ACR Meeting Abstracts

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Abstracts tagged "health disparities"

  • Abstract Number: 0771 • ACR Convergence 2021

    Race, Ethnicity and Patient-Reported Outcomes in Childhood-Onset Systemic Lupus Erythematosus

    R. Ezequiel Borgia1, Matthew Gurka2, Stephanie Filipp2, Melissa Elder3, Michelle Cardel2 and Natalie Shiff4, 1Department of Pediatrics, University of Florida, Gainesville, FL, USA. Department of Health Outcomes and Biomedical Informatics, University of Florida, Gainesville, 2Department of Health Outcomes and Biomedical Informatics, University of Florida, Gainesville, 3Division of Pediatric Allergy, Immunology and Rheumatology, Department of Pediatrics, University of Florida, Gainesville, FL, 4University of Saskatchewan, Department of Community Health and Epidemiology, Saskatoon, SK, Canada. Janssen Scientific Affairs, LLC, Horsham, PA., Gainesville, FL

    Background/Purpose: The association of race/ethnicity with childhood-onset systemic lupus erythematosus (cSLE) outcomes has been well described, with non-White individuals experiencing a more severe disease phenotype…
  • Abstract Number: 128 • 2020 Pediatric Rheumatology Symposium

    Predictors of Moderate/High Disease Activity in Childhood-Onset Systemic Lupus Erythematosus

    Emily Smitherman1, Rouba Chahine 1, Timothy Beukelman 1, Andrea Knight 2, AKM Fazlur Rahman 1, Mary Beth Son 3, Jeffrey R Curtis 4 and Aimee Hersh 5 for the CARRA investigators, 1University of Alabama at Birmingham, Birmingham, 2SickKids Research Institute, Toronto, Canada, 3Boston Children's Hospital, Boston, Massachusetts, 4University of Alabama at Birmingham, Hoover, 5University of Utah Primary Children's Hospital, Salt Lake City

    Background/Purpose: Substantial risk of early morbidity and mortality exists for patients with childhood-onset systemic lupus erythematosus (cSLE), but there are limited studies identifying predictors of…
  • Abstract Number: 178 • 2020 Pediatric Rheumatology Symposium

    HEADSS and Shoulders, Knees and Toes: Improving Sexual Orientation and Gender Identity Screening in the Pediatric Rheumatology Clinic

    Nayimisha Balmuri1, Jacob Spitznagle 1, Alexa Adams 1, Karen Onel 1, Sarah Taber 1 and Nancy Pan 1, 1Hospital for Special Surgery, new york

    Background/Purpose: Adolescence is an especially vulnerable time when many rheumatologic conditions first present for diagnosis and management. Adolescence brings unique challenges including those relating to…
  • Abstract Number: 2275 • 2019 ACR/ARP Annual Meeting

    Effect of Race and Lupus Nephritis on Pregnancy Outcomes in Systemic Lupus Erythematosus: An Individual Participant Meta-analysis

    Ravyn Njagu1, Amanda Eudy 2, Stephen Balevic 3, Michelle Petri 4, Dafna Gladman 5, Murray Urowitz 6 and Megan Clowse 2, 1Duke University, Durham, NC, 2Duke University, Durham, 3Duke University, Hillsborough, NC, 4Johns Hopkins University School of Medicine, Baltimore, MD, 5Toronto Western Hospital, Toronto, Canada, Toronto, ON, Canada, 6University Health Network, University of Toronto, Toronto, ON, Canada

    Background/Purpose: Individual cohort studies have found that Black and Hispanic women have worse pregnancy outcomes compared to their white counterparts. Additionally, this population of women…
  • Abstract Number: 805 • 2019 ACR/ARP Annual Meeting

    Risk of Cardiovascular Disease in SLE Is Significant Early and Highlights Racial Disparities

    Shivani Garg1, Christie Bartels 1, Cristina Drenkard 2, Gaobin Bao 2 and S Sam Lim 2, 1University of Wisconsin School of Medicine and Public Health, Madison, WI, 2Emory University, Atlanta, GA

    Background/Purpose: SLE is an independent risk factor for premature cardiovascular disease (CVD) and afflicts African Americans (AA’s) 3 times more than whites. Two predominantly white…
  • Abstract Number: 1141 • 2019 ACR/ARP Annual Meeting

    Racial Disparities in Lupus Medication Adherence

    Kai Sun1, Amanda Eudy 1, Jennifer Rogers 1, Lisa Criscione-Schreiber 1, Jayanth Doss 1, Rebecca Sadun 1 and Megan Clowse 1, 1Duke University, Durham

    Background/Purpose: Medication non-adherence is common among SLE patients and is disproportionately more frequent in underrepresented racial minorities. We examined adherence gaps between minority and Caucasian…
  • Abstract Number: 1142 • 2019 ACR/ARP Annual Meeting

    Barriers and Facilitators of Medication Adherence Among Minority SLE Patients: A Qualitative Study

    Kai Sun1, Carrie Dombeck 1, Teresa Swezey 1, Amy Corneli 1, Amanda Eudy 1, Rebecca Sadun 1, Jennifer Rogers 1, Lisa Criscione-Schreiber 1, Jayanth Doss 1 and Megan Clowse 1, 1Duke University, Durham

    Background/Purpose: SLE disproportionately affects underrepresented racial minorities, groups that often have lower rates of medication adherence. This study aimed to explore barriers and facilitators of…
  • Abstract Number: 1143 • 2019 ACR/ARP Annual Meeting

    Racial Disparities in Factors Associated with SLICC Damage Score Among Patients with SLE

    Kai Sun1, Amanda Eudy 1, Jennifer Rogers 1, Lisa Criscione-Schreiber 1, Jayanth Doss 1, Rebecca Sadun 1 and Megan Clowse 1, 1Duke University, Durham

    Background/Purpose: Significant racial disparities exist in SLE outcomes. Few studies have examined modifiable factors intrinsic to physician/patient encounters that may contribute to such disparities. We…
  • Abstract Number: 1144 • 2019 ACR/ARP Annual Meeting

    Understanding Clinical Trials Participation Among Individuals of African Descent with Lupus Through the Lens of Critical Race Theory: A Qualitative Analysis

    Candace Feldman1, Jessica Williams 1, Courtnie Phillip 1, Corine Sinnette 1, Karen Mancera-Cuevas 2, Patricia Canessa 3, Gina Curry 4, Maryann Mason 2 and Rosalind Ramsey-Goldman 2, 1Brigham and Women's Hospital, Boston, MA, 2Northwestern University, Chicago, IL, 3IPHA, Chicago, IL, 4University of Chicago, Chicago, IL

    Background/Purpose: Despite a disproportionate burden of lupus and poorer outcomes among individuals of African descent (hereafter “black”) compared to white individuals, black individuals are underrepresented…
  • Abstract Number: 1145 • 2019 ACR/ARP Annual Meeting

    The Representation of Skin Tones in Images of Patients with Lupus Erythematosus

    Amaad Rana1, Abbey Witt 1, Heather Jones 1, Muithi Mwanthi 1 and Lisa Zickuhr 1, 1Washington University School of Medicine, Saint Louis

    Background/Purpose: Racial disparities exist in healthcare. Research shows that the disproportionate representation of race in educational materials contributes to this disparity. Race is a known…
  • Abstract Number: 1150 • 2019 ACR/ARP Annual Meeting

    Factors Associated with Participation in Rheumatic Disease-Related Research Among Underrepresented Populations: A Systematic Review

    Kaitlin Lima1, Courtnie Phillip 2, Jessica Williams 2, Jonna Peterson 1, Candace Feldman 3 and Rosalind Ramsey-Goldman 4, 1Northwestern University Feinberg School of Medicine, Chicago, IL, 2Brigham and Women's Hospital, Boston, MA, 3Brigham and Women's Hospital, Boston, 4Northwestern University, Chicago, IL

    Background/Purpose: Non-white racial/ethnic groups remain underrepresented in rheumatic disease-related research despite being disproportionately affected by these disorders. We aimed to systematically review the literature regarding…
  • Abstract Number: 1848 • 2019 ACR/ARP Annual Meeting

    Racial Disparities in Septic and Aseptic Total Knee Replacement Revision Risk: A Study Using Four State-wide Inpatient Databases

    Anne Bass1, Huong Do 2, Bella Mehta 3, Lisa Mandl 4, Jackie Finik 5, Michael Parks 3, Mark Figgie 4, Haley Tornberg 6, Stephen Lyman 2 and Susan Goodman 1, 1Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, 2Hospital for Special Surgery, New York, 3Hospital for Special Surgery/Weill Cornell Medicine, New York, 4Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, New York, NY, 5Hospital for Special Surgery, New York, NY, New York, NY, 6Hospital for Special Surgery, New York, NY

    Background/Purpose: Approximately 4% of total knee replacement (TKR) patients require revision within five years. Blacks are 40% more likely to undergo TKR revision than whites,1…
  • Abstract Number: 1849 • 2019 ACR/ARP Annual Meeting

    Cost-related Prescription Non-adherence Is Associated with Patient-reported Outcomes of Systemic Lupus Erythematosus Activity and Damage: The Michigan Lupus Epidemiology & Surveillance (MILES) Cohort

    Deeba Minhas1, Wendy Marder 2, Sioban Harlow 3, Hanna Saltzman 3, Afton Hassett 3, Suzanna Zick 3, Lu Wang 3, Kamil Barbour 4, Charles Helmick 5, Caroline Gordon 6, W. Joseph McCune 1 and Emily Somers 3, 1University of Michigan, Ann Arbor, MI, 2Division of Rheumatology, Department of Internal Medicine, Michigan Medicine, Ann Arbor, 3University of Michigan, Ann Arbor, 4Centers for Disease Control and Prevention, Atlanta, 5Centers for Disease Control and Prevention, Division of Population Health, Atlanta, GA, 6University of Birmingham, Birmingham, United Kingdom

    Background/Purpose: Medication access and adherence play key roles in determining patient outcomes.  We investigated whether cost-related non-adherence (CRNA) to prescription medications was associated with worse…
  • Abstract Number: 1850 • 2019 ACR/ARP Annual Meeting

    Needs Assessment of Rheumatology Fellowship Program Directors on the Need for a Health Disparities Curriculum for Our Fellowship Programs

    Irene Blanco1, Nevena Barjaktarovic 1 and Cristina Gonzalez 1, 1Albert Einstein College of Medicine, Bronx, NY

    Background/Purpose: Health disparities (HD) are pervasive in all fields of medicine including rheumatology. Low income patients as well as patients from racial and ethnic minority…
  • Abstract Number: 264 • 2018 ACR/ARHP Annual Meeting

    Relationships between Adverse Childhood Experiences and Health Status in Systemic Lupus Erythematosus

    Kimberly DeQuattro1, Laura Trupin1, Jing Li1, Patricia Katz2, Cristina Lanata1, Edward H. Yelin3, Stephanie Rush3, Lindsey A. Criswell2, Louise Murphy4, Maria Dall'Era5 and Jinoos Yazdany1, 1Medicine/Rheumatology, University of California, San Francisco, San Francisco, CA, 2University of California San Francisco, San Francisco, CA, 3Medicine/Rheumatology, University of California San Francisco, San Francisco, CA, 4Arthritis Program, Centers for Disease Control and Prevention, Atlanta, GA, 5University of California, San Francisco, San Francisco, CA

    Background/Purpose: Adverse childhood experiences (ACEs) such as abuse, neglect and domestic violence are associated with poor adult health status and immune dysregulation. The extent and…
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