patient outcomes and systemic lupus erythematosus (SLE) Archives

Abstract Number: 1696 • ACR/ARHP Annual Meeting 2018
Impact of Hurricane Maria on a Cohort of Systemic Lupus Erythematosus Patients from Puerto Rico
Luis M. Vilá¹, Yaritza Berríos-López¹, Carla Santiago-Burgos¹, Lorena González-Sepúlveda², Ileana Vázquez-Otero¹ and Elizabeth Brown³, ¹Department of Medicine, Division of Rheumatology, University of Puerto Rico Medical Sciences Campus, San Juan, Puerto Rico, ²Puerto Rico Clinical and Translational Research Consortium, University of Puerto Rico Medical Sciences Campus, San Juan, Puerto Rico, ³Department of Pathology, University of Alabama at Birmingham, Birmingham, AL
Background/Purpose: On September 20, 2017, Puerto Rico was devastated by Hurricane Maria causing severe damage to the Island infrastructure and essential services such as electricity,…
Abstract Number: 2439 • ACR/ARHP Annual Meeting 2018
A Description of Contraception Practices in the Ohio State University Lupus Cohort
Veronica Mruk¹, Ashlee Weaver², Alexa Zofia³, Emily Sullivan⁴, Kelly Morris⁵, Stacy P. Ardoin⁶, Elise Berlan⁷ and Alexa Meara⁸, ¹The Nationwide Children's Hospital, Columbus, OH, ²The Ohio State University School of Medicine, Columbus, OH, ³The Ohio State University, Columbus, OH, ⁴The Ohio State Univeristy Wexner Medical Center, Columbus, OH, ⁵Rheumatology and Immunology, The Ohio State University, Columbus, OH, ⁶The Ohio State University Wexner Medical Center, Columbus, OH, ⁷Adolescent Medicine, Nationwide Children's Hospital, columbus, OH, ⁸Internal Medicine/Rheumatology, The Ohio State University Wexner Medical Center, Columbus, OH
Background/Purpose: Systemic lupus erythematosus (SLE) is a chronic inflammatory autoimmune disease, which predominantly affects women and reaches peak incidence during reproductive years. Periods of high…
Abstract Number: 2911 • ACR/ARHP Annual Meeting 2018
Patient-Reported Outcomes Measurement Information System (PROMIS®) Global Health Short Form Is Responsive to Patient Reported Changes in SLE Health Status
Shanthini Kasturi¹, Jackie Szymonifka², Jessica R. Berman³, Kyriakos A. Kirou³, Alana B. Levine³, Lisa R Sammaritano⁴ and Lisa A. Mandl⁴, ¹Medicine/Rheumatology, Tufts Medical Center, Boston, MA, ²Hospital for Special Surgery, New York, NY, ³Rheumatology, Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, ⁴Hospital for Special Surgery/Weill Cornell Medicine, New York, NY
Background/Purpose: The accurate and efficient serial measurement of patient centered outcomes is a priority in the clinical care of SLE. Patient-Reported Outcomes Measurement Information Systems…
Abstract Number: PP11 • ACR/ARHP Annual Meeting 2018
The Road Less Traveled– Nontraditional Approaches to Increased Patient Adherence and Positive Outcomes
Carlene Harrison, AstraZeneca, Gaithersburg, MD

Background/Diagnosis: African-American female diagnosed with SLE, Lupus Nephritis, Discoid Lupus, and Raynaud’s Phenomenon in 2011. Symptoms included joint pain, edema in the ankles, malar rash,…
Abstract Number: 1396 • ACR/ARHP Annual Meeting 2018
Factors Associated with Specific Quality of Life Evolution in SLE Patients: A French Prospective Longitudinal Multicenter Study
Hervé Devilliers¹, Marie Corneloup², Francois Maurier³, Denis Wahl^4,5, Geraldine Muller⁶, Olivier Aumaître⁷, Pascal Sève⁸, Gilles Blaison⁹, Jean-Loup Pennaforte¹⁰, Thierry Martin¹¹, Nadine Magy¹², Sabine Berthier¹³, Laurent Arnaud¹⁴, Abderrahmane Bourredjem¹⁵ and Zahir Amoura¹⁶, ¹Service de Médecine Interne et Maladies Systémiques, CHU de Dijon, Dijon, France, ²Clinical epidemiology, Clinical investigation center, INSERM CIC-EC 1432, Dijon University Hospital, 21000 Dijon, France, ³Médecine interne, Hôpitaux Privés de Metz, Metz, France, ⁴CHU de Nancy, Vascular Medicine Division and Regional Competence Center For Rare Vascular And Systemic Autoimmune Diseases, Nancy, F-54000, France; Inserm, UMR_S 1116, Nancy, F-54000, France; Université de Lorraine, Nancy, F-54000, France, Nancy, France, ⁵CHU de Nancy, Vascular Medicine Division and Regional Competence Centre For Rare Vascular And Systemic Autoimmune Diseases; and UMR_S U1116 Research Unit, Nancy, France, ⁶Department of Internal Medicine and Systemic Diseases, Hôpital François Mitterrand, CHU de Dijon, Dijon, France, ⁷CHU Pitié-Salpêtrière - Department of Internal Medicine 2. Referal center for SLE/APS, Paris, France, ⁸Internal medicine, Internal medicine department, Hôpital de la Croix-Rousse, Hospices Civils de Lyon, Lyon, France, ⁹Internal medicine departement, Colmar Hospital, Colmar, France, ¹⁰Internal Medicine, Internal medicine departement, CHU de Reims, Reims, France, ¹¹Cnrs UPR9021, Department of Clinical Immunology and Internal Medicine, Strasbourg University Hospital, IBMC CNRS UPR9021, Strasbourg, France, ¹²Internal Medecine, CHRU Besançon, Besancon, France, ¹³Department of Internal Medicine and Clinical Immunology, Dijon University Hospital, Dijon, France, ¹⁴Department of Medicine, Rheumatology Unit, Karolinska Institutet, Karolinska University Hospital, Stockholm, Sweden, ¹⁵Clinical investigation center, INSERM CIC-EC 1432, Dijon University Hospital, Dijon, France, ¹⁶Université Pierre et Marie Curie, Paris, France
Background/Purpose: To analyze variables associated with evolution of disease-specific health related quality of life (HRQoL) in systemic lupus erythematosus (SLE) patients. Methods: We conducted a…
Abstract Number: 1397 • ACR/ARHP Annual Meeting 2018
Item Responses to Disease-Specific Quality of Life Questionnaires in the 18 Months Following a Flare in SLE: An Item Response Theory Analysis of a French Prospective Longitudinal Multicenter Study
Marie Corneloup¹, Francois Maurier², Denis Wahl³, Geraldine Muller⁴, Olivier Aumaître⁵, Pascal Sève⁶, Gilles Blaison⁷, Jean-Loup Pennaforte⁸, Thierry Martin⁹, Nadine Magy¹⁰, Sabine Berthier¹¹, Laurent Arnaud¹², Abderrahmane Bourredjem¹³, Zahir Amoura¹⁴ and Hervé Devilliers¹⁵, ¹Clinical epidemiology, Clinical investigation center, INSERM CIC-EC 1432, Dijon University Hospital, 21000 Dijon, France, ²Médecine interne, Hôpitaux Privés de Metz, Metz, France, ³CHU de Nancy, Vascular Medicine Division and Regional Competence Centre For Rare Vascular And Systemic Autoimmune Diseases; and UMR_S U1116 Research Unit, Nancy, France, ⁴Department of Internal Medicine and Systemic Diseases, Hôpital François Mitterrand, CHU de Dijon, Dijon, France, ⁵Division of internal Medicine, Centre Hospitalier Universitaire, Hôpital Gabriel Montpied, Clermont–Ferrand, Clermont–Ferrand, France, ⁶Internal medicine, Internal medicine department, Hôpital de la Croix-Rousse, Hospices Civils de Lyon, Lyon, France, ⁷Internal medicine departement, Colmar Hospital, Colmar, France, ⁸Internal Medicine, Internal medicine departement, CHU de Reims, Reims, France, ⁹Internal medicine and clinical immunology departement, Strasbourg University Hospital, Strasbourg, France, ¹⁰Internal Medecine, CHRU Besançon, Besancon, France, ¹¹Department of Internal Medicine and Clinical Immunology, Dijon University Hospital, Dijon, France, ¹²Department of Rheumatology, Hôpitaux Universitaires de Strasbourg; INSERM UMR-S 1109, Strasbourg, France, ¹³Clinical investigation center, INSERM CIC-EC 1432, Dijon University Hospital, Dijon, France, ¹⁴Department of Internal Medicine, National referral center for systemic lupus erythematosus and anti-phospholipid syndrome, Pitie-Salpetriere University Hospital, Paris, France, ¹⁵Service de Médecine Interne et Maladies Systémiques, CHU de Dijon, Dijon, France
Background/Purpose: To explore, at an item-level, the effect of disease activity (DA) on disease specific health related quality of life (HRQoL) factors in systemic lupus…
Abstract Number: 1404 • ACR/ARHP Annual Meeting 2018
Responsiveness of Promis (Patient Reported Outcomes Measurement Information System) Measures in a Multi-Racial, Multi-Ethnic Systemic Lupus Erythematosus (SLE) Cohort
Patricia Katz¹, Stephanie Rush², Jinoos Yazdany³, Laura Trupin¹, Louise Murphy⁴, Cristina Lanata¹, Lindsey A. Criswell¹ and Maria Dall'Era³, ¹University of California San Francisco, San Francisco, CA, ²Medicine/Rheumatology, University of California San Francisco, San Francisco, CA, ³University of California, San Francisco, San Francisco, CA, ⁴Arthritis Program, Centers for Disease Control and Prevention, Atlanta, GA
Background/Purpose: Recent studies have demonstrated the reliability and validity of the NIH PROMIS (Patient-Reported Outcomes Measurement Information System) measures in SLE. Analyses of their responsiveness…
Abstract Number: 1264 • ACR/ARHP Annual Meeting 2017
Responsiveness of Patient Reported Outcomes Measurement Information System (PROMIS®) Computerized Adaptive Tests (CATs) in Systemic Lupus Erythematosus (SLE)
Shanthini Kasturi¹, Jackie Szymonifka², Jessica R. Berman³, Kyriakos A. Kirou¹, Alana B. Levine¹, Lisa R. Sammaritano¹ and Lisa A. Mandl¹, ¹Rheumatology, Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, ²Rheumatology, Hospital for Special Surgery, New York, NY, ³Rheumatology, Hospital for Special Surgery Weill Cornell Medical College, New York, NY
Background/Purpose: PROMIS CATs are precise measures of quality of life with construct validity in SLE. The longitudinal responsiveness (sensitivity to change) of PROMIS CATs in…
Abstract Number: 2263 • ACR/ARHP Annual Meeting 2017
Obesity Independently Associates with Worse Patient Reported Outcomes in Women with Systemic Lupus Erythematosus
Sarah L. Patterson¹, Gabriela Schmajuk², Kashif Jafri³, Katherine D. Wysham³ and Patricia P. Katz⁴, ¹Division of Rheumatology, University of California, San Francisco, San Francisco, CA, ²San Francisco VA Medical Center, University of California San Francisco, San Francisco, CA, ³University of California, San Francisco, San Francisco, CA, ⁴Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA
Background/Purpose: Obesity has been shown to exacerbate systemic inflammation in the general population and contributes to worse disease-related outcomes in rheumatoid arthritis. The impact of…
Abstract Number: 3233 • ACR/ARHP Annual Meeting 2016
Determinants of Pain, Fatigue, Physical Function and Social Participation in SLE Patients, Measured with Patient Reported Outcomes Measurement Information System (PROMIS®) Computerized Adaptive Tests
Shanthini Kasturi¹, Jayme C. Burket², Jessica Berman¹, Kyriakos A. Kirou¹, Alana B. Levine¹, Lisa R. Sammaritano¹ and Lisa Mandl¹, ¹Rheumatology, Hospital for Special Surgery, New York, NY, ²Healthcare Research Institute, Hospital for Special Surgery, New York, NY
Background/Purpose: Poor SLE outcomes have been associated with certain clinical and socio-demographic characteristics, but the determinants of patient reported outcomes (PROs) in SLE are unknown.…
Abstract Number: 2836 • ACR/ARHP Annual Meeting 2014
Effects of Blisibimod, an Inhibitor of B Cell Activating Factor, on Patient Reported Outcomes and Disease Activity in Patients with Systemic Lupus Erythematosus
Michelle Petri¹, Renee S. Martin², Colin Hislop², Morton A. Scheinberg³ and Richard Furie⁴, ¹Johns Hopkins University School of Medicine, Baltimore, MD, ²Anthera Pharmaceuticals Inc, Hayward, CA, ³Rheumatology Hospital Abreu Sodre Pesquisa Clínica, São Paulo, Brazil, ⁴Division of Rheumatology and Allergy-Clinical Immunology, North Shore - Long Island Jewish Health System, Great Neck, NY
Background/Purpose: To conduct secondary endpoint analyses of the effects of subcutaneously-administered blisibimod (A-623, AMG 623), an inhibitor of B-cell activating factor (BAFF), on patient-reported outcomes and…

Abstracts tagged "patient outcomes and systemic lupus erythematosus (SLE)"