Abstracts tagged "education, patient"

Abstract Number: 0373 • ACR Convergence 2024
Enhancing Lupus Patient Education and Support at Kings County Hospital
Dmytro Gatsak¹, Jayashree Gandhi¹, Aleksander Feoktistov², Eugeniya Golub³ and Michael Trevisonno⁴, ¹Kings County Hospital/ SUNY Downstate Medical Center, Brooklyn, NY, ²Kings County Hospital Center/ H+H NYC, Brooklyn, NY, ³Kings County Hospital/ SUNY Downstate Medical Center, Staten Island, NY, ⁴State University of New York Downstate Medical Center, Brooklyn, NY
Background/Purpose: Kings County Hospital, located in Brooklyn, New York, sees an estimated 243 patients with Systemic Lupus Erythematosus (SLE) annually. The patient demographic is predominantly…
Abstract Number: 2191 • ACR Convergence 2024
Optimizing Inpatient Kawasaki Disease Care
Audrea Chen¹, Beth Gamulka², Macarena Palomer³ and Rae Yeung⁴, ¹The Hospital for Sick Children, Burnaby, BC, Canada, ²The Hospital for Sick Children, Toronto, ³The Hospital for Sick Children, Toronto, Canada, ⁴The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada
Background/Purpose: Kawasaki Disease (KD), an acute pediatric vasculitis, requires inpatient management to prevent coronary artery disease. The Hospital for Sick Children (SickKids) sees about 100…
Abstract Number: 0374 • ACR Convergence 2024
How Do Patient Decision Aids Enable Purposeful Shared Decision-Making in Rheumatology? An Integrative Review
Ibiyemi Oke¹, Ruoning Ni¹ and Bharat Kumar², ¹UNVERSITY OF IOWA HOSPITALS AND CLINICS, Iowa City, IA, ²University of Iowa Hospitals and Clinics, Iowa City, IA
Background/Purpose: Shared decision-making (SDM) is a process in which patients and clinicians work together to make health care decisions. Purposeful SDM (PSDM) is a problem-based…
Abstract Number: 2457 • ACR Convergence 2024
Polypharmacy, Drug-drug Interactions, and Adverse Drug Reactions Among Systemic Sclerosis Patients: A Cross-sectional Risk Factor Study
Sara Boukhlal¹, Laurent Chouchana², Malika Saadi³, marion Casadevall¹, Pascal cohen⁴, bertrand Dunogue⁵, Anne Murarasu¹, Alexis Régent⁶, Luc Mouthon⁵ and Benjamin Chaigne⁷, ¹AP HP, paris, France, ²Cochin, Paris, France, ³Cardiology Department - Cochin Hospital, Paris, France, ⁴National Referral Center For Rare Systemic Autoimmune Diseases, Paris, Ile-de-France, France, ⁵Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes et Autoinflammatoires Rares d'Ile de France de l’Est et de l’Ouest, Hôpital Cochin, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France, ⁶National Referral Center For Rare Systemic Autoimmune Diseases, Paris, France, ⁷Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes et Autoinflammatoires Rares d'Ile de France de l’Est et de l’Ouest, Hôpital Cochin, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, Ile-de-France, France
Background/Purpose: Polypharmacy, drug-drug interactions (DDI) and related adverse drug reaction (ADR) are understudied in SSc. The aim of this work was to determine the prevalence…
Abstract Number: 0452 • ACR Convergence 2024
Reproductive Health Needs of Women with Rheumatic Disease: An EMR-Based Online Survey Study
Krista Topalsky¹, Lindsay Frumker², Muhammad Shamim³, Omer Pamuk⁴, Jacqueline Colucci⁵ and Marina Magrey⁶, ¹University Hospitals/ Case Western Reserve University, Shaker Heights, OH, ²University hospitals Cleveland medical center, Highland Heights, OH, ³University Hospitals/ Case Western Reserve University, Cuyahoga Falls, OH, ⁴University Hospitals Cleveland Medical Center/ Case Western Reserve University, Cleveland, OH, ⁵University Hospitals, Cleveland, OH, ⁶Case Western Reserve University School of Medicine/University Hospitals, Richfield, OH
Background/Purpose: Reproductive-aged women are disproportionately affected by rheumatologic disorders, making family planning issues like contraception, pre-conception counseling, fertility, pregnancy complications, and postpartum care critical components…
Abstract Number: 2526 • ACR Convergence 2024
Development of the Hospital Emergency Advocacy & Treatment Kit (HEAT Kit) for Patients with Vasculitis
Sarah Jones¹, Pamela Squires² and Donna McArthur³, ¹Eosinophilic & Rare Disease Cooperative, Tucson, AZ, ²Eosinophilic & Rare Disease Cooperative, Tucson, ³Adjunct professor of nursing, Vanderbilt School of Nursing; Adjunct clinical professor, University of Arizona College of Nursing & Dept. of Neurology, Tucson, AZ
Background/Purpose: All forms of vasculitis are rare with patients frequently experiencing poor or extended care in the hospital and ED settings. The ERDC founder experienced…
Abstract Number: 0609 • ACR Convergence 2024
The Mediating Role of Trust in Usual Rheumatologists on the Relationship Between Multidimensional Health Literacy and Medication Adherence Among Japanese Systemic Lupus Erythematosus Patients
Nao Oguro¹, Nobuyuki Yajima², Yuichi Ishikawa³, Natsuki Sakurai⁴, Chiharu Hidekawa⁴, Takanori Ichikawa⁵, Dai Kishida⁵, Keigo Hayashi⁶, Kenta Shidahara⁷, Yoshia Miyawaki⁸, Ryusuke Yoshimi⁹, Kenei Sada¹⁰, Yasuhiro Shimojima⁵ and Noriaki Kurita¹¹, ¹Division of Rheumatology, Department of Medicine, Showa University School of Medicine, Tokyo, Japan, ²Division of Rheumatology, Department of Medicine, Showa University School of Medicine, Tokyo, Japan., Tokyo, Japan, ³The First Department of Internal Medicine, University of Occupational and Environmental Health, Kitakyushu, Fukuoka, Japan, ⁴Department of Stem Cell and Immune Regulation,Yokohama City University Graduate School of Medicine, Yokohama, Kanagawa, Japan, ⁵Department of Medicine (Neurology and Rheumatology), Shinshu University School of Medicine, Matsumoto, Nagano, Japan, ⁶Brigham and Women’s Hospital, Brookline, MA, ⁷"Department of Nephrology, Rheumatology, Endocrinology and Metabolism, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Okayama, Japan, ⁸Center for Innovative Clinical Medicine, Okayama University Hospital Department of Nephrology, Rheumatology, Endocrinology and Metabolism, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Okayama, Japan, ⁹Department of Medicine (Neurology and Rheumatology), Shinshu University School of Medicine, Yokohama, Kanagawa, Japan, ¹⁰Department of Clinical Epidemiology, Kochi Medical School, Kochi University, Nankoku, Kochi, Japan, ¹¹"Department of Clinical Epidemiology, Graduate School of Medicine, Fukushima Medical University Department of Innovative Research and Education for Clinicians and Trainees (DiRECT) Fukushima Medical University Hospital", Fukushima, Fukushima, Japan
Background/Purpose: Maintaining medication adherence is crucial for improving health outcomes among patients with systemic lupus erythematosus, as they require life-long hospital visits and medications. Patients'…
Abstract Number: 2620 • ACR Convergence 2024
Education and Medication Access Needs in Rheumatology Patients Starting New Medications: Quality Improvement Data from a Pharmacist Intervention
Vivianne Allsop¹, Brett Glasheen², Stephanie Khong², Anthony Minjarez³, Natalie Morlan², Kami Roake², grant Cannon⁴, Nadia Grant² and Jessica A Walsh⁵, ¹University of Utah, South Jordan, UT, ²University of Utah, Salt Lake City, UT, ³Salt Lake City Veterans Affairs Health, Salt Lake City, UT, ⁴University of Utah and Salt Lake City VA, Salt Lake City, UT, ⁵Division of Rheumatology, Salt Lake City Veterans Affairs Health and University of Utah Health, Salt Lake City, UT
Background/Purpose: Disease modifying anti-rheumatic drugs are a cornerstone of rheumatology care. Patient education and support is required to optimize outcomes and minimize access barriers. Pharmacists…
Abstract Number: 1022 • ACR Convergence 2024
Social Determinants of Health in Osteoporosis Treatment Patterns Among Adults with Rheumatoid Arthritis and Major Osteoporotic Fracture in the All of Us Research Program: A Cross-Sectional Study
Marshall Weber¹, Brinda Basida², Colton Hoffer² and Rachel Elam³, ¹Augusta University, Augusta, GA, ²Augusta University / VA Augusta Health System, Augusta, GA, ³Augusta University, Evans, GA
Background/Purpose: Despite widely available bone health pharmacologic therapies, there is a significant osteoporosis treatment gap in individuals with rheumatoid arthritis (RA). The aim of this…
Abstract Number: PP04 • ACR Convergence 2024
Involving Pediatric Patients in Their Own Care
Whitney LaBar, Lupus and Allied Diseases Association, Pleasanton, CA
Background/Purpose: When I was 14, I was diagnosed with thrombocytopenia, which led to more testing and a diagnosis of systemic lupus erythematosus (SLE). As a…
Abstract Number: 1072 • ACR Convergence 2024
A 2-Year Pilot Project to Identify and Address Disparities in Health Literacy in Patients with Rheumatic Diseases Through Distribution of Surveys and Patient Education Materials
Nicole Leung¹, Kelly Corbitt², Catherine Howe¹, Abhimanyu Amarnani³, Jammie Law¹, Cristina Sorrento⁴, Emily Gutowski⁵, Joshua Novack¹, Mary Guan⁵, Scott Goldberg¹, Tasneem Ahmed¹, Meghan Anderson⁶, Michael Pillinger⁷ and Sara Stream¹, ¹New York University Langone Medical Center, New York, NY, ²University of Miami, Miami, FL, ³New York University Grossman School of Medicine, New York, NY, ⁴New York University Langone Medical Center, Astoria, NY, ⁵New York University Langone Medical Center, Brooklyn, NY, ⁶New York University Langone Medical Center, Philadelphia, PA, ⁷New York University Grossman School of Medicine, New York,, NY
Background/Purpose: Improving health literacy in patients with rheumatic diseases is important, as many have chronic, complex diagnoses treated with high-risk medications. Poor health literacy puts…
Abstract Number: PP13 • ACR Convergence 2024
Bridging the Gap from Pediatric to Adult Rheumatology Care
Natasha Trehan, University of Ottawa, Take a Pain Check Foundation, Markham, ON, Canada
Background/Purpose: When I was 13, life took an unexpected turn with a diagnosis of Juvenile Idiopathic Arthritis (JIA). Overnight, my world transformed into a cycle…
Abstract Number: 1076 • ACR Convergence 2024
Assessing the Reliability of ChatGPT on Recombinant Zoster Vaccination for Patients with Rheumatic and Musculoskeletal Diseases
Akhil Sood, Pegah Jahangiri, Amanda Moyer and Janice Lin, Stanford University, Palo Alto, CA
Background/Purpose: As artificial intelligence (AI) platforms continue to evolve, large language models (LLMs) such as ChatGPT by OpenAI are increasingly being utilized by patients and…
Abstract Number: 1235 • ACR Convergence 2024
Rheum to Grow: Supporting Young Adults with Childhood-Onset Rheumatic Disease in Their Transition to Adult Care
Cindy Chiu¹, Sadie Van den Bogaerde², Maya Swaminathan³, Rebecca Sadun⁴ and Thomason Jenna¹, ¹University of Washington, Division of Rheumatology, Seattle, WA, ²University of Washington, Seattle, WA, ³MultiCare, Newcastle, WA, ⁴Duke University, Durham, NC
Background/Purpose: Transitional care for patients with childhood-onset rheumatic disease is essential, as this transition is known to be a high-risk time for medication nonadherence, lapses…
Abstract Number: 1237 • ACR Convergence 2024
The Art of Choosing Together: Unveiling the Patient’s Perspective in Rheumatology
ADRIANA VANEGAS¹, Guillermo Quiceno², Luis Lira³, Gina Ochoa⁴, Álvaro Arbeláez-Cortés⁵, Mauricio Restrepo-Escobar⁶ and Virginia Pascual Ramos⁷, ¹HOSPITAL SAN VICENTE FUNDACION - UNIVERSIDAD DE ANTIOQUIA - Asociación Colombiana de Reumatología (ASOREUMA), MEDELLIN, Colombia, ²University of Tennessee Graduate School of Medicine, Dallas, TX, ³Sociedad Chilena de Reumatología, Santiago, Chile, ⁴Fundación LICAR, Barranquilla, Colombia, ⁵Clínica IMBANACO, Cali, Colombia, ⁶Universidad de Antioquia, Retiro, Colombia, ⁷Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran, Mexico City, Federal District, Mexico
Background/Purpose: Scientific evidence supports that shared decision-making (SDM) can improve adherence to treatment, patient satisfaction, quality of life, clinical outcomes, and healthcare costs. However, challenges…

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