ACR Meeting Abstracts

ACR Meeting Abstracts

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  • Abstract Number: 176 • 2020 Pediatric Rheumatology Symposium

    Implementation of an Abbreviated Neuropsychology Screening Protocol for Patients Diagnosed with Childhood-onset Systemic Lupus Erythematosus

    Camille Wilson1, Alana Leever 1, Jennifer Cass 1, Vidya Sivaraman 2 and Stacy Ardoin 1, 1Nationwide Children's Hospital, Columbus, 2Division of Rheumatology, Nationwide Children's Hospital, Bexley

    Background/Purpose: Research has established that a large percentage of individuals diagnosed with childhood-onset systemic lupus erythematosus (cSLE) report cognitive dysfunction. Disease factors that can impact…
  • Abstract Number: 177 • 2020 Pediatric Rheumatology Symposium

    Educational Outcomes in a Young-Adult Cohort of Patients with Childhood Onset Systemic Lupus Erythematosus (SLE)

    Anita Dhanrajani1, Earl D. Silverman 2, Andrea Knight 3, Deborah Levy 4 and Amanda Steiman 5, 1Hospital for Sick Kids, Edmonton, Alberta, Canada, 2Division of Rheumatology, The Hospital for Sick Children, Department of Paediatrics, University of Toronto, Translational Medicine, Research Institute, The Hospital for Sick Children, Toronto, Canada, 3SickKids Research Institute, Toronto, Canada, 4Division of Rheumatology, The Hospital for Sick Children, Department of Pediatrics, University of Toronto, Toronto, Canada, 5Sinai Health System, Toronto, Ontario, Canada

    Background/Purpose: The literature regarding educational and socioeconomic outcomes in young adults with childhood-onset Systemic Lupus Erythematosus (cSLE) are sparse. cSLE patients recently transitioned to adult…
  • Abstract Number: 178 • 2020 Pediatric Rheumatology Symposium

    HEADSS and Shoulders, Knees and Toes: Improving Sexual Orientation and Gender Identity Screening in the Pediatric Rheumatology Clinic

    Nayimisha Balmuri1, Jacob Spitznagle 1, Alexa Adams 1, Karen Onel 1, Sarah Taber 1 and Nancy Pan 1, 1Hospital for Special Surgery, new york

    Background/Purpose: Adolescence is an especially vulnerable time when many rheumatologic conditions first present for diagnosis and management. Adolescence brings unique challenges including those relating to…
  • Abstract Number: 179 • 2020 Pediatric Rheumatology Symposium

    New Juvenile Idiopathic Arthritis Quality Measure Set for the Pediatric Rheumatology Care and Outcomes Improvement Network

    Julia Harris1, Esi Morgan 2, Sheetal Vora 3, Mileka Gilbert 4, Cagri Yildirim-Toruner 5, Nancy Griffin 6, Kerry Ferraro 7, Stephanie Loos 6, Tingting Qiu 6, Anne Paul 8, Jon Burnham 9, Erik Meyer 7, Michelle Batthish 10, Beth Gottlieb 11, Danielle Bullock 12, Melissa Hazen 13, Ronald Laxer 14, Tzielan Lee 15, Melissa Mannion 16, Judyann Olson 17, Michael Shishov 18, Richard Vehe 19, Jennifer Weiss 20 and C. April Bingham 21, 1Children's Mercy Kansas City, Overland Park, 2Cincinnati Children's Hospital, Cincinnati, 3Atrium Health Levine Children's Hospital, Charlotte, 4Medical University of South Carolina, Charleston, South Carolina, 5Nationwide Children's Hospital, Columbus, 6Cincinnati Children's Hospital Medical Center, Cincinnati, 7Pediatric Rheumatology Care and Outcomes Improvement Network, Cincinnati, 8Cincinnati Children's Hospital Medical Centre, Cincinnati, 9Children's Hospital of Philadelphia, Philadelphia, 10McMaster University, Hamilton, Canada, 11Cohen Children's Medical Center, Lake Success, 12University of Minnesota, Minneapolis, 13Boston, 14The Hospital for Sick Children and University of Toronto, Toronto, Canada, 15Stanford Children's, Palo Alto, 16University of Alabama at Birmingham, Birmingham, 17Medical College of Wisconsin: Children's Wisconsin, Wauwatosa, Wisconsin, 18Phoenix Children's Hospital, Phoenix, 19University of Minnesota, Roseville, 20Hackensack University Medical Center, Hackensack, 21Penn State Children's Hospital, Allentown

    Background/Purpose: The Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) is a learning network to support pediatric rheumatology centers in improving care delivery and patient…
  • Abstract Number: 180 • 2020 Pediatric Rheumatology Symposium

    Influenza Knowledge and Barriers to Vaccination in Immunosuppressed Patients in the Pediatric Rheumatology Clinic

    Julia Harris1, Maria Ibarra 2, Michael Holland 2, Kelly Jensen 2, Emily Fox 2, Jordan Jones 2, Leslie Favier 3, Ashley Sherman 2, Chelsey Smith 4 and Ashley Cooper 2, 1Children's Mercy Kansas City, Overland Park, 2Children's Mercy Kansas City, Kansas City, 3Children's Mercy Kansas City, Leawood, 4Children's Mercy Kansas City, Holden

    Background/Purpose: Many pediatric rheumatology patients are at increased risk of influenza due to immunosuppressive medication use.  Annual influenza vaccination is recommended for all children by…
  • Abstract Number: 181 • 2020 Pediatric Rheumatology Symposium

    Health Care Professionals and Transition to Adulthood for Youth with Juvenile Idiopathic Arthritis

    Sabrina Cavallo1, 1University of Montreal, Montreal, Canada

    Background/Purpose: The transition to adulthood for young people with juvenile idiopathic arthritis (JIA) can be difficult and lead to undesirable outcomes in terms of socio-professional…
  • Abstract Number: 182 • 2020 Pediatric Rheumatology Symposium

    Needs of Youth with Juvenile Idiopathic Arthritis During the Transition to Adulthood

    Sabrina Cavallo1, 1University of Montreal, Montreal, Canada

    Background/Purpose: The transition to adulthood for young people with juvenile idiopathic arthritis (JIA) may be a difficult period with challenges in socio-professional integration and in…
  • Abstract Number: 183 • 2020 Pediatric Rheumatology Symposium

    Collaboration Between Rheumatology Clinic and Specialty Pharmacy to Positively Impact Patient Experience and Hospital Stewardship

    Alaina Linafelter1, Julia Harris 2, Rob Herr 1, Stephanie Quinn 1 and Ashley Cooper 3, 1Children's Mercy Kansas City, Kansas City, Missouri, 2Children's Mercy Kansas City, Overland Park, 3Children's Mercy Kansas City, Kansas City

    Background/Purpose: Biologic medications are commonly utilized to treat pediatric rheumatic diseases.  Being high-cost, most third-party payors require dispensing through a specialty pharmacy.  Common challenges with…
  • Abstract Number: 184 • 2020 Pediatric Rheumatology Symposium

    A Survey of Uveitis Knowledge Among Juvenile Arthritis Patients and Parents

    Ashley Cooper1, Elaine Flanagan 2, Tova Ronis 3, Baruch Goldberg 4, Ashley Sherman 1, Chelsey Smith 5 and Gary Holland 6 for the CARRA investigators, 1Children's Mercy Kansas City, Kansas City, 2Emory University, Atlanta, 3Children's National Hospital, Washington, 4UT Physicians, Houston, 5Children's Mercy Kansas City, Holden, 6

    Background/Purpose: Chronic anterior uveitis is a sight-threatening complication of juvenile idiopathic arthritis (JIA).  Prompt treatment to prevent complications requires regular screening and detection of uveitis…
  • Abstract Number: 185 • 2020 Pediatric Rheumatology Symposium

    pGALS Training Increases Canadian and Kenyan Physicians’ Confidence in Examining the Musculoskeletal System in Children

    Rosie Scuccimarri1, Valeria Valerio 2, Angela Migowa 3, Carol Hitchon 4, Thomas Ngwiri 5, Helen Foster 6 and Ines Colmegna 7, 1McGill University/Montreal Children's Hospital, Montreal, Canada, 2Research Institute of MUHC, Montreal, Canada, 3Aga Khan University Hospital, Montreal, Kenya, 4University of Manitoba, Winnipeg, Canada, 5Gertrude's Children's Hospital, Nairobi, Kenya, 6Newcastle, United Kingdom, 7The Research Institute of the McGill University Health Centre, Montreal (Lachine), Canada

    Background/Purpose: pGALS (paediatric Gait Arms Legs Spine) is a simple, validated musculoskeletal (MSK) assessment tool for the school-aged child. Studies have shown physicians lack confidence in the pediatric…
  • Abstract Number: 186 • 2020 Pediatric Rheumatology Symposium

    Anthropometric Assessment and Food Intake of Parents of Pediatric Patients with Chronic Rheumatic Diseases

    Lucila Pereira1, Agatha Nogueira Previdelli 2, Rosana Gomes de Torres Rossi 2, Wellington Douglas Rodrigues 3, Fernado Luiz Affonso Fonseca 3, Claudio Len 4, Roseli Oselka Saccardo Sarni 3 and Maria Teresa Terreri 4, 1Federal University of Sao Paulo, Sao Paulo, Sao Paulo, Brazil, 2Sao Judas Tadeu University, Sao Paulo, Brazil, 3Federal University of Sao Paulo, Sao Paulo, Brazil, 4Sao Paulo, Brazil

    Background/Purpose: Chronic rheumatic diseases in children and adolescents increase cardiovascular risk. Thus, knowing the eating habits, biomarkers of lipid metabolism and the lifestyle of patients…
  • Abstract Number: 187 • 2020 Pediatric Rheumatology Symposium

    Perspectives of Adolescents and Young Adults Around Implementing Rheumatology Healthcare Transition: Preliminary Qualitative Findings

    Kristine Carandang1, Courtney Wells 2 and Peter Chiraseveenuprapund 3, 1University of California, San Diego, San Diego, 2St Paul, 3University of California - San Diego, San Diego

    Background/Purpose: Nationwide initiatives call for improved healthcare services that empower adolescents to become independent in their health management and remain engaged in healthcare through young…
  • Abstract Number: 188 • 2020 Pediatric Rheumatology Symposium

    A New Multidisciplinary Pediatric SLE Clinic in a Large Urban Care Center: Feasibility, Patient Satisfaction, and Quality After One Year

    Laura Santangelo 1, Grace Cameron 2, Christopher Clardy 2, Cuoghi Edens 2, Shireen Hashmat 2, Taha Moussa 3, Rotem Semo Oz 2, Linda Wagner-Weiner 4, Suzanne Wychocki 2, Carolyn Zic 5 and Melissa Tesher2, 1Prtizker School of Medicine, Chicago, 2university of Chicago, Chicago, 3University of Chicago Medicine, Chicago, 4University of Chicago, Chicago, Illinois, 5Chicago

    Background/Purpose: Clinical care for pediatric systemic lupus erythematosus (pSLE) is complex, requiring close attention to medical, developmental and psychosocial issues. Moreover, pSLE patients tend to…
  • Abstract Number: 189 • 2020 Pediatric Rheumatology Symposium

    Influenza Immunization: A Quality Assurance Survey in a Pediatric Rheumatology Clinic

    Charlene Hopper1 and Gaelle Chedeville 2, 1MCH-MUHC, Montreal, Quebec, Canada, 2The Montreal Children's Hospital, Montreal, Quebec, Canada

    Background/Purpose: EULAR guidelines recommend that annual influenza immunization be considered for all children with pediatric rheumatic diseases based on the possible increased risk of flu…
  • Abstract Number: 190 • 2020 Pediatric Rheumatology Symposium

    Outcomes of an Evidence Based Guideline for the Treatment of Hemophagocytic Lymphohistiocytosis and Macrophage Activation Syndrome

    Kacie Hoyt1, Olha Halyabar 2, Joseph Han 3, Siobhan Case 4, Margaret Chang 5, Ezra Cohen 6, Fatma Dedeoglu 5, Mark Gorman 7, Jonathan Hausmann 8, Erin Janssen 2, Pui Lee 9, Jeffrey Lo 5, Mindy Lo 5, Esra Meidan 10, Peter Nigrovic 1, Jordan Roberts 5, Mary Beth Son 1, Robert Sundel 2, Barbara Degar 5, Melissa Hazen 7 and Lauren Henderson 11, 1Boston Children's Hospital, Boston, Massachusetts, 2Children's Hospital/Boston Medical Center, Boston, 3Mount Sinai School of Medicine, New York, 4Brigham and Women's Hospital, Boston, Massachusetts, 5Boston Children's Hospital, Boston, 6, 7Boston, 8Division of Immunology, Boston Children's Hospital; Rheumatology, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, 9Boston Children's Hospital, Newton, 10Somerville, 11Boston Children's Hospital, Watertown, Massachusetts

    Background/Purpose: Rapid identification of hemophagocytic lymphohistiocytosis (HLH) and macrophage activation syndrome (MAS) coupled with a multidisciplinary approach to management is essential to improve patient outcomes.…
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All abstracts accepted to ACR Convergence are under media embargo once the ACR has notified presenters of their abstract’s acceptance. They may be presented at other meetings or published as manuscripts after this time but should not be discussed in non-scholarly venues or outlets. The following embargo policies are strictly enforced by the ACR.

Accepted abstracts are made available to the public online in advance of the meeting and are published in a special online supplement of our scientific journal, Arthritis & Rheumatology. Information contained in those abstracts may not be released until the abstracts appear online. In an exception to the media embargo, academic institutions, private organizations, and companies with products whose value may be influenced by information contained in an abstract may issue a press release to coincide with the availability of an ACR abstract on the ACR website. However, the ACR continues to require that information that goes beyond that contained in the abstract (e.g., discussion of the abstract done as part of editorial news coverage) is under media embargo until 10:00 AM ET on November 14, 2024. Journalists with access to embargoed information cannot release articles or editorial news coverage before this time. Editorial news coverage is considered original articles/videos developed by employed journalists to report facts, commentary, and subject matter expert quotes in a narrative form using a variety of sources (e.g., research, announcements, press releases, events, etc.).

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