Abstracts tagged "health disparities"

Abstract Number: 0771 • ACR Convergence 2021
Race, Ethnicity and Patient-Reported Outcomes in Childhood-Onset Systemic Lupus Erythematosus
R. Ezequiel Borgia¹, Matthew Gurka², Stephanie Filipp², Melissa Elder³, Michelle Cardel² and Natalie Shiff⁴, ¹Department of Pediatrics, University of Florida, Gainesville, FL, USA. Department of Health Outcomes and Biomedical Informatics, University of Florida, Gainesville, ²Department of Health Outcomes and Biomedical Informatics, University of Florida, Gainesville, ³Division of Pediatric Allergy, Immunology and Rheumatology, Department of Pediatrics, University of Florida, Gainesville, FL, ⁴University of Saskatchewan, Department of Community Health and Epidemiology, Saskatoon, SK, Canada. Janssen Scientific Affairs, LLC, Horsham, PA., Gainesville, FL
Background/Purpose: The association of race/ethnicity with childhood-onset systemic lupus erythematosus (cSLE) outcomes has been well described, with non-White individuals experiencing a more severe disease phenotype…
Abstract Number: 128 • 2020 Pediatric Rheumatology Symposium
Predictors of Moderate/High Disease Activity in Childhood-Onset Systemic Lupus Erythematosus
Emily Smitherman¹, Rouba Chahine ¹, Timothy Beukelman ¹, Andrea Knight ², AKM Fazlur Rahman ¹, Mary Beth Son ³, Jeffrey R Curtis ⁴ and Aimee Hersh ⁵ for the CARRA investigators, ¹University of Alabama at Birmingham, Birmingham, ²SickKids Research Institute, Toronto, Canada, ³Boston Children's Hospital, Boston, Massachusetts, ⁴University of Alabama at Birmingham, Hoover, ⁵University of Utah Primary Children's Hospital, Salt Lake City
Background/Purpose: Substantial risk of early morbidity and mortality exists for patients with childhood-onset systemic lupus erythematosus (cSLE), but there are limited studies identifying predictors of…
Abstract Number: 178 • 2020 Pediatric Rheumatology Symposium
HEADSS and Shoulders, Knees and Toes: Improving Sexual Orientation and Gender Identity Screening in the Pediatric Rheumatology Clinic
Nayimisha Balmuri¹, Jacob Spitznagle ¹, Alexa Adams ¹, Karen Onel ¹, Sarah Taber ¹ and Nancy Pan ¹, ¹Hospital for Special Surgery, new york
Background/Purpose: Adolescence is an especially vulnerable time when many rheumatologic conditions first present for diagnosis and management. Adolescence brings unique challenges including those relating to…
Abstract Number: 805 • 2019 ACR/ARP Annual Meeting
Risk of Cardiovascular Disease in SLE Is Significant Early and Highlights Racial Disparities
Shivani Garg¹, Christie Bartels ¹, Cristina Drenkard ², Gaobin Bao ² and S Sam Lim ², ¹University of Wisconsin School of Medicine and Public Health, Madison, WI, ²Emory University, Atlanta, GA
Background/Purpose: SLE is an independent risk factor for premature cardiovascular disease (CVD) and afflicts African Americans (AA’s) 3 times more than whites. Two predominantly white…
Abstract Number: 1141 • 2019 ACR/ARP Annual Meeting
Racial Disparities in Lupus Medication Adherence
Kai Sun¹, Amanda Eudy ¹, Jennifer Rogers ¹, Lisa Criscione-Schreiber ¹, Jayanth Doss ¹, Rebecca Sadun ¹ and Megan Clowse ¹, ¹Duke University, Durham
Background/Purpose: Medication non-adherence is common among SLE patients and is disproportionately more frequent in underrepresented racial minorities. We examined adherence gaps between minority and Caucasian…
Abstract Number: 1142 • 2019 ACR/ARP Annual Meeting
Barriers and Facilitators of Medication Adherence Among Minority SLE Patients: A Qualitative Study
Kai Sun¹, Carrie Dombeck ¹, Teresa Swezey ¹, Amy Corneli ¹, Amanda Eudy ¹, Rebecca Sadun ¹, Jennifer Rogers ¹, Lisa Criscione-Schreiber ¹, Jayanth Doss ¹ and Megan Clowse ¹, ¹Duke University, Durham
Background/Purpose: SLE disproportionately affects underrepresented racial minorities, groups that often have lower rates of medication adherence. This study aimed to explore barriers and facilitators of…
Abstract Number: 1143 • 2019 ACR/ARP Annual Meeting
Racial Disparities in Factors Associated with SLICC Damage Score Among Patients with SLE
Kai Sun¹, Amanda Eudy ¹, Jennifer Rogers ¹, Lisa Criscione-Schreiber ¹, Jayanth Doss ¹, Rebecca Sadun ¹ and Megan Clowse ¹, ¹Duke University, Durham
Background/Purpose: Significant racial disparities exist in SLE outcomes. Few studies have examined modifiable factors intrinsic to physician/patient encounters that may contribute to such disparities. We…
Abstract Number: 1144 • 2019 ACR/ARP Annual Meeting
Understanding Clinical Trials Participation Among Individuals of African Descent with Lupus Through the Lens of Critical Race Theory: A Qualitative Analysis
Candace Feldman¹, Jessica Williams ¹, Courtnie Phillip ¹, Corine Sinnette ¹, Karen Mancera-Cuevas ², Patricia Canessa ³, Gina Curry ⁴, Maryann Mason ² and Rosalind Ramsey-Goldman ², ¹Brigham and Women's Hospital, Boston, MA, ²Northwestern University, Chicago, IL, ³IPHA, Chicago, IL, ⁴University of Chicago, Chicago, IL
Background/Purpose: Despite a disproportionate burden of lupus and poorer outcomes among individuals of African descent (hereafter “black”) compared to white individuals, black individuals are underrepresented…
Abstract Number: 1145 • 2019 ACR/ARP Annual Meeting
The Representation of Skin Tones in Images of Patients with Lupus Erythematosus
Amaad Rana¹, Abbey Witt ¹, Heather Jones ¹, Muithi Mwanthi ¹ and Lisa Zickuhr ¹, ¹Washington University School of Medicine, Saint Louis
Background/Purpose: Racial disparities exist in healthcare. Research shows that the disproportionate representation of race in educational materials contributes to this disparity. Race is a known…
Abstract Number: 1150 • 2019 ACR/ARP Annual Meeting
Factors Associated with Participation in Rheumatic Disease-Related Research Among Underrepresented Populations: A Systematic Review
Kaitlin Lima¹, Courtnie Phillip ², Jessica Williams ², Jonna Peterson ¹, Candace Feldman ³ and Rosalind Ramsey-Goldman ⁴, ¹Northwestern University Feinberg School of Medicine, Chicago, IL, ²Brigham and Women's Hospital, Boston, MA, ³Brigham and Women's Hospital, Boston, ⁴Northwestern University, Chicago, IL
Background/Purpose: Non-white racial/ethnic groups remain underrepresented in rheumatic disease-related research despite being disproportionately affected by these disorders. We aimed to systematically review the literature regarding…
Abstract Number: 1848 • 2019 ACR/ARP Annual Meeting
Racial Disparities in Septic and Aseptic Total Knee Replacement Revision Risk: A Study Using Four State-wide Inpatient Databases
Anne Bass¹, Huong Do ², Bella Mehta ³, Lisa Mandl ⁴, Jackie Finik ⁵, Michael Parks ³, Mark Figgie ⁴, Haley Tornberg ⁶, Stephen Lyman ² and Susan Goodman ¹, ¹Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, ²Hospital for Special Surgery, New York, ³Hospital for Special Surgery/Weill Cornell Medicine, New York, ⁴Hospital for Special Surgery/Weill Cornell Medicine, New York, NY, New York, NY, ⁵Hospital for Special Surgery, New York, NY, New York, NY, ⁶Hospital for Special Surgery, New York, NY
Background/Purpose: Approximately 4% of total knee replacement (TKR) patients require revision within five years. Blacks are 40% more likely to undergo TKR revision than whites,1…
Abstract Number: 1849 • 2019 ACR/ARP Annual Meeting
Cost-related Prescription Non-adherence Is Associated with Patient-reported Outcomes of Systemic Lupus Erythematosus Activity and Damage: The Michigan Lupus Epidemiology & Surveillance (MILES) Cohort
Deeba Minhas¹, Wendy Marder ², Sioban Harlow ³, Hanna Saltzman ³, Afton Hassett ³, Suzanna Zick ³, Lu Wang ³, Kamil Barbour ⁴, Charles Helmick ⁵, Caroline Gordon ⁶, W. Joseph McCune ¹ and Emily Somers ³, ¹University of Michigan, Ann Arbor, MI, ²Division of Rheumatology, Department of Internal Medicine, Michigan Medicine, Ann Arbor, ³University of Michigan, Ann Arbor, ⁴Centers for Disease Control and Prevention, Atlanta, ⁵Centers for Disease Control and Prevention, Division of Population Health, Atlanta, GA, ⁶University of Birmingham, Birmingham, United Kingdom
Background/Purpose: Medication access and adherence play key roles in determining patient outcomes. We investigated whether cost-related non-adherence (CRNA) to prescription medications was associated with worse…
Abstract Number: 1850 • 2019 ACR/ARP Annual Meeting
Needs Assessment of Rheumatology Fellowship Program Directors on the Need for a Health Disparities Curriculum for Our Fellowship Programs
Irene Blanco¹, Nevena Barjaktarovic ¹ and Cristina Gonzalez ¹, ¹Albert Einstein College of Medicine, Bronx, NY
Background/Purpose: Health disparities (HD) are pervasive in all fields of medicine including rheumatology. Low income patients as well as patients from racial and ethnic minority…
Abstract Number: 2275 • 2019 ACR/ARP Annual Meeting
Effect of Race and Lupus Nephritis on Pregnancy Outcomes in Systemic Lupus Erythematosus: An Individual Participant Meta-analysis
Ravyn Njagu¹, Amanda Eudy ², Stephen Balevic ³, Michelle Petri ⁴, Dafna Gladman ⁵, Murray Urowitz ⁶ and Megan Clowse ², ¹Duke University, Durham, NC, ²Duke University, Durham, ³Duke University, Hillsborough, NC, ⁴Johns Hopkins University School of Medicine, Baltimore, MD, ⁵Toronto Western Hospital, Toronto, Canada, Toronto, ON, Canada, ⁶University Health Network, University of Toronto, Toronto, ON, Canada
Background/Purpose: Individual cohort studies have found that Black and Hispanic women have worse pregnancy outcomes compared to their white counterparts. Additionally, this population of women…
Abstract Number: 277 • 2018 ACR/ARHP Annual Meeting
Outcomes of Telemedicine for Rheumatoid Arthritis in the Alaska Native Population
Elizabeth Ferucci¹, Tammy Choromanski¹, Gretchen Day² and Sarah Freeman³, ¹Division of Community Health Services, Alaska Native Tribal Health Consortium, Anchorage, AK, ²Clinical and Research Services, Alaska Native Tribal Health Consortium, Anchorage, AK, ³Telehealth, Alaska Native Tribal Health Consortium, Anchorage, AK
Background/Purpose: In rheumatoid arthritis (RA), access to a rheumatologist is associated with improved quality of care and outcomes. Telemedicine has been proposed as a solution…

All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

Violation of this policy may result in the abstract being withdrawn from the meeting and other measures deemed appropriate. Authors are responsible for notifying colleagues, institutions, communications firms, and all other stakeholders related to the development or promotion of the abstract about this policy. If you have questions about the ACR abstract embargo policy, please contact ACR abstracts staff at [email protected].