Abstracts tagged "Pediatric rheumatology"

Abstract Number: 1747 • 2019 ACR/ARP Annual Meeting
Practice Variations in Treatment of Pediatric Anti-neutrophil Cytoplasmic Antibody (ANCA)-associated Vasculitis (AAV) with Renal Disease
Audrea Chen¹, Cherry Mammen ¹, Jaime Guzman ², David Cabral ² and Kimberly Morishita ¹, ¹BC Children's Hospital, Vancouver, BC, Canada, ²University of British Columbia, Vancouver, BC, Canada
Background/Purpose: Renal disease is common in ANCA-associated vasculitis (AAV) and one of the goals of early treatment is to maximize renal function recovery. Corticosteroids are…
Abstract Number: 2722 • 2019 ACR/ARP Annual Meeting
The down Syndrome Arthropathy Cohort in the New Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry: Clinical Characteristics, Treatment and Outcomes
Jordan Jones¹, Daniel J. Lovell ², Chelsey Smith ³ and Mara Becker ⁴, ¹Children's Mercy Kansas City, Kansas City, MO, ²Pediatric Rheumatology Collaborative Study Group (PRCSG), Cincinnati Children’s Hospital Medical Center, Cincinnati, ³Children's Mercy Kansas City, Kansas, MO, ⁴Duke Children's Hospital, Durham, NC
Background/Purpose: Down syndrome arthropathy (DA) is under-recognized with a 19-month average delay in diagnosis (1). The majority present with polyarticular, rheumatoid factor (RF) and anti-nuclear…
Abstract Number: 1850 • 2018 ACR/ARHP Annual Meeting
A Population Based Study of High School Academic Outcomes in Individuals with Childhood-Onset Chronic Rheumatic Diseases in Manitoba, Canada
Siok Hoon Lily Lim^1,2, Ruth Ann Marrie³, Okechukwu Ekuma⁴, Marni Brownell⁴, Christine A. Peschken⁵, Carol A Hitchon⁶, Kerstin Gerhold^7,8 and Lisa Lix⁹, ¹Children's Hospital Research Institute of Manitoba, University of Manitoba, Winnipeg, MB, Canada, ²Pediatrics, University of MAnitoba, Winnipeg, MB, Canada, ³Internal Medicine, University of Manitoba, Winnipeg, MB, Canada, ⁴Manitoba Centre for Health Policy, University of Manitoba, Winnipeg, MB, Canada, ⁵RR 149G, University of Manitoba, Winnipeg, MB, Canada, ⁶University of Manitoba, Winnipeg, MB, Canada, ⁷Pediatrics, University of Manitoba, Winnipeg, MB, Canada, ⁸Faculty of Health Sciences, Children's Hospital Research Institute of Manitoba, Winnipeg, MB, Canada, ⁹Community Health Sciences, University of Manitoba, Winnipeg, MB, Canada
Background/Purpose: Childhood-onset chronic rheumatic diseases (ChildCRD) are rheumatic diseases with onset <18 years old, including juvenile arthritis (JA) and systemic autoimmune rheumatic diseases (SARD). ChildCRD…
Abstract Number: 2034 • 2018 ACR/ARHP Annual Meeting
Increased Invasive Capacity and Metabolic Activity in Synovial Fibroblasts from Children with Downs Arthropathy Compared to Juvenile Idiopathic Arthritis
Sharon Ansboro¹, Charlene Foley², Monika Biniecka³, Emma MacDermott⁴, Douglas J. Veale⁵, Ronan Mullan⁶, Orla G Killeen⁷ and Ursula Fearon⁸, ¹Molecular Rheumatology, Trinty College Dublin, Dublin, Ireland, ²Trinity College Dublin, Trinity Biomedical Sciences Institute, Dublin, Ireland, ³Department of Molecular Rheumatology, School of Medicine, Trinity Biomedical Sciences Institute, Trinity College Dublin, Dublin, Ireland, ⁴Our Lady's Children's Hospital, Crumlin, Dublin, Ireland, ⁵Centre for Arthritis and Rheumatic Diseases, Dublin Academic Medical Centre, University College Dublin, Dublin, Ireland, ⁶Department of Rheumatology,, Tallaght Hospital, Dublin, Ireland, ⁷National Centre for Paediatric Rheumatology, Dublin, Ireland, ⁸Molecular Rheumatology, School of Medicine, Trinity Biomedical Sciences Institute, Trinity College Dublin, Dublin, Ireland
Background/Purpose: Downs Arthropathy (DA) is an inflammatory joint condition affecting children with Down syndrome, which is under-recognised, has a delayed diagnoses, resulting in chronic disability.…
Abstract Number: 2403 • 2018 ACR/ARHP Annual Meeting
The Therapeutic Alliance Is Associated with a Better Therapeutic Adherence in Children with Juvenile Idiopathic Arthritis: Results of a French Multicenter Study
Valérie Devauchelle-Pensec¹, Anne Lohse², Francis Guillemin³, Elisabeth Solau-Gervais⁴, Linda Rossi-Semerano⁵, Agnès Duquesne⁶, Irène Lemelle⁷, Pascal Pillet⁸, Claire Ballot⁹, Laurence Goumy¹⁰, Tu Anh Tran¹¹, Laeticia Sparsa¹², Heloise Reumaux¹³, Anaïs Arbault¹⁴ and Camille Alleyrat¹⁵, ¹Rheumatology, CHU Brest, Brest, France, ²Rheumatology Department, Hopital Nord Franche Comté, Belfort, France, ³Université de Lorraine, EA4360, APEMAC, Nancy, France, ⁴Service de Rhumatologie, CHRU de Poitiers, Poitiers, France, ⁵Paediatric Rheumatology, Hôpital Kremlin Bicêtre, PARIS, France, ⁶4Department of Nephrology-Rheumatology-Dermatology Pediatric - Rheumatology, Hopital Femme-Mère-Enfant, Bron, France, ⁷Department of pediatric onco-hematology, CHU de Nancy - Hôpitaux de Brabois,, Vandœuvre-Lès-Nancy, France, ⁸Paediatrics, Hôpital Pellegrin, University Hospital of Bordeaux, Bordeaux, France, ⁹Department of Pediatric Rheumatology, Hôpital Jean-Minjoz, Besançon, France, ¹⁰Pediatric, CHU d'Angers, Angers, France, ¹¹Paediatrics, University Hospital, Nîmes, Nîmes, France, ¹²Rheumatology, Hopital Emile Muller, Mulhouse, France, ¹³Pediatric Rheumatology, CHRU Lille, Lille, France, ¹⁴Rheumatology, CHU de Dijon, Dijon, France, ¹⁵134 Inserm CIC-1433 Clinical Epidemiology, CHRU de Nancy, Hôpitaux de Brabois, Nancy, France
Background/Purpose: The therapeutic compliance (TC) is a major issue for the management of Juvenile Idiopathic Arthritis (JIA). The chronic nature of this inflammatory rheumatism requires…
Abstract Number: 2404 • 2018 ACR/ARHP Annual Meeting
Quality of Life Assessment in Juvenile Idiopathic Arthritis: A Single Center Assessment
W. Blaine Lapin¹, Taylor Phillips², Danielle Guttman-Lapin³, Amanda Brown⁴, Eyal Muscal⁵ and Filiz O. Seeborg¹, ¹Department of Pediatrics, Division of Immunology, Allergy and Rheumatology, Baylor College of Medicine, Houston, TX, ²Rice University, Houston, TX, ³Aldine Independent School District, Aldine, TX, ⁴Department of Pediatrics, Division of Allergy, Immunology and Rheumatology, Baylor College of Medicine, houston, TX, ⁵Department of Pediatrics, Division of Immunology, Allergy, and Rheumatology, Baylor College of Medicine, Houston, TX
Background/Purpose: Patients with Juvenile Idiopathic Arthritis (JIA) face physical, social, and emotional issues that affect their quality of life. Health-related quality of life (HRQoL) is…
Abstract Number: 465 • 2018 ACR/ARHP Annual Meeting
Seasonal Variation in Cutaneous Flares for Pediatric Lupus
Tamara Tanner¹, Marija Dionizovik-Dimanovski², Dawn Wahezi³ and Tamar Rubinstein³, ¹Albert Einstein College of Medicine/ Children's Hospital at Montefiore, Albert Einstein College of Medicine/ Children's Hospital at Montefiore, Bronx, NY, ²Pediatric Rheumatology, Children's Hospital at Montefiore, Bronx, NY, ³Pediatric Rheumatology, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY
Background/Purpose: Exposure to sunlight has been proposed as a possible environmental trigger for lupus flares, particularly cutaneous disease. Contradictory findings exist regarding seasonal variation in…
Abstract Number: 466 • 2018 ACR/ARHP Annual Meeting
Improving Pneumococcal Vaccination Rates in Childhood-Onset SLE Patients at a Large Tertiary Care Center: The Path to Creating a More Sustainable Model of Vaccination with the Help of EMR
Saimun Singla and Marietta M. De Guzman, Pediatric Immunology, Allergy and Rheumatology, Baylor College of Medicine, Texas Children's Hospital, Houston, TX
Background/Purpose: Streptococcus pneumonia is a leading cause of illness in children worldwide and can lead to death in those with an immunosuppressed status. Given the…
Abstract Number: 914 • 2018 ACR/ARHP Annual Meeting
Increased Adverse Childhood Experiences in Children with Arthritis: An Analysis of the National Survey of Children’s Health
Tamar Rubinstein¹, Danielle R. Bullock², Kaveh Ardalan³, Wenzhu B. Mowrey⁴, Nicole Brown⁵ and Ruth E K Stein⁶, ¹Pediatric Rheumatology, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY, ²Pediatrics, University of Minnesota, Minneapolis, MN, ³Division of Rheumatology, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ⁴Albert Einstein College of Medicine, Bronx, NY, ⁵Albert Einstein College of Medicine/ Children's Hospital at Montefiore, Bronx, NY, ⁶Pediatrics, Albert Einstein College of Medicine, Bronx, NY
Background/Purpose: Adverse Childhood Experiences (ACEs) are associated with increased risk of chronic disease and poorer health in children and adults. Emerging data suggest an association…
Abstract Number: 1422 • 2018 ACR/ARHP Annual Meeting
Impact of Juvenile Localized Scleroderma on Longitudinal Quality of Life
Vidya Sivaraman¹, Kathryn S. Torok², Melissa Moore-Clingenpeel³, Fatma Dedeoglu⁴, Polly Ferguson⁵, Elena Pope⁶, Thomas G. Mason II⁷, Mara L Becker⁸, Gloria Higgins⁹, C. Egla Rabinovich¹⁰, Sandy Hong¹¹, Maria Ibarra¹², Ronald M. Laxer¹³, Robert Fuhlbrigge¹⁴, Katie Stewart¹⁵, Marilynn Punaro¹⁶ and Suzanne Li¹⁷, ¹Nationwide Children’s Hospital and The Ohio State University, Columbus, OH, ²Pediatric Rheumatology, University of Pittsburgh Med Ctr, Pittsburgh, PA, ³Research, Nationwide Children's Hospital, Dublin, OH, ⁴Rheumatology, Boston Children's Hospital, Boston, MA, ⁵Pediatrics, University of Iowa, Iowa City, IA, ⁶Section of Dermatology, The Hospital for Sick Children, Hospital for Sick Children, Toronto, ON, Canada, ⁷Division of Rheumatology - Department of Medicine, Mayo Clinic Rochester, Rochester, MN, ⁸Rheumatology, Children's Mercy Kansas City, Kansas City, MO, ⁹Pediatrics and Rheumatology, Nationwide Children's Hospital and The Ohio State University, Columbus, OH, ¹⁰Duke University Medical Center, Durham, NJ, ¹¹Pediatrics-Rheumatology, U of Iowa Children's Hosp, Iowa City, IA, ¹²Children's Mercy Hospital, Kansas City, MO, Kansas City, MO, ¹³Div of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ¹⁴Children's Hospital Colorado, Aurora, CO, ¹⁵UT Southwestern, Dallas, TX, ¹⁶Texas Scottish Rite Hospital for Children, Dallas, TX, ¹⁷Pediatrics, Hackensack University Medical Center, Hackensack, NJ
Background/Purpose: Juvenile localized scleroderma (jLS) is a chronic autoimmune disease, with cutaneous and extra-cutaneous manifestations (ECM) requiring long-term immunosuppressive therapy. Few studies have evaluated the…
Abstract Number: 1438 • 2018 ACR/ARHP Annual Meeting
Treatment and Response of Down Syndrome Arthropathy
Jordan T. Jones¹, Nasreen Talib², Daniel J Lovell³ and Mara L Becker⁴, ¹Rheumatology Division, Children's Mercy Kansas City, Kansas City, MO, ²General Pediatrics, Children's Mercy Kansas City, Kansas City, MO, ³Pediatrics, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, ⁴Rheumatology, Children's Mercy Kansas City, Kansas City, MO
Background/Purpose: Of the very few studies describing Down syndrome arthropathy (DA), crude prevalence estimates indicate DA maybe as common as juvenile idiopathic arthritis (JIA), however,…
Abstract Number: 384 • 2017 ACR/ARHP Annual Meeting
Protection Against Hepatitis B in Immunocompromised Pediatric Rheumatology and Gastroenterology Patients
Najla Aljaberi¹, Emily A. Smitherman², Enas Ghulam³, Allen Watts², Dana MH Dykes⁴ and Jennifer L. Huggins⁵, ¹Pediatric rheumatology, Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Environmental health and biostatistics, Department of Environmental Health, University of Cincinnati, Division of Biostatistics and Epidemiology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, ⁴Gastroenterology, Hepatology, and Nutrition, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Hepatitis B infection remains a significant public health challenge, particularly for patients on chronic immunosuppressive therapy, due to a considerable mortality risk associated with…
Abstract Number: 385 • 2017 ACR/ARHP Annual Meeting
Reliable Implementation of a Hepatitis B Serology Screening and Vaccination Process for Immunocompromised Pediatric Rheumatology Patients
Emily A. Smitherman¹, Adam Furnier², Allen Watts¹, Sandra Kramer¹, Elizabeth Joy Baker¹, Dana MH Dykes³, Rebecca Brady⁴ and Jennifer L. Huggins⁵, ¹Pediatric Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Gastroenterology, Hepatology, and Nutrition, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁴Infectious Diseases, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ⁵Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
Background/Purpose: Vaccine-preventable infections, including reactivation of hepatitis B virus, are a leading cause of morbidity and mortality in immunocompromised patients. Guidelines recommend that all immunosuppressed…
Abstract Number: 1277 • 2017 ACR/ARHP Annual Meeting
Longitudinal Predictors of Physical Function in Juvenile Myositis
Kaveh Ardalan^1,2, Hannah L. Palac^3,4, Julia (Jungwha) Lee⁴, Madison Wolfe^5,6, Gabrielle A. Morgan^7,8 and Lauren M. Pachman⁹, ¹Departments of Pediatrics and Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, ²Division of Rheumatology, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ³Abbvie, Inc, Chicago, IL, ⁴Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁵Division of Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, ⁶Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, ⁷Cure JM Program of Excellence in Myositis Research, Chicago, IL, ⁸Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, ⁹Cure JM Program of Excellence in Juvenile Myositis Research, Stanley Manne Children’s Research Institute, affiliated with Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL
Background/Purpose: Juvenile myositis (JM) is marked by skin rashes, proximal muscle weakness, and deconditioning causing potentially severe disability. Studies examining long-term physical function in JM…
Abstract Number: 1284 • 2017 ACR/ARHP Annual Meeting
The Localized Scleroderma Quality of Life Instrument (LoSQI): Initial Validation in Pediatric Localized Scleroderma
Christina K. Zigler¹, Kaveh Ardalan², Kaila Schollaert-Fitch³, Heidi Jacobe⁴ and Kathryn S. Torok³, ¹Physical Medicine & Rehabilitation, University of Pittsburgh, Pittsburgh, PA, ²Division of Rheumatology, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, ³Pediatric Rheumatology, University of Pittsburgh Med Ctr, Pittsburgh, PA, ⁴Department of Dermatology, University of Texas Southwestern Medical Center, Dallas, TX
Background/Purpose: There is a current need to integrate health related quality of life (HRQoL) into outcomes for clinical trials (Chang & Reeve, 2005). For pediatric…

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