ACR Meeting Abstracts

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Abstracts tagged "Patient reported outcomes"

  • Abstract Number: 0184 • ACR Convergence 2022

    Exploring Patient Journeys and Education Needs of Hispanic Individuals with Rheumatoid Arthritis

    Daniel Hernandez1, Julio Bravo2, Juan Maya Villamizar3, William Benjamin Nowell1, Oscar Soto-Raices4, Angel Tapia5, Guillermo Valenzuela6 and Shilpa Venkatachalam7, 1Global Healthy Living Foundation, Nyack, NY, 2Novant, Winston-Salem, NC, 3Rheumatology Center of Palm Beach, PLLC, Boca Raton, FL, 4Fundación FER, San Juan, PR, 5Global Healthy Living Foundation, Upper Nyack, NY, 6Guillermo Valenzuela MD PA/ IRIS Rheumatology, Plantation, FL, 7Global Healthy Living Foundation, New York, NY

    Background/Purpose: There is little research on rheumatoid arthritis (RA) in the US Hispanic population (< 0.2% of publications on RA indexed in PubMed.gov), but it…
  • Abstract Number: 0283 • ACR Convergence 2022

    The Association Between the Usage of Biological Disease Modified Anti Rheumatic Drug or JAK Inhibitor and the Burden of Treatment Costs on Daily Life (financial Toxicity) in RA Patients: A Cross-sectional Study Using the National Database of Rheumatic Diseases in Japan (NinJa)

    Nobuyuki Yajima1, Toshihiro Matsui2 and Shigeto Tohma3, 1Division of Rheumatology, Department of Medicine, Showa University School of Medicine, Tokyo, Japan, 2NHO Sagamihara National Hospital, Kanagawa, Japan, 3National Hospital Organization Tokyo National Hospital, Dallas, TX

    Background/Purpose: Rheumatoid arthritis (RA) can be better controlled with the advent of biological disease modified anti rheumatic drug (bDMARDs) and JAK inhibitor (JAKi). However, these…
  • Abstract Number: 0441 • ACR Convergence 2022

    Patient-Reported Outcomes in ANCA-Associated Vasculitis: Interactions Between Patients’ and Physicians’ Perspectives in a Mexican Cohort

    José Joel Hurtado-Arias1, Isabela Ramírez-Mulhern2, Javier Merayo-Chalico3, Carlos A. Gonzalez-Martinez4, Ana Barrera-Vargas2 and Andrea Hinojosa-Azaola1, 1Department of Immunology and Rheumatology, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Ciudad de México, Mexico, 2Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Ciudad de México, Mexico, 3Instituto Nacional de Ciencias Medicas y Nutricion "Salvador Zubiran", Ciudad de México, Mexico, 4Department of Urology, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Ciudad de México, Mexico

    Background/Purpose: The antineutrophil cytoplasm antibody (ANCA) associated vasculitis (AAV) are a group of complex chronic diseases resulting in morbidity, accumulated organ damage, treatment burden, and…
  • Abstract Number: 0851 • ACR Convergence 2022

    Responsiveness of Patient-Reported Physical Function Measures in Juvenile Arthritis

    Alysha Taxter1, Laura Schanberg2, Marc Natter3 and for the CARRA Registry investigators4, 1Nationwide Children's Hospital, Columbus, OH, 2Duke University Medical Center, Durham, NC, 3Boston Children's Hospital, Boston, MA, 4CARRA, Washington, DC

    Background/Purpose: The ACR Pediatric Criteria (ACR Pedi) contains a core set of outcome variables, including a measure of functional ability, to evaluate improvement over time…
  • Abstract Number: 1302 • ACR Convergence 2022

    Assessment of the Transition of Care from Pediatric to Adult Rheumatology in a Tertiary Center

    Serdal Ugurlu1, Ali Yagiz Ayla1, Helin Idil Besiroglu2, Feyza Nur Azman1, Bugra Egeli3, Hatice Eren1, Ibrahim Durucan2, Arif Alkan2, Sila Ozturk1, Sercan Ergun1, Amra Adrovic Yildiz4, Kenan Barut5, Fatih Haslak1, Sezgin Sahin1, Mehmet YILDIZ1, Huri Ozdogan6 and Ozgur Kasapcopur7, 1Istanbul University-Cerrahpaşa, Istanbul, Turkey, 2Istanbul University-Cerrahpaşa Medical Faculty, Istanbul, Turkey, 3Children's Hospital of Los Angeles, Los Angeles, CA, 4School of Medicine, KOC University, Istanbul, Turkey, 5Istanbul University-Cerrahpasa, Istanbul, Turkey, 6Istanbul University-Cerrahpaşa Medical Faculty Department of Internal Medicine Division of Rheumatology, Istanbul, Turkey, 7Istanbul University-Cerrahpaşa, Cerrahpaşa Medical School, Istanbul, Turkey

    Background/Purpose: Taking the responsibility for their own health should be an important goal for the patients in the health care transition process. The Transition Readiness…
  • Abstract Number: 1448 • ACR Convergence 2022

    Utility of Digital Signals and Patient Reported Data Gathered in a Decentralized Study to Predict SLE Patient-Reported Flares

    Eldon Jupe1, Gerald Lushington2, Mohan Purushothaman1, Fabricio Pautasso1, Georg Armstrong1, Arif Sorathia1, Jessica Crawley1, Vijay Nadipelli3, Bernie Rubin4, Ryan Newhardt1, Melissa Munroe1 and Brett Adelman1, 1Progentec Diagnostics, Inc., Oklahoma City, OK, 2Progentec Diagnostics, Inc., Oklahoma City, OR, 3GlaxoSmithKline, Philadelphia, PA, 4GlaxoSmithKline, US Medical Affairs and Immuno-inflammation, Durham, NC

    Background/Purpose: Systemic lupus erythematosus (SLE) is a heterogeneous autoimmune disease characterized by varied immune dysregulation. SLE patients often experience episodic flares, leading to organ damage…
  • Abstract Number: 1954 • ACR Convergence 2022

    Development of the Patient-Important Outcomes Data Repository (PIONEER) for Rheumatic Diseases; An Enhanced Database Combining Electronic Medical Data with Insight from Chart Reviews

    Simon Helfgott1, Kent Kwas Huston2, Jasvinder singh3, Nehad Soloman4, Jeremy Broestl5, Kimmi Cox5, Kelsey Milligan5 and Colin Edgerton6, 1Brigham and Women's Hospital, Harvard Medical School, Boston, MA, 2Kansas City Physician Partners Center for Rheumatic Disease, Kansas City, MO, 3University of Alabama at Birmingham, Birmingham, AL, 4Arizona Arthritis & Rheumatology Associates, P.C., Peoria, AZ, 5Trio Health, Louisville, CO, 6Articularis Healthcare, Sullivans Island, SC

    Background/Purpose: Clinical and non-clinical forces contribute to real-world treatment effectiveness, yet most studies focus on efficacy in an idealized setting. To identify factors impacting clinical…
  • Abstract Number: 2243 • ACR Convergence 2022

    Patient Reported Outcomes from a Randomized Phase 3 Trial of Sarilumab in Polymyalgia Rheumatica

    Vibeke Strand1, Jennifer Sloane Lazar2, Michael C Nivens3, Jingdong Chao4, Stefano Fiore5, Angeliki Giannelou6, Lita Araujo7 and Jerome Msihid8, 1Stanford University School of Medicine, Stanford, CA, 2Sanofi, Delray Beach, FL, 3Regeneron Pharmaceuticals, Inc., Tarrytown, NY, NY, 4Regeneron Pharmaceuticals, Inc.,, Tarrytown, NY, 5Sanofi, Bridgewater, NJ, 6Regeneron Pharmaceuticals, Inc., Hoboken, NJ, 7Sanofi, Cambridge, MA, 8Sanofi, Chilly-Mazarin, France

    Background/Purpose: Polymyalgia rheumatica (PMR) is a common inflammatory rheumatic disease in the elderly. The phase 3 SAPHYR trial (NCT03600818) assessed the efficacy and safety of…
  • Abstract Number: 0187 • ACR Convergence 2022

    Patient-reported Outcomes and Quality of Life in Patients with Rheumatoid Arthritis Treated with GP2015: Final Results from a Real-world Study

    Ayman Askari1, Marc Schmalzing2, Herbert Kellner3, Rafaela Ortega-Castro4, Julio Cesar Vázquez Perez-Coleman5, Foti Rosario6, Sławomir Jeka7, Boulos Haraoui8, Yannick Allanore9, Masiur Rahman10, Fabricio Furlan10, Sohaib Hachaichi11 and Tom Sheeran12, 1The Robert Jones and Agnes Hunt Orthopaedic Hospital, Oswestry, England, United Kingdom, 2University Hospital Wuerzburg, Wuerzburg, Germany, 3Schwerpunktpraxis für Rheumatologie und Gastroenterologie, Munich, Germany, 4IMIBIC/University of Cordoba/Reina Sofia Hospital, Cordoba, Spain, 5University Hospital Complex of Ferrol, A Coruña, Spain, 6Policlinico G. Rodolico-S.Marco Hospital, Catania, Italy, 7University Hospital No 2 in Bydgoszcz Collegium Medicum UMK, Clinic and Department of Rheumatology and Connective Tissue Diseases, Bydgoszcz, Poland, 8Institut de rhumatologie de Montréal, Montréal, QC, Canada, 9Department of Rheumatology A, Descartes University, APHP, Cochin Hospital, Paris, France, Paris, France, 10Sandoz Hexal AG, Holzkirchen, Germany, 11Hexal AG (A Sandoz company), Holzkirchen, Germany, 12New Cross and Cannock Chase Hospitals, University of Wolverhampton, Cannock, United Kingdom

    Background/Purpose: COMPACT is a non-interventional study evaluating the persistence, effectiveness, safety and patient-reported outcomes (PROs) in patients with rheumatoid arthritis (RA), axial-spondyloarthritis or psoriatic arthritis…
  • Abstract Number: 0313 • ACR Convergence 2022

    Olokizumab Improves Patient Reported Outcomes in Moderate to Severely Active Rheumatoid Arthritis Patients Inadequately Controlled by Methotrexate (MTX-IR): Results from the Phase III Randomized Controlled Trial

    Vibeke Strand1, Evgeny Nasonov2, Tatiana Lisitsyna2, Alexander Lila2, Sofia Kuzkina3, Mikhail Samsonov4 and Eugen Feist5, 1Stanford University School of Medicine, Stanford, CA, 2V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia, 3R-Pharm, Moscow, Russia, 4R-Pharm JSC, Moscow, Russia, 5Helios Clinic Vogelsang-Gommern, cooperation partner of the Otto von Guericke University Magdeburg, Magdeburg, Germany

    Background/Purpose: Olokizumab (OKZ) is an interleukin-6-inhibitor for treatment of Rheumatoid Arthritis (RA). In these analyses, we present patient reported outcomes (PROs) reported by MTX-IR patients…
  • Abstract Number: 0444 • ACR Convergence 2022

    Prevalence of Frailty and Associated Factors in Patients with Vasculitis

    Sebastian Sattui1, John Stadler2, Cristina Burroughs3, Kalen Larson2, Christine Yeung4, Peter Merkel5 and Robert Spiera6, 1University of Pittsburgh, Pittsburgh, PA, 2Vasculitis Foundation, Kansas City, MO, 3University of South Florida, Tampa, FL, 4University of Pennsylvania, Philadelphia, 5University of Pennsylvania, Philadelphia, PA, 6Hospital for Special Surgery, New York, NY

    Background/Purpose: Frailty is a syndrome characterized by an increased vulnerability to stressors and is associated with disability and early mortality. Frailty may be accelerated in…
  • Abstract Number: 0855 • ACR Convergence 2022

    Change in Short Term Outcomes Following Tolerated Disease Activity Level for Individuals with Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry

    Melissa Mannion1, Fenglong Xie1, Timothy Beukelman1, Jeffrey Curtis2 and , for the CARRA Registry Investigators3, 1University of Alabama at Birmingham, Birmingham, AL, 2University of Alabama at Birmingham, Hoover, AL, 3CARRA, Washington, DC

    Background/Purpose: Current recommendations suggest treatment escalation for juvenile idiopathic arthritis (JIA) until the disease activity target is reached, ideally inactive or low disease activity. Our…
  • Abstract Number: 1336 • ACR Convergence 2022

    Productivity Analysis in Patients with Idiopathic Inflammatory Myopathies and Relationship with Quality of Life and Emotional Domain: Preliminary Data from a Monocentric Cohort

    Chiara Cardelli1, Michele Diomedi1, Simone Barsotti1, Alessandra Tripoli2, Linda Carli1 and Marta Mosca1, 1Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy, 2Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Vecchiano, Italy

    Background/Purpose: Idiopathic Inflammatory Myopathies (IIM) are chronic diseases often causing disability in patients, associated with both disease activity and damage accrual. These conditions might reduce…
  • Abstract Number: 1451 • ACR Convergence 2022

    Delayed Sleep Phase Syndrome Characterizes Circadian Disorder in Patients with Active SLE

    Christina Stankey1, Philip Chu2, Alicia Hinze3, Lily McMorrow1, Alia El-Qunni1, Deepali Sen1, Seth Eisen1, Yo-El Ju1 and Alfred Kim1, 1Washington University School of Medicine, St. Louis, MO, 2Duke University Hospital, Raleigh, NC, 3Mayo Clinic - Rochester, MN, Rochester, MN

    Background/Purpose: Poor sleep quality is a common complaint of patients with SLE. Although chronic sleep disruption is known to drive circadian rhythm disorders, the effects…
  • Abstract Number: 1973 • ACR Convergence 2022

    Association Between Activity Limitations, Sleep Disturbance, Pain Sensitivity, Pain Intensity, and Widespread Pain in Adults with Rheumatoid Arthritis

    Burcu Aydemir1, Jing Song2, Lutfiyya Muhammad3, Daniela Grimaldi1, Kathryn Reid1, Phyllis Zee1, Rowland Chang4 and Yvonne Lee1, 1Northwestern University, Chicago, IL, 2Northwestern University, Evanston, IL, 3Northwestern University Feinberg School of Medicine, Chicago, IL, 4Northwestern University Division of Rheumatology, Chicago, IL

    Background/Purpose: Despite treatment with strong immunosuppressive medications, more than half of patients with rheumatoid arthritis (RA) still report pain. Pain can spread from joint sites…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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