Abstract Number: 1452 • 2015 ACR/ARHP Annual Meeting
Pauciimmune and Immune Mediated Pulmonary Capillaritis in Children
Background/Purpose: Immune mediated and pauciimmune pulmonary capillaritis are rare causes of diffuse alveolar hemorrhage and associated childhood diffuse lung disease. As such ideal therapies and…Abstract Number: 1021 • 2015 ACR/ARHP Annual Meeting
Nucleic Acids Sensing Receptors RIG-I and MDA5 As Potential Amplifiers of the Interferon Signature in Childhood Onset Systemic Lupus Erythematosus
Background/Purpose: Defective or sustained activation of Interferon (IFN) signaling has been associated with enhanced susceptibility to systemic lupus erythematosus (SLE). The cytosolic RIG-I-like receptors (RLRs),…Abstract Number: 930 • 2015 ACR/ARHP Annual Meeting
Evaluation of Temporomandibular Joint Arthritis with Ultrasound in Juvenile Idiopathic Arthritis
Background/Purpose: Temporomandibular joint (TMJ) arthritis is a common yet widely under recognized feature of Juvenile Idiopathic Arthritis (JIA). It is often clinically silent and difficult…Abstract Number: 399 • 2015 ACR/ARHP Annual Meeting
Management of Lupus Anticoagulant Hypoprothrombinemia Syndrome in Juvenile Systemic Lupus Erythematosus – Single Center Experience
Background/Purpose: Lupus anticoagulant hypoprothrombinemia syndrome (LAHS) is a rare phenomenon that leads to concomitant thrombosis and hemorrhage thus presenting a therapeutic dilemma. In children, this…Abstract Number: 388 • 2015 ACR/ARHP Annual Meeting
Pain, Fatigue and the Psychological Impact on Health-Related Quality of Life in Childhood-Onset Lupus
Background/Purpose: Childhood-onset lupus (cSLE) is a chronic autoimmune disease that has negative impact on health-related quality of life (HRQoL), especially when increased disease activity and…Abstract Number: 3151 • 2015 ACR/ARHP Annual Meeting
Validation of Patient-Reported Outcomes Measurement Information System (PROMIS®) Modules for Use in Childhood-Onset Lupus
Background/Purpose: Childhood-onset lupus (cSLE) has a substantial negative impact on health-related quality of life (HRQoL). Patient-reported outcomes (PROs) that accurately assess HRQoL and are responsive…Abstract Number: 3095 • 2015 ACR/ARHP Annual Meeting
Initial Results of a Pilot Juvenile Localized Scleroderma (jLS) Comparative Effectiveness Study
Background/Purpose: Juvenile localized scleroderma (jLS) is a chronic inflammatory and fibrosing disease that causes severe morbidity, including growth defects, cosmetic deformities, seizures and arthropathy.…Abstract Number: 2458 • 2015 ACR/ARHP Annual Meeting
Psychostimulant-Induced Vasculopathy: A Retrospective Study in a Pediatric Rheumatology Clinic
Background/Purpose: Attention-deficit/hyperactivity disorder (ADHD) is the most common neurobehavioral disorder of childhood. The first line treatment is psychostimulant medications namely, methylphenidate, amphetamines, or their derivatives. …Abstract Number: 2443 • 2015 ACR/ARHP Annual Meeting
Pediatric Tele-Rheumatology: A Pilot Project to Assess Accuracy of Physical Examination Findings and Diagnostic Concordance at a Distance
Background/Purpose: Telemedicine (TM) offers a strategic means of extending limited clinical pediatric rheumatology (PR) workforce capacity to improve access to care for patients in remote…Abstract Number: 2317 • 2014 ACR/ARHP Annual Meeting
Towards Reliable Implementation and Optimal Use of Medication Decision Aid Cards for Shared Decision Making in Juvenile Idiopathic Arthritis
Background/Purpose The purpose of the study was to improve communication and shared decision-making (SDM) between clinicians and parents of patients with juvenile idiopathic arthritis (JIA),…Abstract Number: 2318 • 2014 ACR/ARHP Annual Meeting
Increasing Rates of Remission in Juvenile Idiopathic Arthritis through a Quality Improvement Learning Network – the Pediatric Rheumatology Care and Outcomes Improvement Network
Background/Purpose The Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) since 2011 has used quality improvement (QI) methods, chronic illness care model interventions, and a…Abstract Number: 1870 • 2014 ACR/ARHP Annual Meeting
Children and Parent Satisfaction in the Pediatric Rheumatology Clinic: Patient Orientated Quality Service Measures
Background/Purpose Patient satisfaction is a multidimensional concept, and is a component of quality care. Inclusion of patient experience with care is highly relevant in improving…Abstract Number: 1329 • 2014 ACR/ARHP Annual Meeting
Comparison of Clinical and Serological Features of Childhood Sjögren Syndrome Based on the Presence or Absence of Parotitis
Background/Purpose: Sjögren syndrome is a complex autoimmune disease that affects lacrimal and salivary glands with the potential to cause damage to other organs. Diagnosis of…Abstract Number: 1325 • 2014 ACR/ARHP Annual Meeting
Single Hub and Access Point for Pediatric Rheumatology in Europe (SHARE): Evidence Based Recommendations for Diagnosis and Treatment of Juvenile Localized Scleroderma and Juvenile Systemic Sclerosis
Background/Purpose Juvenile Localized Scleroderma (JLS) and Juvenile Systemic Sclerosis (JSSc) form a group of rare pediatric diseases that can lead to significant morbidity. Evidence-based guidelines…Abstract Number: 1324 • 2014 ACR/ARHP Annual Meeting
Predictors of Disease Relapse in Juvenile Localized Scleroderma
Background/Purpose Localized scleroderma (LS) is an autoimmune disease characterized by inflammation of the skin and underlying tissue leading tissue damage including atrophy, dyspigmentation, and fibrosis. …
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