Abstracts tagged "education, patient"

Abstract Number: 2415 • ACR Convergence 2025
Evaluating the Readability and Comprehension of Patient Education Materials for Systemic Lupus Erythematosus (SLE) Available Online
Nagoor Shaik, Ugochukwu Nweke and Meenakshi Jolly, Rush University, Chicago
Background/Purpose: Systemic Lupus Erythematosus (SLE) is a chronic multisystemic autoimmune disease that had multidimensional adverse effects on patients lives, and preferentially inflicts young women, specially…
Abstract Number: 1073 • ACR Convergence 2025
Development of a Culturally-Tailored Storytelling Intervention to Improve COVID-19 Vaccine Uptake in Black and Latinx Patients with Autoimmune and Inflammatory Rheumatic Diseases
Maria I. ("Maio") Danila¹, Lesley Jackson², Stephanie Ford³, Mary Wilkenson³, Tiffany Alexander⁴, Jeroan Allison⁵, Candace Feldman⁶, Fred Jenoure⁷, Jonathan Kay⁵, Stephenie Lemon⁸, Kenneth Saag⁹, Karen Salomon¹⁰ and Shilpa Venkatachalam¹¹, ¹University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL, ²University of Alabama at Birmingham, Birmingham, AL, ³UAB Division of Clinical Immunology and Rheumatology, Birmingham, AL, ⁴Community Investigator- AL, Birmingham, AL, ⁵UMass Chan Medical School, Worcester, MA, ⁶Brigham and Women's Hospital, Boston, MA, ⁷Community Investigator- MA, Worcester, MA, ⁸³. Division of Epidemiology, Department of Population and Quantitative Health Sciences, UMass Chan Medical School, Worcester, MA, Worcester, MA, ⁹The University of Alabama at Birmingham, Birmingham, AL, ¹⁰University of Massachusetts Medical School, Shrewsbury, MA, ¹¹Global Healthy Living Foundation, New York, NY
Background/Purpose: Black and Latinx individuals with autoimmune and inflammatory rheumatic diseases (AIRD) face disproportionately higher risks of severe COVID-19 outcomes. Despite this elevated risk, vaccine…
Abstract Number: 2217 • ACR Convergence 2025
Improving Patient Counseling on Medication Safety During Reproductive Years
Lauren He¹, Anne Carlton², Rocio Bautista-Sanchez¹, Yasmin Khader³ and Puja Khanna⁴, ¹University of Michigan, Ann Arbor, ²University of Michigan, Ann Arbor, MI, ³University of Michigan/VA Ann Arbor, Ann Arbor, ⁴Division of Rheumatology, University of Michigan, Ann Arbor, MI
Background/Purpose: Patients with rheumatic diseases require dedicated counseling on reproductive planning from their rheumatologist.1 Information shared on safety of medications during pregnancy and lactation can…
Abstract Number: 1040 • ACR Convergence 2025
Impact of Clinical Pharmacist-Directed Patient Education on Medication Adherence and Clinical Outcomes in Patients with Inflammatory Arthritis
Cristina Hurley¹, Megha Kotha², Jisna Paul³ and Jeff Barbee⁴, ¹Carilion Clinic, Roanoke, VA, ²Ohio State University, Columbus, OH, ³Division of Rheumatology and Immunology, Department of Internal Medicine, The Ohio State University Wexner Medical Center, Columbus, OH, Columbus, OH, ⁴Ohio State University Wexner Medical Center, Columbus
Background/Purpose: This study assesses the impact of a clinical pharmacist-directed intervention on medication adherence and clinical outcomes in patients with rheumatoid arthritis, psoriatic arthritis, and…
Abstract Number: 2216 • ACR Convergence 2025
Expanding Reproductive Health Assessments in Rheumatic Diseases: A Comparative Analysis of Demographic and Disease-Specific Factors
Krista Topalsky¹, Chelsea Guan², Lindsay Frumker³, Dana Nachawati², Areeb Tiwana⁴, Meghan Gump², Omer Pamuk⁵ and Marina Magrey⁶, ¹University Hospitals, Shaker Heights, OH, ²University Hospitals Cleveland Medical Center/Case Western Reserve University, Cleveland, OH, ³University hospitals Cleveland medical center, Highland Heights, OH, ⁴Canton Medical Education Foundation, Canton, OH, ⁵University Hospitals Cleveland Medical Center/ Case Western Reserve University, Cleveland, OH, ⁶Case Western Reserve University School of Medicine/University Hospitals Cleveland, Richfield, OH
Background/Purpose: Building on our 2024 ACR study (Topalsky et al.) that described broad knowledge gaps and interest in reproductive health education among women with rheumatic…
Abstract Number: 1029 • ACR Convergence 2025
Cervical cancer screening rates in Korean women of childbearing age with systemic lupus erythematosus
PIL GYU PARK¹, Jisoo Lee², JIN SU PARK³, Hyunsun Lim³, In-Woon Baek⁴, Min Kyung Chung⁴ and Chan Hee Lee⁵, ¹National Health Insurance Service Ilsan Hospital, Seodaemun-gu, Seoul, Republic of Korea, ²Division of Rheumatology, Department of Internal Medicine, Ewha Womans University College of Medicine, SEOUL, Republic of Korea, ³National Health Insurance Service Ilsan Hospital, Goyang-si, Republic of Korea, ⁴Ewha Womans University College of Medicine, Seoul, Republic of Korea, ⁵Desert Regional Medical Center, Palm Springs, CA
Background/Purpose: Cervical cancer remains a leading cause of death among women of childbearing age despite the proven efficacy of screening in reducing mortality rates. Women…
Abstract Number: 2213 • ACR Convergence 2025
Awareness Regarding Contraceptive Measures, Drug Usage And Factors Affecting Pregnancy Among Patients With Autoimmune Rheumatic Diseases
Juhi Dixit, Shri Balaji Institute of Medical Sciences, Mowa Raipur, Raipur, Chhattisgarh, India
Background/Purpose: This study aims to find out knowledge, attitude, practices and beliefs of patients with autoimmune rheumatic diseases regarding family planning, contraception, drug use and…
Abstract Number: 0630 • ACR Convergence 2025
Development, Validation and Performance of a Patient Knowledge Assessment Tool for Assessing the Immediate and Short-term Impact of an Information Course in Systemic Lupus Erythematosus
Ranjan Gupta, Rudra Prosad Goswami and Anju Mohan, All India Institute of Medical Sciences, New Delhi, Delhi, India
Background/Purpose: Long-term outcomes in rheumatic diseases can be improved by improving patients’ knowledge, beliefs and perception about their disease. However, there is a lack of…
Abstract Number: 2204 • ACR Convergence 2025
A Novel Framework for Teratogenicity Counseling for Adolescents and Young Adults (AYAs) with Rheumatic Disease on Teratogenic Medications
Brittany Huynh¹, Elizabeth Pfeiffer² and Stacey Tarvin³, ¹Indiana University School of Medicine, Fishers, IN, ²Rhode Island College, Providence, RI, ³Riley Hospital for Children at Indiana University, Indianapolis, IN
Background/Purpose: Prior studies demonstrate low levels of knowledge and reported counseling regarding teratogenicity among AYAs with rheumatic disease. The aim of this study was to…
Abstract Number: 0385 • ACR Convergence 2025
Musculoskeletal Ultrasound Enhances Patient Insight and Clinical Decisions: A Multi-Center Study
Simran Nimal¹, Meridith Balbach², Aslam Fawad¹, Midori Nishio³ and Erin Chew², ¹Mayo Clinic Arizona, Scottsdale, AZ, ²Vanderbilt University, Nashville, TN, ³John Muir Specialty Medical Group, Lafayette, CA
Background/Purpose: Musculoskeletal ultrasound (MSKUS) is a valuable tool for early detection and management of inflammatory arthritis.(1) Although integrated into rheumatology guidelines, training programs, and classification…
Abstract Number: 2195 • ACR Convergence 2025
Enhancing MTX and LEF Safety for Immunosuppressed Women of Childbearing Age with Rheumatic Diseases
Angela Bobak¹, Rhea Sharma², Jordan Jackson³, Maritza Nary², Andrea Berger⁴, Lifang Zhang⁴ and Jonida Cote⁵, ¹Geisinger Medical Center Rheumatology Fellowship, Danville, PA, ²Geisinger Medical Center Internal Medicine Residency, Danville, PA, ³Geisinger Medical Center Medicine-Pediatrics Residency, Danville, PA, ⁴Geisinger Health System, Danville, PA, ⁵Geisinger Health System, Wilkes-Barre, PA
Background/Purpose: The rates of contraceptive counseling and treatment in immunosuppressed women of childbearing age remain low in the United States, despite ACR's Reproductive Health Guidelines…
Abstract Number: 0373 • ACR Convergence 2025
Implementation of a Lupus Self-Management mHealth App: Using Incentives to Drive Engagement
Melissa French¹, Katherine Carpenter², Eric Johnson², Melicent Miller² and Mary Crimmings², ¹Lupus Foundation of America, Alexandria, VA, ²Lupus Foundation of America, Washington, DC
Background/Purpose: As part of a five-year cooperative agreement with the Centers for Disease Control and Prevention, the Lupus Foundation of America (LFA) has implemented the…
Abstract Number: 2194 • ACR Convergence 2025
Utilizing Case-Based Learning to Teach the Teacher and Improve Health Insurance Literacy
Tyler Reese, Vanderbilt University Medical Center, Madison, TN
Background/Purpose: It is expected that pediatric rheumatology providers prepare adolescent and young adult (AYA) patients to successfully navigate the transition from a pediatric to an…
Abstract Number: 0372 • ACR Convergence 2025
Development and Implementation of a Remote Educational Program to Optimize Safe Medication Use in Older Veterans with Rheumatic Diseases
Maria Romero Noboa¹, Hannah Howell², Angelo Gaffo³ and Maria I. ("Maio") Danila⁴, ¹University of Alabama at Birmingham, Birmingham, AL, ²University of Alabama at Birmingham, Birmingham, ³Division of Rheumatology and Clinical Immunology, University of Alabama, Birmingham, AL, USA; Birmingham VA Medical Center, Birmingham, AL, USA, Birmingham, AL, ⁴University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL
Background/Purpose: Symptomatic treatment in rheumatic and musculoskeletal diseases (RMDs) – including glucocorticoids (GCs) and non-steroidal anti-inflammatory drugs (NSAIDs) – can result in improved quality of…
Abstract Number: 2179 • ACR Convergence 2025
Educational online webinars of European Reference Network (ERN) on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ReCONNET) for patients, caregivers and healthcare professionals: six years’ experience
Emanuele Gotelli¹, Rosanna Campitiello¹, Eric HACHULLA², Vanessa Smith³, João Eurico Fonseca⁴, Tadej Avcin⁵, Gabriele Simonini⁶, Silvia Aguilera⁷, Lisa Matthews⁸, Charissa Frank⁹, Wiebke Lautré¹⁰, Monica Testoni¹¹, Diana Marinello¹¹, Rosaria Talarico¹², Marta Mosca¹³ and Maurizio Cutolo¹⁴, ¹University of Genoa, Genoa, Liguria, Italy, ²CHU Lille, Département de Médecine Interne et Immunologie Clinique, Centre de Référence des Maladies Auto-Immunes et Auto-Inflammatoires Rares du Nord, Nord-Ouest, Méditerranée et Guadeloupe (CeRAINOM), Lille, France, Lille, France, ³Ghent University Hospital, Gent, Belgium, ⁴Faculdade Medicina, Universidade de Lisboa, ULS Santa Maria, Centro Académico Medicina de Lisboa, Lisboa, Lisboa, Portugal, ⁵University Children's Hospital, University Medical Center Ljubljana, Ljubljana, Slovenia, ⁶Rheumatology Unit, ERN-ReCONNET center, Meyer Children's Hospital IRCCS, Firenze, Firenze, Italy, ⁷Spanish Antiphospholipid Association, Alicante, Spain, ⁸Relapsing Polychondritis Awareness and Support, London, United Kingdom, ⁹Flemish Association for Hereditary Connective Tissue Disorders, Koersel, Belgium, ¹⁰CHU Bordeaux Pellegrin, Centre de Références Maladies Auto-Immunes Systémiques Rares, Bordeaux, France, ¹¹ERN ReCONNET, Pisa, Italy, ¹²Azienda Ospedaliero Universitaria Pisana, Pisa, Pisa, Italy, ¹³University of Pisa, Pisa, Pisa, Italy, ¹⁴University of Genova, Genova, Italy
Background/Purpose: The European Reference Network on Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET), founded in 2017 by the European Union (EU) Commission, aimed to improve…

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