Abstracts tagged "education, patient"

Abstract Number: PP05 • ACR Convergence 2021
Fighting Health-Related Misinformation Using Social Media / How Creating an Online Group for Patients with Relapsing Polychondritis — and Moderating It with Health Professionals — Helps Spread Reliable and Empowering Information
Michael Linn¹, Spenser Mestel² and Susie Ratledge³, ¹Relapsing Polychondritis Foundation, New York, NY, ²New York, NY, ³Relapsing Polychondritis: Secular Science and Support group, Chattanooga, TN
Background/Purpose: Before I became ill in 2017, I was a registered nurse with a degree in health science who'd often educate patients about how they…
Abstract Number: 0977 • ACR Convergence 2021
Enhancement of Patient and Clinician Partnerships in Juvenile Idiopathic Arthritis Management Using a Point-of-Care Dashboard: Development and Pilot Testing
Erica Lawson¹, Lisa Johnson², Jabeen Ahmad², Vincent Del Gaizo³, Brittany Donaldson⁴, Julie Eller⁵, Yukiko Kimura⁶, Cathy Knucken⁷, Tzielan Lee⁸, Corinne Pinter⁹, Doreen Tabussi¹⁰, Alysha Taxter¹¹ and Aricca Van Citters², ¹University of California San Francisco, San Francisco, CA, ²Dartmouth College, Lebanon, NH, ³Childhood Arthritis & Rheumatology Research Alliance (CARRA), Whitehouse Station, NJ, ⁴Wake Forest University School of Medicine Brenner Children's, Winston Salem, NC, ⁵Arthritis Foundation, Washington, DC, ⁶Hackensack University Medical Center, New York, NY, ⁷Patient Partner, Byram, NJ, ⁸Stanford University School of Medicine, Palo Alto, CA, ⁹Patient Partner, Sugar Land, TX, ¹⁰Hackensack University Medical Center, Upper Saddle River, NJ, ¹¹Wake Forest Baptist Medical Center, Winston-Salem, NC
Background/Purpose: Health outcomes improve when people living with chronic conditions partner with their clinicians to coproduce care based on their values, preferences, goals, and the…
Abstract Number: PP06 • ACR Convergence 2021
Collaborative Advocacy Helps Me and Other Patients With Relapsing Polychondritis (“RP”’) / My life improved by helping the RP Foundation and Race for RP facilitate awareness, education, and research to improve the quality of life for patients with RP and advance a cure for this disease.
Michael Linn¹ and Dan Smith², ¹Relapsing Polychondritis Foundation, New York, NY, ²Relapsing Polychondritis Foundation, Canton, MI
Background/Purpose: In March 2020, I was diagnosed as having relapsing polychondritis ("RP"), an understudied, underdiagnosed, and undertreated debilitating autoimmune disease that can be fatal if…
Abstract Number: 1065 • ACR Convergence 2021
Optimizing Joint Pain EConsult Referrals in an Underserved Region of Southern California
Neha Chiruvolu¹ and Vaneet Sandhu², ¹UC Riverside School of Medicine, Riverside, CA, ²Loma Linda University Health, Loma Linda, CA
Background/Purpose: Electronic consultations (eConsults) are increasingly utilized to supplement or replace face to face (FTF) visits in different medical specialties. They are especially valuable in…
Abstract Number: PP07 • ACR Convergence 2021
How Online Spanish-Language Resources Got Me and My RA Through the COVID-19 Pandemic
Wigna Cruz, Puerto Rico
Background/Purpose: I was experiencing joint pain especially in my wrists, which led me to see my physician for testing. Initially I was misdiagnosed with lupus.…
Abstract Number: 1068 • ACR Convergence 2021
Analysis of Tweets Containing Information Related to Rheumatological Diseases on Twitter
Adrian abbasi¹, Miguel Álvarez-Mon², Carolina Donat-Vargas³, ana Perez⁴, julio suarez¹, lorena montano¹, emilio rico¹ and melchor Alvarez de Mon¹, ¹Hospital Universitario Príncipe de Asturias, Madrid, Spain, ²Hospital Universitario Infanta Leonor, Madrid, Spain, ³IMDEA Food, Cardiovascular and Nutritional Epidemiology Group, Madrid, Spain, ⁴Hospital Universitario Príncipe de Asturias. Rheumatology. Medicine Faculty. Alcala University Department., Madrid, Spain
Background/Purpose: Twitter is an indicator of the interests of its users in the real world, and therefore, is an appropriate setting to assess the content…
Abstract Number: PP13 • ACR Convergence 2021
CreakyKitchen: How the Online Cooking Show I Started is Building Community and Encouraging Better Food Choices for Me and Others Living with Rheumatic and Chronic Disease
Chantelle Marcial, Boston, MA
Background/Purpose: At 19, I was mis-diagnosed with Lupus as it was a common condition in my family. My treatment at that time was mainly DMARDs,…
Abstract Number: 0080 • ACR Convergence 2020
Understanding Ankylosing Spondylitis –
Arnd Kleyer¹, Milena Pachowsky², Louis Schuster¹, Larissa Valor-Mendez³, Georg Schett⁴, Axel Hueber⁵ and David Simon¹, ¹Department of Internal Medicine 3, Friedrich-Alexander University (FAU) Erlangen-Nuremberg and Universitätsklinikum Erlangen, Erlangen, Bayern, Germany, ²Department of Orthopedic and Trauma Surgery, FAU Erlangen-Nuremberg and Universitätsklinikum Erlangen, Erlangen, Germany, ³Department of Internal Medicine 3, Rheumatology and Immunology, University Hospital Erlangen, Erlangen, Bayern, Germany, ⁴Friedrich-Alexander-Universität Erlangen- Nuremberg, Erlangen, Germany, ⁵Sozialstiftung Bamberg, Sektion Rheumatologie, Bamberg, Germany
Background/Purpose: Rheumatology is underrepresented in the medical training of students in Germany. [1] Tools and methods are needed to inspire young students for specialist training…
Abstract Number: 1682 • ACR Convergence 2020
Goal-Setting Improves Transition Readiness in Adolescents with Juvenile Idiopathic Arthritis and Systemic Lupus Erythematosus
Teresa Semalulu¹, Karen Beattie¹, Jeanine McColl¹, Arzoo Alam², Steffy Thomas², Julie Herrington³, Jan Willem Gorter², Tania Cellucci², Stephanie Garner¹, Liane Heale², Mark Matsos¹ and Michelle Batthish⁴, ¹McMaster University, Hamilton, ON, Canada, ²McMaster University, Hamilton, Canada, ³ACPAC - University of Toronto, Hamilton, ON, Canada, ⁴McMaster Children's Hospital, Hamilton, ON, Canada
Background/Purpose: The transition from pediatric to adult rheumatology care is associated with increased morbidity, mortality and loss to follow-up. This is largely due to a…
Abstract Number: 0138 • ACR Convergence 2020
Alignment and Discordances in Treatment Perceptions and Shared Decision-Making Among RA Patients and Rheumatology Care Teams
Robert Levin¹, Christopher Parker², Kostas Botsoglou³, Jigar Shah⁴, Nimesh Dayal⁵, Kristina Fajardo⁶, Laura Simone⁶, Jeff Carter⁶ and Tamar Sapir⁶, ¹University of South Florida, Clearwater, FL, ²Austin Diagnostic Clinic, Austin, TX, ³Rheumatology Center WNY, Buffalo, NY, ⁴Arthritis and Rheumatology Center of South Florida, Margate, FL, ⁵Arthritis Center of Orlando, Ocoee, FL, ⁶PRIME Education, LLC, Fort Lauderdale, FL
Background/Purpose: Evidence-based guidelines for rheumatoid arthritis (RA) call for shared decision-making (SMD) as a method to personalize treatment decisions and achieve treat-to-target goals. We assessed alignment…
Abstract Number: 1700 • ACR Convergence 2020
Curricular Implementation of the Rheumatic Disease Patient Expert Program: The Students’ Perspective
Eleni Sophocleous¹, Andri Phoka² and Konstantinos Parperis³, ¹University of Cyprus Medical school, Nicosia, Cyprus, ²Cyprus League Against Rheumatism, Nicosia, Cyprus, ³University of Cyprus Medical School, Nicosia, Nicosia, Cyprus
Background/Purpose: Medical education can be enriched by embracing patient involvement so that students can learn about rheumatic diseases (RMD) from patient experts. Patient experts have…
Abstract Number: 0248 • ACR Convergence 2020
Assessment of Lupus Knowledge Through Creation of the Lupus Knowledge Assessment Test (LKAT)
Mithu Maheswaranathan¹, Amanda Eudy¹, Jayanth Doss¹, Rebecca Sadun¹, Lisa Criscione-Schreiber², Kai Sun¹, Stacy Bailey³, S. Nicole Hastings¹, Megan Clowse⁴ and Jennifer Rogers⁵, ¹Duke University, Durham, NC, ²Duke University School of Medicine, Durham, NC, ³Northwestern University, Chapel Hill, NC, ⁴Duke University, Chapel Hill, NC, ⁵Duke, Durham, NC
Background/Purpose: Systemic lupus erythematosus (SLE) is an inherently complex disease to manage with heterogenous clinical manifestations and complicated medication regimens. The complexity of lupus self-management…
Abstract Number: 1707 • ACR Convergence 2020
Development and Delivery of Continuing Education Interventions Promoting Shared Decision Making in Rheumatoid Arthritis
Richard Martin¹, Marianna Shershneva² and Lily Zurkovsky³, ¹Michigan State University College of Human Medicine, Grand Rapids, MI, ²Senior Administrative Program Specialist, Office of Continuing Professional Development University of Wisconsin School of Medicine and Public Health, Madison, WI, ³Forefront Collaborative, Carmel, IN
Background/Purpose: A core CMS policy goal is to improve patient experience by encouraging patient-centered care and shared decision making (SDM). However, SDM techniques are underutilized…
Abstract Number: 0578 • ACR Convergence 2020
Going Digital Due to COVID 19 Crisis: A Rapid Reorganisation of Medication Clinics
Rian Penford¹, Angela Reith¹, Elaine Wren¹ and Kirsten Mackay¹, ¹Torbay and South Devon NHS Foundation Trust, Torquay, United Kingdom
Background/Purpose: Until the COVID 19 crisis we initiated DMARD(s) and Biologic therapies using shared medical clinics. More than 30 patients could seen per week, with…
Abstract Number: 1764 • ACR Convergence 2020
Disease Modifying Anti-rheumatic Drug and Biologic Therapy in Pregnancy: A Single-center Mixed Methods Study
Lauren Glick¹, Justin Shamis², Taneisha McGhie³ and Dharini Mahendira⁴, ¹University of Toronto, Toronto, ON, Canada, ²North York General Hospital, Toronto, ON, Canada, ³Cornwall University Hospital, Kingston, Saint Andrew, Jamaica, ⁴University of Toronto - Toronto, Toronto, ON, Canada
Background/Purpose: Rheumatic diseases including rheumatoid arthritis, seronegative inflammatory arthritis and systemic lupus erythematosus can be associated with significant morbidity in women of child-bearing age. Both…

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