdom, ³Rheumatology Unit, The Royal Adelaide Hospital, Adelaide, Australia, ⁴Department of Pharmacy and Department of Research & Innovation, Sint Maartenskliniek and Department of Pharmacy, Radboud University Medical Centre, Nijmegan, Netherlands, ⁵OMERACT Patient Research Partner, Netherlands, ⁶Sydney Medical School, Institute of Bone and Joint Research, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, Australia, ⁷Institute for Work & Health, Toronto, ON, Canada, ⁸University of Ottawa, Rheumatology, Ottawa, Canada, Ottawa, ON, Canada, ⁹School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada, Ottawa, Canada, ¹⁰University of Ottawa, Ottawa, Canada, Ottawa, ON, Canada, ¹¹Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom, ¹²Rheumatology Unit, Royal Adelaide Hospital, and Discipline of Medicine, University of Adelaide, Adelaide, Australia
Background/Purpose: The current goal of treatment in rheumatoid arthritis (RA) is clinical remission, which according to the ACR/EULAR 2011 definition, is based on tender and…
Abstract Number: 1343 • ACR Convergence 2022
Satisfaction with Rheumatoid Arthritis Care Is Related to Discordance with Providers’ Treatment Goals and Patients’ Reasons for Disagreement
Kelly O'Neill¹, Pamela Sinicrope², Cynthia Crowson³, Kathryne Marks⁴, Rachel Giblon⁵, Elena Myasoedova² and John Davis², ¹Rheumatoid Patient Foundation, Winter Springs, FL, ²Mayo Clinic, Rochester, MN, ³Mayo Clinic, Eyota, MN, ⁴Brigham and Women's Hospital, Boston, MA, ⁵Mayo Clinic, Rochester, MN, Rochester, MN
Background/Purpose: We previously reported on the incidence of shared treatment goal discussions which are associated with disease activity (DA) improvement and satisfaction within rheumatology care.…
Abstract Number: 0202 • ACR Convergence 2022
Learning Needs Assessment for Patients with Cancer and a Pre-Existing Autoimmune Disease Who Are Candidates to Receive Immune Checkpoint Inhibitors
Maria A. Lopez-Olivo¹, Johncy Kachira², Maryam Buni³, Sang Taek Kim⁴, Huifang Lu⁴, Gabrielle Duhon⁴, Juan Ruiz⁴, Clifton O. Bingham III⁵, Cassandra Calabrese⁶, Robert J. volk⁴ and Maria Suarez-Almazor⁷, ¹The University of Texas, MD Anderson Cancer Center, Houston, TX, ²The University of Texas MD Anderson Cancer Center, Texas, TX, ³MD Anderson Cancer Center, Bellaire, TX, ⁴The University of Texas MD Anderson Cancer Center, Houston, TX, ⁵Johns Hopkins University, Baltimore, MD, ⁶Cleveland Clinic Foundation, Cleveland Heights, OH, ⁷MD Anderson Cancer Center, Houston, TX
Background/Purpose: Immune checkpoint inhibitors (ICI) have been extremely successful in the treatment of various malignancies. Patients with pre-existing autoimmune disorders and cancer are at risk…
Abstract Number: 1349 • ACR Convergence 2022
Priority Educational Topics to Deliver Information About Immune Checkpoint Inhibitors for Patients with Cancer and a Pre-Existing Autoimmune Disease
Maria A. Lopez-Olivo¹, Juan Ruiz², Gabrielle Duhon², Mehmet Altan³, Hussein Tawbi², Adi Diab⁴, Clifton O. Bingham III⁵, Cassandra Calabrese⁶, Natalia I. Heredia⁷, Robert J. volk² and Maria Suarez-Almazor⁸, ¹The University of Texas, MD Anderson Cancer Center, Houston, TX, ²The University of Texas MD Anderson Cancer Center, Houston, TX, ³Department of Thoracic/Head and Neck Medical Oncology, The University of Texas MD Anderson Cancer Center, Houston, TX, ⁴UT MD Anderson Cancer Center, Houston, TX, ⁵Johns Hopkins University, Baltimore, MD, ⁶Cleveland Clinic Foundation, Cleveland Heights, OH, ⁷The University of Texas Health Science Center at Houston, School of Public Health, Houston, TX, ⁸MD Anderson Cancer Center, Houston, TX
Background/Purpose: Immune checkpoint inhibitors (ICI) have improved cancer outcomes but can cause severe toxicity and flares in cancer patients with pre-existing autoimmune disease. The objective…
Abstract Number: 0205 • ACR Convergence 2022
Virtually Training Peer Coaches to Use Motivational Interviewing Skills: Processes from a Rheumatoid Arthritis Intervention Training Program
Mackenzie Brown¹, Yuliana Domínguez Páez², Assem Jabri³, Geyanne Lui⁴, Joan Weiner³, Aberdeen Allen⁵, Tien Sydnor-Campbell⁶, Shelley fritz³, Megan Creasman⁷, Shanthini Kasturi⁸, Monika Safford³ and Iris Navarro-Millan³, ¹Weill Cornell Medicine, Brooklyn, NY, ²Weill Cornell Medicine, Bronx, NY, ³Weill Cornell Medicine, New York, NY, ⁴Albert Einstein College of Medicine, New York, NY, ⁵Weill Cornell Medicine, Parlin, ⁶Weill Cornell Medicine, Philedelphia, ⁷NYP-Weill Cornell, New York, NY, ⁸Tufts Medical Center, Boston, MA
Background/Purpose: Peer coaching interventions are effective in helping individuals with chronic conditions understand and manage their disease. Most peer coach training programs occur in person,…
Abstract Number: 1470 • ACR Convergence 2022
Work Disability and Function in Systematic Lupus Erythematosus (SLE): Results from a Mixed-Methods Exploratory Canadian Study
Behdin Nowrouzi-Kia¹, J. Antonio Avina-Zubieta², Mary T Fox³, William Shaw⁴, Maggie Ho⁵, Derek Haaland⁶, Janet Pope⁷, Paul R Fortin⁸, Kathleen Bingham⁹, Nathalie Rozenbojm¹⁰, Mark Matsos¹¹, Christine Peschken¹², Amanda Steiman¹³, Earl Silverman¹⁴, Jiandong Su¹⁵, Jennifer Reynolds¹⁶, Catherine Ivory¹⁷, Dafna Gladman¹⁸, Murray Urowitz¹⁹, Francisco Sanchez-Guerrero²⁰, Lily Lim¹², Stephanie Keeling²¹, Ana Soberanis¹, Patricia Katz²² and Zahi Touma¹⁵, ¹University of Toronto, Toronto, ON, Canada, ²Arthritis Research Canada, University of British Columbia, Vancouver, BC, Canada, ³York University, Toronto, ON, Canada, ⁴University of Connecticut School of Medicine, Framington, CT, ⁵University Health Network, Toronto Western Hospital, Toronto, ON, Canada, ⁶The Waterside Clinic, Oro Medonte, ON, Canada, ⁷University of Western Ontario, London, ON, Canada, ⁸Centre ARThrite - CHU de Québec - Université Laval, Québec, QC, Canada, ⁹Centre for Mental Health, University Health Network; Department of Psychiatry, University of Toronto, Toronto, ON, Canada, ¹⁰University Health Network, Toronto, ON, Canada, ¹¹McMaster University, Hamilton, ON, Canada, ¹²University of Manitoba, Winnipeg, MB, Canada, ¹³Sinai Health System, Toronto, ON, Canada, ¹⁴The Hospital for Sick Children and University of Toronto, Toronto, ON, Canada, ¹⁵Schroeder Arthritis Institute, Krembil Research Institute, University Health Network and University of Toronto, Toronto, ON, Canada, ¹⁶University of British Columbia Dept of Medicine, Division of Rheumatology, Vancouver, BC, Canada, ¹⁷University of Ottawa, Rheumatology, Ottawa, Canada, Ottawa, ON, Canada, ¹⁸Toronto Western Hospital, Schroeder Arthritis Institute, Toronto, ON, Canada, ¹⁹University of Toronto, University Health Network, Schroeder Arthritis Institute, Toronto, ON, Canada, ²⁰University Health Network/Sinai Health system, Toronto, ON, Canada, ²¹University of Alberta, Edmonton, AB, Canada, ²²UCSF, San Rafael, CA
Background/Purpose: Systemic Lupus Erythematosus (SLE) is a chronic, multisystemic, autoimmune disease which can result in disability and mortality. A functional assessment tool that measures the…
Abstract Number: 0210 • ACR Convergence 2022
Themes in Patients’ Discordance with Provider’s Rheumatoid Arthritis Treatment Goals Relate to Patient Age, Gender, and Ethnicity
Kelly O'Neill¹, Pamela Sinicrope², Cynthia Crowson³, Kathryne Marks⁴, Rachel Giblon⁵, Elena Myasoedova² and John Davis², ¹Rheumatoid Patient Foundation, Winter Springs, FL, ²Mayo Clinic, Rochester, MN, ³Mayo Clinic, Eyota, MN, ⁴Brigham and Women's Hospital, Boston, MA, ⁵Mayo Clinic, Rochester, MN, Rochester, MN
Background/Purpose: We previously reported on themes in patients' treatment goals and their association with rheumatoid arthritis (RA) disease activity (DA) and aspects of rheumatology care,…
Abstract Number: 1782 • ACR Convergence 2022
Sociocultural and Moral Factors Influencing the Decision to Vaccinate Among Rheumatic Patients: A Qualitative Study
Tirsa Colmenares-Roa¹, Amaranta ManriquedeLara², Virginia Pascual Ramos³, JOSE FRANCISCO MOCTEZUMA RIOS⁴, Irazu Contreras-Ibañez⁵, Everardo Alvarez-Hernandez⁶, Guillermo Guaracha Basañez⁷, Graciela Meza-LópezyOlguin⁴ and Ingris Pelaez-Ballestas¹, ¹Hospital General de México "Dr. Eduardo Liceaga", Ciudad de México, Mexico, ²Hospital General de México "Dr. Eduardo Liceaga,", Ciudad de México, Mexico, ³Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran, Ciudad de México, Mexico, ⁴HOSPITAL GENERAL DE MEXICO "Dr. Eduardo Liceaga", Ciudad de México, Mexico, ⁵Instituto Nacional de Nutricion Salvador Zubirán, Ciudad de México, Mexico, ⁶Hospital General de Mexico "Dr.Eduardo Liceaga", Ciudad de México, Mexico, ⁷Instituto Nacional de Ciencias Médicas y Nutrición "Salvador Zubirn", Ciudad de México, Mexico
Background/Purpose: Vaccination is a process that involves individual, social and moral aspects, beyond public governance of vaccines or vaccination as a public health concern. The…

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