ACR Meeting Abstracts

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Abstracts tagged "Patient questionnaires"

  • Abstract Number: 430 • 2019 ACR/ARP Annual Meeting

    Axial Spondyloarthritis Patients Report Important Impairments in Daily Life and Work Ability – a Web Survey in 472 Patients

    Sebastian Ibanez1, Rianne van Bentum 2, Omar Valenzuela 3 and Irene van der Horst-Bruinsma 2, 1Facultad de Medicina Clinica Alemana - UDD, Santiago, Region Metropolitana, Chile, 2Amsterdam University Medical Center, Amsterdam, Netherlands, 3Facultad de Medicina Clinica Alemana -UDD, Santiago, Region Metropolitana, Chile

    Background/Purpose: Axial spondyloarthritis (axSpA) can be associated with significant burden and impaired work activity. In Chile, several barriers impede adequate treatment, such as insufficient access…
  • Abstract Number: 648 • 2019 ACR/ARP Annual Meeting

    Patients of African Descent Score Higher on Quality of Life Indices Despite Their Known Disease Severity

    Katie Zuech1, Ly Tran 2, Teresa Aberle 1, Cristina Arriens 3, Eliza F. Chakravarty 3, Joan T. Merrill 4 and Judith James 3, 1Oklahoma Medical Research Foundation, Oklahoma City, OK, 2Oklahoma Medical Research Foundation, Oklahoma City, 3Oklahoma Medical Research Foundation, University of Oklahoma Health Sciences Center, Oklahoma City, OK, 4Okalahoma Medical Research Foundation, Oklahoma City, OK

    Background/Purpose:  Systemic lupus (SLE) may have a significant impact on multiple dimensions of quality of life. Patient-reported outcome (PRO) tools may provide valuable insights for…
  • Abstract Number: 662 • 2019 ACR/ARP Annual Meeting

    Utility of a Mobile Phone Based Application to Collect Patient-Reported Outcome Information from People Living with Systemic Lupus Erythematosus

    Brooke Williams1, Bridget Muckian 1, Claire Dykas 2, Christine Peschken 3, Richard Furie 4, Elena Massarotti 5, Vanja sikirica 6, Steven Gilbert 7, Martin Hodge 7 and Peter Lipsky 8, 1AMPEL BioSolutions, Charlottesville, VA, 2AmpelBioSolutions, Charlottesville, VA, 3University of Manitoba, Winnepeg, Canada, 4Northwell Health, Great Neck, NY, 5Brigham and Women's Hospital/Harvard Medical School, Boston, MA, 6Pfizer, Boston, MA, 7Pfizer, Boston, 8AMPEL BioSolutions, LLC, Charlottesville, VA

    Background/Purpose: Patient Reported Outcomes (PROs) can provide important data about the impact of a disease on an individual and/or the quality of the response to…
  • Abstract Number: 2256 • 2019 ACR/ARP Annual Meeting

    Patient Beliefs and Perceptions of Methotrexate for the Treatment of Rheumatoid Arthritis and Psoriatic Arthritis

    W. Benjamin Nowell1, Elaine Karis 2, Kelly Gavigan 1, Laura Stradford 1, Scott Stryker 3, Shilpa Venkatachalam 1, Gregory Kricorian 3 and Jeffrey Curtis 4, 1Global Healthy Living Foundation, Upper Nyack, NY, 2Amgen Inc, Thousand Oaks, CA, 3Amgen Inc., Thousand Oaks, CA, 4University of Alabama at Birmingham, Birmingham, AL

    Background/Purpose: Methotrexate (MTX) is a frequently used therapy in both Rheumatoid Arthritis (RA) and Psoriatic Arthritis (PsA) due to its beneficial effects in both populations.…
  • Abstract Number: 1428 • 2018 ACR/ARHP Annual Meeting

    Parental Involvement and Adolescents/Young Adults Self-Management during the Transition Period: A Cross-Sectional Survey in Childhood Onset Rheumatic Diseases

    Pauline Yi1, Hana Conlon2, Jae Hee Yun3, Kayla Neville2, George Danias2, Anca Askanase4 and Lisa F. Imundo5, 1Rheumatology, Columbia University College of Physicians & Surgeons, New York, NY, 2Rheumatology, Columbia University Medical Center, New York, NY, 3Medicine/Rheumatology, Columbia University, College of Physicians & Surgeons, New York, NY, 4Columbia University, College of Physicians & Surgeons, New York, NY, 5Pediatrics, Columbia University Medical Center, New York, NY

    Background/Purpose: A NIH focus group study found that adolescents and young adults (AYA) with active disease relied heavily on their parents for disease management. It…
  • Abstract Number: 1643 • 2018 ACR/ARHP Annual Meeting

    Psa Impact of Disease Questionnaire Scores Are Correlated with Disease Activity, As Measured By Cdapsa in Patients with Psa

    Ana-Maria Orbai1, Klaus Krüger2, Frank Behrens3, Uta Kiltz4, Benoit Guerette5, Lillian Mellars5, Michele Brunori5 and Jürgen Wollenhaupt6, 1Johns Hopkins University School of Medicine, Baltimore, MD, 2Medical Centre of Rheumatology, Munich, Germany, 3Clinical Research Rheumatology and Fraunhofer Institute IMETranslation, Goethe University, Frankfurt, Germany, 4Rheumazentrum Ruhrgebiet, Herne, Germany, 5Celgene Corporation, Summit, NJ, 6Schön-Klinik Hamburg-Eilbek Teaching Hospital of the University of Hamburg, Hamburg, Germany

    Background/Purpose: We examined clinical correlations between disease activity, as measured with the Clinical Disease Activity for PsA (cDAPSA) components and PsA life impact/health-related quality of…
  • Abstract Number: 475 • 2017 ACR/ARHP Annual Meeting

    Rheumatoid Arthritis Patient Characteristics Also Predict Response to Therapy with Biologic Agents: Results from the Corrona Certain Study

    Dimitrios A. Pappas1, James Murray2, Carol J. Etzel1, David R Nelson2, Bernice Gershenson3, Katherine C. Saunders1, Sabrina Rebello1 and Joel Kremer4, 1Corrona, LLC, Southborough, MA, 2Eli Lilly and Company, Indianapolis, IN, 3University of Massachusetts Medical School, Worcester, MA, 4Albany Medical College and The Center for Rheumatology, Albany, NY

    Background/Purpose: Response to biologic agents approved for RA may be associated with patient reported factors that are not related to disease and usually not included…
  • Abstract Number: 1253 • 2017 ACR/ARHP Annual Meeting

    Patient Reported Outcomes Explain the Lack of Agreement between Physician and Patient Perceived Remission in Early Rheumatoid Arthritis

    Samina A. Turk1,2, Linda A. Rasch3, Willem F. Lems4,5, Lilian van Tuyl3, Dirkjan van Schaardenburg4,6 and Marieke M. Ter Wee5,7, 1Rheumatology, Amsterdam Rheumatology and immunology Center | Reade, Amsterdam, Netherlands, 2Rheumatology, Amsterdam Rheumatology and immunology Center | Academic Medical Center, Amsterdam, Netherlands, 3Amsterdam Rheumatology and immunology Center | VU University Medical Center, Amsterdam, Netherlands, 4Amsterdam Rheumatology and immunology Center | Reade, Amsterdam, Netherlands, 5Rheumatology, Amsterdam Rheumatology and immunology Center | VU University Medical Center, Amsterdam, Netherlands, 6Amsterdam Rheumatology and immunology Center | Academic Medical Center, Amsterdam, Netherlands, 7Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, Netherlands

    Background/Purpose: Rheumatoid arthritis (RA) patients increasingly reach a state of absence of disease activity, or remission. However, the proportion of patients classified as in remission…
  • Abstract Number: 2220 • 2017 ACR/ARHP Annual Meeting

    Neuropathic-like Pain Affects the Tender Joint Count and Health-Related Quality of Life in Patients with Rheumatoid Arthritis

    Kentaro Noda1, Miku Tajima2, Yosuke Oto3, Kazuhiro Otani3, Yoshiga Masayuki3, Haruyasu Ito1, Ken Yoshida1 and Daitaro Kurosaka1, 1Division of Rheumatology, Department of Internal Medicine, Jikei University School of Medicine, Tokyo, Japan, 2Division of Rheumatology, Department of Internal Medecine, Jikei University School of Medicine, Tokyo, Japan, 3Internal Medicine, Jikei University School of Medicine, Tokyo, Japan

    Background/Purpose: Pain in rheumatoid arthritis (RA) has been thought to be due to nociceptive pain, but it was reported recently to include a mechanism associated…
  • Abstract Number: 353 • 2017 ACR/ARHP Annual Meeting

    Patient Experiences of Rheumatoid Arthritis Models of Care: An International Survey

    Cheryl L. Koehn1, Kelly Lendvoy1, Yue Ma2, Linda Li3, Alison Hoens4, Marion Souveton5 and John M. Esdaile4, 1Arthritis Consumer Experts, Vancouver, BC, Canada, 2Simon Fraser University, Burnaby, BC, Canada, 3Rheumatology, Arthritis Research Canada, Richmond, BC, Canada, 4Arthritis Research Canada, Richmond, BC, Canada, 5F. Hoffmann-La Roche Ltd, Basel, Switzerland

    Background/Purpose: Despite the global prevalence of rheumatoid arthritis (RA), there is no single model of care (MoC) and little is known about the RA patient…
  • Abstract Number: 81 • 2016 ACR/ARHP Annual Meeting

    Understanding the Importance of a Patient’s Role in the Management of RA: Physician- and Patient-Based Survey

    Ara Dikranian1, James Galloway2, Joern Kekow3, Cristiano A.F Zerbini4, Maria de la Vega5, Gavin Lee6, Anna Maniccia7, Eustratios Bananis8, Dario Ponce de Leon9 and Allan Gibofsky10, 1San Diego Arthritis Medical Clinic, San Diego, CA, 2King's College, and King´s College Hospital, London, United Kingdom, 3University of Magdeburg, Clinic of Rheumatology, Magdeburg, Germany, 4Centro Paulista de Investigação Clinica, São Paulo, Brazil, 5CEIM Investigaciones Médicas, Buenos Aires, Argentina, 6Hong Kong Sanatorium & Hospital, Hong Kong SAR, China, 7Pfizer Inc, New York, NY, 8Pfizer Inc, Collegeville, PA, 9Pfizer Inc, Lima, Peru, 10Rheumatology, Weill Cornell Medicine, and Hospital for Special Surgery, New York, NY

    Background/Purpose: RA is a chronic, debilitating condition for which there is no cure. To identify and better understand the perspectives of both healthcare providers (HCPs)…
  • Abstract Number: 1432 • 2016 ACR/ARHP Annual Meeting

    The EULAR Systemic Sclerosis Impact of Disease Score – a New Patient-Reported Outcome Measure for Patients with Systemic Sclerosis Under Development

    Rucsandra Dobrota1, Mike Becker2, Kim Fligelstone3,4, Jaap Fransen5, Ann Kennedy6, Yannick Allanore7, Patricia Carreira8, László Czirják9, Christopher Denton10, Roger Hesselstrand11, Gunnel Sandqvist11, Otylia Kowal-Bielecka12, Marco Matucci Cerinic13, Carina Mihai14, Ana Maria Gheorghiu15, Ulf Müller-Ladner16, Marc Frerix17, Turid Heiberg18 and Oliver Distler1, 1Department of Rheumatology, University Hospital Zurich, Zurich, Switzerland, 2Division of Rheumatology, University Hospital Zurich, Zurich, Switzerland, 3Royal Free Hospital, Scleroderma Unit and Scleroderma Society, London, United Kingdom, 4Federation of European Scleroderma Associations (FESCA), London, United Kingdom, 5Rheumatology, Radboud University Medical Center, Nijmegen, Netherlands, 6Federation of European Scleroderma Associations (FESCA), Tournai, Belgium, 7Department of Rheumatology, University Paris Descartes and Cochin Hospital, Paris, France, 8Department of Rheumatology, Hospital Universitario 12 de Octubre, Madrid, Spain, 9Department of Rheumatology and Immunology, University of Pécs, Faculty of Medicine, Pécs, Hungary, 10Division of Medicine, Centre for Rheumatology and Connective Tissue Disease, University College London, London, United Kingdom, 11Department of Rheumatology, Lund University, Lund, Sweden, 12Department of Rheumatology and Internal Medicine, Medical University of Bialystok, Bialystok, Poland, 13Department of Rheumatology, University of Florence, Florence, Italy, 14Department of Internal Medicine and Rheumatology, Carol Davila University of Medicine and Pharmacy, Cantacuzino Hospital, Bucharest, Romania, 15Carol Davila University of Medicine and Pharmacy, Internal Medicine and Rheumatology Department, Cantacuzino Clinical Hospital, Bucharest, Romania, 16Department of Internal Medicine and Rheumatology, Justus-Liebig-University Giessen, Kerckhoff-Klinik, Bad Nauheim, Germany, 17Department of Rheumatology and Clinical Immunology, Justus-Liebig-University Giessen, Kerckhoff-Klinik, Bad Nauheim, Germany, 18Department of Health and Social Sciences, Oestfold University College, Oslo, Norway

    Background/Purpose: Patient reported outcome measures (PROM) are required as key outcomes in disease modifying therapeutic trials in systemic sclerosis (SSc). A PROM tool in SSc,…
  • Abstract Number: 26 • 2015 ACR/ARHP Annual Meeting

    Higher Scores of Women Compared to Men for Most Clinical Measures of Rheumatoid Arthritis (RA) Status: Greater Differences for Patient Self-Report Scores Than for Rheumatologist Estimates: A Cross-Sectional 3 Center Study from Routine Care

    Isabel Castrejón1, Martin Bergman2, Yusuf Yazici3, Annie Huang1, Joel A. Block1 and Theodore Pincus1, 1Rheumatology, Rush University Medical Center, Chicago, IL, 2Division of Rheumatology, Taylor Hospital, Ridley Park, PA, 3NYU Hospital for Joint Diseases, New York, NY

    Background/Purpose: Higher scores for women compared to men have been reported for all 7 rheumatoid arthritis (RA) Core Data Set measures (1, 2). Most of…
  • Abstract Number: 126 • 2015 ACR/ARHP Annual Meeting

    Patients with Osteoarthritis and Rheumatoid Arthritis Seen at 4 Different Routine Rheumatology Care Sites at This Time Have Similar and Patient and Physician Global Estimates of Severity, and Scores for Functional Disability, Pain, and RAPID3

    Carlos El-Haddad1, Isabel Castrejón2, Kathryn A. Gibson3, Yusuf Yazici4, Martin Bergman5 and Theodore Pincus2, 1Rheumatology, Liverpool Hospital, NSW, Australia, 2Rheumatology, Rush University Medical Center, Chicago, IL, 3Liverpool Hospital, Liverpool, Australia, 4NYU Hospital for Joint Diseases, New York, NY, 5Division of Rheumatology, Taylor Hospital, Ridley Park, PA

    Background/Purpose: RA generally is regarded by physicians and the public as a more severe problem than OA. However, OA has been ranked as the 11th…
  • Abstract Number: 138 • 2015 ACR/ARHP Annual Meeting

    Identification and Documentation of Secondary Osteoarthritis in Patients with Primary Inflammatory Arthritides Using a Patient MDHAQ/RAPID3 and a Physician Estimate of Joint Damage to Recognize Patient Complexity and Inform Management Decisions

    Kathryn A. Gibson1, Annie Huang2, Katherine J. Bryant3 and Theodore Pincus2, 1Liverpool Hospital, Liverpool, Australia, 2Rheumatology, Rush University Medical Center, Chicago, IL, 3University of New South Wales, Sydney, Australia

    Background/Purpose: Patients with inflammatory arthritides may have secondary osteoarthritis (OA), which affects decisions concerning clinical management. For example, in one study, about 20% of patients…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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