Abstracts tagged "PROMIS"

Abstract Number: 049 • 2020 Pediatric Rheumatology Symposium
Levels of Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis (JIA) and Their Correlation to Disease Manifestations Using Patient-Reported Outcomes Measurement Information System (PROMIS®) Measures
Danielle Fair¹, Judyann Olson ², Jan Lemke ³, Stella Protopapas ⁴, Ke Yan ⁵ and Jian Zhang ⁶, ¹Medical College of Wisconsin & Affiliated Hospitals: Children's Wisconsin, Wauwatosa, Wisconsin, ²Medical College of Wisconsin: Children's Wisconsin, Wauwatosa, Wisconsin, ³Children's Wisconsin, Milwaukee, Wisconsin, ⁴Riley Children’s Hospital at Indiana University, Indianapolis, Indiana, ⁵Medical College of Wisconsin, Milwaukee, Wisconsin, ⁶Medical College of Wisconsin, 53226, Wisconsin
Background/Purpose: Children with chronic diseases have higher rates of mental health issues and less favorable outcomes than the general pediatric population. Children with JIA experience…
Abstract Number: 2453 • 2019 ACR/ARP Annual Meeting
Static and Longitudinal Construct Validity of PROMIS CAT and Profile29 for Assessing Pain Interference, Physical Function and Fatigue in Psoriatic Arthritis
Ana-Maria Orbai¹, Jamie Perin ², Albert W Wu ³, Katherine C. Smith ⁴ and Clifton Bingham ⁵, ¹Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ²Johns Hopkins University School of Public Health, Department of International Health, Baltimore, ³Johns Hopkins University Bloomberg School of Public Health, Department of Health Policy and Management, Baltimore, MD, ⁴Johns Hopkins University Bloomberg School of Public Health, Department of Health, Behavior and Society, Baltimore, MD, ⁵Johns Hopkins University, Baltimore, MD
Background/Purpose: Pain, physical function and fatigue are outcomes reported as having the greatest importance to people with psoriatic arthritis (PsA)1,2. We assessed these outcomes in…
Abstract Number: 2454 • 2019 ACR/ARP Annual Meeting
PROMIS Profile29 Differentiates Active Disease from Treat-to-Target State in Psoriatic Arthritis
Ana-Maria Orbai¹, Rebecca Manno ², Jamie Perin ³, Noori Kim ⁴, Katherine C. Smith ⁵, Albert W Wu ⁶, Clifton Bingham ⁷ and Uzma Haque ², ¹Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD, ²Johns Hopkins University School of Medicine, Division of Rheumatology, Baltimore, MD, ³Johns Hopkins University School of Public Health, Department of International Health, Baltimore, ⁴Johns Hopkins University School of Medicine, Department of Dermatology, Baltimore, MD, ⁵Johns Hopkins University Bloomberg School of Public Health, Department of Health, Behavior and Society, Baltimore, MD, ⁶Johns Hopkins University Bloomberg School of Public Health, Department of Health Policy and Management, Baltimore, MD, ⁷Johns Hopkins University, Baltimore, MD
Background/Purpose: Psoriatic arthritis (PsA) symptoms and quality of life are core domains for PsA assessment1. The PROMIS Profile29 measures symptoms and quality of life using…
Abstract Number: 2840 • 2019 ACR/ARP Annual Meeting
Reliability, Validity and Responsiveness of PROMIS PF-20 in Patients with Inflammatory Myopathy
Didem Saygin¹, Chester Oddis ¹, Nicole Neiman ¹, Diane Koontz ¹, Siamak Moghadam-Kia ¹ and Rohit Aggarwal ¹, ¹University of Pittsburgh Medical Center, Pittsburgh, PA
Background/Purpose: Idiopathic inflammatory myopathies (IIM) are a group of rare, debilitating systemic diseases characterized by proximal muscle weakness, which limit activities of daily living and…
Abstract Number: 427 • 2019 ACR/ARP Annual Meeting
Correlation Between Patient Reported Outcomes Measurement Information System (PROMIS) and RAPID3 in Rheumatoid Arthritis Patients Starting a New Biologic DMARD
Tyler Williams¹, M. Elaine Husni ², Yuxuan Jin ³, Greg Strnad ¹, Sage O'Bryant ¹ and Chad Deal ⁴, ¹Cleveland Clinic, Cleveland, OH, ²Department of Rheumatologic and Immunologic Diseases, Cleveland Clinic, Cleveland, OH, ³Quantitative Health Science, Cleveland Clinic, Cleveland, OH, ⁴Cleveland Clinic Foundation, Cleveland, OH
Background/Purpose: RAPID3 is a disease activity measure which relies on patient-reported outcomes (PROs) to assess physical function, pain, and global health but does not require…
Abstract Number: 1246 • 2019 ACR/ARP Annual Meeting
Using PROMIS Data to Assess Activity of Inflammatory Eye Disease
Joshua Hedrick¹, Rula Hajj-ali ², Yuxuan Jin ³ and Sunil Srivastava ¹, ¹Cleveland Clinic, Cleveland, OH, ²Rheumatologic and Immunologic Disease/Cleveland Clinic, Cleveland, OH, ³Quantitative Health Science, Cleveland Clinic, Cleveland, OH
Background/Purpose: Diagnosing and managing patients with inflammatory eye disease (IED) requires close interdisciplinary care with rheumatologists adjusting systemic, potentially toxic, therapies based on exam findings…
Abstract Number: 1365 • 2019 ACR/ARP Annual Meeting
Construct Validation of PROMIS Short Form and Profile-29 T-Scores with SF-36 in Rheumatoid Arthritis Patients Treated for 1 Year: Results from a Real World Evidence-Based Study in the United States
Clifton Bingham¹, Shelly Kafka ², Shawn Black ³, Stephen Xu ⁴ and Jeffrey Curtis ⁵, ¹Johns Hopkins University, Baltimore, MD, ²Janssen Scientific Affairs, LLC, Horsham, PA, ³Janssen Scientific Affairs, LLC, Horsham, RI, ⁴Janssen Research & Development, LLC, Spring House, PA, ⁵University of Alabama at Birmingham, Birmingham, AL
Background/Purpose: Use of PROs to assess health-related quality of life in clinical practice, research studies, and clinical trials in Rheumatoid Arthritis (RA) remains an ongoing…
Abstract Number: 335 • 2018 ACR/ARHP Annual Meeting
Cross-Cultural Validity of Functional Status Assessment Measures for Rheumatoid Arthritis
Stephanie Kulhawy-Wibe¹, JoAnn Zell^2,3, Kaleb Michaud⁴, Jinoos Yazdany⁵, Linda S. Ehrlich-Jones^6,7, Carter Thorne⁸, Donna Everix⁹ and Claire Barber¹⁰, ¹University of Calgary, Calgary, AB, Canada, ²Denver Health, Denver, CO, ³University of Colorado, Denver, CO, ⁴Rheumatology, University of Nebraska Medical Center, Omaha, NE, ⁵University of California, San Francisco, San Francisco, CA, ⁶Shirley Ryan AbilityLab, Chicago, IL, ⁷Northwestern University Feinberg School of Medicine, Chicago, IL, ⁸University of Toronto, Newmarket, ON, Canada, ⁹OnMyCare Home Health, Fremont, CA, ¹⁰Medicine, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada
Background/Purpose: Functional Status Assessment Measures (FSAMs) are important outcome measures in Rheumatoid Arthritis (RA) as poor function is a predictor for mortality and associated with…
Abstract Number: 417 • 2018 ACR/ARHP Annual Meeting
Patient Reported Outcomes Pre and Post Intervention in Older Veterans with Chronic Back Pain
Rabih Nayfe¹, Matthieu Chansard², Linda S. Hynan³, Eric M. Mortensen⁴ and Una E. Makris⁵, ¹Department of Medicine, UT Southwestern Medical Center, Dallas, TX, ²Clinical Sciences, UT Southwestern Medical Center, Dallas, TX, ³Clinical Sciences, University of Texas Southwestern Medical Center, Dallas, TX, ⁴UT Southwestern Medical Center, Dallas, TX, ⁵UT Southwestern Medical Center and Dallas VA, Dallas, TX
Background/Purpose: Chronic back pain is the second most common reason for a physician’s visit and results in significant physical and psychosocial consequences in older adults.…
Abstract Number: 435 • 2018 ACR/ARHP Annual Meeting
Is Frailty Associated with Worse Outcomes after Total Joint Replacements?
Lisa A. Mandl^1,2, Charles N. Cornell^3,4, Michael B. Cross^3,4, Alejandro Gonzalez Della Valle^3,4, Mark P. Figgie^3,4, Seth A. Jerabek^3,4, Justin Do⁵, Mayu Sasaki⁵, Nathaniel Hupert⁶, Jackie Szymonifka¹ and Steven K. Magid^7,8, ¹Hospital for Special Surgery, New York, NY, ²Medicine - Rheumatology, Weill Cornell Medicine, New York, NY, ³Surgery, Weill Cornell Medicine, New York, NY, ⁴Surgery, Hospital for Special Surgery, New York, NY, ⁵Quality Research Center, Hospital for Special Surgery, New York, NY, ⁶Medicine, Healthcare Policy and Research, Weill Cornell Medicine, New York, NY, ⁷Medicine - Rhuematology, Hospital for Special Surgery, New York, NY, ⁸Medicine, Weill Cornell Medicine, New York, NY
Background/Purpose: To determine whether frailty is associated with clinical outcomes 1-year after total hip or total knee replacement, (TKR and THR). Methods: Community-dwelling patients ≥65yo…
Abstract Number: 1389 • 2018 ACR/ARHP Annual Meeting
Depression and the Patient Reported Outcomes Measurement Information System in Systemic Lupus Erythematosus
Brett Dietz¹, Patricia Katz¹, Maria Dall'Era², Louise Murphy³, Cristina Lanata¹, Laura Trupin¹ and Jinoos Yazdany², ¹University of California San Francisco, San Francisco, CA, ²University of California, San Francisco, San Francisco, CA, ³Arthritis Program, Centers for Disease Control and Prevention, Atlanta, GA
Background/Purpose: Health-related quality of life (HRQoL) is reduced in SLE. Depression is a possible contributor to reduced HRQoL. The relationship between major depression and HRQoL…
Abstract Number: 1402 • 2018 ACR/ARHP Annual Meeting
The Relationship of Pain, Fatigue and Emotional Distress with Quality of Life in Juvenile Myositis
Kyle J. Fahey¹, Elizabeth L. Gray², Rowland W. Chang³, David Cella⁴, Lauren M. Pachman⁵ and Kaveh Ardalan⁶, ¹Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, ²Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, ³Preventive Medicine, Medicine, and Physical Medicine & Rehabilitation, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁴Departments of Medical Social Sciences, Neurology, Pediatrics, Preventive Medicine, and Psychiatry and Behavioral Sciences,, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁵Cure JM Program of Excellence in Juvenile Myositis Research, Stanley Manne Children’s Research Institute, affiliated with Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ⁶Departments of Pediatrics and Medical Social Sciences, Division of Rheumatology, Northwestern University Feinberg School of Medicine/Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL
Background/Purpose: Juvenile Myositis (JM) is an autoimmune disease that negatively impacts quality of life (QoL) outcomes via muscle weakness and vasculopathic rashes. The relative contribution…
Abstract Number: 1404 • 2018 ACR/ARHP Annual Meeting
Responsiveness of Promis (Patient Reported Outcomes Measurement Information System) Measures in a Multi-Racial, Multi-Ethnic Systemic Lupus Erythematosus (SLE) Cohort
Patricia Katz¹, Stephanie Rush², Jinoos Yazdany³, Laura Trupin¹, Louise Murphy⁴, Cristina Lanata¹, Lindsey A. Criswell¹ and Maria Dall'Era³, ¹University of California San Francisco, San Francisco, CA, ²Medicine/Rheumatology, University of California San Francisco, San Francisco, CA, ³University of California, San Francisco, San Francisco, CA, ⁴Arthritis Program, Centers for Disease Control and Prevention, Atlanta, GA
Background/Purpose: Recent studies have demonstrated the reliability and validity of the NIH PROMIS (Patient-Reported Outcomes Measurement Information System) measures in SLE. Analyses of their responsiveness…
Abstract Number: 1635 • 2018 ACR/ARHP Annual Meeting
Validity of Patient-Reported Outcomes Measurement Information System Measures in Ankylosing Spondylitis Patients
Mark Hwang¹, Alexis Ogdie² and John D. Reveille³, ¹Internal Medicine-Rheumatology, University of Texas-McGovern Medical School, Houston, TX, ²Medicine/Rheumatology and Epidemiology, University of Pennsylvania, Philadelphia, PA, ³Rheumatology, McGovern Medical School at the University of Texas Health Science Center at Houston, USA, Houston, TX
Background/Purpose: The Patient-Reported Outcomes Measurement Information System (PROMIS) developed by the US National Institutes of Health is a patient-reported outcomes system designed to measure disease…
Abstract Number: 1672 • 2018 ACR/ARHP Annual Meeting
Poor Sleep Quality Predicts Worsening SLE Disease Activity
Philip Chu¹, Alicia M. Hinze², Noor Al-Hammadi³, Lacey Feigl⁴, Nancy Mathis⁴, Deepali Sen⁵, Seth Eisen⁴, Yo-El Ju⁶ and Alfred Kim⁷, ¹Internal Medicine, Washington University School of Medicine, Saint Louis, MO, ²Rheumatology, Johns Hopkins University, Baltimore, MD, ³Division of Biostatistics, Washington University School of Medicine, Saint Louis, MO, ⁴Rheumatology, Washington University School of Medicine, Saint Louis, MO, ⁵Rheumatology, Washington University School of Medicine, St. Louis, MO, ⁶Neurology, Washington University School of Medicine, Saint Louis, MO, ⁷Medicine/Rheumatology, Washington University School of Medicine, St. Louis, MO
Background/Purpose: Poor sleep quality is commonly observed in patients with SLE. We hypothesize that poor sleep contributes to worsening SLE. The aims of this study…

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