Abstracts tagged "Access to care"

Abstract Number: 0393 • ACR Convergence 2025
Effects of Self-Reported Medication Barriers on Medication Adherence and Disease Activity in a Cohort of Patients with Juvenile Idiopathic Arthritis
Aditi Shaily¹, Allison R. Eckard², Paul Nietert³, Emily Vara¹, Natasha Ruth⁴ and Mileka Gilbert³, ¹Division of Rheumatology, Medical University of South Carolina, Charleston, SC, ²Departments of InternDivision of Infectious Diseases, Medical University of South Carolina, Charleston, SC, ³Medical University of South Carolina, Charleston, SC, ⁴Medical University South Carolina, Charleston, SC
Background/Purpose: Medications used to manage juvenile idiopathic arthritis (JIA) are highly effective in preventing joint damage and provide a favorable prognosis. Many patients, however, struggle…
Abstract Number: 2318 • ACR Convergence 2025
Practice Patterns and Barriers in the Referral, Management and Monitoring of Axial Spondyloarthritis: Insights from an Online Survey of Rheumatologists
Khalid Alnaqbi¹, Mohammed Alaswad², Tariq Al Araimi³, Amr Mahmoud⁴, Samar Al emadi⁵, Hanan Al Rayyes⁶, Khuloud Mohammed⁷ and Xenofon Barliakos⁸, ¹Sheikh Tahnoon Medical city, Al Ain, United Arab Emirates, ²Faculty of Human Medicine, University of Hama, Hama, Syria, ³Royal Hospital, Muscat, Oman, ⁴Department of Pharmacology, Pharmacy Program, Oman College of Health Sciences, Muscat, Oman, ⁵Hamad medical corporation, Doha, Qatar, ⁶Department of Medicine, Prince Sultan Military Medical City, Riyad, Saudi Arabia, ⁷Farwaniya Hospital, Kuwait, Kuwait, ⁸Ruhr-University Bochum, Rheumazentrum Ruhrgebiet, Herne, Germany
Background/Purpose: There is a dearth of literature exploring challenges faced by rheumatologists in the referral, diagnosis, management, and monitoring of patients with suspected axial spondyloarthritis…
Abstract Number: 1916 • ACR Convergence 2025
Adherence to cervical cancer screening programs in women with Systemic Lupus Erythematosus
Carmen Lasa Teja¹, Carolina Aguirre-Portilla², Virginia Portilla González³, Carmen Bejerano-Herreria², Alfonso Corrales-Martínez⁴ and Ricardo Blanco⁵, ¹Division of Rheumatology, Hospital Universitario Marqués de Valdecilla, IDIVAL, Immunopathology Group, Santander, Spain., Riotuerto, Cantabria, Spain, ²Division of Rheumatology, Hospital Universitario Marqués de Valdecilla, IDIVAL, Immunopathology Group, Santander , Spain, Santander, Spain, ³Division of Rheumatology, Hospital Universitario Marqués de Valdecilla, IDIVAL, Immunopathology Group, Santander , Spain, Santander, ⁴Department of Rheumatology, Hospital Universitario Marqués de Valdecilla, Santander, Spain, Santander, Spain, ⁵Rheumatology Division, Hospital Universitario Marqués de Valdecilla, IDIVAL, Immunopathology Group, Santander, Spain, Santander, Cantabria, Spain
Background/Purpose: Women with Systemic Lupus Erythematosus (SLE) are at a higher risk of persistent HPV infection and developing premalignant cervical lesions and cervical cancer. High-risk…
Abstract Number: 1084 • ACR Convergence 2025
Access to rheumatology care in patients with new diagnosis of polymyalgia rheumatica: analysis from a national inception cohort
Sebastian E Sattui¹, Orysya Soroka², Manuel Carpio Tumba³, Emily Holladay⁴, Fenglong Xie⁵, Sarah Mackie⁶, Jeffrey Curtis⁷, Robyn Domsic³ and Iris Navarro-Millan⁸, ¹Division of Rheumatology and Clinical Immunology, University of Pittsburgh, Pittsburgh, PA, ²Weill Cornell Medicine, New York, ³University of Pittsburgh, Pittsburgh, PA, ⁴University of Alabama at Birmingham, Edmond, OK, ⁵The University of Alabama at Birmingham, Birmingham, AL, ⁶University of Leeds, Leeds, United Kingdom, ⁷University of Alabama at Birmingham, Birmingham, AL, ⁸Weill Cornell Medicine, Hospital for Special Surgery, Poughkeepsie, NY
Background/Purpose: Patients with polymyalgia rheumatica (PMR) are commonly diagnosed and cared for by non-rheumatology providers (i.e., primary care). Lack of access to specialty care can…
Abstract Number: 0382 • ACR Convergence 2025
Preventative Health Screening Practices Among 666 Women with Systemic Rheumatic Diseases from the Hospital for Special Surgery Rheumatology Women’s Reproductive Health and Wellness Cohort: A Cross-Sectional Analysis
Sandhya shri Kannayiram¹, Amaya Smole², Lucy Masto³, Yongjay Kim⁴, Neha Nagpal¹, Naiva Manuela Piatchou Donfack¹, Deanna Jannat-Khah¹, Lisa Mandl¹, Sarah Lieber¹, Caroline Siegel¹, Michael Lockshin⁵, Lisa Sammaritano¹ and Medha Barbhaiya¹, ¹HOSPITAL FOR SPECIAL SURGERY, New york, NY, ²Hospital for Special Surgery, Brooklyn, NY, ³Hospital for Special Surgery, San Francisco, CA, ⁴Hospital for Special Surgery, Englewood Cliffs, NJ, ⁵Hospital for Special Surgery, Weill Cornell Medicine, New York, NY
Background/Purpose: Timely preventative health screenings in women with systemic rheumatic diseases (SRDs), especially those with other chronic conditions or who are on immunosuppressive therapy, may…
Abstract Number: 2194 • ACR Convergence 2025
Utilizing Case-Based Learning to Teach the Teacher and Improve Health Insurance Literacy
Tyler Reese, Vanderbilt University Medical Center, Madison, TN
Background/Purpose: It is expected that pediatric rheumatology providers prepare adolescent and young adult (AYA) patients to successfully navigate the transition from a pediatric to an…
Abstract Number: 1914 • ACR Convergence 2025
Performance Comparison of Artificial Intelligence tools ChatGPT, Bing AI, and Google Bard for Clinical Rheumatology Decision Support: When AI Talks Rheumatology
Aakanksha Pitliya¹, Hema Latha Anam², Richard Oletsky², Alexandra Georgiana Boc², Dipabali Chaudhuri² and Rajesh Thirumaran², ¹Mercy Catholic Medical Center, Darby, PA, Clifton Heights, PA, ²Mercy Catholic Medical Center, Darby, PA
Background/Purpose: Artificial intelligence (AI) has shown promise as a tool to assist in clinical decision-making. Given the complex nature of autoimmune pathologies and the critical…
Abstract Number: 1082 • ACR Convergence 2025
Lupus Patient Navigator Program for Improving Care Adherence for Minority Patients
Rashi Vora¹, Samiha Karim², Dulaney Wilson³, Jasvinder Singh⁴, Gary Gilkeson¹, Jim Oates¹ and Diane Kamen⁵, ¹Medical University of South Carolina, Charleston, SC, ²Emory University, Atlanta, GA, ³Medical University of South Carolina, Charleston, ⁴Baylor College of Medicine, Houston, TX, ⁵Medical University of South Carolina, Johns Island, SC
Background/Purpose: Minority patients with systemic lupus erythematosus (SLE) experience a higher disease burden and encounter more barriers to care than White patients, resulting in worse…
Abstract Number: 0368 • ACR Convergence 2025
Factors Associated with Patient Acceptability of Rheumatology Care Delivered by Telemedicine
Hareem Farooq¹, Lesley Jackson¹, Rahima Begum², Gary Cutter², Kenneth Saag³, Jinoos Yazdany⁴ and Maria I. ("Maio") Danila⁵, ¹University of Alabama at Birmingham, Birmingham, AL, ²University of Alabama at Birmingham, Birmingham, ³The University of Alabama at Birmingham, Birmingham, AL, ⁴UCSF, San Francisco, CA, ⁵University of Alabama at Birmingham (UAB), Birmingham VA Medical Center, Birmingham, AL
Background/Purpose: Home-based telemedicine is an efficient healthcare delivery approach. A recent randomized clinical trial (RCT) found that in-person visits may be preferred among rheumatology patients.…
Abstract Number: 2175 • ACR Convergence 2025
Skin Manifestations of Rheumatic Diseases: Educating Providers to Improve Diagnostic Skills
Brittany Ashe¹, Ellen Koch², Tiffany Yang¹ and Kathryn Torok², ¹UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA, ²University of Pittsburgh, Pittsburgh, PA
Background/Purpose: Among pediatric patients with scleroderma, there is a significant delay between onset of symptoms and diagnosis ranging from 1.2-1.6 years for Localized Scleroderma (LS)…
Abstract Number: 1889 • ACR Convergence 2025
Navigating Diagnostic Challenges: Insights into the Patient Journey and Delays in Diagnosing Dermatomyositis from a Real-world Survey in the United States and Europe
Esther Yi¹, Jason Xenakis¹, Chris Blazos², Jade Garratt-Wheeldon², James Piercy², Peter Anderson² and Rohit Aggarwal³, ¹Pfizer Inc., New York, United States of America, New York, ²Adelphi Real World, Bollington, United Kingdom, Bollington, United Kingdom, ³University of Pittsburgh, Rheumatology and Clinical Immunology, Pittsburgh, United States of America, Pittsburgh, PA
Background/Purpose: Idiopathic inflammatory myopathies (IIMs) are a heterogenous group of rare autoimmune inflammatory rheumatic diseases, including dermatomyositis (DM).Methods: Data were drawn from the Adelphi Real…
Abstract Number: 1080 • ACR Convergence 2025
Are Minority Populations Truly Vaccine Hesitant? A Provider-Based Approach to RSV Vaccine Uptake Suggests Otherwise.
pavana sakhamuri¹, Stephen Lindsey², Cathryn Leggio³ and Ellen Mire⁴, ¹LSUHSC, Dept of Rheumatology, Lafayette, LA, ²LSUHSC, Dept of Rheumatology, NEW ORLEANS, LA, ³University Medical center, NEW ORLEANS, LA, ⁴LSUHSC, Dept of Medicine, NEW ORLEANS, LA
Background/Purpose: Respiratory Syncytial Virus (RSV) is a leading cause of hospitalization and mortality in older adults and young children, particularly those with chronic illnesses or…
Abstract Number: 0361 • ACR Convergence 2025
Transition in Focus: Health Care Utilization and Disease Status in Youth with Connective Tissue Diseases— A Single-Center Experience in British Columbia, Canada
Mercedes Chan¹, Lori Tucker¹, Jude AlMasoud¹, Jaime Guzman², Andrea Human¹, David Cabral³, Angela How⁴, Wendy Wong⁵ and Jennifer Corpuz⁶, ¹BC Children's Hospital, Vancouver, BC, Canada, ²University of British Columbia and BC Children's Hospital, Vancouver, BC, Canada, ³BC Children's Hospital and University of British Columbia, Vancouver, BC, Canada, ⁴UBC, Vancouver, BC, Canada, ⁵University of British Columbia, Surrey, BC, Canada, ⁶UBC, New Westminster, BC, Canada
Background/Purpose: Graduating from child and family-oriented to adult-oriented health care is a vulnerable time when youth with chronic disease drop out of, or disengage from,…
Abstract Number: 0199 • ACR Convergence 2024
Delivery of Guideline Concordant Care in Childhood-Onset Lupus Nephritis
Alisha Akinsete¹, Mangala Rajan², Orysya Soroka², Karen Onel³, Monika Safford² and Iris Navarro Millan⁴, ¹Weill Cornell Medicine/ Hospital for Special Surgery, New York, NY, ²Weill Cornell Medicine, New York, NY, ³HSS, New York, NY, ⁴Weill Cornell Medicine, Hospital for Special Surgery, New York, NY
Background/Purpose: 50-80% of children with childhood-onset systemic lupus erythematosus (cSLE) develop lupus nephritis (LN). Children from historically marginalized communities are disproportionately affected by cSLE and…
Abstract Number: 1013 • ACR Convergence 2024
Burden of Emergency Department Visits and Their Outcomes Among Patients with Rheumatoid Arthritis: Insights from the Nationwide Emergency Department Sample (NEDS)
Vishwesh Bharadiya¹, Aman Singh², Parul Berry¹, Dominique Feterman Jimenez³, Grant Hughes³, Alison Bays³, Rachael Stovall³, Rashmi Dhital⁴ and Namrata Singh⁵, ¹AIIMS, New Delhi, India, ²Rajindra Hospital, Patiala, Punjab, India, ³University of Washington, Seattle, WA, ⁴UC San Diego, Brentwood, TN, ⁵University of Washington, Bellevue, WA
Background/Purpose: Patients with rheumatoid arthritis (RA) frequently visit the emergency department (ED). However, very little is known regarding the clinical characteristics of patients visiting the…

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