Abstracts tagged "Qualitative Research"

Abstract Number: 1910 • ACR Convergence 2023
Development of the American College of Rheumatology Toolkit for Implementation of Rheumatoid Arthritis Outcome Measures in Clinical Practice
Catherine Nasrallah¹, Lindsay Jacobsohn¹, Gabriela Schmajuk², Emma Kersey¹, Cammie Young³, Cammie Young³, Janell Martin⁴, Lori Barber⁵, Jennifer Barton⁶, Puneet Bajaj⁷, Christie M. Bartels⁸, Sancia Ferguson⁹, Elizabeth Wahl¹⁰, Kimberly DeQuattro¹¹, Patti Katz¹², Maria I. ("Maio") Danila¹³, Meera Subash¹⁴, Christina Downey¹⁵, JoAnn Zell¹⁶, Kimberly Reiter¹⁷, Elena Weinstein¹⁸ and Jinoos Yazdany¹, ¹University of California San Francisco, San Francisco, CA, ²UCSF / SFVA, San Francisco, CA, ³University of California San Francisco, Oakland, CA, ⁴American College of Rheumatology, Atlanta, GA, ⁵ACR, Atlanta, GA, ⁶VA Portland Health Care System/OHSU, Portland, OR, ⁷UT Southwestern Medical Center, Dallas, TX, ⁸University of Wisconsin, School of Medicine and Public Health, Madison, WI, ⁹University of Wisconsin, Madison, WI, ¹⁰VA Puget Sound Healthcare System, Seattle, WA, ¹¹University of Pennsylvania, Media, PA, ¹²University of California San Francisco, San Rafael, CA, ¹³University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL, ¹⁴University of Texas Health Science Center at Houston, Houston, TX, ¹⁵Loma Linda University Medical Center, Loma Linda, CA, ¹⁶University of Colorado Anschutz Medical Campus, Denver, CO, ¹⁷Albuquerque VA Medical Center, Albuquerque, NM, ¹⁸University of Colorado, Englewood, CO
Background/Purpose: Despite significant interest in the scale and spread of rheumatoid arthritis (RA) outcome measures to facilitate a patient-centered, treat-to-target approach, use of these measures…
Abstract Number: 0763 • ACR Convergence 2023
Sticking the Landing: A 3-Year Qualitative Longitudinal Study on Navigating Transitions in Pediatric Rheumatology Fellowship
Sarah Bayefsky¹, Hannah Anderson², Dorene Balmer² and Jay Mehta², ¹University of Pennsylvania/Children's Hospital of Philadelphia, Philadelphia, PA, ²Children's Hospital of Philadelphia, Philadelphia, PA
Background/Purpose: Transitions present many challenges for medical trainees, and a lack of preparedness for these transitions is associated with negative outcomes, including higher rates of…
Abstract Number: 1911 • ACR Convergence 2023
Using the Technology Acceptance Model to Assess Physician Perceptions and Experiences Using the Rheumatoid Arthritis-Patient-Reported Outcomes Dashboard: Mixed-Methods Study
Catherine Nasrallah¹, Cherish Wilson², Alicia Hamblin¹, Lindsay Jacobsohn¹, Cammie Young³, Cammie Young³, Mary Nakamura⁴, Andrew Gross¹, Judith Ashouri¹, Mehrdad Matloubian¹, Jinoos Yazdany¹ and Gabriela Schmajuk², ¹University of California San Francisco, San Francisco, CA, ²UCSF / SFVA, San Francisco, CA, ³University of California San Francisco, Oakland, CA, ⁴UCSF/SFVAHCS, San Francisco, CA
Background/Purpose: Improving shared decision-making using a treat-to-target approach, including the use of patient reported outcomes (PROs), is important to providing high quality care for rheumatoid…
Abstract Number: 0994 • ACR Convergence 2023
Narrative Medicine and Pediatric Rheumatology: Addressing Burnout and Bias
Aviya Lanis, Natalie Rosenwasser and Esi Morgan, Seattle Children's Hospital, Seattle, WA
Background/Purpose: Burnout, a syndrome of emotional exhaustion and depersonalization, adversely impacts healthcare and results in mood disturbances, poor patient and provider satisfaction and high turnover.…
Abstract Number: 1938 • ACR Convergence 2023
Cranial Nerve Manifestations in Sarcoidosis Associated with Lymphoma, Non-facial Paralysis, and Other Neurologic Disorders
Mary Salim, Emily Kokush, Evelyne Kalyoussef, Eugenio Capitle and Reena Khianey, Rutgers New Jersey Medical School, Newark, NJ
Background/Purpose: Sarcoidosis is a systemic granulomatous inflammatory disease that affects multiple organ systems including the including the lungs, skin, skeletal, and nervous system. Cranial neuropathies…
Abstract Number: 0998 • ACR Convergence 2023
Barriers and Facilitators for Osteoporosis and Sarcopenia Care for Persons Living with HIV in Peru: HIV Physician and Coordinator Perspectives
Rebecca Slotkin¹, Daniel Granda Calderón², Joselito Malca Hernandez², Diego Cabrera³, Carlos Manuel Benites Villafane⁴, Patricia Jannet García⁵ and Evelyn Hsieh⁶, ¹Yale University, Department of Medicine, Section of Rheumatology; Yale School of Public Health, New Haven, CT, ²Facultad de Medicina Alberto Hurtado de la Universidad Peruana Cayetano Heredia, Lima, Peru, ³Yale University, Department of Medicine, Section of Rheumatology; Department of Internal Medicine, Waterbury Hospital, New Haven, CT, ⁴Ministerio de Salud, Peru, Lima, Peru, ⁵Epidemiology, STD, and HIV Unit, School of Public Health, Universidad Peruana Cayetano Heredia, Lima, Peru, ⁶Yale University, Department of Medicine, Section of Rheumatology; Yale School of Public Health; Section of Rheumatology, VA Connecticut Healthcare System, Westport, CT
Background/Purpose: Persons living with HIV (PLWH) have a higher risk of developing age-related non-communicable diseases (NCDs), such as osteoporosis and sarcopenia. In Peru, HIV providers…
Abstract Number: 1939 • ACR Convergence 2023
Sinonasal Sarcoidosis Associated with Chronic Pulmonary Disease, Deficiency Anemias, and Obesity
Emily Kokush, Mary Salim, Eugenio Capitle, Reena Khianey and Evelyne Kalyoussef, Rutgers New Jersey Medical School, Newark, NJ
Background/Purpose: Sarcoidosis is a systemic granulomatous inflammatory disease that can involve multiple organ systems. Rarely, sarcoidosis can involve the upper respiratory tract including the sinonasal…
Abstract Number: 1008 • ACR Convergence 2023
Identifying Inflammatory Arthritis Ambulatory Care Service Model Enhancements Needed to Reduce Avoidable Emergency Department Use
Emilie Pianarosa¹, Pamela Roach¹, Patrick McLane², Meghan Elliott¹, Brian Holroyd³, Shanon McQuitty⁴, Steven Katz³, Nazret Russon², Katie Lin¹, Claire Barber¹ and Cheryl Barnabe¹, ¹University of Calgary, Calgary, AB, Canada, ²Alberta Health Services, Edmonton, AB, Canada, ³University of Alberta, Edmonton, AB, Canada, ⁴Arthritis Research Canada, Vancouver, BC, Canada
Background/Purpose: Emergency departments (ED) become a location for non-urgent care when ambulatory care systems are not sufficient. We aim to describe contributing factors to the…
Abstract Number: 2006 • ACR Convergence 2023
Improvement of Care: Osteoporosis Screening in a Resident-led Primary Care Clinic
Massiel Jimenez Artiles¹, Roshan Subedi², Qi Wang³, Bishara Jahshan⁴, Khalid Gadir⁴ and Waleed Quwatli⁵, ¹Unity Hospital, Rochester Regional Health, Greece, NY, ²Rochester Regional Health/Unity Hospital, Greece, NY, ³Rochester Regional Health/Unity Hospital, Rochester, NY, ⁴Unity Hospital, Rochester Regional Health, Rochester, NY, ⁵Unity Hospital/ Rochester Regional Health, Rochester, NM
Background/Purpose: Osteoporotic fractures, especially hip fractures, are associated with significant morbidity, including limitations in ambulation, disability, and decreased quality of life. The aim of this…
Abstract Number: 1026 • ACR Convergence 2023
Patients’ Barriers to Total Joint Arthroplasty: Associations with the Orthopedic Consultation
Insa Mannstadt¹, J. Alex Gibbons², Troy Amen¹, Mangala Rajan³, Sarah Young⁴, Michael Parks¹, Mark Figgie¹, Anne Bass⁵, Linda Russell¹, Bella Mehta⁵, iris Navarro-Millán¹ and Susan Goodman¹, ¹Hospital for Special Surgery, New York, NY, ²Columbia University Vagelos College of Physicians & Surgeons, New York, NY, ³Weill Cornell Medicine, New York, NY, ⁴Binghamton University, Binghamton, NY, ⁵Hospital for Special Surgery, Weill Cornell Medicine, New York, NY
Background/Purpose: While racial/ethnic disparities in total joint arthroplasty (TJA) utilization are well-documented, the impact of orthopedic specialists on patients' perceptions of TJA is poorly understood.…
Abstract Number: 2020 • ACR Convergence 2023
Exploring Experiences and Perspectives of Canadian Patients with Lupus Nephritis Through Photovoice
Francesca Cardwell¹, Susan Elliott¹, Megan R.W. Barber², Kim Cheema², Sydney George³, Adrian Boucher³ and Ann Clarke⁴, ¹University of Waterloo, Waterloo, ON, Canada, ²University of Calgary, Calgary, AB, Canada, ³GlaxoSmithKline, Mississauga, ON, Canada, ⁴University of Calgary, Division of Rheumatology, Cumming School of Medicine, Calgary, AB, Canada
Background/Purpose: LN is a major cause of morbidity and mortality and develops in up to 60% of adult SLE patients. The experiences of patients with…
Abstract Number: 022 • 2023 Pediatric Rheumatology Symposium
Narrative Medicine and Pediatric Rheumatology: Addressing Burnout and Bias
aviya lanis, Natalie Rosenwasser and Esi Morgan, Seattle Children's Hospital, Seattle, WA
Background/Purpose: Burnout, a syndrome of emotional exhaustion and depersonalization, adversely impacts healthcare. This can result in mood disturbances, poor patient and provider satisfaction and high…
Abstract Number: 062 • 2023 Pediatric Rheumatology Symposium
Assessment of Barriers and Facilitators in Implementation of the Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans
Cagri Yildirim-Toruner¹, Daniel Glaser², Timothy Beukelman³, Stacy Ardoin⁴, Ahmar Hashmi⁵, Rajdeep Pooni⁶, Maria Fernandez⁵, Vincent Del Gaizo⁷, Leslie Hanrahan⁷, Mary Ellen Riordan⁸, Stacey Tarvin⁹ and CARRA Registry Investigators⁷, ¹Baylor College of Medicine, Texas Children's Hospital, Houston, TX, ²Yale University School of Medicine, New Haven, CT, ³University of Alabama at Birmingham, Birmingham, AL, ⁴Nationwide Children's Hospital, Columbus, OH, ⁵The University of Texas Health Sciences Center at Houston, Institute for Implementation Science, Houston, TX, ⁶Stanford University, Palo Alto, CA, ⁷CARRA, Washington, DC, ⁸Hackensack Meridian Health/ Joseph M. Sanzari Children's Hospital, Hackensack, NJ, ⁹Riley Hospital for Children at Indiana University Health, Indianapolis, IN
Background/Purpose: Since 2010, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) has developed 12 consensus treatment plans (CTP) with the aim of reducing treatment variability…
Abstract Number: 085 • 2023 Pediatric Rheumatology Symposium
Identification of Barriers to Care Experienced by Children with Rheumatic Disease: A Qualitative Study
Olivia Kwan¹, Gloria Garcia², Kiana Johnson³, Melissa Oliver¹, Stacey Tarvin⁴, Alvaro Tori¹, Brandi Stevens¹ and Martha Rodriguez⁴, ¹Indiana University, Indianapolis, IN, ²Indiana University School of Medicine, Indianapolis, IN, ³East Tennessee State University, Johnson City, TN, ⁴Riley Hospital for Children at Indiana University Health, Indianapolis, IN
Background/Purpose: Pediatric rheumatic diseases are known to have disparities in disease outcomes, but many drivers of these inequities are unknown. Social determinants of health are…
Abstract Number: 135 • 2023 Pediatric Rheumatology Symposium
Assessing Medication Adherence in JIA: Pilot Phase Results from a Single-Center Quality Improvement Initiative
Dori Abel¹, Joyce Chang², Jon Burnham³, Chen Kenyon⁴ and Sabrina Gmuca⁵, ¹Department of Pediatrics, Division of Rheumatology, Children’s Hospital of Philadelphia; PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA, ²Boston Children's Hospital, Boston, MA, ³Department of Pediatrics, Division of Rheumatology, Children’s Hospital of Philadelphia; Department of Pediatrics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, ⁴Department of Pediatrics, University of Pennsylvania Perelman School of Medicine; PolicyLab, Children’s Hospital of Philadelphia, Philadelphia, PA; Leonard Davis Institute of Health Economics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, ⁵Department of Pediatrics, Division of Rheumatology, Children’s Hospital of Philadelphia; Center for Pediatric Clinical Effectiveness, Children’s Hospital of Philadelphia; PolicyLab, Children's Hospital of Philadelphia; Department of Pediatrics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
Background/Purpose: Suboptimal medication adherence is a widespread problem in JIA. There are several unique features to medication adherence in JIA, including that the medications used…

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