Abstracts tagged "education, patient"

Abstract Number: 1237 • ACR Convergence 2024
The Art of Choosing Together: Unveiling the Patient’s Perspective in Rheumatology
ADRIANA VANEGAS¹, Guillermo Quiceno², Luis Lira³, Gina Ochoa⁴, Álvaro Arbeláez-Cortés⁵, Mauricio Restrepo-Escobar⁶ and Virginia Pascual Ramos⁷, ¹HOSPITAL SAN VICENTE FUNDACION - UNIVERSIDAD DE ANTIOQUIA - Asociación Colombiana de Reumatología (ASOREUMA), MEDELLIN, Colombia, ²University of Tennessee Graduate School of Medicine, Dallas, TX, ³Sociedad Chilena de Reumatología, Santiago, Chile, ⁴Fundación LICAR, Barranquilla, Colombia, ⁵Clínica IMBANACO, Cali, Colombia, ⁶Universidad de Antioquia, Retiro, Colombia, ⁷Instituto Nacional de Ciencias Medicas y Nutricion Salvador Zubiran, Mexico City, Federal District, Mexico
Background/Purpose: Scientific evidence supports that shared decision-making (SDM) can improve adherence to treatment, patient satisfaction, quality of life, clinical outcomes, and healthcare costs. However, challenges…
Abstract Number: 1241 • ACR Convergence 2024
Optimizing Communication of Methotrexate (MTX) Side Effects: A Patient-Centered Approach Focused on Learning Styles and Preferred Language
Veena Patel¹, Sophia Dove² and Veronica Chavez³, ¹Dell Medical School - UT Health Austin, Austin, TX, ²Moody College of Communication, The University of Texas at Austin, Austin, TX, ³University of Texas - Dell Medical School, Austin, TX
Background/Purpose: Methotrexate (MTX) remains the first-line treatment for RA due to its effectiveness and affordability, but communicating its complex regimen and instructions can be challenging,…
Abstract Number: 1243 • ACR Convergence 2024
A Patient-Focused Program for Using Steroids Wisely
John Stone¹, Michelle Petri², Jeffrey Gelfand³, Camille Kotton⁴, Jane McDowell⁵, George Papaliodis⁶, meredith Marinaro⁷, Matt Wilkinson⁸, Walter Lentfert⁹ and Martha Stone¹⁰, ¹Massachusetts General Hospital , Harvard Medical School, Concord, MA, ²Johns Hopkins University School of Medicine, Timonium, MD, ³University of California, San Francisco, San Francisco, CA, ⁴Harvard Medical School, Boston, MA, ⁵Queens University Belfast, Belfast, Ireland, ⁶Massachusetts General Hospital, Boston, MA, ⁷Novartis, Hartford, CT, ⁸UpThereEverywhere, London, United Kingdom, ⁹UpThereEverywhere, Wilmington, NC, ¹⁰Steritas, LLC, CONCORD, MA
Background/Purpose: Patients have no comprehensive, curated resource on steroid use to facilitate effective collaboration in their own care. Consequently, truly shared decision making around steroid…
Abstract Number: 1256 • ACR Convergence 2024
Higher Disease Activity in Pediatric Systemic Lupus Erythematosus Is Associated with a Greater Desire for Social Health Education: An Unmet Need in Pediatric Rheumatology
Kaitlin Kirkpatrick, Melodee Liegl, Ke Yan and Sara Sabbagh, Medical College of Wisconsin, Milwaukee, WI
Background/Purpose: There is limited evidence on the educational needs and preferences of caregivers and adolescents and young adults (AYA) with rheumatic disease (RD) regarding the…
Abstract Number: 1320 • ACR Convergence 2024
Acceptability and Satisfaction of an Online Resilience-Building Intervention with Peer Health Coaches for Managing Fatigue and Well-Being in Systemic Sclerosis
Susan Murphy¹, Yen Chen², Alexandra Harper², Nirali Shah², Mary Alore², Sheri Hicks², Adam Pape³ and Dinesh Khanna², ¹University of Michigan, Plymouth, MI, ²University of Michigan, Ann Arbor, MI, ³University of Michigan, University of Michigan, MI
Background/Purpose: Non-pharmacological fatigue management interventions in systemic sclerosis (SSc) are limited, despite people with SSc reporting that fatigue is inadequately addressed with clinical care. We…
Abstract Number: 0350 • ACR Convergence 2024
Piloting an Adaptation of the Making It Work Program for Systemic Sclerosis: Promising Effects on Job Related Self-efficacy and Risk of Work Disability
Janet Poole¹, Kristine Carandang², Mary Thelander Hill¹, Jessica Salazar¹, Anna Koch³, Timothy Dionne¹ and Diane Lacaille⁴, ¹University of New Mexico, Albuquerque, NM, ²Young Patients' Autoimmune Research & Empowerment Alliance, San Diego, CA, ³Comfy Couch Counseling LLC, Albuquerque, NM, ⁴Arthritis Research Canada, University of British Columbia, Vancouver, BC, Canada
Background/Purpose: Although work disability presents a substantial burden for people with systemic sclerosis (SS), there are no tailored programs that aim to support their employment.…
Abstract Number: 1676 • ACR Convergence 2024
Changing Patients’ Mindsets About Non-Severe Side Effects of Methotrexate: A Randomized Controlled Trial
Rachael Yielder¹, Kari Leibowitz², Alia Crum², Paul Manley³, Nicola Dalbeth¹ and Keith Petrie⁴, ¹University of Auckland, Auckland, New Zealand, ²Stanford University, Palo Alto, CA, ³Te Whatu Ora Health New Zealand, Auckland, New Zealand, ⁴The University of Auckland, Auckland, New Zealand
Background/Purpose: Although methotrexate (MTX) is a first-line treatment for inflammatory rheumatic diseases, side effects can lead to poor adherence and persistence. A novel intervention involves…
Abstract Number: 0371 • ACR Convergence 2024
This Is Caring: Enhancing Patient Education Materials for Individuals with Morphea Through Qualitative Inquiry
Jennifer Foster¹, Robin Higashi², Priya Sarlashkar¹ and Heidi Jacobe¹, ¹The University of Texas Southwestern Medical Center, Department of Dermatology, Dallas, TX, ²2UT Southwestern Medical Center, Peter O’Donnell Jr School of Public Health, Dallas, TX
Background/Purpose: Patient education materials (PEMs) are essential for conveying disease and treatment information, empowering patients to actively participate in their care. However, PEMs for rare…
Abstract Number: 1913 • ACR Convergence 2024
Health Literacy and Disease, Clinical, Functional and Management Outcomes in Inflammatory Arthritis: A Systematic Literature Review
Mrinalini Dey¹, Shyam Budhathoki², Sofia Ramiro³, Kaleb Michaud⁴, Helen Elwell⁵, Sam Norton⁶, Maya H. Buch⁷, Andrew Cope¹, Richard Osborne⁸, James Galloway⁹ and Elena Nikiphorou¹, ¹King's College London, London, United Kingdom, ²Imperial College London, London, United Kingdom, ³Leiden University Medical Center, Bunde, Netherlands, ⁴University of Nebraska Medical Center, Omaha, NE, ⁵British Medical Association, London, United Kingdom, ⁶King's College London, London, England, United Kingdom, ⁷Division of Musculoskeletal & Dermatological Sciences, University of Manchester, and NIHR Manchester Biomedical Research Centre, Manchester, United Kingdom, ⁸Swinburne University of Technology, Swinburne, Australia, ⁹Centre for Rheumatic Diseases, King's College London, London, United Kingdom
Background/Purpose: Health literacy (HL) is a key social determinant of health in inflammatory arthritis (IA), including rheumatoid arthritis, psoriatic arthritis and axial spondyloarthritis, as it…
Abstract Number: 0372 • ACR Convergence 2024
Readability Analysis of the American College of Rheumatology Patient Education Material
Quynh Giao Nguyen, Arianna Moss and Priyanka Iyer, University of California Irvine, Orange, CA
Background/Purpose: Patient education materials are an important resource to improve health education. According to the American Medical Association (AMA), education materials should not be written above a 6th grade…
Abstract Number: 2164 • ACR Convergence 2024
Boosting Adherence to “Sick Day Rules”: A Quality Improvement Study in Rheumatology Outpatients on Immunosuppressive Medications, Results of Post-intervention Phase
Merve Aksoy*, Pamela Gonzalez Manrique, Heinrich-Karl Greenblatt and Katarzyna Gilek-Seibert, Roger Williams Medical Center, Providence, RI
Background/Purpose: Acute infections are common among rheumatology outpatients receiving immunosuppressive medications (IS). Expert guidance advises pausing IS during acute infection, resuming only when clinically improved,…
Abstract Number: 0373 • ACR Convergence 2024
Enhancing Lupus Patient Education and Support at Kings County Hospital
Dmytro Gatsak¹, Jayashree Gandhi¹, Aleksander Feoktistov², Eugeniya Golub³ and Michael Trevisonno⁴, ¹Kings County Hospital/ SUNY Downstate Medical Center, Brooklyn, NY, ²Kings County Hospital Center/ H+H NYC, Brooklyn, NY, ³Kings County Hospital/ SUNY Downstate Medical Center, Staten Island, NY, ⁴State University of New York Downstate Medical Center, Brooklyn, NY
Background/Purpose: Kings County Hospital, located in Brooklyn, New York, sees an estimated 243 patients with Systemic Lupus Erythematosus (SLE) annually. The patient demographic is predominantly…
Abstract Number: 2191 • ACR Convergence 2024
Optimizing Inpatient Kawasaki Disease Care
Audrea Chen¹, Beth Gamulka², Macarena Palomer³ and Rae Yeung⁴, ¹The Hospital for Sick Children, Burnaby, BC, Canada, ²The Hospital for Sick Children, Toronto, ³The Hospital for Sick Children, Toronto, Canada, ⁴The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada
Background/Purpose: Kawasaki Disease (KD), an acute pediatric vasculitis, requires inpatient management to prevent coronary artery disease. The Hospital for Sick Children (SickKids) sees about 100…
Abstract Number: 0374 • ACR Convergence 2024
How Do Patient Decision Aids Enable Purposeful Shared Decision-Making in Rheumatology? An Integrative Review
Ibiyemi Oke¹, Ruoning Ni¹ and Bharat Kumar², ¹UNVERSITY OF IOWA HOSPITALS AND CLINICS, Iowa City, IA, ²University of Iowa Hospitals and Clinics, Iowa City, IA
Background/Purpose: Shared decision-making (SDM) is a process in which patients and clinicians work together to make health care decisions. Purposeful SDM (PSDM) is a problem-based…
Abstract Number: 2457 • ACR Convergence 2024
Polypharmacy, Drug-drug Interactions, and Adverse Drug Reactions Among Systemic Sclerosis Patients: A Cross-sectional Risk Factor Study
Sara Boukhlal¹, Laurent Chouchana², Malika Saadi³, marion Casadevall¹, Pascal cohen⁴, bertrand Dunogue⁵, Anne Murarasu¹, Alexis Régent⁶, Luc Mouthon⁵ and Benjamin Chaigne⁷, ¹AP HP, paris, France, ²Cochin, Paris, France, ³Cardiology Department - Cochin Hospital, Paris, France, ⁴National Referral Center For Rare Systemic Autoimmune Diseases, Paris, Ile-de-France, France, ⁵Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes et Autoinflammatoires Rares d'Ile de France de l’Est et de l’Ouest, Hôpital Cochin, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France, ⁶National Referral Center For Rare Systemic Autoimmune Diseases, Paris, France, ⁷Service de Médecine Interne, Centre de Référence Maladies Systémiques Autoimmunes et Autoinflammatoires Rares d'Ile de France de l’Est et de l’Ouest, Hôpital Cochin, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, Ile-de-France, France
Background/Purpose: Polypharmacy, drug-drug interactions (DDI) and related adverse drug reaction (ADR) are understudied in SSc. The aim of this work was to determine the prevalence…

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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

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Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. Academic institutions, private organizations and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part a scientific presentation or presentation of additional new information that will be available at the time of the meeting) is under embargo until Saturday, November 11, 2023.

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