ACR Meeting Abstracts

ACR Meeting Abstracts

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Abstracts tagged "Access to care"

  • Abstract Number: 027 • 2023 Pediatric Rheumatology Symposium

    Identifying and Understanding JDM in Africa: A Survey of Rheumatology Care Providers from Africa

    Jessica Perfetto1, Laura Lewandowski2, Dawn Wahezi1, Christiaan Scott3 and Angela Migowa4, 1Children's Hospital at Montefiore, New York, NY, 2NIAMS, NIH, Bethesda, MD, 3Red Cross War Memorial Children's Hospital, 4Aga Khan University, Nairobi, Kenya

    Background/Purpose: There is a paucity of data on pediatric rheumatic disease (PRD) in low and middle-income countries (LMIC), creating a false perception of low prevalence…
  • Abstract Number: 014 • 2023 Pediatric Rheumatology Symposium

    Characterizing Lupus in African American Children in Southern United States

    Anita Dhanrajani1, Taylor Long1, Spencer Hagwood2, Leslie Johnson1 and Cynthia Karlson1, 1University of Mississipi Medical Center, Jackson, MS, 2University of Mississipi Medical Center School of Medicine, Jackson, MS

    Background/Purpose: African-American (AA) ethnicity is a known predisposing factor for childhood onset systemic lupus erythematosus (cSLE) and a predictor of poor outcomes. In addition to…
  • Abstract Number: 011 • 2023 Pediatric Rheumatology Symposium

    The Impact of Social Inequities on Presentation of Childhood-Onset Systemic Lupus Erythematosus (cSLE) at a Large Tertiary Center

    Emily Beil1, Eyal Muscal2, Danielle Guffey2, Marietta Deguzman1 and Erin Peckham-Gregory2, 1Baylor College of Medicine, Texas Children's Hospital, Houston, TX, 2Baylor College of Medicine, Houston, TX

    Background/Purpose: Differences in prevalence rates of childhood-onset SLE (cSLE) among different racial/ethnic groups have been well described. Yet, the role of social determinants of health…
  • Abstract Number: 056 • 2023 Pediatric Rheumatology Symposium

    An Advanced Physiotherapist Practitioner Model of Care Is Ideally Suited to Address Workforce Concerns in Pediatric Rheumatology: A Retrospective Chart Review

    Julie Herrington1, KAREN BEATTIE1 and Michelle Batthish2, 1McMaster University, Hamilton, ON, Canada, 2McMaster Children's Hospital, Hamilton, ON, Canada

    Background/Purpose: An Advanced Physiotherapist Practitioner (APP) role was created in September 2020 at McMaster Children's Hospital, Ontario, Canada to support the growing demand for service…
  • Abstract Number: 066 • 2023 Pediatric Rheumatology Symposium

    Telemedicine Use in the Assessment of Juvenile Myositis: A Mixed-Methods Study of an International Healthcare Provider Experience

    Y. Ingrid Goh1, Peter Blier2, Bianca Lang3, Marietta De Guzman4, Julie Fuller5, Kristin Houghton6, Kathryn Cook7, Susan Kim8, Vanessa Carbone1, Heather Tory9, Jo-Anne Marcuz1, Albert Chow10, Liza McCann11, Charalampia Papadopoulou12, Clarissa Pilkington13 and Stacey Tarvin14, 1The Hospital for Sick Children, Toronto, ON, Canada, 2Retired, Amherst, MA, 3Dalhousie University - Halifax, Halifax, NS, Canada, 4Baylor College of Medicine, Texas Children's Hospital, Houston, TX, 5UT Southwestern, Dallas, TX, 6University of British Columbia, Vancouver, BC, Canada, 7Akron Children's Hospital, Akron, OH, 8UCSF Benioff Children's Hospital, San Francisco, CA, 9Connecticut Children's Medical Center, S Glastonbury, CT, 10Loma Linda University, Loma Linda, CA, 11Alder Hey Children's NHS Foundation Trust, Liverpool, United Kingdom, 12UCL Institute of Child Health, and Great Ormond Street Hospital NHS Foundation Trust, Section Head Infection, Immunology, and Rheumatology, London, United Kingdom, 13Great Ormond Street Hospital, London, United Kingdom, 14Riley Hospital for Children at Indiana University Health, Indianapolis, IN

    Background/Purpose: Care of patients with juvenile myositis (JM) involves complex assessments performed by specialized healthcare providers (HCPs). Restrictions during the COVID-19 pandemic required the rapid…
  • Abstract Number: 085 • 2023 Pediatric Rheumatology Symposium

    Identification of Barriers to Care Experienced by Children with Rheumatic Disease: A Qualitative Study

    Olivia Kwan1, Gloria Garcia2, Kiana Johnson3, Melissa Oliver1, Stacey Tarvin4, Alvaro Tori1, Brandi Stevens1 and Martha Rodriguez4, 1Indiana University, Indianapolis, IN, 2Indiana University School of Medicine, Indianapolis, IN, 3East Tennessee State University, Johnson City, TN, 4Riley Hospital for Children at Indiana University Health, Indianapolis, IN

    Background/Purpose: Pediatric rheumatic diseases are known to have disparities in disease outcomes, but many drivers of these inequities are unknown. Social determinants of health are…
  • Abstract Number: 087 • 2023 Pediatric Rheumatology Symposium

    Delays in Care, Declines in Health, and Food Insecurity in Pediatric Systemic Lupus Erythematosus Patients During the COVID-19 Pandemic

    Rebecca Hetrick1, Maria Pereira2 and Marietta De Guzman3, 1Indiana University School of Medicine, Indianapolis, IN, 2Baylor College of Medicine, Houston, TX, 3Baylor College of Medicine, Texas Children's Hospital, Houston, TX

    Background/Purpose: The COVID-19 pandemic created dramatic societal disruptions. Social distancing and measures to reduce disease spread rapidly reshaped healthcare delivery. Recognizing the burden of frequent…
  • Abstract Number: 106 • 2023 Pediatric Rheumatology Symposium

    Caregivers’ Perspectives on Barriers to Care in Juvenile Localized and Systemic Scleroderma

    Leigh Stubbs1, Andrew Ferry2, Danielle Guffey1, Christina Loccke3, Erin Moriarty Wade3, Pamela Pour3, Kaveh Ardalan4, Peter Chiraseveenuprapund5, Ingrid Ganske6, Daniel Glaser7, Gloria Higgins8, Nadia Luca9, Katharine Moore10, Vidya Sivaraman11, Katie Stewart1, Natalia Vasquez Canizares12, Raegan Hunt1, Renata Maricevich1, Kathryn Torok13 and Suzanne Li14, 1Baylor College of Medicine, Houston, TX, 2Oregon Health and Science University, Portland, OR, 3n/a, 4Duke University School of Medicine, Durham, NC, 5University of California - San Diego, San Diego, CA, 6Boston Children’s Hospital and Harvard Medical School, Boston, MA, 7Yale University School of Medicine, New Haven, CT, 8Nationwide Childrens Hospital/ The Ohio State University, Columbus, OH, 9University of Calgary, Calgary, AB, Canada, 10University of Colorado / Children's Hospital Colorado, Denver, CO, 11Nationwide Children's Hospital/ The Ohio State University, Columbus, OH, 12Children's Hospital at Montefiore, New York, NY, 13University of Pittsburgh, Pittsburgh, PA, 14Hackensack Meridian School of Medicine, Joseph M. Sanzari Children's Hospital, Hackensack, NJ

    Background/Purpose: Juvenile localized scleroderma (LS) and systemic sclerosis (SSc) are rare rheumatic diseases often associated with severe morbidities. Delays in diagnosis are common, putting children…
  • Abstract Number: 132 • 2023 Pediatric Rheumatology Symposium

    Quality Improvement Lessons in a New Practice

    Farah Shaya, Sharon Bout-Tabaku and Buthaina Al-Adba, Sidra Medicine, Ar-Rayyan, Qatar

    Background/Purpose: Children with Juvenile Idiopathic Arthritis (JIA) have better disease outcomes with current medications available, yet there is variability in these outcomes. Quality improvement (QI)…
  • Abstract Number: 133 • 2023 Pediatric Rheumatology Symposium

    An Interdisciplinary Team Approach to Implementation of a Social Determinants of Health Screener for Pediatric Rheumatology Patients

    Sarah Campbell1, Rosemary Peterson2, Sarah Barrientos3, Elinore Benett3 and Cori Christenholz3, 1University of Texas at Austin Dell Medical School, Austin, TX, 2Dell Medical School at UT Austin, Austin, TX, 3Dell Children's Medical Center Department of Rheumatology, Austin, TX

    Background/Purpose: Adolescents with chronic disease often struggle with the transition from pediatric to adult healthcare leading to poor follow-up and negative health outcomes. Social determinants…
  • Abstract Number: L09 • ACR Convergence 2022

    Impact on Access to Methotrexate in the Post-Roe Era

    Kristin Wipfler1, Adam Cornish1, Rebecca Schumacher2, Yomei Shaw3, Patricia Katz4 and Kaleb Michaud5, 1FORWARD, The National Databank for Rheumatic Diseases, Omaha, NE, 2FORWARD, The National Databank for Rheumatic Diseases, Wichita, KS, 3FORWARD, The National Databank for Rheumatic Diseases, Santa Fe, NM, 4UCSF, San Rafael, CA, 5University of Nebraska Medical Center, Omaha, NE

    Background/Purpose: Methotrexate is the first line therapy for RA and is used to treat several other rheumatic and non-rheumatic disorders. In high doses, it can…
  • Abstract Number: 0110 • ACR Convergence 2022

    Does Access Reduce Excess Use? Lupus Outcomes in Two Distinct Socioeconomic Groups Seen by University Rheumatologists

    Alissa Chandler1, Rodney Tehrani1 and Varun Bhalla2, 1Loyola University Medical Center, Maywood, IL, 2Loyola University Medical cneter, Chicago, IL

    Background/Purpose: SLE is a multi-organ chronic autoimmune disease, which requires chronic medication use and close follow up with a rheumatologist. Poor disease control can lead…
  • Abstract Number: 0743 • ACR Convergence 2022

    Home-Based Telehealth in Rheumatology: A Systematic Review & Narrative Synthesis

    Alexander Peck1, Rebecca Grainger2, Jeffrey Curtis3, John Cush4, Neelkamal Soares5, Nikhil Davuluri6, William Benjamin Nowell7, Sandeep Sodhi8, Danielle Grauer8, Natalie Fortune6, Shilpa Venkatachalam9, Daniel Kirby10, Jeffrey Alper11, Kelly Gavigan12, Laura Stradford7, David Curtis12 and Swamy Venuturupalli1, 1Cedars-Sinai Medical Center, Los Angeles, CA, 2University of Otago, Wellington, New Zealand, 3Division of Clinical Immunology & Rheumatology, University of Alabama at Birmingham, Birmingham, AL, 4RheumNow, Dallas, TX, 5Western Michigan University, Kalamazoo, MI, 6Attune Health, Beverly HIlls, CA, 7Global Healthy Living Foundation, Nyack, NY, 8Illumination Health, Birmingham, AL, 9Global Healthy Living Foundation, New York, NY, 10Bendcare, Charlotte, NC, 11Bendcare, Naples, 12Global Healthy Living Foundation, Upper Nyack, NY

    Background/Purpose: Home based telehealth (HBT) visits, where a patient is located at home with a remote provider, became common during the COVID-19 pandemic. Patients now…
  • Abstract Number: 1300 • ACR Convergence 2022

    Impact of Demographics and Health Literacy on Transition Readiness for Adolescents with Rheumatic Disease

    Maryem Al Manaa1, Chan-hee Jo2, Una Makris3, Nicole Bitencourt4, Tracey Wright5 and Lorien Nassi6, 1UT Southwestern, Dallas, TX, 2Scottish Rite Hospital for Children, Dallas, TX, 3UT Southwestern Medical Center and Dallas VA, Dallas, TX, 4Loma Linda University Health, San Bernardino, CA, 5UT Southwestern, Plano, TX, 6University of Texas Southwestern, Dallas, TX

    Background/Purpose: The transition to adult care for adolescents with rheumatic disease is a vulnerable period for many and can be associated with adverse outcomes. Adolescents…
  • Abstract Number: PP06 • ACR Convergence 2022

    Search for a New Rheumatologist; What Happened When My Trusted Rheumatologist Retired

    Lawrence Phillips, Noblesville, IN

    Background/Purpose: I was diagnosed with rheumatoid arthritis (RA) in 1999. In 2015 and 2019, two surgeons independently diagnosed me with ankylosing spondylitis (AS) following two…
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