Abstracts tagged "Qualitative Research"

Abstract Number: 085 • 2023 Pediatric Rheumatology Symposium
Identification of Barriers to Care Experienced by Children with Rheumatic Disease: A Qualitative Study
Olivia Kwan¹, Gloria Garcia², Kiana Johnson³, Melissa Oliver¹, Stacey Tarvin⁴, Alvaro Tori¹, Brandi Stevens¹ and Martha Rodriguez⁴, ¹Indiana University, Indianapolis, IN, ²Indiana University School of Medicine, Indianapolis, IN, ³East Tennessee State University, Johnson City, TN, ⁴Riley Hospital for Children at Indiana University Health, Indianapolis, IN
Background/Purpose: Pediatric rheumatic diseases are known to have disparities in disease outcomes, but many drivers of these inequities are unknown. Social determinants of health are…
Abstract Number: 135 • 2023 Pediatric Rheumatology Symposium
Assessing Medication Adherence in JIA: Pilot Phase Results from a Single-Center Quality Improvement Initiative
Dori Abel¹, Joyce Chang², Jon Burnham³, Chen Kenyon⁴ and Sabrina Gmuca⁵, ¹Department of Pediatrics, Division of Rheumatology, Children’s Hospital of Philadelphia; PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA, ²Boston Children's Hospital, Boston, MA, ³Department of Pediatrics, Division of Rheumatology, Children’s Hospital of Philadelphia; Department of Pediatrics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, ⁴Department of Pediatrics, University of Pennsylvania Perelman School of Medicine; PolicyLab, Children’s Hospital of Philadelphia, Philadelphia, PA; Leonard Davis Institute of Health Economics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, ⁵Department of Pediatrics, Division of Rheumatology, Children’s Hospital of Philadelphia; Center for Pediatric Clinical Effectiveness, Children’s Hospital of Philadelphia; PolicyLab, Children's Hospital of Philadelphia; Department of Pediatrics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
Background/Purpose: Suboptimal medication adherence is a widespread problem in JIA. There are several unique features to medication adherence in JIA, including that the medications used…
Abstract Number: 022 • 2023 Pediatric Rheumatology Symposium
Narrative Medicine and Pediatric Rheumatology: Addressing Burnout and Bias
aviya lanis, Natalie Rosenwasser and Esi Morgan, Seattle Children's Hospital, Seattle, WA
Background/Purpose: Burnout, a syndrome of emotional exhaustion and depersonalization, adversely impacts healthcare. This can result in mood disturbances, poor patient and provider satisfaction and high…
Abstract Number: 062 • 2023 Pediatric Rheumatology Symposium
Assessment of Barriers and Facilitators in Implementation of the Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans
Cagri Yildirim-Toruner¹, Daniel Glaser², Timothy Beukelman³, Stacy Ardoin⁴, Ahmar Hashmi⁵, Rajdeep Pooni⁶, Maria Fernandez⁵, Vincent Del Gaizo⁷, Leslie Hanrahan⁷, Mary Ellen Riordan⁸, Stacey Tarvin⁹ and CARRA Registry Investigators⁷, ¹Baylor College of Medicine, Texas Children's Hospital, Houston, TX, ²Yale University School of Medicine, New Haven, CT, ³University of Alabama at Birmingham, Birmingham, AL, ⁴Nationwide Children's Hospital, Columbus, OH, ⁵The University of Texas Health Sciences Center at Houston, Institute for Implementation Science, Houston, TX, ⁶Stanford University, Palo Alto, CA, ⁷CARRA, Washington, DC, ⁸Hackensack Meridian Health/ Joseph M. Sanzari Children's Hospital, Hackensack, NJ, ⁹Riley Hospital for Children at Indiana University Health, Indianapolis, IN
Background/Purpose: Since 2010, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) has developed 12 consensus treatment plans (CTP) with the aim of reducing treatment variability…
Abstract Number: 0086 • ACR Convergence 2022
Patient and Provider Perspectives on Barriers to Communication and Care of Latinx Patients with Lupus and Rheumatoid Arthritis
Monica Crespo Bosque¹, Pablo Weilg Espejo² and Candace Feldman³, ¹Boston University, Boston, MA, ²Boston Medical Center, Chelsea, MA, ³Brigham and Women's Hospital, Boston, MA
Background/Purpose: Latinx patients, a heterogenous population with a range of experiences including migration, language, and race, experience a disproportionate burden of adverse outcomes from systemic…
Abstract Number: 0963 • ACR Convergence 2022
Exploring Reasons for Non-Use of Hydroxychloroquine in SLE Pregnancy
Antonia Chan¹, Alanna Hirz¹, Yashaar Chaichian¹, Amadeia Rector², Maurice Druzin³ and Julia Simard², ¹Stanford University, Stanford, CA, ²Stanford University School of Medicine, Palo Alto, CA, ³Stanford University School of Medicine, Palo Alto
Background/Purpose: Although hydroxychloroquine (HCQ) is strongly recommended in systemic lupus (SLE) pregnancy, the percentage of pregnant patients with SLE taking HCQ appears highly variable across…
Abstract Number: 0100 • ACR Convergence 2022
COVID Vaccinations in Patients with Rheumatologic Diseases- perspectives and Disparities in a Safety-net Tertiary Care Hospital in Memphis, Tennessee
Beenish Zulfiqar¹, Mohamad Bittar², Daniel Austin² and Ashton Hunter², ¹University of Tennessee Health Science Centre, Memphis, TN, ²University of Tennessee Health Science Centre, Memphis, Memphis, TN
Background/Purpose: Patients with rheumatologic diseases have had hesitation with COVID-19 vaccines despite the recent reports that they are safe and effective. This might impact underserved…
Abstract Number: 1098 • ACR Convergence 2022
Perceived Barriers and Opportunities to Accessing Rheumatoid Arthritis Care on Navajo Nation: The Primary Care Providers’ Perspectives
Jennifer Mandal¹, Catherine Nasrallah², Tabitha Carroway³, Mary Margaretten³, Gwendolyn Grant⁴ and Jinoos Yazdany³, ¹University of California San Francisco, San Francisco, CA, ²UCSF, San Francisco, ³UCSF, San Francisco, CA, ⁴Centura Health, Durango, CO
Background/Purpose: Navajo Nation is the largest American Indian reservation, home to 250,000 tribal members living on 27,000 square miles. The prevalence of RA among the…
Abstract Number: 0115 • ACR Convergence 2022
Facilitators of Immunosuppressive Medication Adherence in Systemic Lupus Erythematosus: A Qualitative Study of Racial Minority Patients, Lupus Providers and Clinic Staff
Shannon Herndon¹, Amy Corneli², Carrie Dombeck³, Teresa Swezey³, Megan Clowse³, Jennifer Rogers⁴, Lisa Criscione-Schreiber², Rebecca Sadun³, Jayanth Doss³, Amanda Eudy⁵, Hayden Bosworth² and Kai Sun³, ¹Duke University Hospital, Durham, NC, ²Duke University School of Medicine, Durham, NC, ³Duke University, Durham, NC, ⁴Duke, Durham, NC, ⁵Duke University, Raleigh, NC
Background/Purpose: SLE disproportionately affects patients of color. Medication nonadherence is more common among patients of color with SLE and is associated with worse health outcomes.…
Abstract Number: 1099 • ACR Convergence 2022
Empowering Patients with Lupus Through Their Photographs: Application of the Photovoice Method to Understand Social Determinants of Health
Sciaska Ulysse¹, Kreager Taber², Jessica Williams³, Laura Lorenz⁴ and Candace Feldman¹, ¹Brigham and Women's Hospital, Boston, MA, ²Duke University, Durham, NC, ³Emory University School of Medicine, Atlanta, GA, ⁴Brandeis University, Waltham, MA
Background/Purpose: Photovoice is a participatory visual research method that provides individuals with cameras and empowers them to share aspects of their daily lives and environments…
Abstract Number: 0181 • ACR Convergence 2022
Patient Perspective of Unique Support and Education Needs of Latinx/Latino(a)/Hispanic Rheumatoid Arthritis Patients: Implications for a Culturally Tailored and Disease Specific Intervention
Anna Balakrishnan¹, Adena Batterman¹, Daniel Hernandez², Angel Tapia³, Joan Westreich¹, Roberta Horton¹ and Theodore Fields¹, ¹Hospital for Special Surgery, New York, NY, ²Global Healthy Living Foundation, Nyack, NY, ³Global Healthy Living Foundation, Upper Nyack, NY
Background/Purpose: Health disparities for Latinx RA patients, including higher pain, fatigue, disability, and risk for depression are well documented.1, 2, 3, 4 Support and education…
Abstract Number: 1267 • ACR Convergence 2022
Accuracy of Financial Disclosures in American-Based Rheumatology Journals
Mary Guan¹, Michael Pillinger² and Aryeh Abeles³, ¹New York University Grossman School of Medicine, Brooklyn, NY, ²NYU Grossman School of Medicine, New York, NY, ³New York University Grossman School of Medicine, Wallingford, CT
Background/Purpose: Prior studies demonstrated that authors of publications may not accurately disclose their financial relationships with industry. One recent study reported that among authors of…
Abstract Number: 0193 • ACR Convergence 2022
Factors Influencing Visit Preference in Patients with Rheumatic Diseases: A Qualitative Study
Kiara Aaron¹, Catherine Nasrallah², Lesley Jackson¹, Sarah Goglin³, Diana Paez⁴, David Chae⁵, Faith Mugeta¹, Norma Techarukpong¹, Ellen McNeeley¹, Gary Cutter¹, kenneth saag¹, Mary Margaretten⁴ and Maria Danila¹, ¹University of Alabama at Birmingham, Birmingham, AL, ²UCSF, San Francisco, ³University of California San Francisco, San Francisco, CA, ⁴University of California San Francisco, San Francisco, ⁵Tulane University School of Public Health and Tropical Medicine, New Orleans, LA
Background/Purpose: The COVID-19 pandemic has increased the use of telemedicine visits for patients living with rheumatic and musculoskeletal diseases (RMD). The factors that influence preferences…
Abstract Number: 1334 • ACR Convergence 2022
Exploring Canadian Patient Experiences of Living with Lupus Nephritis (LN)
Francesca S Cardwell¹, Sydney George², Adrian Boucher², Megan R W Barber³, Kim Cheema⁴, Susan J Elliott⁵ and Ann E Clarke³, ¹University of Waterloo, Department of Geography & Environmental Management, Burlington, ON, Canada, ²GlaxoSmithKline, Health Outcomes and Economics, Mississauga, ON, Canada, ³University of Calgary, Division of Rheumatology, Cumming School of Medicine, Calgary, AB, Canada, ⁴University of Calgary, Division of Nephrology, Cumming School of Medicine, Calgary, AB, Canada, ⁵University of Waterloo, Department of Geography & Environmental Management, Waterloo, ON, Canada
Background/Purpose: LN is one of the most severe manifestations of SLE; however, the patient experience remains understudied. This research investigates patient experiences and perspectives of…
Abstract Number: 0200 • ACR Convergence 2022
Should Independence Play a Role in Assessing Remission in Rheumatoid Arthritis?
Thomas Khoo¹, Bethan Jones², Athena Chin¹, Alice Terrett³, Marieke Voshaar⁴, Wijnanda Hoogland⁵, Lyn March⁶, Dorcas Beaton⁷, Ummugulsum Gazel⁸, Beverley Shea⁹, Peter Tugwell¹⁰, Caroline Flurey¹¹ and Susanna Proudman¹², ¹Rheumatology Unit, Flinders Medical Centre, Adelaide, Australia, ²School of Healthcare and Social Wellbeing, University of the West of England, Bristol, United Kingdom, ³Rheumatology Unit, The Royal Adelaide Hospital, Adelaide, Australia, ⁴Department of Pharmacy and Department of Research & Innovation, Sint Maartenskliniek and Department of Pharmacy, Radboud University Medical Centre, Nijmegan, Netherlands, ⁵OMERACT Patient Research Partner, Netherlands, ⁶Sydney Medical School, Institute of Bone and Joint Research, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, Australia, ⁷Institute for Work & Health, Toronto, ON, Canada, ⁸University of Ottawa, Rheumatology, Ottawa, Canada, Ottawa, ON, Canada, ⁹School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada, Ottawa, Canada, ¹⁰University of Ottawa, Ottawa, Canada, Ottawa, ON, Canada, ¹¹Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom, ¹²Rheumatology Unit, Royal Adelaide Hospital, and Discipline of Medicine, University of Adelaide, Adelaide, Australia
Background/Purpose: The current goal of treatment in rheumatoid arthritis (RA) is clinical remission, which according to the ACR/EULAR 2011 definition, is based on tender and…

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