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  • Abstract Number: 1407 • 2016 ACR/ARHP Annual Meeting

    Disease Activity Trackers to Support Treat to Target Strategies: A Needs Assessment Survey

    Boulos Haraoui1, Majed M. Khraishi2, May Shawi3 and Meagan Rachich4, 1Institut de Rhumatologie de Montréal, Montreal, QC, Canada, 2Nexus Clinical Research, St Johns, NF, Canada, 3Janssen Inc, Toronto, ON, Canada, 4Medical Affairs, Janssen, Toronto, ON, Canada

    Background/Purpose:  Custom-built software applications (apps) have become an integral part of medical practice today to help physicians be more efficient. They are being widely used…
  • Abstract Number: 1408 • 2016 ACR/ARHP Annual Meeting

    Impact of Participation in the Adalimumab (Humira) Patient Support Program on Patient Reported Outcomes Among Patients with Rheumatoid Arthritis: Passion Study

    Filip van Den Bosch1, Andrew Östör2, Siegfried Wassenberg3, Naijun Chen4, Chen Wang5, Vishvas Garg4 and Jasmina Kalabic6, 1Rheumatology, Ghent University Hospital, Gent, Belgium, 2Addenbrooke's Hospital, Cambridge, United Kingdom, 3Rheumazentrum, Ratingen, Germany, 4AbbVie Inc, North Chicago, IL, 5AbbVie Inc., North Chicago, IL, 6AbbVie Deutschland GmbH & Co. KG, Ludwigshafen, Germany

    Background/Purpose: Patient (pt) Support Program (PSP) is offered to pts who are prescribed adalimumab (ADA) for their Rheumatoid arthritis (RA). How participation in a PSP…
  • Abstract Number: 1409 • 2016 ACR/ARHP Annual Meeting

    Increase in the Use of Validated Disease Activity Scores in Current Daily Clinical Practice Compared to 2007

    Marieke J. de Jonge1, Laura W.M. Boerboom1, Anita M.P. Huis1, Julia M. Weijers1, Mart A.F.J. van de Laar2, Marlies E.J.L. Hulscher1 and Piet L.C.M. van Riel1,3, 1Radboud university medical center, Radboud Institute for Health Sciences, IQ healthcare, Nijmegen, Netherlands, 2University of Twente, Department of Psychology, Health and Technology, Enschede, Netherlands, 3Bernhoven, Department of Rheumatology, Uden, Netherlands

    Background/Purpose: International guidelines and studies recommend rheumatologists to use validated measures to monitor disease activity, such as the Disease Activity Score of 28 joints (DAS28).…
  • Abstract Number: 1410 • 2016 ACR/ARHP Annual Meeting

    Is the Self-Assessment of Disease Activity (auto-DAS28) By Patients a Feasible and Acceptable Measure over the Long Term in Rheumatoid Arthritis (RA)? Three-Year Follow-up of a Nurse-Led Program in 771 Patients with Established RA

    Laure Gossec1, Frantz Foissac2, Martin Soubrier3, Anna Molto4, Françoise Fayet5, Thomas Bardin6, Francis Berenbaum7, A Cantagrel8, Marie Hélène Cerato9, Gerard H. Chales10, Isabelle Chary-Valckenaere11, Bernard Combe12, Emmanuelle Dernis Labous13, Liana Euller-Ziegler14, Rene-Marc Flipo15, Philippe Gaudin16, Melanie Gilson17, Sandrine Guis18, Xavier Mariette19, Gaël Mouterde20, Sophie Pouplin21, Pascal Richette22, Alain Saraux23, Thierry Schaeverbeke24, Jean Sibilia25 and Maxime Dougados26, 1Rheumatology, Pitié Salpêtrière Hospital, Paris, France, 2COMEDRA working group, Paris, France, 3Rheumatology, Department of Rheumatology, CHU Gabriel Montpied, Clermont-Ferrand, France, 4Hopital Cochin, Paris Descartes University, Paris, France, 5Rheumatology, CHU Gabriel-Montpied, Clermont-Ferrand, France, 6Hôpital Lariboisière, Paris, France, 7Rheumatology dept, APHP St-Antoine hospital, Univ Paris 06, Paris, France, Paris, France, 8Purpan Hospital, Toulouse, France, 9University Hospital, Toulouse, France, 10CHU RENNES, Rennes, France, 11University Hospital, Nancy, France, 12Département Rhumatologie, Hôpital Lapeyronie, Montpellier, France, 13Le Mans Hospital, Le Mans, France, 14Rheumatology, Nice, France, 15Rheumatology, University Hospital, Lille, France, 16Rheumatology, Grenoble University Hospital, France, Grenoble, France, 17Hopital Sud, Grenoble, France, 18Rheumatology 1, CRMBM-CEMEREM 7339, Aix-Marseille Université, AP-HM, CNRS, Marseilles, France, 19Rheumatology, Rheumatology department, Bicetre Hospital, Paris-Sud University, Le Kremlin Bicetre, France, 20Rheumatology Department, Hopital Lapeyronie, Montpellier, France, 21Rheumatology Department & Inserm 905, Department of Rheumatology, Rouen University Hospital & Inserm 905, Institute for Biomedical Research, University of Rouen, Rouen, France, 22Rhumatologie, Hôpital Lariboisière, Paris, France, 23Rheumatology Department, CHU de la Cavale Blanche, Brest Cedex, France, 24Rheumatology, CHU Bordeaux, Bordeaux, France, 25Department of Rheumatology, Strasbourg University Hospital, Strasbourg, France, 26Cochin Hospital and Paris 05 University, Paris, France

    Background/Purpose: Patients with RA can be trained in self-assessment of disease activity by a self-assessment of their joints and calculation of the Disease activity Score…
  • Abstract Number: 1411 • 2016 ACR/ARHP Annual Meeting

    An Electronic MDHAQ (multidimensional health assessment questionnaire) Beyond an Electronic RAPID (routine assessment of patient index data): 21.3% of Rheumatoid Arthritis Patients Identified As Having Secondary Fibromyalgia Versus 3.5% By Clinicians

    Theodore Pincus and Nathaniel Cook, Rheumatology, Rush University Medical Center, Chicago, IL

    Background/Purpose: A major impediment to use of patient questionnaires in routine clinical care has been the absence of electronic entry for patients and for doctors…
  • Abstract Number: 1412 • 2016 ACR/ARHP Annual Meeting

    Validation of the Danish Version of the Stanford Health Assessment Questionnaire Disability Index and Determination of the Minimal Clinically Important Difference in a Cohort of Rheumatoid Arthritis Patients Using the Rasch Measurement Model

    Lykke Midtbøll Ørnbjerg1, Karl Bang Christensen2, Alan Tennant3 and Merete Lund Hetland4, 1Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Rigshospitalet, Copenhagen, Denmark, 2Department of Biostatistics, University of Copenhagen, Copenhagen, Denmark, 3Swiss Paraplegic Research, Nottwil, Switzerland, 4Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Rigshospitalet, Denmark, Copenhagen, Denmark

    Background/Purpose: The Stanford Health Assessment Questionnaire Disability Index (HAQ-DI) is a widely used patient reported outcome for functional disability in RA. Minimal clinically important differences…
  • Abstract Number: 1413 • 2016 ACR/ARHP Annual Meeting

    Establishing Clinical Severity for Patient Reported Outcomes Measurement Information System Measures in Adult Patients with Rheumatic Diseases

    Vivek Nagaraja1, Constance Mara2, Carole V. Dodge3, David Fox4, Puja Khanna5, Timothy Laing4, W Joseph McCune6, Rajaie Namas4, Debra Bancroft Rizzo4, Kelly Vanoverbeke4, Amber Young7, Maha Almackenzie1 and Dinesh Khanna8, 1Department of Medicine [Division of Rheumatology], University of Toledo, Toledo, OH, 2James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 3Physical Medicine and Rehabilitation [Occupational Therapy], University of Michigan, Ann Arbor, MI, 4Department of Medicine [Division of Rheumatology], University of Michigan, Ann Arbor, MI, 5Rheumatology, University of Michigan, Ann Arbor, MI, 6Int Med/ Rheum, University of Michigan, Ann Arbor, MI, 7Department of Internal Medicine, Division of Rheumatology, University of Michigan, Ann Arbor, MI, 8University of Michigan, Ann Arbor, MI

    Background/Purpose: Different patient reported outcome [PRO] measures are used for rheumatic diseases [RD], and there is lack of uniform generic illness measures across the disease…
  • Abstract Number: 1414 • 2016 ACR/ARHP Annual Meeting

    Access to an Active, Interactive Self-Assessment e-Health Platform Improves Patient-Physician Communication in Rheumatoid Arthritis: Results of a Randomized Controlled Trial Including 320 Patients over 1 Year

    Laure Gossec1, Herve Servy2, Martin Soubrier3, Jean-Michel Joubert4, Wienia Czarlewski4, Bernard Combe5, Jean-Marie Berthelot6, Daniel Wendling7, Alain Cantagrel8, Emmanuelle Dernis9, Laurent Grange10, Catherine Beauvais11, Aleth Perdriger12, Henri Nataf13 and Maxime Dougados14, 1Paris 06 University and AP-HP, Hôpital Pitié Salpêtrière, Paris, France, 2Sanoia, La Ciotat, France, 3Rheumatology, Department of Rheumatology, CHU Gabriel Montpied, Clermont-Ferrand, France, 4UCB Pharma, Colombes, France, 5Département Rhumatologie, Hôpital Lapeyronie, Montpellier, France, 6Service Rheumatology, CHU de Nantes, Nantes, France, 7Service de Rhumatologie, CHU Jean Minjoz, Besancon, France, 8Service de Rhumatologie, Hôpital de Purpan CHU Toulouse, Toulouse, France, 9Service de Rhumatologie, Centre Hospitalier, Le Mans, France, 10CHU Grenoble - Hôpital SUD, Echirolles, France, 11Service de Rhumatologie, Hopital Saint Antoine, Paris, France, 12C.H.R. Hôpital Sud, Rennes, France, 13Cabinet Medical, Mantes-la-Jolie, France, 14Service de Rhumatologie B, Hopital Cochin, Paris, France

    Background/Purpose: Electronic (e)-health is a rapidly evolving field. Interactive online services are available and may be useful for patients with chronic diseases such as rheumatoid…
  • Abstract Number: 1415 • 2016 ACR/ARHP Annual Meeting

    Impact of the Clinical Disease Activity Index to Treat to Target Rheumatoid Arthritis in the Ambulatory Setting

    Irene Lazarus1, Salahuddin Kazi2, Alok Dwivedi3, Christopher Dodoo4 and Kanchan Pema5, 1Internal Medicine, Texas Tech University Health Science Center, El Paso, TX, 2Rheumatology, UT Southwestern Medical Center, Dallas, TX, 3Biomedical Sciences Division of Biostatistics and Epidemiology, Texas Tech University Health Sciences Center, El Paso, TX, 4Texas Tech University Health Sciences Center, El Paso, TX, 5Internal Medicine/Rheumatology, Texas Tech University Health Science Center, El Paso, TX

    Background/Purpose: Since 2008 the Center for Medicare and Medicaid Services (CMS) has been in the process of changing patient care to quality-valued healthcare. In order…
  • Abstract Number: 1416 • 2016 ACR/ARHP Annual Meeting

    Sustained Improvement in Documentation of Disease Activity Measurement As a Quality Improvement Project at an Academic Rheumatology Clinic

    Melissa Wells1, Rebecca Sadun2, Malithi Jayasundara1, Nicholas Holdgate1, Samya Mohammad1, Jason Weiner1, Tayseer Haroun1, Stephen Balevic2, Lisa Criscione-Schrieber1 and Mala Kaul1, 1Rheumatology, Duke University Medical Center, Durham, NC, 2Rheumatology Adult and Pediatric, Duke University Medical Center, Durham, NC

    Background/Purpose: Measurement of disease activity is considered a quality measure for management of rheumatoid arthritis (RA) patients. One validated measure of RA disease activity is…
  • Abstract Number: 1417 • 2016 ACR/ARHP Annual Meeting

    Back to Feeling Normal Again: Patients with Rheumatoid Arthritis in Remission

    Linda Rasch1, Maarten Boers2,3, Willem F. Lems1,2, Samina Turk4, Dirkjan van Schaardenburg2,5, Tessa Sanderson6, Sarah Hewlett6 and Lilian van Tuyl1, 1Amsterdam Rheumatology and immunology Center | VU University Medical Center, Amsterdam, Netherlands, Amsterdam, Netherlands, 2Amsterdam Rheumatology and immunology Center | Reade, Amsterdam, Netherlands, Amsterdam, Netherlands, 3Epidemiology & Biostatistics, VU University Medical Center, Amsterdam, Netherlands, Amsterdam, Netherlands, 4Rheumatology, Amsterdam Rheumatology and immunology Center | Reade, Amsterdam, Netherlands, Amsterdam, Netherlands, 5Clinical Immunology & Rheumatology F4.105, Amsterdam Rheumatology and immunology Center | Academic Medical Center, Amsterdam, Netherlands, Amsterdam, Netherlands, 6Nursing and Midwifery, University of the West of England, Bristol, United Kingdom, Bristol, United Kingdom

    Background/Purpose: The American College of Rheumatology/European League Against Rheumatism (ACR/EULAR) definition of remission in rheumatoid arthritis (RA) [1] lacks information on patient perceived remission [2].…
  • Abstract Number: 1418 • 2016 ACR/ARHP Annual Meeting

    Rheumatologist: If You Fell Ill with Seropositive Active Rheumatoid Arthritis Yourself, What to Do!

    Kalle Aaltonen1, Elena Nikiphorou2,3, Nasim A. Khan4 and Tuulikki Sokka5, 1Helsinki University, Helsinki, Finland, 2Whittington Hospital, London, United Kingdom, 3Jyväskylä Central Hospital, Jyväskylä, Finland, 4Rheumatology, University of Arkansas for Medical Sciences and Central Arkansas Veterans Healthcare System, Little Rock, AR, 5Jyvaskyla Central Hospital, Jyväskylä, Finland

    Background/Purpose: International and national bodies have given evidence-based recommendations for rheumatoid arthritis (RA) treatment. We assessed the general uptake of these recommendations by asking rheumatologists…
  • Abstract Number: 1419 • 2016 ACR/ARHP Annual Meeting

    Validation of the French Version of Lupus Patient Reported Outcome (LupusPRO), a Disease-Specific Patient Reported Outcome for Lupus Patients

    Hervé Devilliers1, Meenakshi Jolly2, Maxime Samson3, Bernard Bonnotte4, Francois Maurier5, Pascal Sève6, Nadine Magy-Bertrand7, Denis Wahl8, Jean-Loup Pennaforte9, Thierry Martin10, Olivier Aumaître11, Gilles Blaison12, Philip Bielefeld13, Alexis Mathian14, Christine Binquet15 and Zahir Amoura14, 1Department of Internal Medicine and Systemic Diseases, Hôpital François Mitterrand, CHU de Dijon, Dijon, France, 2Department of Medicine, Section of Rheumatology, Rush University Medical Center, Chicago, IL, 3Dijon University Hospital, Dijon, France, 4Department of Internal Medicine and Clinical Immunology, Hôpital François Mitterrand, CHU de Dijon, Dijon, France, 5Department of Internal Medicine, HP Metz Belle Isle Hospital, Metz, France, 6Internal medicine, Internal medicine department, Hôpital de la Croix-Rousse, Hospices Civils de Lyon, Lyon, France, 7CHU Jean-Minjoz, Service de médecine interne et immunologie clinique, Besançon, France, 8CHU de Nancy, Vascular Medicine Division and Regional Competence Centre For Rare Vascular And Systemic Autoimmune Diseases; and UMR_S U1116 Research Unit, France, Nancy, France, 9Internal Medicine, Internal medicine departement, CHU de Reims, Reims, France, 10Internal medicine and clinical immunology departement, Strasbourg University Hospital, Strasbourg, France, 11Division of internal Medicine, Centre Hospitalier Universitaire, Hôpital Gabriel Montpied, Clermont–Ferrand, Clermont–Ferrand, France, 12Internal medicine departement, Colmar Hospital, Colmar, France, 13Internal medicine and systemic disease unit, Dijon University Hospital, Dijon, France, 14Department of Internal Medicine 2. Referal center for SLE/APS, Hôpital Pitié-Salpêtrière, AP-HP, UPMC Univ Paris 06 & French National Reference Center For Systemic Lupus and Antiphospholipid Syndrome, Paris, France, 15INSERM, CIC 1432, Clinical Epidemiology Unit, Hôpital François Mitterrand, CHU de Dijon, Dijon, France

    Background/Purpose: To assess validity and reliability of French LupusPRO in France. Methods: After cross-cultural adaptation and harmonization for France, the LupusPRO was administered along with…
  • Abstract Number: 1420 • 2016 ACR/ARHP Annual Meeting

    Validation of Lupuspro V1.8, Disease Targeted Patient Reported Outcome for Systemic Lupus Erythematosus

    Meenakshi Jolly1, Nisarg Gandhi2, Winston Sequeira2 and Joel Block2, 1Rush, Chicago, IL, 2Rheumatology, Rush University Medical Center, Chicago, IL

    Background/Purpose: Disease Specific Patient reported outcome measures capture unique domains relevant to patients with a specific disease. LupusPRO is targeted towards measuring health (HRQOL) and…
  • Abstract Number: 1421 • 2016 ACR/ARHP Annual Meeting

    Responsiveness of Lupus Impact Tracker Among Chinese Patients with Lupus

    Chi Chiu Mok1, Meenakshi Jolly2 and Joel Block3, 1Medicine, Tuen Mun Hospital, Hong Kong, Hong Kong, 2Rush, Chicago, IL, 3Rheumatology, Rush University Medical Center, Chicago, IL

    Background/Purpose: Lupus Impact Tracker (LIT), a 10 item, patient reported outcome tool for patients with systemic lupus erythematosus (SLE) has undergone psychometric validation and responsiveness…
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