Abstracts tagged "education, patient"

Abstract Number: 2556 • ACR Convergence 2025
Information Needs of Patients with Vasculitis
Jodi Hall, Vasculitis Foundation, Shawnee, KS
Background/Purpose: The aim of this research was to discover and characterize the information needs of patients who have been diagnosed with vasculitis. Vasculitis is a term…
Abstract Number: 1689 • ACR Convergence 2025
Addressing Perceived Discrimination in Lupus Care: Enhancing Patient Empowerment and Health Equity Through Education and Support
Kimberly Cabrera¹, Priscilla Calvache², Lillian Mendez³, Giselle Morales⁴ and Jillian Rose-Smith², ¹Hospital for Special Surgery, New York, ²Hospital for Special Surgery, New York, NY, ³Patient Advocate, Carteret, NJ, ⁴Hospital for Special Surgery, Glendale, NY
Background/Purpose: SLE is a life-threatening autoimmune disease that disproportionately affects African American (AA), Hispanic/Latino, & Asian populations. These communities experience serious health disparities, including more…
Abstract Number: 2555 • ACR Convergence 2025
Ergonomic Modifications: Findings From the Making it WorkTM Systemic Sclerosis Program
Janet Poole¹, Mary Thelander¹ and Kristine Carandang², ¹University of New Mexico, Albuquerque, NM, ²Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA
Background/Purpose: Work disability in people with systemic sclerosis (SS) increases substantially from diagnosis to three years after disease onset. Ergonomic modifications help people with physical,…
Abstract Number: 1265 • ACR Convergence 2025
Patient Portal Awareness and Utilization Across Diverse Rheumatology Populations
Emily Gutowski¹, Joshua Novack², Allyson Covello², Philip Carlucci³, Scott Goldberg¹, Mary Guan⁴, Marcus Hines², Elliot Philips², Michael Pillinger⁵ and Sara Stream⁶, ¹New York University Grossman School of Medicine, Brooklyn, NY, ²New York University Grossman School of Medicine, New York, NY, ³New York University School of Medicine, New York, NY, ⁴NYU Grossman SOM, Brooklyn, NY, ⁵New York University Grossman School of Medicine, New York,, NY, ⁶New York University Grossman School of Medicine, Great Neck, NY
Background/Purpose: Patients with rheumatic diseases face complex and chronic diagnoses that require close monitoring and frequent communication with their providers. Given increasing challenges to in-person…
Abstract Number: 2547 • ACR Convergence 2025
Assessing the Reach of a Virtual Education Program: Lupus & You: Answers. Advocacy. Action.
Ashley Holden, Wendy Rodgers, Khadija Dantata, Lety Ocana and Guadalupe Patino, The Lupus Foundation of America, Washington, DC
Background/Purpose: Comprehensive lupus education is essential for increasing awareness, early diagnosis and management of lupus due to the disease’s heterogenous nature. The Lupus Foundation of…
Abstract Number: 1263 • ACR Convergence 2025
Health Literacy diversity among rheumatology patients: insights from a tertiary rheumatology centre
Cristina Calomarde-Gomez¹, Mrinalini Dey², Chris Wincup³, María Alonso de Francisco⁴, Christina Cheng⁵, Richard Osborne⁵ and Elena Nikiphorou⁶, ¹Hospital Universitari Germans Trias i Pujol, Barcelona, Spain, ²Centre for Rheumatic Diseases, King's College London, London, United Kingdom, ³King's College Hospital, London, United Kingdom, ⁴H. U. Puerta de Hierro Majadahonda, Tres Cantos, Spain, ⁵La Trobe University, Melbourne, Victoria, Australia, ⁶King's College London, London, United Kingdom
Background/Purpose: Health literacy is a potential social determinant of health, fundamental to patient engagement, clinical communication, and long-term outcomes of disease. Understanding health literacy at…
Abstract Number: 2514 • ACR Convergence 2025
Comparison of Demographics and Outcomes of Inpatient Hospitalization of Severe Asthma Patients with Eosinophilic Granulomatosis with Polyangitis. A Study on the National Inpatient Sample Database
Prakriti Subedi¹, Anil Regmi², Karun Shrestha³, Manoj Ghimire⁴, Sajana Poudel⁵, Kalpana Ghimire¹, Oshna Pandey¹ and Clement Tagoe⁶, ¹St. Barnabas Hospital, Bronx, NY, ²Parkview Health, Fort Wayne, IN, ³St. Barnabas Hospital Internal Medicine Residency, Bronx, NY, ⁴St Barnabas Hospital, BRONX, NY, ⁵Cook County Health, CHICAGO, NY, ⁶Albert Einstein College of Medicine, FRESH MEADOWS, NY
Background/Purpose: Eosinophilic granulomatosis with polyangiitis (EGPA) is a rare vasculitis marked by asthma and eosinophilia, often leading to severe, persistent respiratory symptoms. Unlike severe asthma…
Abstract Number: 1251 • ACR Convergence 2025
Steroids and Me (Sam): engaging and educating steroid-treated patients via patient advocacy partnerships and internet search channels.
Michelle Petri¹, Martha Stone², John Stone³, meredith Marinaro⁴, Matt Wilkinson⁵, Walter Lentfert⁶, Camille Kotton⁷, Jeffrey Gelfand⁸, Jane McDowell⁹ and Tricha Shivas¹⁰, ¹Johns Hopkins University School of Medicine, Timonium, MD, ²Steritas, LLC, Concord, MA, ³Massachusetts General Hospital , Harvard Medical School, Concord, MA, ⁴Novartis, Hartford, CT, ⁵UpThereEverywhere, London, United Kingdom, ⁶UpThereEverywhere, Charlotte, NC, ⁷Harvard Medical School, Boston, MA, ⁸UCSF Department of Neurology, Mill Valley, CA, ⁹Queens University Belfast, Belfast, United Kingdom, ¹⁰Foundation for Sarcoidosis Research, Chicago, IL
Background/Purpose: We report on two years of engagement with Sam, a patient-facing program to optimize the use of glucocorticoids and discontinue them when possible. We…
Abstract Number: 2415 • ACR Convergence 2025
Evaluating the Readability and Comprehension of Patient Education Materials for Systemic Lupus Erythematosus (SLE) Available Online
Nagoor Shaik, Ugochukwu Nweke and Meenakshi Jolly, Rush University, Chicago
Background/Purpose: Systemic Lupus Erythematosus (SLE) is a chronic multisystemic autoimmune disease that had multidimensional adverse effects on patients lives, and preferentially inflicts young women, specially…
Abstract Number: 1073 • ACR Convergence 2025
Development of a Culturally-Tailored Storytelling Intervention to Improve COVID-19 Vaccine Uptake in Black and Latinx Patients with Autoimmune and Inflammatory Rheumatic Diseases
Maria I. ("Maio") Danila¹, Lesley Jackson², Stephanie Ford³, Mary Wilkenson³, Tiffany Alexander⁴, Jeroan Allison⁵, Candace Feldman⁶, Fred Jenoure⁷, Jonathan Kay⁵, Stephenie Lemon⁸, Kenneth Saag⁹, Karen Salomon¹⁰ and Shilpa Venkatachalam¹¹, ¹University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL, ²University of Alabama at Birmingham, Birmingham, AL, ³UAB Division of Clinical Immunology and Rheumatology, Birmingham, AL, ⁴Community Investigator- AL, Birmingham, AL, ⁵UMass Chan Medical School, Worcester, MA, ⁶Brigham and Women's Hospital, Boston, MA, ⁷Community Investigator- MA, Worcester, MA, ⁸³. Division of Epidemiology, Department of Population and Quantitative Health Sciences, UMass Chan Medical School, Worcester, MA, Worcester, MA, ⁹The University of Alabama at Birmingham, Birmingham, AL, ¹⁰University of Massachusetts Medical School, Shrewsbury, MA, ¹¹Global Healthy Living Foundation, New York, NY
Background/Purpose: Black and Latinx individuals with autoimmune and inflammatory rheumatic diseases (AIRD) face disproportionately higher risks of severe COVID-19 outcomes. Despite this elevated risk, vaccine…
Abstract Number: 2217 • ACR Convergence 2025
Improving Patient Counseling on Medication Safety During Reproductive Years
Lauren He¹, Anne Carlton², Rocio Bautista-Sanchez¹, Yasmin Khader³ and Puja Khanna⁴, ¹University of Michigan, Ann Arbor, ²University of Michigan, Ann Arbor, MI, ³University of Michigan/VA Ann Arbor, Ann Arbor, ⁴Division of Rheumatology, University of Michigan, Ann Arbor, MI
Background/Purpose: Patients with rheumatic diseases require dedicated counseling on reproductive planning from their rheumatologist.1 Information shared on safety of medications during pregnancy and lactation can…
Abstract Number: 1040 • ACR Convergence 2025
Impact of Clinical Pharmacist-Directed Patient Education on Medication Adherence and Clinical Outcomes in Patients with Inflammatory Arthritis
Cristina Hurley¹, Megha Kotha², Jisna Paul³ and Jeff Barbee⁴, ¹Carilion Clinic, Roanoke, VA, ²Ohio State University, Columbus, OH, ³Division of Rheumatology and Immunology, Department of Internal Medicine, The Ohio State University Wexner Medical Center, Columbus, OH, Columbus, OH, ⁴Ohio State University Wexner Medical Center, Columbus
Background/Purpose: This study assesses the impact of a clinical pharmacist-directed intervention on medication adherence and clinical outcomes in patients with rheumatoid arthritis, psoriatic arthritis, and…
Abstract Number: 2216 • ACR Convergence 2025
Expanding Reproductive Health Assessments in Rheumatic Diseases: A Comparative Analysis of Demographic and Disease-Specific Factors
Krista Topalsky¹, Chelsea Guan², Lindsay Frumker³, Dana Nachawati², Areeb Tiwana⁴, Meghan Gump², Omer Pamuk⁵ and Marina Magrey⁶, ¹University Hospitals, Shaker Heights, OH, ²University Hospitals Cleveland Medical Center/Case Western Reserve University, Cleveland, OH, ³University hospitals Cleveland medical center, Highland Heights, OH, ⁴Canton Medical Education Foundation, Canton, OH, ⁵University Hospitals Cleveland Medical Center/ Case Western Reserve University, Cleveland, OH, ⁶Case Western Reserve University School of Medicine/University Hospitals Cleveland, Richfield, OH
Background/Purpose: Building on our 2024 ACR study (Topalsky et al.) that described broad knowledge gaps and interest in reproductive health education among women with rheumatic…
Abstract Number: 1029 • ACR Convergence 2025
Cervical cancer screening rates in Korean women of childbearing age with systemic lupus erythematosus
PIL GYU PARK¹, Jisoo Lee², JIN SU PARK³, Hyunsun Lim³, In-Woon Baek⁴, Min Kyung Chung⁴ and Chan Hee Lee⁵, ¹National Health Insurance Service Ilsan Hospital, Seodaemun-gu, Seoul, Republic of Korea, ²Division of Rheumatology, Department of Internal Medicine, Ewha Womans University College of Medicine, SEOUL, Republic of Korea, ³National Health Insurance Service Ilsan Hospital, Goyang-si, Republic of Korea, ⁴Ewha Womans University College of Medicine, Seoul, Republic of Korea, ⁵Desert Regional Medical Center, Palm Springs, CA
Background/Purpose: Cervical cancer remains a leading cause of death among women of childbearing age despite the proven efficacy of screening in reducing mortality rates. Women…
Abstract Number: 2213 • ACR Convergence 2025
Awareness Regarding Contraceptive Measures, Drug Usage And Factors Affecting Pregnancy Among Patients With Autoimmune Rheumatic Diseases
Juhi Dixit, Shri Balaji Institute of Medical Sciences, Mowa Raipur, Raipur, Chhattisgarh, India
Background/Purpose: This study aims to find out knowledge, attitude, practices and beliefs of patients with autoimmune rheumatic diseases regarding family planning, contraception, drug use and…

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