Abstracts tagged "Qualitative Research"

Abstract Number: 1242 • ACR Convergence 2024
Qualitative Patient Interview Study in Patients with Systemic Lupus Erythematosus to Assess Patient Perception of Fatigue and Skin-Related Symptoms
Joseph F. Merola¹, Victoria Werth², Jiyoon C. Choi³, Brandon Becker³, Teresa Edwards⁴, Coburn Hobar⁵, Samantha Pomponi⁵ and Vibeke Strand⁶, ¹UT Southwestern Medical Center, Dallas, TX, ²Hospital of the University of Pennsylvania, Philadelphia, PA, ³Bristol Myers Squibb, Princeton, ⁴RTI International, Research Triangle Park, NC, ⁵Bristol Myers Squibb, Princeton, NJ, ⁶Division of Immunology/Rheumatology, Stanford University, Palo Alto, CA
Background/Purpose: Systemic lupus erythematosus (SLE) is a chronic autoimmune disorder that disproportionately impacts women of childbearing age. Although the incidence varies widely based on ethnic…
Abstract Number: 1245 • ACR Convergence 2024
Inpatient Discontinuation of Allopurinol – A Quality Improvement (QI) Initiative
Stephanie Tancer¹, Basmah Al Dulaijan² and Puja Khanna³, ¹University of Michigan Department of Internal Medicine, Division of Rheumatology, Ann Arbor, MI, ²Michigan Medicine, Ann Arbor, MI, ³University of Michigan, Ann Arbor, MI
Background/Purpose: Gout is a chronic inflammatory arthritis induced by hyperuricemia and manifested by recurrent acute flares of debilitating joint pain when left untreated. Allopurinol is…
Abstract Number: 1250 • ACR Convergence 2024
Qualitative Study on Patient-Reported Outcome Measures in Patients with Sjögren’s Disease
Suzanne Arends¹, Jiyoon C. Choi², Brandon Becker², Teresa Edwards³, Antoine Sreih⁴, Antonia Christodoulou⁴ and Vibeke Strand⁵, ¹Department of Rheumatology and Clinical Immunology, University Medical Center Groningen, University of Groningen, Groningen, Netherlands, ²Bristol Myers Squibb, Princeton, ³RTI International, Research Triangle Park, NC, ⁴Bristol Myers Squibb, Princeton, NJ, ⁵Division of Immunology/Rheumatology, Stanford University, Palo Alto, CA
Background/Purpose: Sjögren’s disease (SjD) is a chronic, systemic autoimmune disease characterized by lymphocytic infiltration of the endocrine glands. Globally, SjD affects between 0.01% and 0.05%…
Abstract Number: 0179 • ACR Convergence 2024
Bridging the Gap: Enhancing Diversity in Lupus Clinical Trials Through Investigator and Research Staff Engagement
Tessa Englund¹, Katherine Holben¹, Simone Frank², Khadeejatul-Kubraa Lawal¹, Julie Hsieh³, Christine Lee³ and Saira Sheikh¹, ¹University of North Carolina at Chapel Hill, Chapel Hill, NC, ²North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill, Chapel Hill, NC, ³U.S. Food and Drug Administration, Silver Spring, MD
Background/Purpose: Lupus disproportionately affects diverse racial and ethnic minority populations, yet there is a significant disparity between those affected and those enrolled in clinical trials.…
Abstract Number: 1255 • ACR Convergence 2024
Development and Validation of a Brief Measure of Uncertainty Among Patients with Vasculitis and Other Rheumatic Diseases
Caleb Bolden¹, Claire Cook¹, Lucy Finkelstein-Fox¹, Xiaoqing Fu¹, Flavia Castelino¹, Hyon K. Choi², Cory Perugino¹, John Stone³, Elyse Park¹, Christine Yeung⁴, Corrie Stone-Johnson⁵, Stacey Ivits⁶, Peter Merkel⁷, Daniel Hall¹ and Zachary Wallace⁸, ¹Massachusetts General Hospital, Boston, MA, ²Massachusetts General Hospital, Lexington, MA, ³Massachusetts General Hospital , Harvard Medical School, Concord, MA, ⁴University of Pennsylvania, Philadelphia, ⁵University at Buffalo, Buffalo, NY, ⁶Stacey Ivits MSW RSW Counselling Services, Ontario, ⁷Division of Rheumatology, Department of Medicine, University of Pennsylvania, Philadelphia, PA, ⁸Massachusetts General Hospital, Newton, MA
Background/Purpose: Patients with rheumatic diseases face illness-related uncertainty managing ambiguous and unpredictable symptoms. Such uncertainty is associated with decreased emotional and physical well-being (Wallace et…
Abstract Number: 0195 • ACR Convergence 2024
Screening for Social Determinants of Health in Patients with SLE: A Point-of-Care Feasibility Study
S. Sam Lim¹, Vijay R. Nadipelli², Michelle Bruno³, Daphne Lew⁴, Bernard Rubin⁵, Charmayne M. Dunlop-Thomas⁶, Kristi R. Mitchell³, Lydia Demetriou⁷, Jeffrey Berko³ and Alfred Kim⁸, ¹Emory University, Atlanta, GA, ²GSK, Medical Evidence Generation, Philadelphia, PA, ³Atlas Clarity, LLC, San Francisco, CA, ⁴Center for Biostatistics and Data Science, Institute for Informatics, Data Science, and Biostatistics, Washington University School of Medicine and Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO, ⁵Progentec Diagnostics, Inc., Oklahoma City, OK, ⁶Emory University School of Medicine, Department of Medicine, Division of Rheumatology, Atlanta, GA, ⁷GSK, Global Clinical Operations, Brentford, United Kingdom, ⁸Washington University School of Medicine, Division of Rheumatology, Department of Medicine, St Louis, MO
Background/Purpose: Currently, social determinants of health (SDoH; conditions in which people live) are not routinely screened for in US outpatient rheumatology clinics.1 SLE disproportionally affects…
Abstract Number: 1318 • ACR Convergence 2024
Patient Anxiety, Fear, and Kinesiophobia: Challenges Shared by UK Physiotherapists in Managing Polymyalgia Rheumatica – Findings from a Qualitative Study
Anne O'Brien¹, Sara Muller¹, Jennifer Liddle², Martin Thomas¹ and Christian D Mallen³, ¹Keele University, Keele, Staffordshire, England, United Kingdom, ²Newcastle University, Newcastle upon Tyne, United Kingdom, ³Keele University, Keele, Staffordshire, United Kingdom
Background/Purpose: Polymyalgia Rheumatica (PMR) is the commonest rheumatic condition affecting older people. 35% of newly diagnosed patients report anxiety, (Muller et al., 2016) which, with…
Abstract Number: 0210 • ACR Convergence 2024
Rheumatology, Heal Thyself: The Experience of Underrepresented Physicians in Rheumatology
Rob Valdovinos¹, Ashley Martin², Jay Mehta² and Irene Blanco³, ¹UCSF Benioff Children's Hospital, San Francisco, CA, ²Children's Hospital of Philadelphia, Philadelphia, PA, ³Northwestern University, Oak Park, IL
Background/Purpose: Providing racially and ethnically concordant care in minoritized populations by providers identifying as underrepresented in medicine (URiM) has been reported to be associated with…
Abstract Number: 1721 • ACR Convergence 2024
Recombinant Zoster Vaccine Uptake in US Adults with Rheumatic Disease: A Mixed Methods Analysis
Justin Gatwood¹, Catherine McGuiness², Marie Yasuda², Chi-Chang Chen², Vasudha Gupta³ and Nikita Stempniewicz¹, ¹GSK, Philadelphia, PA, ²IQVIA, Wayne, PA, ³IQVIA, Durham, NC
Background/Purpose: Compared to the immunocompetent US population ≥50 years, adults with rheumatic diseases are at increased risk for herpes zoster (HZ). To address this risk,…
Abstract Number: 0273 • ACR Convergence 2024
Barriers and Facilitators for Outpatient Follow-Up After an Acute Gout Flare: A Qualitative Research Study
Elizabeth Lopez¹, Lesley Jackson², Kenneth Saag³ and Maria I. ("Maio") Danila⁴, ¹University of Alabama at Birmingham, Montgomery, AL, ²University of Alabama at Birmingham, Birmingham, AL, ³The University of Alabama at Birmingham, Birmingham, AL, ⁴University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL
Background/Purpose: Many people with gout utilize the emergency department (ED) for acute gout care, but many do not receive subsequent adequate outpatient care for long-term…
Abstract Number: 1933 • ACR Convergence 2024
Telemedicine for Under-resourced Patients with Systemic Lupus Erythematosus: A Qualitative Study Exploring the Views and Experiences of Patients and Rheumatology Health Care Professionals
Sebastian Bruera¹, Savannah Bowman¹, Keshia Ferguson¹, MaryJo Maliekel¹, Maria A. Lopez-Olivo², Maria Suarez-Almazor³, Maria I. ("Maio") Danila⁴, Jinoos Yazdany⁵ and Sandeep Agarwal¹, ¹Baylor College of Medicine, Houston, TX, ²The University of Texas, MD Anderson Cancer Center, Houston, TX, ³MD Anderson Cancer Center, Houston, TX, ⁴University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL, ⁵UCSF, San Francisco, CA
Background/Purpose: There is a paucity of knowledge regarding the benefits and limitations of telemedicine in patients with SLE, particularly in those with under-resourced backgrounds. We…
Abstract Number: 0370 • ACR Convergence 2024
Adolescents’ and Providers’ Perceptions of the Transition from Pediatric to Adult Rheumatology
Julia Witowska, Brett Curtis, Melanie Donahue, Sara Platte, Rebecca Northway and Jacqueline Madison, University of Michigan, Ann Arbor, MI
Background/Purpose: The transition from pediatric to adult rheumatology is a vulnerable period for adolescents and is associated with greater disease burden. Adolescents require an organized…
Abstract Number: 2105 • ACR Convergence 2024
The Identity, Impact, and Management of OA and OA Pain from the Perspective of People with OA: A Systematic Literature Review of Qualitative Studies
Sylvain Mathieu¹, Alice Courties², Céline Mathy³, Serge Perrot⁴, Françoise Alliot Launois⁵, Stan Moumbe⁶, Nathan Foulquier⁷, Jérémie Sellam⁸ and Rinie Geenen⁹, and GO-PAIN Working group, ¹CHU Gabriel Montpied, Clermont-Ferrand, France, ²AP-HP, Paris, France, ³University of Liège, Liège, Belgium, ⁴Paris Dauphine University, Paris, France, ⁵AFLAR, Paris, France, ⁶Patient, Paris, France, ⁷LBAI. UMR 1227, University of Brest, Brest, France, ⁸Saint-Antoine Hospital - AP-HP, Paris, Ile-de-France, France, ⁹Department of Psychology, Utrecht, Netherlands
Background/Purpose: Knowledge of beliefs, needs, and priorities of people with osteoarthritis (OA) is of utmost important to be able to offer person-centered care. Concepts that…
Abstract Number: 0371 • ACR Convergence 2024
This Is Caring: Enhancing Patient Education Materials for Individuals with Morphea Through Qualitative Inquiry
Jennifer Foster¹, Robin Higashi², Priya Sarlashkar¹ and Heidi Jacobe¹, ¹The University of Texas Southwestern Medical Center, Department of Dermatology, Dallas, TX, ²2UT Southwestern Medical Center, Peter O’Donnell Jr School of Public Health, Dallas, TX
Background/Purpose: Patient education materials (PEMs) are essential for conveying disease and treatment information, empowering patients to actively participate in their care. However, PEMs for rare…
Abstract Number: 2149 • ACR Convergence 2024
Rheumatoid Arthritis: Patient’s Voice First! An Original Approach Based on Infodemiology Using Social Media Content – Results from the PRIMA Study
Jérémie Sellam¹, Luisa Attali², Sonia Trope³, Paméla Voillot⁴ and Cécile Gaujoux-Viala⁵, ¹Saint-Antoine Hospital - AP-HP, Paris, Ile-de-France, France, ²Centre de recherches en médecine, psychanalyse et société - Université Paris, Strasbourg, France, ³ANDAR, Paris, Ile-de-France, France, ⁴Kap code, Paris, France, ⁵CHU Nîmes, Nïmes, Languedoc-Roussillon, France

Background/Purpose: Social media and online forums are popular for understanding patients' feelings and concerns, which are hard to assess with traditional methods. Infodemiology collects and…

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