Abstracts tagged "education, patient"

Abstract Number: 2204 • ACR Convergence 2025
A Novel Framework for Teratogenicity Counseling for Adolescents and Young Adults (AYAs) with Rheumatic Disease on Teratogenic Medications
Brittany Huynh¹, Elizabeth Pfeiffer² and Stacey Tarvin³, ¹Indiana University School of Medicine, Fishers, IN, ²Rhode Island College, Providence, RI, ³Riley Hospital for Children at Indiana University, Indianapolis, IN
Background/Purpose: Prior studies demonstrate low levels of knowledge and reported counseling regarding teratogenicity among AYAs with rheumatic disease. The aim of this study was to…
Abstract Number: 0385 • ACR Convergence 2025
Musculoskeletal Ultrasound Enhances Patient Insight and Clinical Decisions: A Multi-Center Study
Simran Nimal¹, Meridith Balbach², Aslam Fawad¹, Midori Nishio³ and Erin Chew², ¹Mayo Clinic Arizona, Scottsdale, AZ, ²Vanderbilt University, Nashville, TN, ³John Muir Specialty Medical Group, Lafayette, CA
Background/Purpose: Musculoskeletal ultrasound (MSKUS) is a valuable tool for early detection and management of inflammatory arthritis.(1) Although integrated into rheumatology guidelines, training programs, and classification…
Abstract Number: 2195 • ACR Convergence 2025
Enhancing MTX and LEF Safety for Immunosuppressed Women of Childbearing Age with Rheumatic Diseases
Angela Bobak¹, Rhea Sharma², Jordan Jackson³, Maritza Nary², Andrea Berger⁴, Lifang Zhang⁴ and Jonida Cote⁵, ¹Geisinger Medical Center Rheumatology Fellowship, Danville, PA, ²Geisinger Medical Center Internal Medicine Residency, Danville, PA, ³Geisinger Medical Center Medicine-Pediatrics Residency, Danville, PA, ⁴Geisinger Health System, Danville, PA, ⁵Geisinger Health System, Wilkes-Barre, PA
Background/Purpose: The rates of contraceptive counseling and treatment in immunosuppressed women of childbearing age remain low in the United States, despite ACR's Reproductive Health Guidelines…
Abstract Number: 0373 • ACR Convergence 2025
Implementation of a Lupus Self-Management mHealth App: Using Incentives to Drive Engagement
Melissa French¹, Katherine Carpenter², Eric Johnson², Melicent Miller² and Mary Crimmings², ¹Lupus Foundation of America, Alexandria, VA, ²Lupus Foundation of America, Washington, DC
Background/Purpose: As part of a five-year cooperative agreement with the Centers for Disease Control and Prevention, the Lupus Foundation of America (LFA) has implemented the…
Abstract Number: 2194 • ACR Convergence 2025
Utilizing Case-Based Learning to Teach the Teacher and Improve Health Insurance Literacy
Tyler Reese, Vanderbilt University Medical Center, Madison, TN
Background/Purpose: It is expected that pediatric rheumatology providers prepare adolescent and young adult (AYA) patients to successfully navigate the transition from a pediatric to an…
Abstract Number: 0372 • ACR Convergence 2025
Development and Implementation of a Remote Educational Program to Optimize Safe Medication Use in Older Veterans with Rheumatic Diseases
Maria Romero Noboa¹, Hannah Howell², Angelo Gaffo³ and Maria I. ("Maio") Danila⁴, ¹University of Alabama at Birmingham, Birmingham, AL, ²University of Alabama at Birmingham, Birmingham, ³Division of Rheumatology and Clinical Immunology, University of Alabama, Birmingham, AL, USA; Birmingham VA Medical Center, Birmingham, AL, USA, Birmingham, AL, ⁴University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL
Background/Purpose: Symptomatic treatment in rheumatic and musculoskeletal diseases (RMDs) – including glucocorticoids (GCs) and non-steroidal anti-inflammatory drugs (NSAIDs) – can result in improved quality of…
Abstract Number: 2179 • ACR Convergence 2025
Educational online webinars of European Reference Network (ERN) on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ReCONNET) for patients, caregivers and healthcare professionals: six years’ experience
Emanuele Gotelli¹, Rosanna Campitiello¹, Eric HACHULLA², Vanessa Smith³, João Eurico Fonseca⁴, Tadej Avcin⁵, Gabriele Simonini⁶, Silvia Aguilera⁷, Lisa Matthews⁸, Charissa Frank⁹, Wiebke Lautré¹⁰, Monica Testoni¹¹, Diana Marinello¹¹, Rosaria Talarico¹², Marta Mosca¹³ and Maurizio Cutolo¹⁴, ¹University of Genoa, Genoa, Liguria, Italy, ²CHU Lille, Département de Médecine Interne et Immunologie Clinique, Centre de Référence des Maladies Auto-Immunes et Auto-Inflammatoires Rares du Nord, Nord-Ouest, Méditerranée et Guadeloupe (CeRAINOM), Lille, France, Lille, France, ³Ghent University Hospital, Gent, Belgium, ⁴Faculdade Medicina, Universidade de Lisboa, ULS Santa Maria, Centro Académico Medicina de Lisboa, Lisboa, Lisboa, Portugal, ⁵University Children's Hospital, University Medical Center Ljubljana, Ljubljana, Slovenia, ⁶Rheumatology Unit, ERN-ReCONNET center, Meyer Children's Hospital IRCCS, Firenze, Firenze, Italy, ⁷Spanish Antiphospholipid Association, Alicante, Spain, ⁸Relapsing Polychondritis Awareness and Support, London, United Kingdom, ⁹Flemish Association for Hereditary Connective Tissue Disorders, Koersel, Belgium, ¹⁰CHU Bordeaux Pellegrin, Centre de Références Maladies Auto-Immunes Systémiques Rares, Bordeaux, France, ¹¹ERN ReCONNET, Pisa, Italy, ¹²Azienda Ospedaliero Universitaria Pisana, Pisa, Pisa, Italy, ¹³University of Pisa, Pisa, Pisa, Italy, ¹⁴University of Genova, Genova, Italy
Background/Purpose: The European Reference Network on Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET), founded in 2017 by the European Union (EU) Commission, aimed to improve…
Abstract Number: 0371 • ACR Convergence 2025
Lifestyle Coaching in Psoriatic Arthritis: Pilot Findings from an Online eCoaching Program
Judy Zhang¹, Leonard Calabrese², Shilpa Venkatachalam³, angela Degrassi⁴, Yuxuan Jin² and M. Elaine Husni⁵, ¹Cleveland Clinic, Cleveland, United States, Cleveland, OH, ²Cleveland Clinic, Cleveland, OH, ³Global Healthy Living Foundation, New York, NY, ⁴Global Healthy Living Foundation, Upper Nyack, NY, ⁵Department of Rheumatic and Immunologic Diseases, Cleveland Clinic, Cleveland, OH
Background/Purpose: As healthcare shifts towards patient-centered care, multifactorial lifestyle interventions, though effective, often impose time and resource burdens on patients. An online program like IMMUNE…
Abstract Number: 1989 • ACR Convergence 2025
Moving Out of the Kid’s Rheum: Transitioning Young Adult Patients from Pediatric to Adult Rheumatology Practices
Victoria Koenigsberger¹, Madeleine Ward², Meghan Geary³ and Ali Yalcindag⁴, ¹The Warren Alpert Medical School of Brown University, Providence, RI, ²The Warren Alpert Medical School of Brown University, Division of Medicine-Pediatrics, Providence, ³The Warren Alpert Medical School of Brown University, Division of General Internal Medicine, Providence, ⁴The Warren Alpert Medical School of Brown University, Division of Rheumatology, Department of Pediatrics, Milton, MA
Background/Purpose: Young adults with childhood-onset rheumatic conditions encounter challenges and barriers to care when transitioning to an adult rheumatologist. At this Pediatric Rheumatology Clinic, patients…
Abstract Number: 0192 • ACR Convergence 2025
Digital Empowerment on Hold: Adoption Gaps in Prescribable Digital Health Applications – A National Cross-Sectional Study from Germany
Phillip Kremer¹, Daniel Fink², Harriet Morf³, Hannah Labinsky⁴, Karolina Gente⁵, Peer Aries⁶, Martin Krusche¹, Sebastian Kuhn⁷, Axel Hueber⁸ and Johannes Knitza⁹, ¹Division of Rheumatology and Systemic Inflammatory Diseases, III. Department of Medicine, University Medical Center Hamburg-Eppendorf, Hamburg, Germany, ²Rheumazentrum Mittelhessen, Bad Endbach, Germany, ³Department of Medicine ³ - Rheumatology & Immunology, Friedrich-Alexander-Universität (FAU) Erlangen-Nürnberg and Uniklinikum Erlangen, Erlangen, Germany, ⁴University Hospital of Wuerzburg, Würzburg, Germany, ⁵Department of Internal Medicine V - Hematology, Oncology and Rheumatology, University Hospital Heidelberg, Heidelberg, Baden-Wurttemberg, Germany, ⁶Department of Rheumatology, Immunologikum, Hamburg, Germany, ⁷Institute for Digital Medicine, University Hospital of Giessen and Marburg, Philipps University Marburg, Marburg, Germany, ⁸Klinikum Nuernberg, Nuernberg, Germany, ⁹Institute for Digital Medicine, University Hospital Gießen-Marburg, Philipps University, Marburg, Germany
Background/Purpose: Rheumatic and musculoskeletal diseases (RMDs) are chronic conditions that require complex, multidisciplinary care. Since 2020, digital health applications (DiGAs) have been available for prescription…
Abstract Number: 1987 • ACR Convergence 2025
Evaluating User Engagement and Real-World Impact of a PMR-Specific Digital Symptom Assessment Tool: A 12-Month Analysis of PainSpot™
Shilpa Venkatachalam¹, Erik Stone², Ian Carroll³, angela Degrassi³, Shelley Fritz⁴ and David Curtis⁵, ¹Global Healthy Living Foundation, New York, NY, ²Global Healthy Living Foundation, Nyack, NY, ³Global Healthy Living Foundation, Upper Nyack, NY, ⁴Global Healthy Living Foundation, Kalaheo, HI, ⁵Global Healthy Living Foundation, Meriden
Background/Purpose: Polymyalgia rheumatica (PMR) is a systemic inflammatory condition affecting individuals over 50, marked by bilateral shoulder and hip stiffness and pain. Its nonspecific symptoms…
Abstract Number: 0188 • ACR Convergence 2025
Investigating Canadians’ information needs related to lupus: A Google Trends analysis of online search query data
Taylor Williamson¹, Emily Shantz¹, Susan Elliott¹, Christine Sperling², Karen H. Costenbader³ and May Choi⁴, ¹University of Waterloo, Waterloo, Canada, ²None, Calgary, Canada, ³Harvard Medical School and Brigham and Women's Hospital, Boston, MA, ⁴University of Calgary, Calgary, AB, Canada
Background/Purpose: A lack of knowledge surrounding SLE has been identified as a main challenge for patients, particularly those seeking a diagnosis or recently diagnosed. Subsequently,…
Abstract Number: 2606 • ACR Convergence 2025
The Impact of Social Media and Artificial Intelligence on Illness Perception and Treatment Adherence in Patients with Rheumatic Diseases
Egla Samantha Sanchez-Peralta¹, Pablo Gamez-Siller¹, Angel Kevin Garza-Elizondo¹, Fabiola Alejandra Fuentes-Rios¹, Gemma Alely Garcia-Ramos¹, Derek de Jesus Gauna Leal¹, Ariana Silva-de Leon¹, Nathalia Valdez-Benavides¹, Jesus Alberto Cardenas-de la Garza², Margarita Isabel Alarcon-Jarquin³, Dionicio A. Galarza-Delgado⁴ and Diana E. Flores-Alvarado¹, ¹Rheumatology Service, University Hospital “Dr. José Eleuterio González”, Universidad Autónoma de Nuevo León, Monterrey, México, Monterrey, Nuevo Leon, Mexico, ²Rheumatology Service, University Hospital “Dr. José Eleuterio González”, Universidad Autónoma de Nuevo León, Monterrey, México, Monterrey, Mexico, ³Rheumatology Service, University Hospital “Dr. José Eleuterio González”, Universidad Autónoma de Nuevo León, Monterrey, Nuevo Leon, Mexico, ⁴Rheumatology Service, Hospital Universitario Dr. José Eleuterio González, Universidad Autónoma de Nuevo León, Monterrey, Mexico
Background/Purpose: Social media (SM) and Artificial Intelligence (AI) are common sources of health information for patients with chronic diseases. Seeking medical information from unreliable sources…
Abstract Number: 1981 • ACR Convergence 2025
High Patient Satisfaction with a Medication Education Program: Program to Understand Rheumatology Medications with Pharmacist Led Education
Kami Roake¹, Natalie Morlan¹, Stephanie Lim¹, Jennifer Giles¹, Anthony Minjarez², Grant Cannon³, Nadia Grant⁴, Vivianne Allsop⁵, Miranda Jensen¹, Madeline O'Sullivan¹, Christopher Ching¹, Michael Bessen¹, Javier Rios⁶ and Jessica A. Walsh⁷, ¹University of Utah, Salt Lake City, UT, ²Salt Lake City VA, Salt Lake City, UT, ³University of Utah and Salt Lake City VA, Salt Lake City, UT, ⁴University of Utah, Salt Lake City, ⁵University of Utah, South Jordan, UT, ⁶University of Utah Health, Salt Lake City, UT, ⁷Division of Rheumatology, Salt Lake City Veterans Affairs Health and University of Utah Health, Salt Lake City, UT
Background/Purpose: Patient education is critical for managing rheumatic diseases. Rheumatology clinic pharmacists are well-positioned to assess and address gaps in patients’ understanding of their medications.…
Abstract Number: 0152 • ACR Convergence 2025
Exploring internet use and health information behaviour in patients with inflammatory rheumatic musculoskeletal diseases (RMD)
Ioana Andreica¹, Sulafa Chikh Mohamad², Dieter Wiek³, Birgit Barten³, Iulia Roman⁴, Anja Kremser⁵, David Kiefer⁶, Philipp Sewerin¹, Uta Kiltz⁷ and Xenofon Baraliakos⁷, ¹Rheumazentrum Ruhrgebiet Herne; Ruhr-Universität Bochum, Germany, Herne, Germany, ²Rheumazentrum Ruhrgebiet, Ruhr-Universität Bochum, Herne, Germany, ³Deutsche Rheuma Liga, Germany, Bonn, ⁴Rheumazentrum Ruhrgebiet, Ruhr-Universität Bochum, Herne, Germany, ⁵Rheumazentrum Ruhrgebiet, Herne, Germany, ⁶Ruhr-Universität Bochum; Private practice of rheumatology, Hattingen, Germany, Herne, Germany, ⁷Rheumazentrum Ruhrgebiet Herne, Ruhr-University Bochum, Herne, Germany
Background/Purpose: Digital health literacy has recently become a focus of patient-centred recommendations, not only as a key social determinant of health, but also as a…

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