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Abstracts tagged "Outcome measures"

  • Abstract Number: 0321 • ACR Convergence 2020

    Outcome Measures in Psoriatic Arthritis Registries Are Very Heterogeneous: A Systematic Literature Review of 27 Registries, or 16183 Patients

    Krystel Aouad1, Georgia Moysidou1, Antsa Rakotozafiarison1, Bruno Fautrel2 and Laure Gossec1, 1Sorbonne University, INSERM; Pitié-Salpêtrière Hospital, Paris, Ile-de-France, France, 2Sorbonne University, INSERM, IPLES; Pitié-Salpêtrière Hospital, Paris, Ile-de-France, France

    Background/Purpose: Psoriatic arthritis (PsA) is a multidimensional inflammatory disease for which multiple outcome measures can be used, to assess disease activity e.g. through composite scores,…
  • Abstract Number: 0633 • ACR Convergence 2020

    Vitamin D Serum Status in a Cohort of COVID-19 Patients

    Alberto Sulli1, Emanuele Gotelli1, Sabrina Paolino1, Andrea Casabella1, Carmen Pizzorni1, Elisa Alessandri1, Vanessa Smith2 and Maurizio Cutolo1, 1Research Laboratory and Academic Division of Clinical Rheumatology, Department of Internal Medicine, University of Genova, IRCCS San Martino Polyclinic, Genoa, Italy, 2Department of Rheumatology, Ghent University Hospital, Department of Internal Medicine, VIB Inflammation Research Centre Ghent University, Ghent, Belgium

    Background/Purpose: Vitamin D serum levels have been inversely associated with risk of pulmonary infections and autoimmune inflammatory disease activity and severity [1,2]. A possible role…
  • Abstract Number: 1129 • ACR Convergence 2020

    Discordance in Patient and Physician Assessment of Disease Activity in Relapsing Polychondritis

    Emily Rose1, Marcela Ferrada1, Kaitlin Quinn2, Wendy Goodspeed1, Laurent Arnaud3 and Peter C. Grayson4, 1Systemic Autoimmunity Branch, Vasculitis Translational Research Program, National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health, Bethesda, MD, 2Systemic Autoimmunity Branch, National Institutes of Health, NIAMS, Washington, DC, 3Department of rheumatology, University Hospitals of Strasbourg and French National Reference Center for Rare Auto-immune diseases, Strasbourg, Alsace, France, 4Systemic Autoimmunity Branch, National Institutes of Health, NIAMS, Bethesda, MD

    Background/Purpose: Relapsing polychondritis (RP) is a rare chronic disabling inflammatory condition primarily affecting cartilage tissue. Self-reported patient outcome measures, which have not been evaluated in…
  • Abstract Number: 1653 • ACR Convergence 2020

    Bilateral vs Unilateral Total Knee Arthroplasty: Racial Variation in Utilization and In-Hospital Major Complication Rates

    Bella Mehta1, Kaylee Ho2, Jennifer Bido3, Stavros Memtsoudis3, Michael Parks4, Susan Goodman1, Linda Russell5 and Said Ibrahim6, 1Hospital for Special Surgery, Weill Cornell Medicine, New York, NY, 2Weill Cornell Medicine, New York, 3Hospital for Special Surgery, New York, 4Hospital for Special Surgery, Weill Cornell Medicine, New York, 5Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, 6Weill Cornell Medicine, Cleveland, OH

    Background/Purpose: Compared to White Patients, African Americans (AAs) are reported to have lower utilization and higher complication rates outcomes in Unilateral Total knee arthroplasty (UTKA).…
  • Abstract Number: 1889 • ACR Convergence 2020

    Reliability and Validity of the PROMIS-29 Health Profile in Ankylosing Spondylitis Patients

    Yvette Farran1, Alexis Ogdie2, John Reveille3 and Mark Hwang4, 1McGovern Medical School at the University of Texas Health Sciences Center, Houston, TX, 2University of Pennsylvania, Philadelphia, PA, 3Department of Internal Medicine, University of Texas, Houston, TX, 4McGovern Medical School at the University of Texas Health Science Center at Houston, Houston, TX

    Background/Purpose: The Patient Reported Outcomes Measurement Information System 29-Item Profile Measure (PROMIS-29) is a generic measure of health-related quality of life (HRQOL) that has seven…
  • Abstract Number: 0140 • ACR Convergence 2020

    Meaningful Within-Patient Change in WOMAC Domains in Patients with Moderate-To- Severe Osteoarthritis

    Philip G Conaghan1, Robert Dworkin2, Thomas Schnitzer3, Francis Berenbaum4, Andrew Bushmakin5, Joseph Cappelleri5, Lars Viktrup6 and Lucy Abraham7, 1Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, and National Institute for Health Research Leeds Biomedical Research Centre, Leeds, United Kingdom, 2University of Rochester School of Medicine and Dentistry, Rochester, NY, 3Northwestern University Feinberg School of Medicine, Chicago, IL, 4Sorbonne Universite�, Paris, France, 5Pfizer Inc, Groton, CT, 6Eli Lilly and Company, Indianapolis, IN, 7Pfizer Inc, Tadworth, United Kingdom

    Background/Purpose: The Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC) is a disease-specific measure of osteoarthritis (OA) symptoms (pain and stiffness) and functional impairment regularly…
  • Abstract Number: 0322 • ACR Convergence 2020

    Development and Preliminary Validation of Smartphone Sensor-based Measurement Tools for Psoriatic Arthritis

    Dan Webster1, Rebecca Haberman2, Lourdes Perez-Chada3, Stockard Simon4, Woody MacDuffie4, Michael DePhillips5, Soumya Reddy6, Alexis Ogdie7, Lara Mangravite4, Joseph Merola8 and Jose Scher2, 1Sage Bionetworks, Seattle, WA, 2NYU School of Medicine, New York City, 3Brigham and Women's Hospital, Harvard Medical School, Boston, MA, 4Sage Bionetworks, Seattle, 5SDP Digital, Seattle, 6NYU School of Medicine, New York, NY, 7University of Pennsylvania, Philadelphia, PA, 8Brigham and Women's Hospital, Harvard Medical School, Newton, MA

    Background/Purpose: The COVID-19 pandemic has increasingly driven clinical care into remote settings, where patients with immune-mediated and inflammatory diseases struggle to convey symptom severity to…
  • Abstract Number: 0673 • ACR Convergence 2020

    Gout Is an Independent Risk Factor for Undergoing an Amputation Procedure

    Brian LaMoreaux1, Megan Francis-Sedlak1, Scott Neville2 and Robert Holt1, 1Horizon Therapeutics plc, Lake Forest, IL, 2Foot and Ankle Center, Mooresville, IN

    Background/Purpose: Gout can cause uric acid deposition in joints, soft tissues, and organs (1) and is associated with heart disease, kidney disease, hypertension, hyperlipidemia, diabetes,…
  • Abstract Number: 1138 • ACR Convergence 2020

    Estimation of Clinically Important Differences in Patient-Reported Outcomes Measurement Information System (PROMIS) Measures in Juvenile Myositis

    Madison Wolfe1, Amanda Robinson2, Jin-Shei Lai3, Theresa Coles4, Elizabeth Gray3, Rowland Chang3, David Cella3 and Kaveh Ardalan5, 1Creighton University School of Medicine, Omaha, NE, 2Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, 3Northwestern University Feinberg School of Medicine, Chicago, IL, 4Duke University, Durham, 5Duke University Medical Center, Durham, NC

    Background/Purpose: Juvenile myositis (JM) causes weakness, rashes, pain, and fatigue, thereby impacting health-related quality of life (HRQoL). Patient-Reported Outcomes Measurement Information System (PROMIS®) measures have…
  • Abstract Number: 1656 • ACR Convergence 2020

    Knee OA Outcomes in Patients with Severe Obesity Following Bariatric Surgery or Total Knee Arthroplasty

    Jonathan Samuels1, Stephen Zak2, Ran Schwarzkopf2, Christine Ren-Fielding3, Manish Parikh4, Alex McLawhorn5, James Browne6, Peter Hallowell7, Brian Irving8, Craig Wood9, Christopher Still9 and Peter Benotti9, 1NYU Langone, Rye Brook, NY, 2NYU Langone Health, New York, NY, 3NYU Langone Health, New YOrk, 4Bellevue Hospital, New York, NY, 5Hospital for Special Surgeyr, New York, 6University of Virginia, Charlottesville, VA, 7University of Virginia, Charlottesville, 8Louisiana State University, Baton Rouge,, LA, 9Obesity institute at Geisinger, Danville

    Background/Purpose: High body mass index (BMI, kg/m2) is a modifiable risk factor that has been associated with the development and progression of osteoarthritis (OA) and…
  • Abstract Number: 1890 • ACR Convergence 2020

    Daily Management of Patients with Axial Spondyloarthritis: Self-monitoring of Disease Activity with a Smartphone App Is Feasible – a Proof of Concept Study

    Uta Kiltz1, Robin Kempin1, Jutta Richter2, Anna Schlegel1, Xenofon Baraliakos1, Styliani Tsiami3, Ioana Andreica1, Bjoern Buehring4, David Kiefer1 and Juergen Braun1, 1Rheumazentrum Ruhrgebiet, Ruhr-University Bochum, Herne, Germany, 2Rheumatology and Hiller Research Unit, Heinrich-Heine-University Duesseldorf, Medical Faculty, Duesseldorf, Germany, Duesseldorf, Germany, 3Rheumazentrum Ruhrgebiet Herne, Ruhr-University Bochum, Herne, Germany, 4Rheumazentrum Ruhrgebiet, Ruhr-University Bochum, Velbert, Germany

    Background/Purpose: Assessment and monitoring of disease activity and functioning is of major importance for the course of axial spondyloarthritis (axSpA). This is equally important for…
  • Abstract Number: 0160 • ACR Convergence 2020

    Use of PROMIS29 Across Inflammatory Arthritis: Score Distributions and Impact of Contextual Factors

    Alexis Ogdie1, Kaleb Michaud2, Mark Hwang3, Sofia Pedro4 and Patricia Katz5, 1University of Pennsylvania, Philadelphia, PA, 2FORWARD-The National Data Bank for Rheumatic Diseases; University of Nebraska Medical Center, Wichita, 3McGovern Medical School at the University of Texas Health Science Center at Houston, Houston, TX, 4FORWARD-The National Data Bank for Rheumatic Diseases, Wichita, 5University of California, San Francisco, Novato, CA

    Background/Purpose: The Patient-Reported Outcome Measure Information System (PROMIS) includes a set of instruments developed to measure physical, mental and social health. PROMIS measures have been…
  • Abstract Number: 0324 • ACR Convergence 2020

    Comparative Responsiveness of Outcome Measures in Psoriatic Arthritis: Preparation for Pragmatic Trials

    Courtney Stull1, Soumya Reddy2, M. Elaine Husni3, Jose Scher4, Ethan Craig1, Jessica Walsh5 and Alexis Ogdie1, 1University of Pennsylvania, Philadelphia, PA, 2NYU School of Medicine, New York, NY, 3Cleveland Clinic, Cleveland, OH, 4NYU School of Medicine, New York City, 5University of Utah School of Medicine, George E. Wahlen Veteran Affairs Medical Center, Salt Lake City, UT

    Background/Purpose: Psoriatic arthritis (PsA) is a heterogeneous condition; this presents a challenge in how to best measure disease activity for all patients. While several outcome…
  • Abstract Number: 0727 • ACR Convergence 2020

    Hip Involvement Leads to Poor Outcome in Adulthood in Children with Enthesitis Related Arthritis (ERA) Category of Juvenile Idiopathic Arthritis (JIA)

    Naveen R1, Namita Mohindra1, Neeraj Jain1 and Amita Aggarwal2, 1Sanjay Gandhi Post graduate institute of medical sciences, Lucknow, Uttar Pradesh, India, 2Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, Uttar Pradesh, India

    Background/Purpose: Enthesitis related arthritis (ERA) is the commonest category of JIA seen in India and constitutes 30-40% of all JIA patients. There are many studies…
  • Abstract Number: 1157 • ACR Convergence 2020

    Health and Socioeconomic Outcomes in a Neonatal-Onset Multisystem Inflammatory Disease (NOMID) Cohort Followed for a Median of Fifteen Years

    Sara Alehashemi1, Megha Garg2, Kim Johnson3, Kelly King4, Chris Zalewski4, Debbie Payne5, Adriana de Jesus6, Joseph Snow7, Wadih Zein5, M. Teresa Magone5, Rachel Bishop8, Carmen Brewer4, Jeff Kim4, Scott Paul9, John Butman10 and Raphaela Goldbach-Mansky11, 1Translational Autoinflammatory Disease Section (TADS)/NIAID/NIH, Clarksville, MD, 2NIH/NIAID, Rochester, NY, 3NIH, NIAID, Bethesda, 4NIH, NIDCD, Bethesda, MD, 5NIH/NEI, Bethesda, MD, 6Translational Autoinflammatory Disease Section (TADS)/NIAID/NIH, Silver Spring, MD, 7NIH, NIMH, Bethesda, MD, 8NIH, NEI, Bethesda, MD, 9NIH, CC/RMD, Bethesda, MD, 10NIH, CC/DRD, Bethesa, MD, 11Translational Autoinflammatory Disease Section (TADS)/NIAID/NIH, Potomac, MD

    Background/Purpose: Patients (pts) with NOMID have systemic inflammation and organ damage such as sensorineural hearing loss, hydrocephalus, optic nerve atrophy and growth plate defects. IL-1 blocking…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].

ACR Abstract Embargo Policy

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. Academic institutions, private organizations and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part a scientific presentation or presentation of additional new information that will be available at the time of the meeting) is under embargo until Saturday, November 11, 2023.

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying financial and other sponsors about this policy. If you have questions about the abstract embargo policy, please contact the public relations department at [email protected].

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