Abstracts tagged "Outcome measures"

Abstract Number: 1427 • 2016 ACR/ARHP Annual Meeting
The Importance of Outcome Measures in Ankylosing Spondylitis – Validity of the Routine Assessment of Patient Index Data 3 in a Real World Cohort
Sergio Schwartzman¹, Keith Knapp², Gary Craig³ and Discus, ¹Rheumatology, Hospital for Special Surgery, New York, NY, ²Arthritis Northwest PLLC., Spokane, WA, ³Discus Analytics LLC., Spokane, WA
Background/Purpose: Outcome measures in AS are well established in clinical trial settings but infrequently used in real-world (RW) practice. These measures include the BASDAI, BASFI,…
Abstract Number: 1699 • 2016 ACR/ARHP Annual Meeting
RAPID3 Near Remission Shows Good Agreement with Minimal Disease Activity Criteria in Psoriatic Arthritis
Laura C. Coates^1,2, William Tillett^3,4, Theodore Pincus⁵, Arthur Kavanaugh⁶ and Philip S. Helliwell⁷, ¹Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom, ²NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds, United Kingdom, ³Pharmacy and Pharmacology, University of Bath, Bath, United Kingdom, ⁴Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, United Kingdom, ⁵Rheumatology, Rush University Medical Center, Chicago, IL, ⁶Division of Rheumatology, Allergy, and Immunology, University of California San Diego, La Jolla, CA, ⁷NIHR-Leeds Musculoskeletal Biomedical Research Unit, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom
Background/Purpose: RAPID3 (routine assessment of patient index data) is a patient self-report index which is feasible in busy clinical settings to assess severity and change…
Abstract Number: 2017 • 2016 ACR/ARHP Annual Meeting
Performance of Modified Rodnan Skin Score in Early Diffuse Cutaneous Scleroderma-Analysis from 4 International Cohorts
Dinesh Khanna¹, Susanna Proudman^2,3, Tracy M. Frech⁴, Svetlana Nihtyanova⁵, Robyn T. Domsic⁶, Veronica J. Berrocal⁷, Wendy Stevens⁸, Mandana Nikpour⁹ and Christopher P.Denton¹⁰, ¹University of Michigan, Ann Arbor, MI, ²Rheumatology Unit, Royal Adelaide Hospital, Adelaide, Australia, ³Discipline of Medicine, University of Adelaide, Adelaide, Australia, ⁴Div of Rheumatology, University of Utah Medical Ctr, Salt Lake City, UT, ⁵Centre for Rheumatology and Connective Tissue Diseases, University College London Medical School, Royal Free Hospital, London, United Kingdom, ⁶Medicine - Rheumatology, University of Pittsburgh, Pittsburgh, PA, ⁷Div of Rheumatology, University of Michigan, Ann Arbor, MI, ⁸Rheumatology, St. Vincent’s Hospital, Melbourne, Australia, ⁹Melbourne University, Melbourne, Australia, ¹⁰Centre of Rheumatology and Connective Tissue Diseases, University College London, London, United Kingdom
Background/Purpose: The modified Rodnan skin score (mRSS) is used as a primary outcome measure in clinical trials of dcSSc. EUSTAR analysis has proposed that a…
Abstract Number: 2038 • 2016 ACR/ARHP Annual Meeting
Pediatric Rheumatology Care and Outcomes Improvement Network Demonstrates Improvement on Quality Measures for Children with Juvenile Idiopathic Arthritis
C. April Bingham¹, Jesse Pratt², Cagri Yildirim-Toruner³, Ronald Laxer⁴, Beth Gottlieb⁵, Jennifer E. Weiss⁶, Tzielan Lee⁷, Sheetal S. Vora⁸, Jon M. Burnham⁹, Julia Harris¹⁰, Judyann C. Olson¹¹, Murray Passo¹², Michelle Batthish¹³, Michael Shishov¹⁴, Kerry Ferraro¹⁵, Deborah M. Levy¹⁶, Christine O'Brien¹⁷, Kristi Whitney-Mahoney¹⁷, Nancy Griffin¹⁸, Anne Paul¹⁹ and Esi Morgan²⁰, ¹Penn State Health Children's Hospital, Hershey, PA, ²Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ³Rheumatology, Nationwide Children's Hospital, Columbus, OH, ⁴Div of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ⁵Pediatrics, Cohen Children's Medical Center, Lake Success, NY, ⁶Hackensack Univ Med Ctr, Hackensack, NJ, ⁷Pediatric Rheumatology, Stanford University School of Medicine, Palo Alto, CA, ⁸Pediatric Rheumatology, Medical College of Wisconsin, Milwaukee, WI, ⁹Pediatric Rheumatology, Children's Hospital Philadelphia, Philadelphia, PA, ¹⁰Children's Mercy Kansas City, Kansas City, MO, ¹¹Ped/MACC Fund Research Ctr, Medical College of Wisconsin, Milwaukee, WI, ¹²Pediatric Rheumatology, Medical University of South Carolina, Charleston, SC, ¹³Division of Pediatric Rheumatology, McMaster Children's Hospital, Hamilton, ON, Canada, ¹⁴Pediatric Rheumatology, Phoenix Children's Hospital, Phoenix, AZ, ¹⁵Pediatric Rheumatology Care and Outcomes Improvement Network, Cincinnati, OH, ¹⁶Division of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada, ¹⁷The Hospital for Sick Children, Toronto, ON, Canada, ¹⁸James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ¹⁹Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, ²⁰Pediatric Rheumatology, Cincinnati Children's Hospital, Cincinnati, OH
Background/Purpose: Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) is a growing multi-center network organized on a learning health system model designed to improve outcomes…
Abstract Number: 2732 • 2016 ACR/ARHP Annual Meeting
Meaningful Involvement of Patients in the Development of a Core Outcome Set for Psoriatic Arthritis
Maarten de Wit¹, Alexis Ogdie², Willemina Campbell³, Philip J Mease⁴, Niti Goel⁵, Laure Gossec⁶, Ying Ying Leung⁷, Christine Lindsay⁸, Penelope Palominos Jr.⁹, Ingrid Steinkoenig¹⁰, Suzanne Grieb¹¹ and Ana-Maria Orbai¹², ¹Medical Humanities, VU Medical Centre, Amsterdam, Netherlands, ²University of Pennsylvania, Philadelphia, PA, ³Rheumatology, Toronto Western Hospital, Toronto, ON, Canada, ⁴Rheumatology Research, Swedish Medical Center, Seattle, WA, ⁵Quintiles; Duke University School of Medicine, Durham, NC, ⁶Paris 06 University and AP-HP, Hôpital Pitié Salpêtrière, Paris, France, ⁷North District Hospital, Hong Kong, China, ⁸Medical Affairs, Amgen Inc, Thousand Oaks, CA, ⁹Rheumatology, Hospital de Clinicas de Porto Alegre, Santa Cecilia, Brazil, ¹⁰Patient Research Partner, Cleveland, OH, ¹¹Psychology, Johns Hopkins University, Baltimore, MD, ¹²Rheumatology, Johns Hopkins University School of Medicine, Baltimore, MD
Background/Purpose: The Group for Research of Psoriasis and Psoriatic Arthritis (GRAPPA)-Outcome Measures in Rheumatology (OMERACT) Psoriatic Arthritis (PsA) working group recently obtained endorsement at the…
Abstract Number: 2741 • 2016 ACR/ARHP Annual Meeting
Reliability and Construct Validity of the Psoriatic Arthritis Impact of Disease (PsAID) Questionnaire – Independent Validation Study in a UK Cohort
Richard Holland¹, William Tillett^1,2, Eleanor Korendowych¹, Charlotte Cavill^1,3, Mel Brooke⁴ and Neil J McHugh⁵, ¹Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, United Kingdom, ²Pharmacy and Pharmacology, University of Bath, Bath, United Kingdom, ³Rheumatology, Bath Institute for Rheumatic Disease, Bath, United Kingdom, ⁴PsAZZ Support Group, Bath, United Kingdom, ⁵Royal National Hospital for Rheumatic Diseases and Dept Pharmacy and Pharmacology, University of Bath, Bath, United Kingdom
Background/Purpose: Patient reported outcomes (PROs) have been found to be reliable indicators of baseline status, change during treatment, and are predictive of long-term outcome. A…
Abstract Number: 2754 • 2016 ACR/ARHP Annual Meeting
Self-Reported Physical Activity Questionnaire in Axial Spondyloarthritis: Modification of the Squash
Fiona Maas¹, Anna Jetske Baron^1,2, Freke Wink³, Reinhard Bos³, Yvo Kamsma², Hendrika Bootsma⁴, Suzanne Arends^1,3 and Anneke Spoorenberg^1,3, ¹Rheumatology and Clinical Immunology, University of Groningen, University Medical Center Groningen, Groningen, Netherlands, ²Center for Human Movement Sciences, University of Groningen, University Medical Center Groningen, Groningen, Netherlands, ³Rheumatology, Medical Center Leeuwarden, Leeuwarden, Netherlands, ⁴Rheumatology and Clinical Immunology, University of Groningen, University Medical Center Groningen, The Netherlands, Groningen, Netherlands
Background/Purpose: Improvement of physical function and physical activity are important goals in the management of axial spondyloarthritis (axSpA). Although physical function is included in the…
Abstract Number: 2921 • 2016 ACR/ARHP Annual Meeting
Patient Participation in Patient Reported Outcome Instrument Development in Systemic Sclerosis
John Pauling^1,2, Tracy M. Frech^3,4, Robyn T. Domsic⁵ and Marie Hudson^6,7, ¹Department of Pharmacy and Pharmacology, University of Bath, Bath, United Kingdom, ²Department of Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, United Kingdom, ³Internal Medicine, Salt Lake City VAMC, Salt Lake, UT, ⁴Internal Medicine-Division of Rheumatology, University of Utah School of Medicine, SLC, UT, ⁵Medicine - Rheumatology, Univ of Pittsburgh Med Ctr, Pittsburgh, PA, ⁶Medicine, McGill University, Montreal, QC, Canada, ⁷Medicine/Rheumatology, Jewish General Hospital, Lady Davis Research Institute, Montreal, QC, Canada
Background/Purpose: The patient perspective captured using Patient-Reported Outcome (PRO) instruments provide valuable insight into the patient condition not always captured by physician-derived assessment tools. Target…
Abstract Number: 2963 • 2016 ACR/ARHP Annual Meeting
BehçEt’s Disease in Children: Eastern Mediterranean Experience
Hafize Emine Sonmez¹, Ezgi Deniz Batu¹, Betul Sozeri², Yonatan Butbul Aviel³, Yelda Bilginer⁴ and Seza Ozen⁵, ¹Pediatric Rheumatology, Hacettepe University Faculty of Medicine, Ankara, Turkey, ²Pediatric Rheumatology, Erciyes University Faculty of Medicine, Kayseri, Turkey, ³Pediatric Rheumatology, Rambam Medical Center, Haifa, Israel, ⁴Department of Pediatrics, Division of Rheumatology, Hacettepe University Faculty of Medicine, ANKARA, Turkey, ⁵Department of Pediatrics, Division of Rheumatology, Hacettepe University Faculty of Medicine, Ankara, Turkey
Background/Purpose: Behçet’s disease (BD) is a variable vessel vasculitis which is more common in adults. The most widely used diagnostic criteria for adult onset disease…
Abstract Number: 3016 • 2016 ACR/ARHP Annual Meeting
Validity of a 2-Component Disease Activity Score for Accurate Assessment of Synovitis in Rheumatoid Arthritis
Elizabeth M.A. Hensor^1,2, Paul McKeigue³, Philip G. Conaghan^1,2, Maya H. Buch^1,2, Jennifer H. Barrett^2,4, Jackie L. Nam^1,2, Marco Colombo⁵, Athina Spiliopoulou^5,6, Felix Agakov⁶, Stephen Kelly⁷, Myles J. Lewis⁷, Costantino Pitzalis⁷, Paul Emery^1,2, Ann W. Morgan^1,2 and IACON Consortium & PEAC Consortium, ¹Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom, ²NIHR-Leeds Musculoskeletal Biomedical Research Unit, Leeds, United Kingdom, ³Medical School, Centre for Population Health Sciences, University of Edinburgh, Edinburgh, United Kingdom, ⁴School of Medicine, University of Leeds, Leeds, United Kingdom, ⁵Centre for Population Health Sciences, University of Edinburgh, Edinburgh, United Kingdom, ⁶Pharmatics Limited, Edinburgh, Edinburgh, United Kingdom, ⁷Barts and the London School of Medicine and Dentistry, William Harvey Research Institute, Queen Mary University of London, London, United Kingdom
Background/Purpose: The original Disease Activity Score (DAS) was derived from clinicians’ therapeutic decisions1, which may have been influenced by patient-subjective factors such as general health…
Abstract Number: 527 • 2016 ACR/ARHP Annual Meeting
The Summed Bilateral Elbow Extension Angle in Rheumatoid Arthritis Correlates with the DAS28-CRP(4) and May be an Independent Marker of Bad Prognosis
John P. Case¹, Congbin Wang² and Heidi Tucker³, ¹Internal Medicine/Rheumatology, John H. Stroger, Jr. Hospital of Cook County, Chicago, IL, ²Internal medicine, John H. Stroger, Jr. Hospital of Cook County, Chicago, IL, ³Rush Medical College, Chicago, IL
Background/Purpose: The elbow is an easily-examined joint and an important determinant of morbidity in rheumatoid arthritis (RA). In active RA the measured elbow extension angle,…
Abstract Number: 3095 • 2016 ACR/ARHP Annual Meeting
What Should be the Primary Target of ‘Treat to Target’ in Psa?
Laura C. Coates^1,2, Paul Emery³, Philip G. Conaghan¹ and Philip S. Helliwell¹, ¹Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom, ²NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds, United Kingdom, ³NIHR-Leeds Musculoskeletal Biomedical Research Unit and Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom
Background/Purpose: In 2013, Treat to Target (T2T) in SpA Recommendations by expert consensus stated that the target of treatment should be remission or inactive disease.…
Abstract Number: 553 • 2016 ACR/ARHP Annual Meeting
Validation of Index of Activity Speed (Timed Up and Go test) for Outcome Measure of Patients with Long-Standing Rheumatoid Arthritis: Multicenter Prospective Cohort Study for Evaluation of Joint Surgery on Physical Function
Toshihisa Kojima¹, Hajime Ishikawa^2,3, Sakae Tanaka⁴, Nobuhiko Haga⁵, Keiichiro Nishida⁶, Masao Yukioka⁷, Jun Hashimoto⁸, Hisaaki Miyahara⁹, Yasuo Niki¹⁰, Tomoatsu Kimura¹¹, Hiromi Oda¹², Shuji Asai¹³, Koji Funahashi¹, Masayo Kojima¹⁴ and Naoki Ishiguro¹⁵, ¹Department of Orthopedic Surgery, Nagoya University Hospital, Nagoya, Japan, ²Orthopedic Surgery, Niigata Rheumatic Center, Shibata, Japan, ³Orthopedic Surgery, Niigata Rheumatic Center, Shinata, Japan, ⁴Department of Orthopaedic Surgery, Graduate School of Medicine, The University of Tokyo, Tokyo, Japan, ⁵Rehabilitation Medicine, The University of Tokyo Hospital, Tokyo, Japan, ⁶Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama city, Japan, ⁷Orthopedic Surgery, Yukioka Hospital, Osaka, Japan, ⁸Dept of Rheumatology, Osaka-Minami Medical Center, Kawachinagano City, Japan, ⁹Department of Rheumatology and Orthopaedic Surgery, Kyushu Medical Center, Fukuoka, Japan, ¹⁰Orthopedic Surgery, Keio University School of Medicine, Tokyo, Japan, ¹¹Department of rthopaedic Surgery, Faculty of Medicine, University of Toyama, Toyama, Japan, ¹²Orthopedic Surgery, Saitama Medical Univeristy, Morohongo Moroyama, Japan, ¹³Nagoya University Hospital, Nagoya, Japan, ¹⁴Medical education, Nagoya City University Graduate School of Medical Sciences, Nagoya, Japan, ¹⁵Department of Orthopedic Surgery, Nagoya University, Graduate School & Faculty of Medicine, Nagoya, Japan
Background/Purpose: Total management including reconstructive joint surgery and rehabilitation should be needed for further improvements of physical function for long-standing RA patients. It is very…
Abstract Number: 3115 • 2016 ACR/ARHP Annual Meeting
Reconsidering the Juvenile Idiopathic Arthritis Core Set: How Patients and Caregivers Define Disease Activity
Jennifer R. Horonjeff¹, Susan Thornhill², Daniel B. Horton³, Jennifer N. Stinson⁴, Anjali Fortna⁵, Stephanie Luca⁶, Arlene Vinci⁷, Laura C. Marrow⁸, Emily L. Creek⁷, Meredith Riebschleger⁹, Alessandro Consolaro¹⁰, Jane Munro¹¹, Vibeke Strand¹², Clifton Bingham III¹³ and Esi Morgan¹⁴, ¹Rheumatology, Columbia University Medical Center, New York, NY, ²Thornhill Associates, Hermosa Beach, CA, ³Pediatrics, Division of Pediatric Rheumatology, Rutgers Robert Wood Johnson Medical School, Rutgers Biomedical and Health Sciences, New Brunswick, NJ, ⁴Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada, ⁵Columbia University Medical Center, New York, NY, ⁶The Hospital for Sick Children, Toronto, ON, Canada, ⁷Consumer Health, Arthritis Foundation, Atlanta, GA, ⁸Arthritis Foundation, Atlanta, GA, ⁹Pediatric Rheumatology & Health Services Research, University of Michigan, Ann Arbor, MI, ¹⁰Pediatria II - Reumatologia, PRINTO, Istituto Giannina Gaslini, Genoa, Italy, ¹¹Rheumatology, Royal Children's Hospital, Parkville, Australia, ¹²Stanford University School of Medicine, Palo Alto, CA, ¹³Divisions of Rheumatology and Allergy, Department of Medicine, Johns Hopkins University, Johns Hopkins University, Baltimore, MD, ¹⁴Pediatric Rheumatology, Cincinnati Children's Hospital, Cincinnati, OH
Background/Purpose: The current JIA Core Set (ACR Pediatric 30) contains items that should be assessed in clinical trials for children with JIA. It was developed…
Abstract Number: 554 • 2016 ACR/ARHP Annual Meeting
Characteristics of Functional Impairment in Patients with Long-Standing Rheumatoid Arthritis Based on Range of Motion of Joints: Multicenter Prospective Cohort Study for Evaluation of Joint Surgery on Physical Function
Toshihisa Kojima¹, Hajime Ishikawa², Sakae Tanaka³, Nobuhiko Haga⁴, Keiichiro Nishida⁵, Masao Yukioka⁶, Jun Hashimoto⁷, Hisaaki Miyahara⁸, Yasuo Niki⁹, Hiromi Oda¹⁰, Shuji Asai¹¹, Koji Funahashi¹, Masayo Kojima¹² and Naoki Ishiguro¹³, ¹Department of Orthopedic Surgery, Nagoya University Hospital, Nagoya, Japan, ²Orthopedic Surgery, Niigata Rheumatic Center, Shibata, Japan, ³Department of Orthopaedic Surgery, Graduate School of Medicine, The University of Tokyo, Tokyo, Japan, ⁴Rehabilitation Medicine, The University of Tokyo Hospital, Tokyo, Japan, ⁵Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama city, Japan, ⁶Orthopedic Surgery, Yukioka Hospital, Osaka, Japan, ⁷Dept of Rheumatology, Osaka-Minami Medical Center, Kawachinagano City, Japan, ⁸Department of Rheumatology and Orthopaedic Surgery, Kyushu Medical Center, Fukuoka, Japan, ⁹Orthopedic Surgery, Keio University School of Medicine, Tokyo, Japan, ¹⁰Orthopedic Surgery, Faculty of Medicine, Saitama Medical Univeristy, Morohongo Moroyama, Japan, ¹¹Nagoya University Hospital, Nagoya, Japan, ¹²Medical education, Nagoya City University Graduate School of Medical Sciences, Nagoya, Japan, ¹³Department of Orthopedic Surgery, Nagoya University, Graduate School & Faculty of Medicine, Nagoya, Japan
Background/Purpose: Even now, in clinical practice, most of RA patients have long-standing disease and structural damage in their joints. Reconstructive joint surgery should be needed…

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Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. Academic institutions, private organizations and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part a scientific presentation or presentation of additional new information that will be available at the time of the meeting) is under embargo until Saturday, November 11, 2023.

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