ACR Meeting Abstracts

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Abstracts tagged "longitudinal studies"

  • Abstract Number: 0307 • ACR Convergence 2020

    Longitudinal Analysis of the Patient Pathways to Diagnosis of Psoriatic Arthritis

    Alexis Ogdie1, Martin Rozycki2, Theresa Arndt2, Cheng Shi3, Nina Kim4 and Peter Hur3, 1Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, 2HVH Precision Analytics, LLC, Wayne, PA, 3Novartis Pharmaceuticals Corporation, East Hanover, NJ, 4The University of Texas at Austin; Baylor Scott and White Health, Austin, TX

    Background/Purpose: In developing algorithms within claims databases that may inform how to find patients with psoriatic arthritis (PsA) prior to diagnosis, it is important to…
  • Abstract Number: 1471 • ACR Convergence 2020

    Healthy Lifestyle and Risk of Rheumatoid Arthritis in Women: A Prospective Cohort Study

    Jill Hahn1, May Choi2, Susan Malspeis3, Emma Stevens4, Elizabeth Karlson4, Kazuki Yoshida5, Laura Kubzansky6, Jeffrey Sparks7 and Karen Costenbader8, 1Brigham and Womens' Hospital, Newton, MA, 2Brigham and Women's Hospital | Cumming School of Medicine, University of Calgary, Calgary, AB, Canada, 3Brigham and Women's Hospital, Boston, 4Brigham and Women's Hospital, Boston, MA, 5Brigham & Women's Hospital and Harvard Medical School, Boston, MA, 6Harvard T.H. Chan School of Public Health, Boston, MA, 7Division of Rheumatology, Inflammation, and Immunity; Brigham and Women’s Hospital and Harvard Medical School, Boston, MA, 8Brigham and Women's Hospital and Harvard Medical School, Boston, MA

    Background/Purpose: Many potentially modifiable biobehavioral factors have been associated with the risk of developing rheumatoid arthritis (RA), but the benefit of adopting an overall healthy…
  • Abstract Number: 0542 • ACR Convergence 2020

    Examining the Long-Term and Short-Term Day-To-Day Pain Variability in Inflammatory and Non-Inflammatory Rheumatic and Musculoskeletal Diseases Using Multilevel and Markov Transition Models: Cloudy with a Chance of Pain, a National U.K. Smartphone Study

    Huai Leng Pisaniello1, Mark Lunt2, John McBeth3 and William Dixon2, 1University of Adelaide, Kidman Park, South Australia, Australia, 2Centre for Epidemiology Versus Arthritis, University of Manchester, Manchester, United Kingdom, 3University of Manchester, Manchester, United Kingdom

    Background/Purpose: Chronic pain is common in rheumatic and musculoskeletal diseases (RMDs), yet the patterns and the extent of variability over time are poorly understood. Real-time…
  • Abstract Number: 1493 • ACR Convergence 2020

    Distinct Patient-level Patterns of Response to Methotrexate in Juvenile Idiopathic Arthritis

    Stephanie Shoop-Worrall1, Kimme Hyrich2, Lucy Wedderburn3, Wendy Thomson4 and Nophar Geifman5, 1Centre for Health Informatics, Centre for Epidemiology Versus Arthritis, The University of Manchester, Manchester, United Kingdom, 2Centre for Epidemiology Versus Arthritis, Manchester Academic Health Science Centre, The University of Manchester, Manchester, United Kingdom, 3UCL, UCLH, GOS Institute of Child Health, London, United Kingdom, 4Centre for Genetics and Genomics Versus Arthritis, Manchester Academic Health Science Centre, The University of Manchester, Manchester, United Kingdom, 5Centre for Health Informatics, The University of Manchester, Manchester

    Background/Purpose: Treatment response in JIA is often viewed as a binary outcome: response or non-response, usually assessed using composite, multidimensional measures, such as the juvenile…
  • Abstract Number: 0672 • ACR Convergence 2020

    Prospective Study of the Patterns of Joint Involvement for Sequential Gout Flares

    Natalie McCormick1, Chio Yokose1, Clara Chen2, Tuhina Neogi3, David Hunter4, Hyon Choi5 and Yuqing Zhang6, 1Massachusetts General Hospital, Boston, MA, 2Boston University School of Public Health, Boston, MA, 3Boston University School of Medicine, Boston, MA, 4Institute of Bone and Joint Research, University of Sydney, St Leonards, New South Wales, Australia, 5Massachusetts General Hospital, Department of Medicine, Division of Rheumatology, Lexington, MA, 6Massachusetts General Hospital, Harvard Medical School, Boston

    Background/Purpose: Cross-sectional radiologic evidence suggests monosodium urate crystal deposition among gout patients is a symmetrical phenomenon,1 but no study has examined the longitudinal patterns in…
  • Abstract Number: 1512 • ACR Convergence 2020

    Trajectory Analysis of Repeat Renal Biopsies Identified Previous Endocapillary Proliferation as Predictor of Damage and End Stage Renal Disease in Pure Membranous Lupus Nephritis

    Andrea Fava1, Avi Rosenberg2, Serena Bagnasco2, Paride Fenaroli2, Jessica Li1, Jose Monroy-Trujillo2, Derek Fine2 and Michelle Petri3, 1Johns Hopkins University, Baltimore, MD, 2Johns Hopkins University, Baltimore, 3Johns Hopkins University School of Medicine, Baltimore

    Background/Purpose: . Pure membranous (class V) lupus nephritis is considered a less aggressive phenotype, but renal fibrosis and chronic kidney disease may develop. Whether this…
  • Abstract Number: 120 • 2020 Pediatric Rheumatology Symposium

    Characteristics of the New Childhood Arthritis and Rheumatology Research Alliance Registry of Juvenile Myositis Patients Enrolled in the First Two Years

    Jessica Neely1, Adam Huber 2 and Susan Kim 3 for the CARRA investigators, 1University of California, San Francisco, San Francisco, California, 2IWK Health Centre & Dalhousie University, Halifax, Nova Scotia, Canada, 3University of California, San Francisco, San Francisco

    Background/Purpose: The New CARRA Registry of Juvenile Myositis (JM) was developed in 2017 to collect 10-year longitudinal data to increase knowledge of the course of…
  • Abstract Number: 139 • 2020 Pediatric Rheumatology Symposium

    Ongoing Disease Activity in Juvenile Idiopathic Arthritis (JIA) 18 Years After Disease Onset: A Population-based Nordic Study

    Mia Glerup1, Ellen D Arnstad 2, Veronika Rypdal 3, Suvi Peltoniemi 4, Kristiina Aalto 5, Marite Rygg 6, Susan Nielsen 7, Anders Fasth 8, Lillemor Berntson 9, Ellen Nordal 3 and Troels Herlin 10, 1Department of Pediatrics, Aarhus University Hospital, Aarhus, Denmark, Aarhus, Denmark, 2Department of Clinical and Molecular Medicine, NTNU - Norwegian University of Science and Technology, and Department of Pediatrics, Levanger Hospital, Nord-Trøndelag Hospital Trust, Levanger, Norway., Tromheim, Norway, 3Department of Pediatrics, University Hospital of North Norway, and Department of Clinical Medicine, UiT The Arctic University of Norway, Tromsø, Norway., Tromsø, Norway, 4Department of Pediatrics, New Children's Hospital, Helsinki University Hospital, Pediatric Research Center, University of Helsinki, Helsinki, Finland., Helsinki, Finland, 5Department of Pediatrics, New Children's Hospital, Helsinki University Hospital, Pediatric Research Center, University of Helsinki, Helsinki, Finland., HUS, Finland, 6Department of Clinical and Molecular Medicine, NTNU - Norwegian University of Science and Technology and Department of Pediatrics, St. Olavs Hospital, Trondheim, Norway., Trondheim, Norway, 7Department of Pediatrics, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark., Copenhagen, Denmark, 8Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Gothenburg, Sweden, 9Department of Womens and Childrens Health, Uppsala University, Uppsala, Sweden., Uppsala, Sweden, 10Department of Pediatrics, Aarhus University Hospital, Aarhus, Denmark., Aarhus N, Denmark

    Background/Purpose: Previously, we showed that ILAR JIA categories defined at disease onset change considerably during the first 8 years of disease course. Whether achieved remission…
  • Abstract Number: 188 • 2019 ACR/ARP Annual Meeting

    The Importance of Diagnosis: Clinical Distinctions Between Adult JIA and RA, and a Characterization of Patients with JIA Reclassified as RA in Adulthood

    Kristin Wipfler1, Sofia Pedro 1, Yomei Shaw 1, Rebecca Schumacher 1, Teresa Simon 2, Alyssa Dominique 3, Adam Reinhardt 4 and Kaleb Michaud 5, 1FORWARD, The National Databank for Rheumatic Diseases, Wichita, KS, 2Bristol-Myers Squibb*, Princeton, NJ, 3Bristol-Myers Squibb, Princeton, NJ, 4Children’s Hospital & Medical Center & University of Nebraska Medical Center, Omaha, NE, 5FORWARD, The National Databank for Rheumatic Diseases and University of Nebraska Medical Center, Wichita, KS

    Background/Purpose: Upon transitioning from pediatric to adult care, many patients with JIA are labeled as having RA, despite the two diagnoses being distinct in care…
  • Abstract Number: 604 • 2019 ACR/ARP Annual Meeting

    Do Illness Perceptions and Coping Change over Time in Patients Recently Diagnosed with Axial Spondyloarthritis? A 2-Year Follow-Up Study in the SPACE Cohort

    Miranda van Lunteren1, Robert B.M. Landewé 2, Camilla Fongen 3, Roberta Ramonda 4, Désirée van der Heijde 1 and Floris van Gaalen 1, 1Leiden University Medical Center, Leiden, Netherlands, 2Amsterdam University Medical Center, Amsterdam, Netherlands, 3Diakonhjemmet Hospital, Oslo, Norway, 4University of Padova, Padova, Italy

    Background/Purpose: We have previously shown that in patients with recently diagnosed axial SpA (axSpA), illness perceptions had a negative impact on the relationship between back…
  • Abstract Number: 647 • 2019 ACR/ARP Annual Meeting

    Is ANA-status at Disease Inception Associated with Long-term Damage Accrual and Direct and Indirect Health Care Costs in the Systemic Lupus International Collaborating Clinics (SLICC) Inception Cohort?

    May Choi1, Megan Barber 2, Marvin Fritzler 1, John G Hanly 3, Murray Urowitz 4, Yvan St-Pierre 5, Juanita Romero-Diaz 6, Caroline Gordon 7, Sang-Cheol Bae 8, Sasha Bernatsky 9, Daniel J Wallace 10, David A Isenberg 11, Anisur Rahman 12, Ellen M Ginzler 13, Michelle Petri 14, Ian Bruce 15, Paul Fortin 16, Dafna Gladman 17, Jorge Sanchez-Guerrero 18, Rosalind Ramsey-Goldman 19, Munther A Khamashta 20, Cynthia Aranow 21, Meggan Mackay 22, Graciela Alarcón 23, Susan Manzi 24, Ola Nived 25, Andreas Jönsen 25, Asad Zoma 26, Ronald van Vollenhoven 27, Manuel Ramos-Casals 28, Guillermo Ruiz-Irastorza 29, S Sam Lim 30, Kenneth C Kalunian 31, Murat Inanc 32, Diane Kamen 33, Christine Peschken 34, Soren Jacobsen 35, Anca Askanase 36, Vernon Farewell 37 and Ann E Clarke 38, 1Cumming School of Medicine, University of Calgary, Calgary, AB, Canada, 2University of Calgary, Calgary, Canada, 3Dalhousie University, Halifax, NS, Canada, 4University Health Network, University of Toronto, Toronto, ON, Canada, 5McGill University Health Centre, Montreal, QC, Canada, 6Instituto Nacional de Ciencias Medicas y Nutricion Salvador, Zubiran Vasco de Quiroga, Mexico City, Mexico, 7University of Birmingham, Birmingham, United Kingdom, 8Hanyang University Hospital for Rheumatic Diseases, Seoul, Republic of Korea, 9Research Institute of the McGill University Health Centre, Montreal, QC, Canada, 10Cedars-Sinai Medical Centre, Beverly Hills, CA, 11Centre for Rheumatology, London, United Kingdom, 12University College London, London, United Kingdom, 13State University of New York Downstate Medical Center, Brooklyn, NY, 14Johns Hopkins University School of Medicine, Baltimore, MD, 15University of Manchester, Manchester, United Kingdom, Manchester, England, United Kingdom, 16Division de Rhumatologie, Département de Médecine, CHU de Québec – Université Laval, Axe maladies infectieuses et inflammatoires, Centre de recherche du CHU de Québec – Université Laval, Canada, Quebec, QC, Canada, 17University of Toronto, Toronto, ON, Canada, 18Toronto Western Hospital, Toronto, ON, Canada, 19Northwestern University, Chicago, IL, 20King's College London School of Medicine, London, United Kingdom, 21Feinstein Institute for Medical Research, Manhasset, NY, 22Feinstein Institute for Medical Research, New York, 23University of Alabama at Birmingham, Birmingham, 24Allegheny Health Network, Pittsburg, PA, 25Lund University, Lund, Sweden, 26Hairmyres Hospital, East Kilbride, United Kingdom, 27Amsterdam Rheumatology and Immunology Center ARC, Amsterdam, the Netherlands, Amsterdam, Netherlands, 28Josep Font Autoimmune Diseases Laboratory, Barcelona, Spain, 29Autoimmune Diseases Unit, Hospital Universitario Cruces, Barakaldo, Spain, Barakaldo, Spain, 30Emory University, Atlanta, GA, 31UC San Diego School of Medicine, LaJolla, CA, 32Istanbul University, Istanbul, Turkey, 33Division of Rheumatology and Immunology, Department of Medicine, Medical University of South Carolina, Charleston, South Carolina, USA., Charleston, SC, 34University of Manitoba, Winnipeg, Canada, 35Copenhagen Lupus and Vasculitis Clinic, Copenhagen, Denmark, 36Columbia University Medical Center, New York, NY, 37University of Cambridge, Cambridge, United Kingdom, 38University of Calgary, Calgary, AB, Canada

    Background/Purpose: We reported that 7.7% (88/1137) of patients in an international inception cohort were ANA-negative at enrolment (Arthritis Care Res 2018 doi:1002/acr23712).  There are no…
  • Abstract Number: 1453 • 2019 ACR/ARP Annual Meeting

    Baseline EULAR Sjögren’s Syndrome Patient-Reported Index Has a Significant Impact on the Longitudinal Course of Sjögren’s Syndrome

    Eun Hye Park1, You-Jung Ha 1, Eun Ha Kang 1, Yeong-Wook Song 2 and Yun Jong Lee 3, 1Division of Rheumatology, Department of Internal Medicine, Seoul National University Bundang Hospital, Seongnam, Republic of Korea, Seongnam, Republic of Korea, 2Seoul National University Hospital, Seoul, Republic of Korea, 3Division of Rheumatology, Department of Internal Medicine, Seoul National University Bundang Hospital, Seongnam, Republic of Korea, Seongnam, Republic of Korea

    Background/Purpose: The EULAR Sjögren's syndrome (SS) disease activity index (ESSDAI) and EULAR SS Patient-Reported Index (ESSPRI) have been validated as disease activity and outcome measures…
  • Abstract Number: 2080 • 2019 ACR/ARP Annual Meeting

    It Starts at Work: The Relationship Between Workplace Supports and Presenteeism Among Young Adults with Rheumatic Disease

    Arif Jetha1, Lori Tucker 2, Julie Bowring 3, Catherine L. Backman 4, Laurie Proulx 5, Vicki Kristman 6, Elizabeth M. Hazel 7, Louise Perlin 8 and Monique A.M. Gignac 3, 1Institute for Work & Health, Toronto, ON, Canada, 2British Columbia Children’s Hospital, Vancouver, Canada, 3Institute for Work & Health, Toronto, Canada, 4University of British Columbia, Vancouver, Canada, 5Canadian Arthritis Patient Alliance, Ottawa, Canada, 6Lakehead University, Thunder Bay, Canada, 7McGill University Health Centre, Montreal, Canada, 8St. Michael’s Hospital, Toronto, ON, Canada

    Background/Purpose: Young adults with rheumatic disease who are employed frequently report presenteeism (i.e., working while unwell). Workplace supports including extended health benefits, job accommodations and…
  • Abstract Number: 2411 • 2019 ACR/ARP Annual Meeting

    Casting a Wide Net: Comparing Strategies for Recruiting 18-35-year-olds with Rheumatic Disease as Study Participants

    Arif Jetha1, Lori Tucker 2, Julie Bowring 3, Catherine L. Backman 4, Laurie Proulx 5, Vicki Kristman 6 and Monique A.M. Gignac 3, 1Institute for Work & Health, Toronto, ON, Canada, 2British Columbia Children’s Hospital, Vancouver, Canada, 3Institute for Work & Health, Toronto, Canada, 4University of British Columbia, Vancouver, Canada, 5Canadian Arthritis Patient Alliance, Ottawa, Canada, 6Lakehead University, Thunder Bay, Canada

    Background/Purpose: Young adulthood is a unique life phase that spans 18-35 years, and is characterized by healthcare, educational, vocational and social transitions. Experiences in young…
  • Abstract Number: 2456 • 2019 ACR/ARP Annual Meeting

    Validity of Patient-reported Cardiovascular Events in a Large Longitudinal Cohort of Patients with Psoriatic Arthritis and Psoriasis

    Keith Colaco1, Vinod Chandran 2, Dafna Gladman 3 and Lihi Eder 4, 1University of Toronto, Women's College Hospital, University Health Network, Toronto, ON, Canada, 2University Health Network, University of Toronto, Toronto, Canada, 3Toronto Western Hospital, Toronto, Canada, Toronto, ON, Canada, 4Women’s College Hospital and the Department of Medicine, University of Toronto, Toronto, Canada

    Background/Purpose: Valuable information on cardiovascular disease outcomes can be obtained from large cohort studies. Such studies often rely on self-reported events, which are best validated…
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